My mother took me to my pediatrician and then to an internist, but the only diagnosing to do was with my psyche and not my physical self. I was devastated. How could I be thinking up something this awful? Clearly there was something else. I knew it, my mom knew it, yet we were getting nowhere. My resolve began to turn to hopelessness when I finally went to the gynecologist, he taught me a new word: Endometriosis. I could barely pronounce the word let alone actually believe a doctor had finally uncovered what might be the answer to years of questions. I was beginning to see a light at the end of the tunnel, but that light was quickly dimmed when I found our that Endometriosis or "endo" was incurable. The doctor came out and told my family what he had found; Endometriosis. Little did I realize that this one word would change my life forever.
I have since had seven laparoscopies, a total abdominal hysterectomy slapingo- oopherectomy (removal of uterus, both tubes and ovaries) and two subsequent surgeries for an adhesions and bowel obstruction. I have been on Lupron twice, Danazol once and Birth Control Pills. As you well know, this was only a form of maintenance, and after each cycle was finished, I would need surgery again. A pattern soon developed. Pain, medication, surgery, hormonal medication, brief reprieve and it would begin all over gain. I was diagnosed at 18 and I am now 29. I feel like I am far older. Somehow, living with this disease makes you grow up fast.
You are never alone.
All the best, Jenn