Volume 6 Issue 4
Letter from the editor:
Here's
to another busy month at Autism News. It is a jammed packed issue, as always
so I won't bore you with much of an intro. I want to apologize for last
month's issue getting out a little late. I don't intend on that happening
again. You will all notice that I am personalizing everyone's this month
by putting on your expiration date. I won't do it every month, but I will
do it a couple of times a year just as a reminder.
Thank you to everyone who has helped contribute information to me. It has been a tremendous help.
Please send all comments, criticisms, renewals, etc. to:
Autism
News
PO
Box 1255
Crystal
Lake, IL 60039-1255
Email
address is ahebel@owc.net
Don't hesitate to send me stuff, I love to read it all and do appreciate everything that is sent to me.
Happy Reading,
Amy
All contents are copyright 2002 of the Newsletter mom. Total freedom is granted to recopy and share information as long as Autism News gets credit.
(Web notes: the usual formatting (such as it is) is on its way.
Please accept this document as is, and I will upload it with the table
of contents, links, and addresses, etc. in a few days. I need to
be working on my taxes.)
April 5,2002 O'Fallon 10am-noon
Autism
Society of Southern Illinois meets the first Saturday (second if it's a
holiday weekend) at the O'Fallon Public Library, 120 Civic Plaza. Call
618-682-3783 or email asosi@apci.net for info.
Galena
Parent Advocates
Tuesday,
April 9, 2002
DeSoto
House Hotel
230
S. Main St
General
Smith Room
6:30-8:30PM
Topic: Positive Behavior Intervention
Participants will learn:
Sources of Law requiring positive behavior intervention, the School's Duty to program positively for behavior change, how to conduct a Functional Behavioral Analysis to adequately prepare a Behavior Implementation Plan (BIP) the ABC's of Behavior
Target audience, parents, regular education teachers, special education teachers, paraprofessionals, SLP, OT, PT, etc.
CEU's/CDPU's
will be offered. Contact us for a registration form (required)
April 11th Gurnee 7pm
The Northeast Chapter of ASI will meet at the Warren Special Recreation Association building, southwest corner of Washington and Almond Roads in Gurnee. Contact Eric L. Smith @ 847-543-4502 or NEChapASI@aol.com for additional information.
April 16 Westmont 7pm
The FarWest Suburban ASA
will have Nicole Allgood, MSEd, MT-BC, music therapist at the Giant Steps
School in Westmont will give a presentation on music therapy and it's applications
to ASD students.
April
18-DuPage Children's Museum
5-7pm
Autism Family night.
Contact
the museum at 630-637-8000 for more information.
April
25-Highland Park 7:30
You
Are Invited to Our Next Wine and Cheese Event!
Dr.
Neil Margolis, Developmental Optometrist
CLASSROOM
CONNECTION MEMBERS: $ 10.00
NON-MEMBERS:
$ 15.00
Please register at (847)-681-0324 ex. 3
-The
Classroom Connection-
2868
Skokie Valley Road- Highland Park, IL 60035
June 10-14 & June 17-21
Downers Grove
Auditory Training &
Education Center
Sharon K. Hurst, M.S.
17220 Ashdale Court
Granger, Indiana 46530
(574)272-2795 or (888)248-0990
e-mail: s.k.hurst@attbi.com
****Call now to schedule
times******
AD HOC EARLY INTERVENTION GROUP UPDATE
Thanks to everyone who requested a hearing for the changes to the Early Intervention Rules (Rule 500).
A hearing has been scheduled for Friday April 12th, 160 N. LaSalle in the 5th Floor theater from 11-1.
If
you have any questions, please contact Kim Fitzgerald at 312*516-5557 or
kfitzgerald@voices4kids.org
April 30th at 7:30 p.m
Northwest Suburban Illinois
Chapter of the ASA
Meeting
Schaumburg Township Meeting
Hall
1 Illinois Blvd.
Hoffman Estates, IL
Open Talk for parents, but
our Social Workers who do the sibling shops, are going to be conducting
a "Grandparents group" .
All grandparents are welcome,
to talk to other grandparents, who may be going through the same feelings
whether it be denial or just sadness for their children going
through hard times with
their grandchildren. As with the sibshops, these meetings will be confidential
with the social workers, so come in and speak freely!!
Galena
Parent Advocates will sponsor its first annual golf outing
August
15th 2002 at:
"The
General"
Eagle
Ridge Inn and Resort-Galena
1:00PM
Shotgun Start
18
Holes of Golf, Cart, Box Lunch, Dinner, Raffles, Prizes, Hole in One Event
and more!!!!!!
Watch
the newsletter for more information as we approach summer!!
NOTE-StarNet
workshops give priority to parents within their region. If there is a workshop
you wish to attend but it is not in your region-let your local StarNet
folks know you'd like them to replicate it in YOUR region. StarNet folks
are waiting to hear from YOU. Don't make them guess what you want or need
to learn about.
TASH
is pleased to announce a series of teleconferences in April 2002! The
teleconferences
are being held in celebration of National Autism Awareness Month, a month
that
is dedicated to bringing Autism into the spotlight to promote knowledge
and
public awareness. TASH is committed to the pursuit of Equity, Opportunity,
and
Inclusion
for people who have been labeled with "severe" disabilities, including
those whose label falls within the Autism Spectrum.
How
it Works:
The
sessions take place on the phone. Each individual registrant or registered
site (you can have as many participants at a site as you would like) receives
an 800 dial in number and code, along with handouts to view while listening
to
the
presentation. Each session will last for 90 minutes. The sessions will
include the presentation, with time for question and answer with the presenters.
The sessions feature exciting and knowledgeable speakers and the very latest
in
progressive thoughts and supports related to individuals with autism spectrum
disorders.
For
more information and registration information visit
http://www.tash.org/teleconferences/
Call
410-828-8274 or email autismseries@tash.org
Sessions
Tuesday,
April 2, 2002
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
An
Incidental Teaching Approach to Early Intervention for Toddlers with Autism
Gail
McGee, Emory University School of Medicine
Tuesday,
April 9, 2002
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
Supporting
Students with Autism in General Education Classrooms: Designing Curriculum
and
Supports
Rae
Sonnenmeir University of New Hampshire, Institute on Disability, Training
Director, MCH-LEND Program; Michael McSheehan, Technology and Educational
Consultant
Wednesday,
April 10, 2002
Tuesday,
April 16, 2002
Thursday,
April 18, 2002
Journey
to Understanding: A Generational Perspective from Parents
Date
TBD
Tuesday,
April 30, 2002
Please
help us spread the word about this exciting series. Pass this message on
to a friend or colleague.
Mark
your calendars now - 2002 TASH Conference, December 11-14th Boston,
IF
ANYONE IS INTERESTED IN ATTENDING THE FOLLOWING IL. AUTISM/PDD TRAINING
WORKSHOPS, PLEASE CONTACT ALYSON BEYTEIN, ASSISTANT PROJECT DIRECTOR. IF
THERE IS A LOT OF PARENTS, FROM THIS AREA, THAT IS INTERESTED IN THE SAME
WORKSHOPS ARRAINGMENTS COULD POSSIBLE BE MADE TO HAVE PARENTS BUSED TO
THE CHICAGO TRAINING CENTER OR BRING A WORKSHOP TO OUR AREA. EMAIL ALYSONBEYTIEN@ILLINOISAUTISMPROJECT.ORG
OR CALL 708-354-5730
1 APRIL
25, 2002-"BATHROOM AND BEDROOM SKILLS"
April
2, 2002- Springfield
"Sensory
Issues"-Julie Hoyland-Occupational Therapist
6:45-8:15
PM, @ Springfield Lincoln Library, corner of Capital and 7th
Street, Reservations In advance, please and a $5.00 donation at the door.
CONTACT NOBLE@FAMILY-NET.NET
or call Diana Noble 217-585-7276
April
3-6, 2002
2002
CEC Annual Convention and Expo
April
12, Hoffman Estates
2nd
Annual CARE (Curing Autism through Research and Education)
The
BHARE Foundation will be holding their conference at the Stonegate Conference
Center in Hoffman Estates. Speakers will include Dr. William Walsh of Pfeiffer
Treatment Center, Raun Kaufman from the Option Institute (The Son-Rise
Program), Dr. Kenneth Bock (pediatrician specializing in autism), Genevieve
Jereb, OT, DR. Vijendra Singh, and Betsy Prohaska with Vicki Martin, R.N.
to discuss "what's new" about the GFCF diet. Last year sold out so register
early to guarantee a seat. Go to www.bhare.org
for a registration application to mail in or fax. Address and fax number
is on the website.
You
are invited to......
A special
Activity for Parents and Siblings
(7-12
yrs) of Children with Autism
BASSC
has graciously made it possible for us to invite you to an activity/research
session designed for parent-child pairs (that is, 1 parent & 1 brother
or sister of a child with autism). This project is being conducted by Dr.
Linda Kunce vfr4 g(309-556-3663) and Senior Sara Irwin from Illinois Wesleyan
University and has been approved by the university's Institutional Review
Board (chair, Dr. David Bolivar 309-556-3677).
Why
are we doing this?
We
want to know if specific parent-child activities help improve family communication
about autism. In addition, we want to know how different parent-child activities
influence siblings' autism-related worries.
What
can you expect?
You
and your child will attend a one-time activity/research session that will
take about 2 hours. During the session, you and your child will complete
one of two activities together: (1) a workbook about sibling-related worries
or
(2) a play activity designed to promote positive interaction. In the research
part of the session, we will ask you and your child to fill out some questionnaires
about having a child or sibling with autism.
All responses will
be kept confidential.
Children
will receive a snack and a small gift to thank them for their participation.
Parents will receive a report of the results from the project and the knowledge
that they are contributing to a better understanding of children's emotional
needs.
Who
is the activity for? Families who:
Where
and When? Saturday April 13th 10-12, 1-3, or 3:30-5:30 (your
choice)
If
you are interested, please call the above
April
16-Schaumburg 8:30-3
Marge
Tye Zuba will help participants explore and expand their knowledge of learning
styles in order to create an environment where diversity in teaching and
learning is celebrated. Working individually and in small groups, learners
will discover their own learning styles through individual learning inventories
and by exploring how they learn, how they conceptualize ideas and how they
organize information. Using this self-knowledge as a base, learners will
look at enhancing lesson plans so that all styles of learning can be addressed.
This workshop is intended for teachers, teacher assistants, related service
personnel and family members and administrators. Limited to 50 participants
This is a StarNet Region 2 conference. Contact StarNet Region 2 for info.
April
19, Downers Grove
April
17-18-Giant City
Asperger
Syndrome Support and Awareness of Central Illinois.
April
21 Washington, DC 12 noon to 5pm.
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM
PacificPivotal
Response Intervention
Lynn
Koegel, University of California, Santa Barbara
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
Supporting
Students with Autism in General Education Classrooms: Designing Positive
Behavioral
Support
Rae
Sonnenmeir University of New Hampshire, Institute on Disability, Training
Director, MCH-LEND Program; Michael McSheehan, Technology and Educational
Consultant Wednesday, April 17, 2002
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
Understanding
the Implications of Research
Claire
Maher Choutka, Parent, Graduate Student, Lehigh University
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
Jamie
Ruppmann, TASH; Barbara Cutler, Autism National Committee; and Catriona
Johnson,
Maryland Developmental Disabilities Council, President of Howard County
Chapter,
Autism Society of America
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
Understanding
Autism in New Ways
Anne
M. Donnellan, University of Wisconsin, Madison and Martha Leary, Canada
1:00
- 2:30 PM Eastern; 10:00 AM - 11:30 PM Paccific
Living
Real Lives
Jeffrey
L. Strully, Executive Director, Laura Broderick, Director of Supported
Living, Amanda Paton, Director of Supported Employment and Personalized
Day Support,
Dody
Farrell, Director of Prism; Jay Nolan Community Services
Denise
Marshall
Director
of Meetings and Information Resources
TASH:
Equity, Opportunity, and Inclusion for People with Disabilities Since 1975
dmarsh@tash.org
410-828-8274
x 103
FAX-
410-828-6706
www.tash.org
Massachusetts
ILLINOIS
AUTISM/PDD TRAINING AND TECHNICAL ASSISTANCE PROJECT
New
York City
Contact:
www.cec.sped.org/spotlight/nyc
or
call 888/CEC-SPED (232-7733).
Have
a child diagnosed with an autism spectrum disorder
Have
another child between the ages of 7 & 12 who would like to participate
Are
comfortable using the term autism
Classroom
Connection
2868
Skokie Valley Road
Highland
Park, IL 60035
(847)
681-0324 ext. 3
number
to register or for further information.
Roosevelt
University 1400 N. Roosevelt Blvd.
"The
Impact of Learning Styles on Teaching, Learning, and Living"
"Navigating
Uncharted Waters: Understanding Your Rights and Case Law"
Matt
Cohen, widely know for his legal advocacy on behalf of children with
disabilities, will address your rights, rules governing special education,
and recent federal and state court cases relating to special education.
For more information contact Everyone is Welcome 630-584-0970 or
EIWelcome@aol.com.
"
2002 Autism Seminars"
Barbara
Doyle, MS Clinical Consultant, Call C.J. Sizemore at 217-356-8323.
Barbara
Doyle will be speaking for us JUNE 18, 2002- on "10 TIPS FOR
A SUCCESSFUL LIFE" Springfield Lincoln Library at 6:45-8:15PM**We ask
for a $7 donation at the door to cover expenses, NOT REQUIRED.
Diana
Noble 217-585-7276
Mark
your calendars now to attend the
3rd
Annual Autism Awareness Rally
in
April 21, 2002.
Unlocking
Autism once again brings you
The
Power of ONE! This year on the mall
in
Washington, DC. Pack your blanket and sunscreen and come for a day of family
and community fun!
We
will have an activity section for the kids.
Learn
how YOU can make changes in your state and across the nation. Keep tuned
to our website at www.unlockingautism.org
for speakers and additional information.
Grab
some friends, rent a van, fill it up
and
head for DC this spring! We hope to see you there!
May
3 Naperville
LDA/IL
STATE SPRING WORKSHOP Holiday Inn, Time: 8 a.m. to 4 p.m.
For
a Registration Form, contact the Illinois LDA Office at 708-430-7532
E-Mail:
BevJohns@juno.com
FAX:
217/243-7596
http://www.ldaamerica.org/Affiliates/IL/
Special
Education Attorney Reed Martin will be there!!!
May 9-11 Boston, MA
DAN 2002 Conference
SHERATON
BOSTON HOTEL
FOR
MORE INFORMATION
Call
609-921-3717
Email:
DANregistration@aol.com
Save
the Date: FALL CONFERENCE
*
San Diego, CA * October 25-27
SPEAKERS: Sidney Baker, M.D. * Jayne Barese, R.N. * Mark Blaxill, MBA * Kenneth Bock, M.D. * Jeff Bradstreet, M.D. * Timothy Buie, M.D., Ph.D. * Jane El-Dahr, M.D. * Barbara Loe Fisher * Sudhir Gupta, M.D., Ph.D. * Paul Hardy, M.D. * Walter Herlihy, Ph.D. * Woody McGinnis, M.D. * Jon Pangborn, Ph.D. * Karl Reichelt, M.D., Ph.D. * Bernard Rimland, Ph.D. * Karyn Seroussi * Paul Shattock, Ph.D. * Andrew Stoll, M.D. * Andrew Wakefield, M.D. * Rosemary Waring, Ph.D. * Carol Wester, MSN, CSN *TOPICS: Neuro-toxic effects of and successful treatments for elevated mercury and other heavy metals * The role of immunizations in autism and how to decrease the risk * A fresh look at the epidemiological studies supporting the relationship between autism and thimerosal * The latest research on secretin * The MMR controversy * Nutritional strategies for improving health and cognitive function of the autistic child * The role of omega 3 fatty acids * Understanding the immune system's role in autism
The Autism Society of Illinois Presents:
REFRIGERATOR MOTHERS: THE BETTLEHEIM LEGACY
AND IMPLICATIONS IN TODAY'S PROFESSIONAL-PARENT PARTNERSHIP
An exclusive screening of the award-winning documentary film and a one-day conference.
To register online: www.autismillinois.org
To register by phone: 630-691-1270
Highlights:
**A special sneak-preview of Refrigerator Mothers by the filmmakers that produced "Hoop Dreams."
**Exclusive open-mike q&a session with the filmmakers about the four-year odyssey to make the film
**A cross-generational, cross-cultural parent panel in an open dialogue about guilt, blame, communicating with professionals and improving the futures of children with autism.
**A building bridges panel with Marrea Winnega, Ph.D. to identify and discuss key elements for a positive parent-professional communication.
Don't
miss this once-in-a-lifetime event. For more information call the Autism
Society of Illinois at 630-691-1270
Holiday Inn Express 1550 E. Dundee Rd
"ABC's and 123's of Autism: What is it? Where do I start? How do I plan?"
Margaret
Mazeika will help participants explore the basic learning characteristics
of children with Autism Spectrum Disorders. The use of positive planning
and research supported instructional strategies will be emphasized throughout.
Environmental and social supports that can be implemented within a regular
classroom will be highlighted. Registration is limited to 100 participants
and is a StarNet 2 conference. Contact StarNet Region 2 for info.
May 22 Crystal Lake 8:30-3
Holiday Inn 800 S. Rt. 31
"Supporting Family Strengths Through Home Visits"
Nick
Wechsler will highlight a home visiting philosophy and methodology which
promotes mutual competency for young children, their parents, and staff.
It will explore opportunities, challenges, and risks for early intervention
providers of varied disciplines who deliver some of their services in the
homes of program families. The workshop will be interactive and will build
on experiences and concerns of workshop participants. Finally it will explore
the "cost of caring" often experienced by helping professionals, whether
delivering services in the home, in schools, or in neighborhood centers.
This is intended for teachers, assistants, related service personnel, and
administrators.
July 17-21 Indianapolis IN
2002 ASA Conference
· 2002
Conference theme: "Champions and Challenges"
· Where:
Marriott Hotel in Indianapolis, Indiana
· Why:
To hold a national forum for the presentation of important field studies,
intense educational sessions, structured networking opportunities, information
exchanges, and interaction between individuals interested in the well being
of children and adults with autism.
For
registration information, please email us at:
conference@autism-society.org.
Editor's note: I know that this is a little early to be put in, but I figure that it will most likely be a sellout.
October
14 - 15, 2002 Kansas City, Missouri
Asperger's
Syndrome with Dr. Tony Attwood
This conference will cover two days. Day One will include the topics: Encouraging Friendship Skills and Managing Emotions. Day Two will include discussion of Asperger's Syndrome in the Adolescent Years and a question and answer forum.
The conference registration fee includes all materials and handouts, continental breakfast, lunch and afternoon refreshments. Participants can either register for either day or both days. Early registration fees will be $175 for BOTH days and $125 for ONE day. For Groups of 4 or more, please contact BusyWeb Solutions, Inc. for information on discounted fees.
Registration received after September 1, 2002 will be $215 for BOTH days and $165 for ONE day.
Fees
can be paid by check, credit card, money order or purchase order. Please
contact BusyWeb Solutions by phone 618-397-2131 or e-mail
to receive a registration form. A printable
registration form is also available at
www.tonyattwood.com
Got this off of the CAN newsletter
Temple
Grandin's Bio Movie on HBO Coming by Director David Russell
[By
Melissa Grego.]
http://story.news.yahoo.com/news?tmpl=story&u=/nm/20020313/tv_nm/television_
animal_dc_1016005605
Variety
- "Three Kings" director David O. Russell is helping to develop an HBO
movie about the unusual life of Temple Grandin, an autistic university
professor known for devising humane ways to handle and slaughter
livestock.
Russell
may also direct the project, which is being shepherded by "ER's" Anthony
Edwards, who first became aware of Grandin through his work with autism
research.
The
picture will focus on the young-adult years of Grandin, who has been the
subject of writings by Oliver Sacks and a documentary by Errol
Morris.
She herself has written that as an autistic woman, she finds other people's
behavior alien and that she studies people as if she were "an
anthropologist
from Mars." The script will be based on Grandin's books "Emergence" and
"Talking in Pictures."
"This
project is a window into an unexplored world, which affects millions of
people," Edwards said. "We are excited to be working with someone like
David (O. Russell), whose unique visual style and storytelling
skills
will be such an asset in making this a successful film." Edwards will serve
as an executive producer, along with his partner in
Aviator
Films, Dante Di Loreto, who added the picture will be more about the individual
than the illness.
"
Regardless of the autism, it is quite profound what she does in a male-dominated
world of slaughterhouses," Di Loreto said. "This is the story of a woman
who accomplishes extraordinary things because she believes she
can.
... She is a woman with an extraordinary power of imagination. She can
visualize anything."
In
addition to directing "Three Kings," Russell also filmed "Flirting With
Disaster" and "Spanking the Monkey."
We mailed our Action Alert March 20th! What a job! It is 8 pages long and has everything in it we could think of to help you successfully communicate with your legislators about the HBSSP changes. You can also now access the Action Alert on our website!! Another hurdle jumped. This whole mess caught us as we were changing servers, so we haven't been able to make changes to it. We are actually in the process of "remodeling" the website. So it will be easier to find stuff on it soon.
In the meantime, check out the Action Alert by double clicking on the following address: http://www.familysupportnetwork.org/RevisedActionAlert.pdf Please make copies and share with your fellow advocates. Remember to ask them to connect with us, so that they can get our e-mails and newsletters.
And, as usual, please forward this e-mail and the action alert web address to your e-mail lists.
We are working on a couple of other strategies. I will update you on those as soon as we have more details.
In the future, advocates are planning a "Lobby Day" at the Capitol, April 17. That's a Wednesday. There will be people there prepared to shepherd you around the Capitol and help you have the confidence to visit with your legislators successfully. More details will follow as we develop them.
On the other hand, legislators will in on Spring Break starting this Saturday. Call them up, make an appointment and visit with them in your own community. They'll be able to listen to you better, and you won't have to drive so far. They are generally in their home districts on Friday, Saturday, Sunday and Monday... Call them up!! Let them meet your family. You can't get much more powerful than this. If you need help, call us... we'll coach you and, if possible, go to the appointment with you. But, remember... the sooner, the better. If you'd like to go with other families in your district, let me know, we can help you connect with them. Let me know how it went...
The Senate Appropriations committee is meeting in Springfield this Tuesday at 9:00am (Room 212 of the Capitol). It will be another grueling day of standing around for hours so that you can speak for two or three minutes. If you can come down without going crazy, join us. If not, please write letters to the Senators listed below. Hopefully, your letters are still in your computers and you can just address fresh copies to them. All of these guys are Senators.
Thanks again for your support!! And remember we need your contributions to keep going. Join us!! http://www.familysupportnetwork.org/Fundraising.htm
Charlotte Cronin
THESE ARE NEW ADDRESSES... different from the ones in the Action Alert... but just as important.... Please send your letters to them. These Senators are all members of the Senate Appropriations Committee.
The
Honorable Brad Burzynski
The
Honorable James F. Clayborne, Jr.
The
Honorable Miguel del Valle
The
Honorable Laura Kent Donahue
The
Honorable Debbie Halvorson
The
Honorable Doris Karpiel
The
Honorable Chris Lauzen
The
Honorable Lisa Madigan
The
Honorable Christine Radogno
The
Honorable Dave Syverson
The
Honorable Donne E. Trotter
The
Honorable Stanley Weaver
********************************
(Dear
Senator Burzynski)
505
DeKalb Avenue
PO
Box 348
Sycamore,
IL 60178
327
Missouri Avenue
Suite
422
East
St. Louis, IL 62201
4150
W. Armitage
Chicago,
IL 60639
640
Maine Street
Quincy,
IL 62301
241
West Joe Orr Road
Chicago
Heights, IL 60411
400
W Lake, Suite 220
Roselle,
IL 60172
52
West Downers Place
Aurora,
IL 60506
2006
West Addison
Chicago,
IL 60618
521
S. LaGrange Road, Suite104
LaGrange,
IL 60525
200
S. Wyman
Suite
302
Rockford,
IL 61101
8704
S. Constance Avenue
Chicago,
IL 60617
1717
Philo Road, Suite 17B
Urbana,
IL 61802
Statewide Conference- Naperville, IL- June 20-22, 2002
There are also two special symposium opportunities taking place on June 20, 2002 from 1:00 - 5:00 p.m. and they are:
Understanding Autism- This half day presentation will review the current views on autism in regards to diagnosis and treatment. It most importantly will discuss actual strategies that work for individuals with autism in order to help them communicate, socialize, and control their behavior. The presenters take into consideration that people with autism live in families who must balance many things in their lives and look at ways to best help the whole family. Presenters: Patti Boheme, Mary Crissman, and Carol Paske.
The Power of Media- This workshop will equip participants with the ability to use media to change the public discourse. Workshop participants will gain critical insight on how the media really works and will learn techniques for strategically planning and executing communications. Presenters: Candice Warltier, Mary Balice, Bill Campbell, Charlotte Cronin and Nancy Brown.
Stipends
are available to people with disabilities and/or their families or guardians
in the amounts of up to $400 per individual or $600 per family. Stipends
can cover such expenses as the conference registration fee, a hotel room,
travel, meals, child care, or a personal attendant.
For
more information on these symposiums or on the UCP of Illinois Statewide
Conference please click on this link:
http://www.ucpillinois.com/new_page_10.htm
I only know what she wrote me. So you'll want to check out her website yourself to see if you think it will be helpful in your lives.
The
cookbook is called "Cooking Made Easy." Every recipe is coded from 1-5
according to level of difficulty. Recipes are written in large print, for
easier reading. Recipes are broken down into detailed,
easy
to understand steps. Dollar sign codes on each recipe signify cost of ingredients.
There are 88 recipes, divided into the following categories: Appetizers/Beverages,
Soups/Salads, Vegetables, Main Dishes, Breads/Rolls, Desserts, and Breakfast.
The
cookbook cost is $19.95 per cookbook. Shipping in the U.S. is $4.95 per
order. And quantity discounts are available for orders of 5 or more books.
My website contains more information:
http://www.cookingmadeeasy.org
***********************************
You
may contact the Family Support Network at fsn@FamilySupportNetwork.org.
Or
you can contact Charlotte Cronin at her personal e-mail CharlotteCronin@insightbb.com
Please
delete all other e-mail addresses. They are kaput.
Thanks
for your patience!!!!!
Life Planning Services
(received
from the AutismAwakening newsletter)
Since
1993, Life Planning Services has provided information and assisted families
throughout the U.S. in planning for the future of their loved one with
special needs emphasizing Lifestyle, Legal, Financial Needs and Government
Benefit issues.
Our purpose is to educate and provide planning options for families in order to eliminate the overwhelming and confusing obstacles faced during this process.
The result is peace of mind for families while assuring care, security, and quality of life for the person with special needs. To learn more, go to the website above.
www.specialneedsplanningkit.com
(from
Autism Awakening newsletter)
By
Joe Guy Collier. http://www.thestate.com/mld/thestate/archives/
For
almost three years, Karl Smith has been dead set on making a success out
of his software company, Accelerations Educational Software. He's blown
through his savings, run up large credit card bills and tested the patience
of his wife and family. Now, Smith said he's passed a turning point for
the company, which he started because of a need he saw in his own household.
Smith, who has a 7-year-old son with autism, began AccelerationsSoftware
to write computer programs for children with autism and learning disabilities.
The company's product, called the Discrete Trial Trainer, or DTTrainer,
uses learning modules specifically designed to help these children pick
up fundamental building blocks, such as letters, numbers, colors and objects.
If you saw Smith's office today, you might not realize how far his company
has come. He and a few part-time employees share a modest 1,000-square-footoffice
in downtown Columbia. Inside, a homemade wooden booth serves as the recording
studio to make voice-overs for the software. But if you saw where Smith
was a year and half ago, you'd realize the progress he's made. Until last
May, Smith had been running Accelerations Educational Software out of the
room above his garage. He had a handful of schools using the DT Trainer
software, which can be previewed at www.dttrainer.com. Smith now has almost
50 school districts, spanning from Hawaii to New York, using his software.
Kim Kulka, coordinator of the autism program at Mountain View Elementary
School in Marietta, Ga., has been using the software for twoyears. The
DT Trainer motivates children with autism to learn, Kulka said. It allows
these children to pick up skills without requiring the use alone-on-one
attention of a teacher, she said. "It's been extremely helpful," Kulka
said. "I'm hoping for more programs." James Bender, special education technology
specialist with Silver Consolidated Schools in Silver City, N.M., has been
using the DT Trainer for a year. The software immediately engaged the children,
Bender said. In a test trial of the software, a Silver City student spent
25 minutes and then 40minutes working through the programs, he said." It
was a phenomenal thing because this was a child that had trouble sitting
still for more than 30 seconds," Bender said. Smith's personal knowledge
of children with autism and developmental needs can be seen in the software,
he said. "It's software with soul," Bender said. "It goes to the fact that
it comes from within Karl." Smith said he hopes to put the software into
more schools. In the last year, his company has developed training material
so teachers and parents can use the software without his assistance. Smith
also has cut the price of the software by more than half to $99for individuals
and $249 for schools. As a promotional effort, the first license for a
school district is free. Revenues are improving and the cash flow is less
erratic, Smith said. But the company continues to search for a financial
backer so it can market the product more heavily, he said." It would be
good to find an investor who isn't looking for a1,000-percent return,"
Smith said, "somebody who wants to make a nice return but also wants to
have a social impact." Even without a major investor, though, Smith said
he'll push forward on what he can afford." We'll do it one way or the other,"
he said. "We're going to find away of succeeding and making this grow."
Velcro
Creative
Communicating's Forgetful puppet comes with Velcro-sensitive hands, allowing
him to hold props or anything with loop Velcro. But the many uses of Velcro
do not stop with what you can do with Forgetful's Velcro-sensitive hands.
If taken advantage of, Velcro can be as good a friend to teachers as Tang
is to astronauts. We've compiled a list of many uses that Velcro has in
the classroom.
Velcro
your pen and other items that are easily lost to your desk. Velcro toys
to a table for stability. Create a Velcro-sensitive wrist band; children
stick props to the wristband for a wrist puppet , Velcro props to a storybook
for a 3D effect Velcro children that are driving you nuts to the wall (just
kidding!) Place Velcro on the bottom of a wooden dowel to pick up toys
Velcro
props onto SoftKeys for IntelliKeys CLICK HERE to go back to Storytime
Tricks and find out more about props.
Create
a Velcro-sensitive glove for children to pick up toys Place Velcro on book
pages to make it easier for kids to turn the pages
Velcro
a talking photo frame closed making it easier for students to use
Use
Velcro to attach books to a laptrap, which keeps the book steady (line
laptrap with loop Velcro and attach hook Velcro to the back of the book)
Create a Velcro vest by using a section of tempo-loop material, cutting
a hole for the head, and attaching the sides with two strips of Velcro
Velcro
toys onto a tempo-loop display vest
Velcro
interactive symbols onto a tempo-loop display vest Create easy-on, easy-off
dress-up clothes by cutting out the front of clothes and adding a Velcro
strap to the back
Velcro
student¹s individual schedules to the wall
Velcro
communication devices to your student¹s laptray Use Velcro straps
for hanging toys from swings and car seats Velcro supplemental communication
symbols on a communication device Velcro toys onto switches
Use
Velcro to attach different textures to a book and create overlays so students
can match texture in the book to the communication device
Velcro
symbols onto switches
Velcro
a talking photo frame into a book for a repeated line insertion Velcro
name plates onto the wall for attendance and sign-in activities
Velcro
recipes on a board to demonstrate literacy
Print
out appropriate vocabulary words and mount them onto Velcro; students can
manipulate the words to create their own poetry, stories, etc. Velcro your
keys to the wall so that they are never misplaced. Hang tempo-loop material
(or indoor-outdoor carpeting) on the wall and Velcro activity-specific
symbols on the wall (Goosens' activity-specific symbols means that food
prep symbols are placed in the kitchen, Storytime symbols are placed in
the Storytime area, etc.)
Velcro
choices onto a choice board.
Adapted
books
Books
can be adapted by placing each page of the storybook in page protectors.
A piece of cardboard cut to size can be placed in between each story page.
All of the pages can be placed in a notebook. "Page fluffers" can be used
to add spaces between each page for easy page turning. Page fluffers can
be made out of ethafoam materials, chip bag clips, clothespins, etc. Further
details can be found in any of the Storytime books. Click
here to find out more details about the book Books Made Easy.
Props
Props
can be used to enhance the stories. Real objects can be used that match
key concepts in the stories or you can make your own props with ethafoam
materials that are secured with velcro to the stories. Each of the storytime
books provide you with a prop page and specific directions. Props can be
used with students to maintain attention and motivation in story readings.
Props keep little hands busy. Students can pull props from a choice board
to reinforce matching or identification skills during readings and place
in the book. Students can pull a selected prop from the book and place
it in an external prop (e.g. clothing in washing machine, animals in old
lady's mouth, Halloween items in the brew.) In addition, props or 3D photos
can be used for communication boards. See below These types of photos have
been used successfully with students who have visual impairments, autism,
cognitive impairment and/or young children. The 3D effect makes the photo
look more like an object than a photo. To make the props use ethafoam™
available from Creative Communicating. The foam is a flexible and easy
to cut (with scissors) material. It comes in (9"X12") sheets. Hot glue
the photos, symbols or pictures directly to the foam. Cut out the shape
with scissors. Add a small piece of velcro to the back. Notice in the photo
below props are used with the IntelliKeys™. The selection on the keyboard
are backed with foam. The students pull the prop from the book and place
on the IntelliKeys to activate the computer program. The students can also
activate the keys by pulling the props directly from the IntelliKeys. To
secure the display on the InteliiKeys try adding a small piece of FunTac
at the four corners. Props can be added directly to the SoftKeys ®.
This is sometimes helpful for younger children or older children, whose
grip is too strong; this will prevent the display from slipping out of
place. Props can also be used to reinforce concepts being learned. Here
the student is learning how to use the mouse on the computer. The teacher
uses the 3-D props to reinforce the concepts he is learning on the computer.
He matches the props with the graphics on the Pull off symbols
Pull
off symbols are a duplicate of the symbols found on the bottom of each
story page. These are ready to print out on the Storytime Revised CD. Below
is a brief description of how they are used. I read the book first pointing
to the words, next I might pull off the symbols holding them in front of
the student (what I call "in your face" communication) but place them back
in the book. They are used as a teacher tool to maintain attention, direct
students and reinforce and model symbol use. Next I might have the students
pull the props (see above) from the book (student tool) typically I allow
student to manipulate the props but place them somewhere (e.g. on the choice
board, in another larger prop like a washing machine for "Dirty Duds")
so they are not too distracting. I may vary the order of using the pull
off and props it really depends on what feels natural or makes since to
you or the individual student. For independent practice the students may
use "pull off" symbols as a manipulative during independent book readings
Choice
Boards
Choice
boards can be used for a variety of purposes, displaying the symbol sequence
for a song, presenting choices for students or as a schedule board
http://www.creativecommunicating.com/storytime-tricks.html
Hello!
I am a senior at NIU and currently fulfilling an internship in the IL EI
system. For part of my internship I am putting together a parent resource
collection on Autism I would like it to be rather extensive and helpful
to parents of newly diagnosed children as well as informative for those
parents of older children with autism. I would love the parents on
this
list to share their input on what type of information would be helpful
to include. So far I have divided it into the following subsections:
1.
general information (what is autism, causes, characteristics, etc.)
2.
articles (any useful article or study I have or can find related to autism)
3.
Interventions/strategies (DTT, ABA, floor time, SI, medications, TEACCH,
GFCF diet, son-rise, PECS, social stories, AIT, vitamin therapies, etc)
MORE??
I plan to provide a brief description of the intervention, additional resources
(web sites, books, etc.) as well as the nearest local provider of the intervention.
ANY
SUGGESTIONS FOR THIS PART WOULD BE GREATLY APPRECIATED!!
4.
parent poems and short stories related to raising a child with autism
5.
Additional resources: newsletters, organizations, agencies, support groups
etc.
6.
I also thought about putting together a list of community people who work
with individuals with autism such as dentists, doctors, hairdressers, baby-sitters,
etc., who else should I include on this list?
Your
feedback would be greatly appreciated! Is there any important information
that I am missing that would be helpful for a parent? I want this to actually
be a useful resource for parents and not just a project to fulfill an internship
requirement!
Thanks
a bunch! Smiles, Sarah Johnson
You
can send the information to the Autism News address and I will forward
it to her. Please mark on the envelope that it is to go to her so I don't
accidentally open it. She hopes to get Jody and myself both a copy to put
on the web and to snailmail if possible.
1.Label
classroom furniture and materials with an object/picture/icon paired with
the written name of the item.
2.
Opening
group: Use a group schedule with pictures, words, and clock icons to sequence
the day.
3.
Individual
schedules: Popular choices include a small 3-ring notebook or photo album
with pictures of each activity. Other schedules can be developed by using
objects to represent each activity of the day, by placing pictures on a
ring to attach to a belt loop, by using a wipe-off board, cards and a pocket
chart, or a computer- generated schedule that is updated each day.
4.
Behavior
expectations: Laminate a visual that represents the desired behavior and
Velcro™ the visual to the child's desk. For example, icons representing
"Sit", "Quiet" or "Raise your hand" can be placed on the student's desk
to reinforce these appropriate behaviors.
5.
Grooming:
Create a pocket sized grooming check card for a child. The card could include
icons or words representing tasks such as "Hair brushed", "Face washed",
"Shirt tucked in", and "Zipper zipped"
6.
Grocery
shopping: Collect pictures of items to be purchased. For lower functioning
students use a piece of the item packaging for easy recognition and for
higher functioning students use icons or a written list.
7.
Hand
washing sequence (brushing teeth, bathing, showering etc.): Display and
place by the sink or bathtub.
8.
Restaurant
outings: Use a picture menu for ordering. At a fast food restaurant a nonverbal
student can order independently by pointing to pictures or handing pictures
of the desired items to the person taking the order.
9.
Song
time: Create a sequence of pictures for key words in the song. Be sure
to allow enough wait time for the person with limited verbal abilities
to respond.
10.
Scheduling
reminders: Place a written reminder on the student's desk to remind them
of an upcoming event. For example, "Remember: Speech today with Mrs. Johnson
at 11:00. After speech you will join the rest of the class in the lunchroom."
11.
Book
mark reminders: Give a child a bookmark with a visual message. "Remember:
You will earn extra points if you stay in your chair at your desk during
silent reading!"
12.
Classroom
rules: Post rules where all students can see them. Include icons or pictures
for students who are non-readers to remind them of the rules as well.
13.
Choice
diversity: Use a choice board with icons or photographs of choices available
during free time.
14.
Reinforcement
menu: Display a menu of preferred and acceptable activities where the student
can see it as they work. It will remind them of the rewards that they are
working towards.
15.
Computer:
Place instructions on frequently used procedures next to the computer.
Use pictures or words according to your student's abilities.
16.
Lunch
choices: Place a menu board with pictures or objects to represent lunch
choices. This could be used during Opening Group to enable student to choose
lunch foods or to prepare students for what foods will be served.
17.
Mini-schedule:
A mini-schedule should complement the daily schedule by providing information
concerning the exact tasks that will be occurring during a targeted period
of time. For example, while the daily schedule contains more general information
concerning the days' events such as reading, math, lunch, etc., the mini-schedule
for math could depict activities such as counting, writing numbers, and
matching. A mini-schedule can be used to teach independent work habits.
18.
Facilitate
discussions at home about school: Send home a Zip-lock™ bag with an item
enclosed that will cue students and parents about a particular activity
that occurred that day. For example, if the class went on a nature walk
include a pinecone or if the class popped corn include a kernel. This will
help stimulate conversations that can include all family members.
19.
Arts
& crafts projects: Display steps needed to complete the project as
well as the finished product. This technique will encourage independent
task completion and can be generalized to cooking or other sequential activities.
20.
Holidays:
Enhance your students' involvement in holidays or other special occasions.
Place an icon symbolizing the occasion on the class calendar. Count off
the days until the event. Use art and music accompanied by visual cues
to generate enthusiasm and inclusion
A LINE
ACROSS HIS HAND
by
Deborah L. Sardone
Copyright
2000
ALINEACROSS@AOL.com
In
memory of Rene and Rita Marcott
(reprinted
with permission)
One
day my son was born the sun shone in the sky
My
life would change forever and here's the reason why
You
see my son is different, things did not go as we planned
For
my son was born with a line across his hand
A line
across his hand
A
line across his hand
Things
did not go as we planned
Because
of the line across his hand.
They
said that he would be slow too learn and never read or write.
But
when he took his first steps it was a special night.
They
said he'd never be a man and always be a burden
But
he'd show them wrong, it was the one thing I was certain
A line
across his hand
A
line across his hand
When
his hand's held in mine
I
can't see that line across his hand
Oh
how very hard it was to learn to tie his shoe
There
were days we thought it was something he'd never ever do
But
then one day he made the bow up right and neat
Oh,
his life ain't always easy but his victories are sweet
A line
across his hand
A
line across his hand
That
shoe lace didn't care
there
was a line across his hand
I always
dreamed we'd play with a baseball and a bat
but
in our life together we jog the High School track.
There
are many things that he can do and things that he can not.
He's
much more than the sum total of the syndrome that he's got.
A line
across his hand
A
line across his hand
Don't
judge who he is by
that
line across his hand.
If
I had the power to change his life I'm not sure what I'd do
But
his life has been a blessing 'tho I've shed a tear or two
I
love my son more then I believed all those years ago
I
guess in this life we do reap what we do sow
A line
across his hand
A
line across his hand
Doesn't
change the love you feel in side
that
line across his hand
Now
my son is grown and holds a job and has a lady friend
He
is proud and kind this message I will send
A line
across his hand
A
line across his hand
They
were wrong, I know that now
this
boy of mine's a man
I had someone get in touch with me who has a son that is having trouble sleeping. She wants some ideas as how to help him and she gets a full night's rest.
I did
get a couple of responses to this problem this month…Unfortunately, I will
be paraphrasing them since I have some recollection to what they were,
but lost the info. Nothing like turning your back on a 4 year old with
paperwork on a table.
The first response was to try to cut out caffeine in your child's diet. If they get little to no caffeine they won't have that stimulant in their system. The other suggestion was to try homeopathy. If the person who sent this suggestion in could resend it I would appreciate it since I myself am interested in it, more for myself than my daughter. She is finally sleeping better. Now it's just mom who can't sleep.
A suggestion
that I received from Barbara Doyle was to change the lighting in your child's
room. If you put in a colored light, it may give them a sense of calm should
they tend to turn on the light in the middle of the night.
This
month's parent to parent problem is; I have a preschool aged child who
can't seem to keep her clothes on. She can take them off as fast as I can
put them on. Even blue jeans with the snap and zipper are no match for
her because she just squeezes out of them and then takes off her pull-up.
Help! Thanks.
If
you have a problem with your child and would like some help, please remember
that we are all just parents and this is not medical advice. All medical
advice should be taken up with your medical practitioner. The editor just
puts in the ideas; you don't have to try them if you don't like them. Your
name will be kept confidential if you wish.
Have a good month and happy reading. Don't forget that we have to spring forward the 1st Saturday in April.