Thanks to everyone who has visited my web site and to all of you who have helped and supported me and my parents on our long journey since 1997 and in particular, since the events of 2002 when I lost the majority of my sight. This help and support has been an inspiration and a guiding light, on what has been and what continues to be, a difficult journey.
My name is Gareth Brandon and
I was born on the 16th July 1996 at the Forth Park Maternity Hospital in
Kirkcaldy, Fife, Scotland. My web site contains lots of information about this very rare brain tumour, which we hope you will find both informative and interesting. The site was originally created back in March 2000 as a 'three page wonder'. On average, we now have around 80 visitors to the site each month!
My daddy created my
site because he wanted to provide information and where possible, support, to other families who found themselves in the same position as we did in May 1997. It remains such a rare tumour that there is still very little information about it. Up to
the end of 2005, we have found twenty six other families worldwide with children who
have had this particular tumour. Since September 2004, there have been three cases of this tumour re-occurring in children who'd had the tumour previously removed. Their future is uncertain at present as they are now fighting the re-occurrence with chemotherapy. Any information about this new development would be appreciated.
DISCLAIMER: All
the information that is provided on this web site relates to the experiences
that we have had with Gareth and are not therefore a substitute for medical
advice. If you have any concerns about the health of your child, then you should
consult your doctor or physician. All information is Copyright � David Brandon 2000-2005. All queries should be
addressed to the WEBMASTER. Thank
you.
