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Todays Date : 04/15/04
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Name : Pat Cox
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Email Address : coxpcapps@aol.com
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URL :
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Where are you from? : Imperial, Ca.
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Comments : Jenna I am still in touch with your progress. I signed your guest book back in mar 31, 1999. Im still praying for you. I still love you & so does God.
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Todays Date : April 15,2004
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Name : Abigail Alvarez
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Email Address : aalvar08
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URL :
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Where are you from? : El Paso TEXAS
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Comments :
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Todays Date : 04/09/2004
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Name : Pam and Morgan Hart
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Email Address : plshawen@hotmail.com
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URL :
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Where are you from? : Arlington
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Comments : Hello, how is everyone? Miss you all. Happy Easter! Morgan and Pam
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Todays Date : 12 March 2004
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Name : Mrs. Boyles Biology class
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Email Address : lboyle@aisd.net
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URL :
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Where are you from? : Arlington
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Comments : Thank you for visiting. We wish you would have stayed longer, we wish we had more questions. Tell Jenna we said hi, and we hope to see you again!
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Todays Date : 3/10/04
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Name : Jamie
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Email Address : Heaven_sent007@verizon.net
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URL :
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Where are you from? : Maryland
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Comments : Jenna is so cute. I was doing a project on Hurlers syndrome for my high school biology class and came across this site. it is amazing how well jenna is doing and i would like to hear more updates about jenna in the future
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Todays Date : 4th March 2004
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Name : Rosemary Marianne
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Email Address : marianne.rosemary@saugov.sa.gov.au
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URL :
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Where are you from? : Australia
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Comments : Thank you for opening up the world of MPS in such a beautiful, real way - I love the photographs of your adorable Jenna Marie.
I work with the Disabilitiy Services in a remote area of Australia and one of my little clients has MPS and I have been doing s
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Todays Date : 27/02/2004
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Name : pardon
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Email Address : pardonosolase@yahoo.com
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URL :
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Where are you from? : nigeria
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Comments : i love this site...............
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Todays Date : 25.02.04
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Name : CHARLENE MURRAY
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Email Address :
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URL :
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Where are you from? : BELFAST, N. IRELNAD
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Comments : HELLO, MY NAME IS CHARLENE FROM BELFAST. I HAD A LITTLE ANGEL SENT FROM HEAVEN WHO ALSO SUFFERED FROM HURLERS(MY SISTER). SHE WAS THE MOST BEAUTIFUL PERSON. SADLY SHES NOT HERE NOW. PLEASE GIVE YOUR LITTLE GIRL A BIG KISS FROM ME AND KEEP YOUR CHINS UP XO
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Todays Date : Feb. 4 2004
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Name : Ashley Rodriguez
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Email Address : caringbridge.org/ny/ashley
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URL :
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Where are you from? : New York
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Comments : For some reason my entire message wasnt sent She was diagnosed 11/17/2003. Believe in God with all your Heart and you will see wonderful things happening. Ashley had BMT on 1/23/04. She doing good. God is with us and with your fam. Keep on praying. Good L
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Todays Date : February 4, 2004
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Name : Ashley Rodriguez
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Email Address : caringbridge.org/ny/ashley
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URL :
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Where are you from? : New York
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Comments : Hi Jenna and family. My daughter Ashley was recently diagnosed with Hurler. That was a shocking and terrifying experience. I have a 5 yr. old daughter who was healthy as can be and here I was with another baby 41/2 yrs. later. We got her diagnose on Nov.
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Todays Date : 1/29/04
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Name : MARY
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Email Address : mary1936@zoominternet.net
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URL : http://katilynn.truecountry.com/
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Where are you from? : KY
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Comments : YOU HAVE A VERY NICE SITE ITS SO SAD TO SEE KIDS WITH hurlers syndrome I JUST MADE THIS WEB SITE FOR MY COUSIN HER Daughter SHE HAS Hurlers Syndrome HER NAME IS KATILYNN THE URL I GAVE YOU IS HER WEB SITE SHE LOVE IT IF YOU TAKE A LOOK OR A EMAIL FROM YOU
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Todays Date :
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Name : Stephie
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Email Address : luv_it_baby2002@yahoo.com
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URL :
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Where are you from? :
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Comments : Never give up! On be half of my class and i, we give you our love and hope. There is a special place for u in my bio presentation...and Jenna Marie stole the show just like she should!
Stephie
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Todays Date : Jan. 27, 2004
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Name : Marie
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Email Address : luv_it_baby2002@yahoo.com
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URL :
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Where are you from? : Houston, Texas
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Comments : Hello there! Im Stephie, but my friends call me Marie. I came across your page about your beautiful daughter, Jenna Marie, while looking up some information about Hurlers Syndrome with my friend Angela. We are doing a science project on the syndrome. When
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Todays Date : January 7, 2004
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Name : Ticia Malcuit
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Email Address : ticiamalcuit@hotmail.com
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URL :
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Where are you from? : Concordia, Kansas
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Comments : Jenna you are an inspiration an I am so grateful to this day that we my son Christopher an I had the opportunity to get tomeet you and your wonderful parents. Hope all is still going well for you all in Texas. Currently we are all doing GREAT!!! Christoph
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Todays Date : 12/22/03
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Name : Jeri
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Email Address :
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URL :
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Where are you from? : Ohio
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Comments : I work for a MR/DD County Board and I recently got a 6 year little girl on my caseload with this condition. I never heard of the Hurler Syndrome until I meet Taylor. I was doing research on this condition when I found your web page, and I have to tell you
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Todays Date : 12/15/03
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Name : candy
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Email Address : rebeldreamz@hotmail.com
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URL : http://rebeldreamz.warriorofnight.com
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Where are you from? : California, USA
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Comments : God bless, Jenna, and good luck through life! And thanks for making such an informative page (I used some of this for my research paper in Bio)!
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Todays Date : 12-2-03
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Name : Stephanie
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Email Address :
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URL :
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Where are you from? : CA
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Comments : I chose Hurler syndrome for a bio research paper and your website really helped me. Goodluck with Jenna, Dont giveup!
God Bless,
Stephanie
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Todays Date : nov. 23, 2003
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Name : Jenna May Torres
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Email Address : jhen2207@yahoo.com
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URL :
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Where are you from? : Philippines
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Comments :
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Todays Date : 11-13-03
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Name : Marybeth Brewer
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Email Address : brewer99@flash.net
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URL :
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Where are you from? : Berkley Michigan
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Comments : Im doing a project on Hurler disease and i stumbled on to your page. I wish you luck in your struggle with this disease. Even though I dont know much about this disease Im sure that you have been through some hard times. I would like to know more about th
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Todays Date : November 8 2003
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Name : Jacqueline
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Email Address :
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URL :
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Where are you from? : Ontario, Canada
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Comments : Hope everything is well! Sincerely God bless!
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Todays Date : 10/7/03
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Name : Lanell Ballard
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Email Address : simonb@txucom.net
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URL :
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Where are you from? : Lufkin, Texas
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Comments : Jennas story is a very toughing one for me. When I read it, I had to pause and thank God for my healthy grandchildren. Please know that I will lift you to the throne of grace daily as I pray.
Love in Christ
Lanell Ballard
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Todays Date : 23/9/03
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Name : Tony Koens
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Email Address : tony53@iprimus.com.au
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URL :
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Where are you from? : Perth Western Australia
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Comments : Dear Jenna
How are you doing, better I hope.
I have read the story with much interest because my nices son has Hurlers disease.
I dont know what it is like to have a child like that, but I feel for all the parents who do have a child with this disease
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Todays Date : 25 June 2003
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Name : Trina Ward
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Email Address : daria99@bigpond.com
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URL : www.users.bigpond.com/daria99
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Where are you from? : Brisbane, Australia
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Comments : Hello again, Daria is doing really well and she is 635 days post transplant. Hard to believe we 1st found u 3years ago. best wishes trina.
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Todays Date : 5/9/03
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Name : Justin Smolewski
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Email Address :
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URL :
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Where are you from? : Baltimore, Ohio
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Comments : Good job
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Todays Date : 28th april 2003
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Name : marie
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Email Address : waynetomes@aol.com
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URL :
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Where are you from? : england
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Comments : my son is called ashleigh he is 6 years old he as hurlers and is birthday is 24/4/97 the same as your daughters my sons hasnt had a bmt your daughter is beautiful i hope you can reply to my email
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Todays Date : Wed. April 9th 2003
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Name : Jenna
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Email Address : hockeys_life@hotmial.com
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URL : http://www.matmice.com/home/fighterandchampion
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Where are you from? : Kamloops
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Comments : Hello Jenna,
Great Name! My name is Jenna. Cute smile. I know you are a fighter. I have a rare bone disease which is really rare, and I like talking to other parents and kids, who have a disease of some kind, because in some way they can relate to me. my
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Todays Date : March 12, 2003
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Name : Kelli Minyard
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Email Address : kanderson@pclnet.net
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URL :
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Where are you from? : Athens, AL
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Comments : I hope Jenna and your whole family are doing well. You will be in my prayers from this day forward. In Gods Love, Kelli
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Todays Date : March 5, 2003
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Name : Nesha
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Email Address : lilnesha15@aol.com
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URL :
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Where are you from? : Monroe, Louisiasna
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Comments : Hey Jenna! This is Antreknesha. I just want to tell you that this is a beautiful website! Its my favorite color! I also want to wish you the best of luck as life goes on and to always think of it as a gift. Bye!!!
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Todays Date : 02-22-03
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Name : Brandi
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Email Address : khssoftballplaya@aol.com
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URL :
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Where are you from? : Virginia
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Comments : Hey! My name is Brandi. I chose Hurler syndrome to research for a Biology project. I learned a lot on your Web page. I would like to say, I wish Jenna well. She is in my prayers. Glad to see she is doing well! Loads of Luck, Brandi
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Todays Date : 1/31/03
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Name : Kelly Schaaf
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Email Address : AngelVoiceTammi
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URL :
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Where are you from? : VA
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Comments : We were recently assigned a project in science class where we must choose a genetic disease to research. I chose Hurlers, and since then, I have learned so much about it. I would like you to know that Jenna and your family are in my prayers and I hope all
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Todays Date : 1-29-2003
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Name : Susan Jakcsy
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Email Address : psych@mit.midco.net
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URL : www.oocities.org/Soozeej/index.html
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Where are you from? : South Dakota
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Comments : I visited your site as I was looking for information about MPS. Its good to read about good things happening.
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Todays Date : Jan. 20,2003
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Name : Francine Bowmaster
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Email Address :
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URL :
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Where are you from? : New Brunswick
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Comments : I have a little girl that was just diagnosed with hurler syndrome a few months ago. She is now 4 and we really dont know whats going to happen. We have an appointment to go to Toronto in feb.
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Todays Date : Jan. 20,2003
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Name : Francine Bowmaster
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Email Address :
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URL :
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Where are you from? : New Brunswick
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Comments : I have a little girl that was just diagnosed with hurler syndrome a few months ago. She is now 4 and we really dont know whats going to happen. We have an appointment to go to Toronto in feb.
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Todays Date : 1/9/03
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Name : lucy
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Email Address : bebitangel@aol.com
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URL :
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Where are you from? : new york
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Comments : Hi, I wrote b4,it was cut off,I just want 2 congrat. u late u. Best of luck and lots of Love! a kiss to beautiful jenna, love the pics...
a friend from ny
Lucy
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Todays Date : 1/9/03
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Name : lucy
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Email Address : bebitangel@aol.com
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URL :
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Where are you from? : New York
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Comments : Hi, well i just want to let you know that i am so happy to hear your story and that everything has worked out for you and your daughter. I know it must be really hard to first find out and adapt. I like to learn about new things and I have been reading ab
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Todays Date : Dec. 8, 2002
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Name : Angie Clemons
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Email Address : amclemons@hotmail.com
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URL :
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Where are you from? : Texas
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Comments : My friend just found out her daughter has Hurlers syndrome and recommended this web page to me, now i understand more of what she has to go through.
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Todays Date : 11/26/02
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Name : Kendra,Stevie,al,yeseul
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Email Address : none
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URL : -
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Where are you from? : Kentucky, an Korea
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Comments : We love her Very Much.
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Today's Date : 11/13/02
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Name : Nicole
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Email Address : horselover2929@yahoo.com
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URL :
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Where are you from? : Kentucky
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Comments : I chose the Hurler disease for a class project and your site was very helpful to me. I liked the pictures of Jenna, she is a very cute little girl. She has helped me in more ways than one, and will be in my prayers. Thank You for sharing her story with us
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Today's Date : November 6, 2002
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Name : Laura and Sarah
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Email Address : srb05@yahoo.com
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URL :
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Where are you from? : South Hill, Virginia
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Comments : Hi, we are doing a research project for our school on Hurler Syndrome. We found your site on a search engine and looked at it. The site was great and we enjoyed hearing about the continuous progress of your daughter. If you have any information that we ma
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Today's Date : 11/4/02
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Name : Mrs. Boyle's EAGLE Biology 2nd period
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Email Address : lboyle@desotoisd.org
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URL :
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Where are you from? : Desoto Freshman Campus
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Comments : Thank you for coming to speak to us. We appreciated it, we learned a lot and hope you will come again. Enjoy the gift.
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Today's Date : 24.10.2002
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Name : Verónica
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Email Address : veronicaltc@hotmail.com
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URL :
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Where are you from? : Portugal
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Comments : hello Jenna!
I hope that everything is going well in your life. Two years ago I made a work about Hurler sindrome and I saw your page. I very happy to know that your fine. Good luck for all of your life. Verónica Casimiro
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Today's Date : October 23, 2002
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Name : Jenna Marie Thornburg
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Email Address : sparkles0604@hotmail.com
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URL :
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Where are you from? : Nebraska
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Comments : Hello- I just wanted to tell you how blessed you are to have Jenna and that she is a beautiful little girl. Jenna will be with me in my prayers as she is in many others as well. I wish you all the best.
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Today's Date : oct 11, 2002
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Name : shilo
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Email Address : shilo1218@aol.com
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URL : http://www.angelfire.com/or2/ashlysworldofwonders/about.html
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Where are you from? : oregon
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Comments : hello, I hope Jenna is doing well!!! and I hope the treatments work...and cross my fingers that it works for the long haul.
I hope this is your miracle...because your miracle will pave the path for our miracles.
they thought my daughter, ashly..for over
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Today's Date : 09.29.2002
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Name : Veronika Urban
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Email Address : Galandriel@zoznam.sk
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URL :
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Where are you from? : Slovakia
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Comments : Szia, Jenna! Nem tudok Neked angolul irni, de el szeretnem mondani, mennyire szoritok Neked.
Par honapja foglalkozom hozzad hasonlo gyerekekkel, es nagyon csodalom oket es a szuleiket is.
Minden jot, tarts ki!
Veronika (14)
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Today's Date : Sept 11, 2002
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Name : Nicole
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Email Address : Nicoleclarke497@hotmail.com
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URL :
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Where are you from? : Newfoundland, Canada
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Comments : Hi, I was just checking out this site. It touches me in many way. I get on to learn more about this disease. I have a little girl at 3 with hurler's. I try to get the most informatin i can. Thanks for this web site it help alot.
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Today's Date : 09-09-02
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Name : Dawn
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Email Address : ccorreia5374@rogers.com
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URL :
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Where are you from? : Toronto- Ontario
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Comments : Hi I am the Aunt of a little girl who has just passed away from Hulers I have leared alot just know her for the short time she was with us and I am blessed to have had her in are life for 2 years . I have enjoyed reading about you little one and hope all
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Today's Date : 8/25/02
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Name : Catherine Ibarra
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Email Address : Catherine_Ibarra@hotmail.com
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URL :
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Where are you from? : Georgia
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Comments : Your site is beautiful. Thank you so much for Jenna's story. I will continue to pray for her.
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