I am an ovarian cancer survivor!!!
I was diagnosed in March, 1996, with low malignant potential ovarian cancer, stage IIC. Since then, I have become a listowner, marched in Washington, and put up several web pages - all to help people gain knowledge about ovarian cancer.
Ovarian cancer is NOT silent - it whispers ... so listen.
The National Ovarian Cancer Coalition (NOCC) site has many many links (http://www.ovarian.org)
The Ovarian Cancer National Alliance (http://www.ovariancancer.org)
The PDQ (Physician's Data Query) for your particular cancer - (get the physician copy, not the patient's one, there's more detail) (http://oncolink.upenn.edu/pdq)
The main Oncolink site (http://oncolink.upenn.edu)
Archives of many of the cancer e-mail lists (http://www.acor.org)
Join a cancer e-mail list (http://www.acor.org)
Conversations newsletter for ovarian cancer (http://www.ovarian-news.com)
The Society of Gynecological Oncologists (http://www.sgo.org)
Steve Dunn's Cancer Guide (http://cancerguide.org)
Ceil Sinnex's site for Ovarian Plus (http://www.monitor.net/ovarian)
Mike Davis' database on treatments and more (http://www.slip.net/~mcdavis/ovarian.html)
Stephen Jay Gould's "The Median Isn't the Message" (the best essay about statistics and cancer to be found) (http://cancerguide.org/median_not_msg.html)
Medscape - you have to register but it's free - summary of new
articles, and archives to search (http://www.medscape.com)
Government info (http://www.healthfinder.gov)
Women's Cancer Center (http://womenscancercenter.com/wcctoc.html)
Ovarian Cancer Information
(http://gynoncology.obgyn.washington.edu/Tutorials/
OvarianCancer.html)
Ovarian cancer staging info
(http://gynoncology.obgyn.washington.edu/Tutorials/
staging.ovarian.html)
CancerHelp (http://members.aol.com/abiaca/cancer.htm)
Frontiers of Bioscience, The Journal
(http://www.bioscience.org/dualjour.htm)
You can enter a keyword and do a search here, or ask questions to be answered by doctors (http://forums.obgyn.net/forums/womens-health)
Yahoo (http://www.yahoo.com)
Another ovarian site (http://www.monitor.net/ovarian)
Commonweal Health (http://www.commonwealhealth.org)
Mia & Nancy's "Conversations with Cancer" (http://www.commonwealhealth.org/dialogue.html)
Cancer Search (http://cansearch.org)
Women's Cancer Network (among other things, you can search for a gynecologic oncologist here) (http://www.wcn.org)
Clinical Trials Information (http://www.centerwatch.com)
.................................................
-- The following is a list of resources on rare cancers:
--- National Organizations of Rare Disorders, Inc. (http://www.pcnet.com/~orphan)
--- NIH Office of Rare Disease (http://raredisease.info.nih.gov/ord/)
--- Steve Dunn's Cancerguide site (http://cancerguide.org/rare_cancer.html)
--- Medline search (http://www.nlm.nih.gov)
..........................................................
Alternative treatment: click on ENTER ALT HEALTH, go to REGIMENS and "suggested regimens" (http://www.mindspring.com/~turf)
Women's Health News Archives (http://www.yellowline.com/news/archive.html)
Medline access
Medline is the electronic bibliography of the National Library of Medicine. Usually just a summary is online.
(http://www.healthgate.com)
Another Medline site (http://www.medscape.com)
Here are some drug information sites:
AOL: keyword "Drug References"
CompuServe: go Drugs
Housecall (http://www.housecall.com)
RxList (online drug index) (http://www.rxlist.com)
Pharmacy Info (http://pharminfo.com)
GSM (drug info site) (http://www.gsm.com)
On-line full-text articles - you have to subscribe and there is a fee (amount
unknown) (http://ovid.com/homedoc.htm)
SmithKline site on Hycamtin (Topotecan) (http://www.hycamtin.com)
CancerCare (http://www.cancercare.org)
Cancer Online (http://www.cancerONLINE.org)
Cancer Nutrition (http://www.cancernutrition.com)
Another ovarian cancer site (http://www.cancer.org/cidSpecificCancers/ovarian/index.html
)
Lubricants, etc. on the web - hope this doesn't offend but I know
some of us need this, and they don't sell their mailing list (http://www.goodvibes.com)
Bethany's web page has resources on it (http://www.umich.edu/~bethany/health.html)
This links directly to Bethany's web page of books (http://www.umich.edu/~bethany/books.html)
Another web site (http://www.userworld.com/users/csmcmorr/friends.html)
Essiac info_1 (http://www.harvest-moon.com/flor3.htm)
Essiac info_2 (http://livelinks.com/sumeria/health/essiac3.html)
Essiac info_3 (http://www.indy.net/~preston/hope.html)
Soy info (http://www.soyfoods.com/symposium97/index.html)
Healthgate (access to several databases including Medline, AIDSLine, and
CancerLit)
(http://www.healthgate.com/HealthGate/MEDLINE/search.shtml)
InteliHealth (joint venture of Aetna Insurance and Johns Hopkins Univ.
Hospital) (http://www.intelihealth.com)
Mayo Clinic (http://www.mayohealth.org)
Medline (huge database of abstracts) (http://www.ncbi.nlm.nih.gov/PubMed/)
The New England Journal of Medicine (http://www.nejm.org)
Wellness Web alternative and conventional medicine info) (http://www.wellweb.com)
Health on the Net (nonprofit, based in Geneva, monitors
medical Web sites to make sure they are credible) (http://www.hon.ch)
American Association for Cancer Research
(Scientific society, abstracts) (http://www.aacr.org)
Association of Community Cancer Centers
(database of cancer centers, and other info) (http://www.assoc-cancer-ctrs.org)
CancerNet (from the National Cancer Institute -
some of the most up-to-date info on the net) (http://cancernet.nci.nih.gov)
HealthAtoZ - Support group and search engine with reviewed sites (http://www.healthatoz.com)
Mental Health Net (guide to mental health resources) (http://www.cmhc.com)
Sapient Health Network (information for people with
chronic and serious illnesses) (http://www.shn.net)
The American Cancer Society (http://www.cancer.org)
Doctors' credentials (http://www.certifieddoctor.org)
Click on Doctor Finder to find where your doctor was trained (http://www.ama-assn.org)
Links to other sites on the Web
Deborah's Home Page
Pictures from The March, Washington, DC, September, 1998
More pictures from the March
Disclaimer: I have a lot of sites listed here. I do not mean to imply that these are sites with accurate information. They have not all been investigated. This list was created simply as a help for people who are looking for information on cancer and other diseases on the internet.
© 1997 thinker25@aol.com
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