Hello fellow cyber users! Im Jamie-Lee. This is a picture of me advertising for the Crippled Children's Association in South Australia. It's a few years old now, but a favourite.
I am 11 years old, and I am new to the internet. I was born with Arthrogryposis Multiplex Congenita. Basically, this mean that my joints (i.e. elbows, knees....etc) are fixed. They don't bend....and I can't walk.
Last year, I came to live with my Dad (Scott) and his wife Karen. Karen left her job so she could take the best possible care of me and my brothers and sister.
Karen has made this page for me to try and locate anyone else in the world with the same condition as me. If there is anyone out there who has this condition, or knows of someone else who has, please, please email us below and tell us how it has affected you. In particular, if you are a doctor or physiotherapist who has treated anyone with this disability, also, please contact us.
You may recognise me from the commercials for the "Down Every Street Appeal".
Now I have an appeal of my own. The reason I am asking for your help is simple. I want to walk. I want it more than anything.
I have met someone who lives in South Carolina and has my condition. Her name is Jessica. Her family refused to accept the "will never walk" diagnosis, and performed physiotherapy and exercise on Jessica multiple times per day from the age of 6 months. At 3, Jessica walked with ankle splints. Now, at 14, she can ride a horse, run and play ball, ride a bike and even mows the lawns and climbs ladders. She is my inspiration.
Since meeting Jessica on the internet and hearing of her success, I have done something I never thought possible. It may not seem much to you, but I got out from my wheelchair onto my bed. I then got back into my wheelchair. I did this without help. I have also opened my door by myself, and turned the light on!!!
Karen and Dad are so proud of me and they are encouraging me now to do more...go further. The ultimate goal here is to walk, ride and play with my 3 brothers, and my sister. This would be a dream come true.
UPDATE
Since this page was created, Karen and Dad have contacted doctors and physiotherapists in the hope of finding some way for me to walk unaided. It seems as though each individual affected with AMC, is affected differently. Just because one of us walks, does not automatically mean another will. Having said that, I was not given the rigourous physiotherapy that US patients seem to receive. I feel that if I had, I too may be walking now.
There is no-one here in South Australia that really feels I will ever walk unaided. I am just grateful for my strong mind and my life. There are many other children and people out there that are a lot worse off than I am. Thank you.
Here are some pictures of me at various stages of my life.....Click on the small images to view the larger one.
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As a Newborn |
At Age 1 |
At Age 2 |
At Age 3 |
At Age 4 |
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My brother Todd |
In the Yard |
On the Slide |
At Christmas |
In the Spirit! |
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Prettied Up? |
Horse Riding |
At the Wedding |
My New Bro Jake |
Daggy |
Avenues - Arthrogryposis Support Group Official Spice Girls Site!!!!!
My
Dad's Home Page
My brothers and sisters:
I love listening to music and have a band at school. We like to play Back Street Boys music. I also like Human Nature, Spice Girls and Hanson.
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