Our meetings with the doctors at Duke went very well. I'm much more
impressed
with them than the one at Rex hospital in Raleigh. I had a lot of waiting
time
at Duke (was there for about 5 hours) but also had a lot of time with the
doctors. The first doctor was kind of young (early 30s), but really seemed
to
know his stuff. He sat with us for a solid hour (no interuptions) just
answering
questions and telling us about the group there. He then said it was time
for the
physical exam, but I told him I needed to go to the bathroom. He came back
after
about 15 mins and then spent another 30-45 minutes with us. I then had some
more
wait time until I saw the head of oncology (he will be my assigned doctor).
Even
as busy as you know he has to be, he spent 30-45 minutes with us with no
interuptions. I've never had that much of a doctors time devoted to me.
They didn't tell me anything new, and didn't give me any false hope, but I
came
away with a sense of hope that I could be around for a while. I never had
any
felling of hope with the doctor at Rex. I felt like with him that I might
have 6
months and he was going to try to extend it, but no real hope. The doctors
at
Duke are not saying that I'll be around in 6 months or 2 months or 24
months,
but they do say that they will work hard to give me good quality of life
for as
long as possible. I think their goals are more for the patient to have
quality
as well as quantity. The head of oncology, Dr. Hurwitz, said that his group
as
well as his colleages at Johns Hopkins (he said they talk at least every
two
weeks) have not seen benefits to outweigh the side effects of the extreme
regimen that the Rex doctor wanted to try. He suggested we start the
standard
treatment (Gemzar) soon and see how it goes. He said that he has had good
luck
with Gemzar (said he had a couple of patients that were still stablized and
going strong after two years. He said he couldn't promise anything because
every
case is individual. He said that in 10-15% of the cases they see shrinkage
with
Gemzar. 85-90% stablize. He said that he would prefer trying that due to
the low
side effects and step up to stronger medicines if this doesn't work or if
it
quits working. As I said before, I think they emphasize quality but still
attempt for as much quantity as possible. They also said that in their
studies,
they've not hit a home-run yet, but who knows what's just around the
corner.
The thing that really sold me for changing to Duke was his approach to
medicine.He said that he feels that a patient't treatment has three
components
and that no one component is any more important than any other. The
components
are:
1) Your spiritual belief and faith - no matter what beliefs you have, if
you
believe, then that faith will help
2) Your support group of family and friends
3) The medicine
I've never heard a doctor with that philosophy. That was even before we
asked
the questions about spiritual beliefs.
He also had a compassion and didn't seem patronizing like my previous
doctor.
Also had a sense of humor....
Karen asked him about working with the cat litter box (we had read
somewhere
that chemo patients should stay away from litter boxes the same as pregnant
women). He said that there's no problem with litter boxes... Karen said
"Thank
you". He then followed on with "but you should refrain from doing things
like
vacuuming, and washing dishes and cooking and any general housework". We
got a
good laugh out of that. Another of Karen's questions was about
limitations...
she said "How about sex?". His response: "Well, if you're into swinging
from the
chandelier's, you may notice that you bruise easier than usual". I told
Karen
that means the wild stuff is out. He then said "And just remember, you
don't
have to give your doctor ALL the details".
I just really feel good about this group. I know the odds are still stacked
against me, but I feel like I have a chance here to possibly hang around
until
something comes along. With the other doctor, I felt like he had already
written
me off.
Dr. H is looking into clinical trials around the country. He said they
currently
have some going on at Duke, but that I'm not in the right stage or profile
to
fit any of their current trials. I go back this Thursday for bloodwork,
regular
appointment, and start treatment.
I guess that's about it.... I'm sure I've forgotten a few details, but that
pretty much covers it.
The main thing is that I feel good about the people that will be taking
care of
me.