Words from the founder ...
Thank you for taking time to visit this website. My name is Yomi Karade and I am the founder of AWDA, the African Descendants with Albinism support group.
After my beautiful son Kofi was diagnosed with Oculocutaneous Albinism (lack of pigmentation in the hair, eyes and skin) and Nystagmus (involuntary movement of the eyes) at the age of three months, I decided that I needed to do something positive about spreading the awareness of Africans with albinism.
Having a son with albinism and a visual impairment has been both challenging and rewarding for me. I have had to overcome stares, harsh remarks and reminders that my son was "albino." Often I have been in tears and have felt very alone.
Through deep prayer and ancestral guidance, I have been empowered to move forward. My hope is that by starting this group, African children with albinism will be empowered and that the condition will be more widely understood.
(AWDA: The African Descendants with Albinism Support Group, was initiated in Autumn 2002 by Yomi Karade.) |
