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Today's Date : 4.08.01
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Name : BONTE catherine
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Email Address : sanchesjose@aol.com
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URL :
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Where are you from? : France, Lyon
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Comments : Our daughter, Matilda, hope for a bone marrow transplant. She has 18 months and we have the diagnostic, Hurler's syndrom, since a month. Thank you for the hope you have given to us.
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Today's Date : 04.8.2001
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Name : Jenna Marie
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Email Address : kruemoe@t-online.de
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URL :
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Where are you from? : Germany
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Comments : Hello,
i searched for my name on "Google" and found your homepage. Your are as sweet as me.
Greetings from Germany
Jenna Marie (19 Month)
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Today's Date : 080901
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Name : rebecca
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Email Address :
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URL :
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Where are you from? : fortworth
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Comments : I remember Jenna from transplant and thought I would check out her web page and say hello.
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Today's Date : 08/16/01
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Name : Kimberly Kelly Taylor
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Email Address : taylor.k.k@worldnet.at.net
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URL :
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Where are you from? : Arlington Texs
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Comments : Sherri,
This is GREAT. I was very touched by the web-site. You and your family are very important to me and I pray for you all daily. You, Keith and especially Jenna continue to be an inspiration to me.
In Christian Love,
Ms. Kim :-
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Today's Date : SEPTEMBER 17, 2001
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Name : JACKIE POOLE
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Email Address : jackie-who@excite.com
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URL :
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Where are you from? : LOUISIANA
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Comments : I HAVE A GRANDSON, DYLAN, WHO WAS BORN WITH HURLER'S SYNDROME NOVEMBER 11, 1994. HE HAS HAD A TRACH SINCE SHORTLY BEFORE HIS SECOND BIRTHDAY AND IS UNABLE TO SPEAK. ALTHOUGH ALL THE SYMPTOMS ARE THERE GOD HAS GREATLY BLESSED HIM. HIS LAST HOSPITAL STAY WA
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Today's Date : october 8, 2001
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Name : cathy peters
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Email Address : johnmcclure@powersurfr.com
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URL :
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Where are you from? : edmonton, alberta, canada
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Comments : my daughter was diagnosed with hurler syndrome just 2 1/2 weeks ago on September 19,2001. I have read all about jenna and I hope that she continues to do well. my prayers are with you .
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Today's Date : 10/10/2001
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Name : Brad Leinart
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Email Address : bleinart@aol.com
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URL :
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Where are you from? : Grapevine, TX
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Comments : Sherri,
It has been awhile since I read about Jenna but I haven't forgot to keep all of you in my prayers.
Brad
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Today's Date : 10/10/01
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Name : Mindy Farris
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Email Address : melindafarris@aol.com
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URL :
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Where are you from? : Dallas
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Comments : Sherri,
Didn't know very much about Jenna until reading this. All of you will be in my prayers.
Love to you all!
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Today's Date : October 18, 2001
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Name : Ricka Cooper
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Email Address : ricka@mail.utexas.edu
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URL :
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Where are you from? : Texas/Connecticut
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Comments : What a touching story! Best of luck in the future. God is watching over you all.
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Today's Date :
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Name : chelsea
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Email Address :
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URL :
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Where are you from? : china
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Comments : my son just got this disease and your story gives me the strength to go on
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Today's Date : 31/10/01
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Name : Jenna Marie
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Email Address : jean@maxxy.fsworld.co.uk
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URL :
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Where are you from? : England
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Comments : I was searching the internet for my name and I came across your page you give inspiration to us all.God bless you.
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Today's Date : 01 Nov. 2001
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Name : Heidi Nelson
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Email Address : heidi_nelson_1999@yahoo.com
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URL :
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Where are you from? : Texas/Connecticut
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Comments : Jenna, I haven't seen you in almost two years now (or your mom, Hi Sherri) so I logged onto to your website today and there you were - you beautiful little girl you! I love the new hair! Continue in your progress! My love and prayers always, Heidi
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Today's Date : Nov. 8, 2001
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Name : Amanda Thornton
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Email Address : mandi_jo17@hotmail.com
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URL :
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Where are you from? : Ohio
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Comments : I have a nephew with Hurler Syndrome and his family along with all the others that deal with this is so brave and I commend you for what you and your family do to keep your little girl alive. Jenna and Austen( that is my nephew) are angels from God above.
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Today's Date : 9 Nov 2001
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Name : Terry McClure
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Email Address : terry502@erols.com
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URL :
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Where are you from? : Severna Park, MD
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Comments : I never heard of MPS until today
when my wife and I visited a little
girl in a Baltimore Hospital with
MPS. I was searching the internet
and found your page and was touched
by your family and beautiful Jenna.
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Today's Date : nov 11, 2001
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Name : ken fore
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Email Address : ken4@iwon.com
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URL :
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Where are you from? : United states
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Comments :
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Today's Date : nov 11, 2001
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Name : ken fore
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Email Address : ken4@iwon.com
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URL :
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Where are you from? : United states
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Comments : I am a medical student doing research on Hurlers syndrome and am thankful for people such as yourself for providing information that I know is difficult for you. I appreciate your information and wish you all the goodness and fortune possible.
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Today's Date : 11-12-01
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Name : Ashley Hardee
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Email Address :
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URL :
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Where are you from? : South Carolina
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Comments : I wish you the best of wishes in the future. Just remember the lord is with you day to day.
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Today's Date : 11-12-01
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Name : Christina Hardee
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Email Address :
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URL :
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Where are you from? : Aynor, South Carolina
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Comments : I hope that everything goes right for you in the future. i will keep you in my prayers. God bless you. Everything will turn out for the best.
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Today's Date : 13/11/2001
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Name : Jenna Marie Rowen
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Email Address :
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URL :
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Where are you from? : Bay Of Plenty, New Zealand
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Comments : Your story is is amazing
All my prayers are with you and your family.
God Bless
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Today's Date : November 13, 2001
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Name : Catherine Carnes
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Email Address : CTScarnes@yahoo.com
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URL :
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Where are you from? : San Diego, CA
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Comments : My daughter is being diagnosed with MPS as of last Monday. We are still waiting for x-rays and lab work but the genetist is 95% sure that she has Hurler... I am interested in learning as much as possible about this illness.
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Today's Date : 20 November
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Name : Jenna Marie Rohr
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Email Address : LRohr@supportnet.com.au
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URL :
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Where are you from? : Victoria, Australia
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Comments : I was looking for information about Cataracts, and stumbled upon this web site that had the same name as myself. I then read the story about Jenna and was touched by such a warm and compassionate ending.
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Today's Date : 11/19/01
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Name : Rebecca
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Email Address : beccarr03@aol.com
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URL :
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Where are you from? : Union, KY
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Comments : I looked up Hurler's syndrome for my AP Biology class when we were asked to research a genetic disorder. Our teacher made it very clear that, along with learning the scientific aspect of our syndrome, she wanted us to learn about the emotional effects of
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Today's Date : November 26, 2001
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Name : Aimee Ward
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Email Address : aydub@optonline.net
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URL :
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Where are you from? : Connecticut
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Comments :
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Today's Date : December 3rd 2001
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Name : Jennifer Cummings
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Email Address : Hotte716@aol.com
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URL :
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Where are you from? : Lakeland,Florida
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Comments : Hey
hope the reat of your life is great
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Today's Date : 12-03-01
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Name : Lauren Ottinger
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Email Address : giggles_215@hotmail.com
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URL :
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Where are you from? : Texas
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Comments : I was just writing Mrs. Richbourg and Jenna to say that I am from Mr. Bozeman's class @ Haltom High School, and I loved your story. How strong you must be to go through all of the tests, risks, recovery, and throughout the surgery. I wanted to thank Mrs.
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Today's Date : 12/4/01
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Name : Megan Bryan
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Email Address : flutewonder03@hotmail.com
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URL :
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Where are you from? : Texas
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Comments : I came from Mr. Bozeman's biology class and I just wanted to say that your story deeply touched me and good luck in later years!
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Today's Date : December 10, 2001
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Name : Kim Suffka
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Email Address : csuffka@aol.com
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URL :
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Where are you from? : Haltom City, TX
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Comments : Thank you for coming and visiting Mr. Bozeman's class on Monday. It was a very touching experiance. I hope that you will all have a wonderful Christmas!!
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Today's Date : December 27, 2001
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Name : Patty Dow
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Email Address : rpadow@ionsys.com
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URL :
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Where are you from? : Innisfil, Ontario, Canada
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Comments : My first son passed away from Hurler Sept. 12, 1996. Complications from a BMT. He had Hurler's. Your daughter is adorable. Enjoy her as much as possible.
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Today's Date : 01-07-02
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Name : Carol Vesterby
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Email Address : rumcake@hotmail.com
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URL :
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Where are you from? : Vancouver,WA
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Comments : I recently lost a son named Jack to complications from a BMT...He was diagnosed with Hurler's in August of 2000 and I have followed and enjoyed your updates on Jenna...she is precious. My prayers are with you...
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Today's Date : 1/7/02
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Name : Melanie Irish
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Email Address : mairish@hotmail.com
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URL :
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Where are you from? : Marysville, Washington
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Comments : Thank you for your wonderful website. My son was diagnosed with Hurler Syndrome 3 weeks ago. It has been a very trying time, but sites like yours truly give us hope that we can get through it.
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Today's Date : 1-9-2002
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Name : dawn
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Email Address : dawn_79@netins.net
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URL :
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Where are you from? : iowa- quad-cities
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Comments : i had a daughter named Maddie w/ severe Hurler's that passed away 5 yrs. ago.- wanted to keep up to date w/ info and visit some of the people.- haven't thought about this in a long time- but glad i visited some sites.- hope Jenna is doing well- give her a
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Today's Date : 01-28-02
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Name : Crystal Giroir
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Email Address : ksgiroir@at&t
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URL :
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Where are you from? : Louisiana
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Comments : My godchild was just dx w/Hurlers on 1-24-02. Jenna has given us hope. We are looking into Cook Hospital for tx. Good Luck and Jenna is in our prayers.
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Today's Date : jan 30,2002
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Name : terry parfait
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Email Address : angelbabie82599
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URL :
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Where are you from? : houma la
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Comments : we read your story we're glad to here Jenna's doing well. GOD BLESS
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Today's Date : 02/05/03
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Name : KAREN MEANA
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Email Address : KMEANA@AOL.COM
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URL :
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Where are you from? : USA
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Comments : I HAVE A 7 YEAR OLD COUSIN WHO HAS HURLER'S SYNDROME. SHE IS DOING PRETTY WELL AND SHE IS VERY SMART AND FUNNY. I PRAY FOR HER EVERY NIGHT AND NOW FOR ALL THE OTHERS TOO.
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Today's Date : 2/12/02
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Name : Marissa
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Email Address : XoXoDKNYoXoX@aol.com
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URL :
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Where are you from? : NEW YORK
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Comments : I attend a school called OMS and i am doing a project on genetic diseases. I came across your site and was touched by it! thanx for all the information that you provided for me....Love and praying all the time....*~Marissa~*
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Today's Date : Feb 14, 2002
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Name : Krister Svensson
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Email Address : krister.svensson@pac.ericsson.se
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URL :
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Where are you from? : Sweden
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Comments : Hi !
It's very interesting to read your story and I have learn very much about Hurler from yoy.
I realy hope everything is OK with Jenna.
My grand daughter Madeleine has also got Hurler and will have BMT in the middle of March 2002.
Regards Krister
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Today's Date : 21/2/2002
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Name : Wendy Bartlett
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Email Address : wendyloub@aol.com
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URL :
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Where are you from? : Notts,England
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Comments : Wishing you all the best for the future, thinking of you
Near where i live in notts, England there is a forest with oak trees planted each is dedicated to a child who has lost their life to mps - I found your page as i wondered what this condition was.
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Today's Date : 3/1/02
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Name : Jan Demetruk
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Email Address : jdemetruk@ntsp-md.com
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URL :
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Where are you from? :
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Comments : Hi Sherri,
I was just thinking of you and Jenna. How is she doing - I hope all is well. Is she old enough for pre-school now?? Also, how is your business going. Just had a minute and wanted to say Hi and see how everything is going.
Jan
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Today's Date : March 7/02
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Name : Pauline MacLellan
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Email Address : parkwood97@yahoo.ca
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URL :
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Where are you from? : Canada (Nova Scotia)
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Comments : You'll never know the difference it has made to me, personally, to find your website today. My great neice has just been diagnosed with Hurler's Syndrome. Your story sends a message of hope. Thank you!!
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Today's Date : March 7, 2002
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Name : Stephanie
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Email Address :
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URL :
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Where are you from? : New Jersey
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Comments : I was looking for info on Hurler's Syndrome for a Lab Biology project, your story has really touched me...good luck and hope Jenna is doing well...my thoughts and prayers are with you!
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Today's Date : 3-14-02
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Name : Jeanne Blair
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Email Address : mommyjb@cox.net
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URL :
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Where are you from? : Va Beach, Va
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Comments : I just found Miss Jenna's website. You are amazing, girl. My 3yr old has Hurler's also. He is 2 yr post transplant. He is also being reviewed for hip problems. They almost did surgery(break both legs and position and cast for 6 weeks) we went to an ortho
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Today's Date : March 16,2002
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Name : Ticia
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Email Address : ticiamalcuit@hotmail.com
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URL :
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Where are you from? : Concordia Kansas
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Comments : What an amazing story..I have a step son whom we think might have Hurler's syndrom. Go to KU med for more testing in April... We have 5 other kids just pray that god will grant us the strength to get through it and your page has given us courage because n
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Today's Date : 20/03/02
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Name : sultana
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Email Address : sultanaR17@hotmail.com
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URL :
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Where are you from? : wales
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Comments :
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Today's Date : 03-22-2002
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Name : Claude Richbourg
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Email Address : richbourgc@mail.ecu.edu
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URL :
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Where are you from? : Florida
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Comments : Hello there,
I am the son of John Richbourg from Pensacola, Fla. I was searching the web and came across your link. I am looking to join the Sons of the American Revolution.
If you have any information please let me know.
Thanks and look forward to hea
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Today's Date : 4-18-02
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Name : elizabeth
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Email Address :
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URL :
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Where are you from? : Miami
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Comments : I'm writing a paper for school on hurler's and visited your website to get information. I am a nurse specializing in Anesthesia. I hope Jenna is doing well. God Bless her with health.
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Today's Date : 4/25/02
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Name : jessica
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Email Address : not tellin ya but my sn is snobordrchick89
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URL :
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Where are you from? : michigan
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Comments : hey there i love ya page its so qute umm i was bored so i was lookin for gues books to sign or suumtin. well good luck with ya page and if it was like jenna's mom or dad (i think it was cause she was young in the pics) good luck with her and if ya have ai
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Today's Date : 5/1/02
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Name : Brandi (George) Kenworthy
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Email Address : kenworthy@cowboy.net
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URL :
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Where are you from? : formerly Cook Children's
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Comments : Dear Sherri, Keith, and Jenna
I was one of Jenna's ICU nurses at Cook Children's 4 years ago (I can't believe it's been that long), and I absolutely fell in love with your precious little girl. I was thinking about Miss Jenna, and I cannot believe how bi
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