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Joe
and Maggie's form of MPS is known as MPS III or Sanfilippo
Syndrome. MPS results from the body's inability to produce a
critical enzyme needed to process mucopolysaccharides - a long
chain of sugars in our bodies.
This missing enzyme results in improper storage of
mucopolysaccharides throughout the body, especially in the
central nervous system and brain.
Although Joe and Maggie seemed normal at birth, as this
disease takes it's toll, the kids will lose their ability to
speak, walk, swallow and sleep normally.
Children with Sanfilippo Syndrome have an average life
expectancy of 14 years.
LEARN
MORE ABOUT MPS
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SIDEWALK
SALE FOR MPS AT SWEATS GYM!
Huge selection of
donated items to choose from!
Where: Sweats Gym,
915A Folly Rd., James Island
When: Saturday,
September 28, 7 AM - 12 PM
Contact: Susan at
843-762-1777
To donate,
drop off donations at SWEATS GYM during the month of
September. Limited pick up of your donations is available
- call Susan at 843-762-1777 to arrange pick-up.
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5KWALK
FOR MPS
Wando
Shelter, James
Island County Park , Charleston,
SC Saturday,October 12
Registration:
8:30 am, Walk: 9:00 am.
Registration cost: $15 ( includes a free t-shirt while
supplies last).
Print
registration form.
Contact:
Allison at 843-834-5898
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BENEFIT
PICNIC AT OUTBACK Join
us on the patio for some Outback FUN, FOOD, GREAT RAFFLE PRIZES
and LIVE MUSIC by Barnacle Bob!
Price:
$20.00
(Buy your
own adult beverages)
WEST
ASHLEY OUTBACK - 1890
Sam Rittenburg
Sunday,
October 6th, 1 PM - 4 PM
Contact:
Jessie at 843-795-6862
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