Dizziness

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My Experience with Dizziness....

I have been battling dizziness since March of 1993, about 2 weeks before I was due to open my restaurant and although I've had numerous tests which include 2 MRI's, a C.A.T scan, spinal tap, visual and audio evoked potential testing, blood workups, steroid treatments and a few others..no one has been able to tell me whats causing this. The closest I've come to any diagnosis is "It seems you MAY have Labrynthitis" but no one is able or willing to commit one way or the other, which is REAL frustrating!! Finally my doctor said that I have (MS)Primary Progressive Mulitiple Sclorosis which was diagnosised in 1997, so he put me on all the "ABC Drugs" like the Avonnex, Betaseron,and Copaxon but the only thing that those drugs did was make me feel worse so I stopped taking them all! besides I really hate to use syringes for anything! I was also on Rebif which was again a shot! I'm NOT a drug addict!!

A month later, it "hit" again and again with NO warning but that time it never went away! I haven't vomited since then but I'm still very dizzy and "off center". The doctor put me on all kinds of motion sickiness pills including Antivert, Promethizene, steroids, and a few others but nothing really helps.

My memory has been affected too, more the short term memory. I can remember things thats happened YEARS ago or months ago but I can't seem to remember things that happened a day ago or even hours ago. That gets REAL frustrating as my memory had ALWAYS been so good.I mean even to date I can remember my drivers license #, my S.S # and even my bank account # but if you asked me something that happened a few hours ago I wouldn't have a clue! I get very depressed and have even attempted suicide. No one understands how I'm feeling because to look at me I "look" fine. There's no signs of anything being wrong like if I had a broken arm or something. So its hard for people to believe that there IS something wrong. I can't do allot of stuff like I used to before this all happened. And I'm not the only one that this is affecting, my kids suffer because of this also in that I can't do allot of things with them that I'd like to do. AND since ALL of this happened ALL of my doctors either retired or just plain stopped seeing me, my primary care dr., my physical therapist, and my Phyciatrist whom I really spilled ALL of my thoughts and feelings with and he even broke down the walls I had builted around me because I am a real private person! That kind of makes me believe that IF no one cares then why should I? On September 05, 2005 I saw a BRAND NEW neurologist, so far so good. Oh hell I can't take this anymore....when I'm at any kind of get-to-gather like with the family or just friends I just sit there and don't say a word because the way my mind works now the things that I'm thinking don't come out right either that or my speech is so bad no one understands a word I'm saying so instead of me trying to explain what I said I just don't speak! I have tried getting ahold of all the agentcies..."State for medicaid, And the federal government for medicare perscription drug help" but did any of them listen NOOOOO so they too all turned their backs on me.....I mean I wasn't asking for help I was BEGGING FOR HELP.

A diagnosis...finally!!


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Last revised: Sunday, November 30, 2008 9:04 PM