Thanks for visiting my homepage and for stopping by to read the guestbook. Come back soon.

David Seidel - 11/19/00 18:06:24
My Email:dwsnrhs@aol.com
Do you or someone you know suffer from CVS?: No
What's your favoirte NHL Hockey Team?: Penguins
Are you a swimmer? Do you compete? What events?: No
Do you like trains? What kinds?: Absolutely/PRR
Do you like model trains?: Yes
What's your favorite website?: www.trainweb.org/horseshoecurve-nrhs

Comments:
Hi Aaron. Your personal webpage is well done and I enjoyed visiting. Learned much about CVS, an illness I was not familiar with. While this illness may be on the negative side of your life-ledger, it is far outweighed by your positive talents, wide field of interests, and accomplishments. No person in the world is absolutely "perfect". What makes a difference is how we make use of the "other" talents we are given. Keep up the good work, maintain a positive outlook, and keep sharing your experiences with us.

Kari - 11/12/00 19:41:46
My Email:Karid2468@aol.com
Do you or someone you know suffer from CVS?: My son Glenn "Pup"

Comments:
I'm Pup's mom. He is 10 now and cold use some friendly support and kind words of encouragement

Angie - 10/30/00 20:22:49
My Email:DLPxtn@aol.com
Do you or someone you know suffer from CVS?: my son
What's your favoirte NHL Hockey Team?: none
Are you a swimmer? Do you compete? What events?: no
Do you like trains? What kinds?: yes-all
Do you like model trains?: love them

Comments:


Joanne Gross - 10/28/00 19:47:30
My Email:joannehg@netzero.net
Do you or someone you know suffer from CVS?: I think my daughter does. No vomiting only bad nausea. Everything else fits. So nice to know we are not alone!
What's your favorite website?: Right now it is the CVS site!

Comments:
I am very thankful for people like you and other families who are willing to share their CVS stories.

Starlett Jones - 10/25/00 21:09:45
My Email:renfordfraser@aol.com
Do you or someone you know suffer from CVS?: I have been for almost nine years
What's your favoirte NHL Hockey Team?: New York
Are you a swimmer? Do you compete? What events?: Yes.With family.For fun.
Do you like trains? What kinds?: Yes,any one that will get me from point a to point b.
Do you like model trains?: Yes
What's your favorite website?: THIS ONE!!!!!!!

Comments:
I would like to thank the person who started this.They are truly a blessing to people like me and our families.And to those who are suffering like I am, wondering what did I do to deserve this. Just remember that we did nothing and that GOD arms are wrapped tight around us. I will continue to pray for us. MAY GOD BLESS YO

Shauna - 10/10/00 03:15:11
My Email:Shlepy16@hotmail.com
Do you or someone you know suffer from CVS?: I suffer from it
What's your favoirte NHL Hockey Team?: i dunno
Are you a swimmer? Do you compete? What events?: no, im a runner
Do you like trains? What kinds?: sure, i dont kno
Do you like model trains?: yeah
What's your favorite website?: i have many

Comments:
hey aaron. my name is shauna. i suffer from cvs also. im 17 years old and live in california. ive had it since i was four. i agree with you that people shouldnt let it get you down. i dont. i fight through it. its hard becuase of school, but im always abl to do it. talk to you later.

valerie bruce - 10/02/00 03:41:19
My Email:bruceval@home.com
Do you or someone you know suffer from CVS?: yes (son)

Comments:
i have a four year old son with mild cvs and it is very hard on me and my family. it took them forever to diagnos.

ko - 09/28/00 03:55:16
My Email:ko
Do you or someone you know suffer from CVS?: me
What's your favoirte NHL Hockey Team?: broncos
Are you a swimmer? Do you compete? What events?: i love woman
Do you like trains? What kinds?: steam trains
Do you like model trains?: no
What's your favorite website?: buffy.com

Comments:
hey howz it going

MARYSE GOODALL - 08/18/00 21:27:29
My Email:MGoo9446@aol.com
Do you or someone you know suffer from CVS?: My son,Jonathan

Comments:
A lovely website.My son is 15 and has had episodes for four years, luckily only yearly.

Emily - 08/13/00 02:00:46
My Email:em2000@angelfire.com
Do you or someone you know suffer from CVS?: no
What's your favoirte NHL Hockey Team?: pittsburgh penguins
Do you like trains? What kinds?: yes i train ever day
What's your favorite website?: this one

Comments:
i play hockey myself man i know ill a girl playing on a guys team but what can i say hockey is my life im a Left wing and i bet the liveing shit out of the guyz it fun i love geting hurt i love pain!

Susan Mollman - 08/09/00 23:49:50
My Email:jmollman@mato.com
Do you or someone you know suffer from CVS?: Perhaps my son Stephen
What's your favoirte NHL Hockey Team?: Avalanche
Are you a swimmer? Do you compete? What events?: I used to be in the backstroke
Do you like trains? What kinds?: Every kind, but especially the old steam trains
Do you like model trains?: My husband has some and we are making a coffee table with some n scale trains in it
What's your favorite website?: angelwinks

Comments:
My son Stephen, who is 5 yrs. old and loves trains, has had serious vomiting every two months for the last year. He's been in the hospital on IV's 5 times since Nov. I was searching the Web for info since the Dr.is stumped and came across your site. Th nks for the info and good luck!

Daniel's MOM - 07/29/00 04:43:18
My Email:lhill66097@aol.com
Do you or someone you know suffer from CVS?: i think my son does
What's your favoirte NHL Hockey Team?: Buffalo Sabers
Are you a swimmer? Do you compete? What events?: son loves to swim
Do you like trains? What kinds?: model
Do you like model trains?: yes
What's your favorite website?: pokemon,ninentendo

Comments:
Daniel has really just started the testing next step is a gastroenterologist I wish you all The best! Thank-You for sharing your story

Lance Myers - 07/15/00 22:19:37
My URL:http://www.trainweb.org/rpia
My Email:sd100mac@hotmail.com
Do you or someone you know suffer from CVS?: you
What's your favoirte NHL Hockey Team?: ducks i guess
Are you a swimmer? Do you compete? What events?: lifeguard
Do you like trains? What kinds?: yes, MODERN FREIGHT/PASSENGER LOCOMOTIVES
Do you like model trains?: yes, i have a roster on my site
What's your favorite website?: mine of course

Comments:
hey, what's up i got a digital camera. that means more pics for my site. you're welcome to use them. i saw an SD80MAC today, thought i got a pic of it but didn't. that made me mad 79 pages on my site by the way we should go railfan together sometime. i know a kid that lies beside the EBT. he's on my ICQ and reminds me a lot of you i'vve met up with him a couple times. saw his garden railroad. c-ya later ~~~~`Lance

Alex's mom - 06/14/00 23:13:56
My Email:mascitti@msn.com
Do you or someone you know suffer from CVS?: yes
What's your favoirte NHL Hockey Team?: New Jersey Devils -actually this is his father's favorite team since he is from New Jersey but Alex loves to watch also
Are you a swimmer? Do you compete? What events?: loves to swim - not on swim team
Do you like trains? What kinds?: love all
Do you like model trains?: yes
What's your favorite website?: Thomas the Train

Comments:
Hi! I found your page on the CVSA home page and wanted to write to you. My son, Alex, will be four years old in July and has had CVS since he was six weeks old. At first, he only had episodes about every 3 to 4 months which lasted about 6 or 7 hours. is doctor and the nurses would always say he had a "virus". I knew by the way that it would happen so suddenly and how he would sleep the entire time before it ended abruptly, that it was not just a virus. Until two days ago, his last episode was March f 1999. It has been 15 months since he had any vomiting. We had thought he had grown out of it, but unfortunately not so. This time he ended up in the hospital and it lasted 13 hours! I am just curious as to how long you have had this and if you know w ether or not anyone else has ever gone that long between episodes. What has been so frustrating to me is when I tell the doctors and nurses about this they have no idea what I am talking about. His pediatrician finally sent him to a gastroenterologist w o immediately identified it as cyclic vomiting. In the emergency room the other night, the ER doctor had never heard of cyclic vomiting and told me that with rare illnesses, the doctors just don't read up on them and therefore don't know much about it. ven after I explained the symptoms of CVS to him, he kept saying he felt like it was a migraine. He finally contacted the on-call doctor for the gastrointerologist and he said it sounded like abdominal migraines. Alex has never complained of a stomach ac e but it always starts out with dizziness and headache. In fact, he had one episode when he was looking a some fabric with stripes. At other times, he has been running in circles, or once when he was a baby bouncing and spinning in circles in his johnny jump-up. This last episode he was playing in the pool, going under water alot and jumping up and down while his sister was holding him, trying to make big waves. As he wakes up to vomit, he screams and puts his hands over his eyes. Does this happen to ou? I wonder if he is screaming because the vomit or stomach acid burns or if it is pain in his head or stomach. I would appreciate anything you could tell me about your experiences and what it feels like. Since Alex is so young, it is hard to know just hat he is feeling. Like you, my son Alex is CRAZY about trains. (That is part of the reason I wanted to write to you) His favorite is Thomas the Train (a little young for you, I know)but he loves everything about trains...books, movies, toys, etcs.His dad and his grandpa bo h love trains also. His grandpa has a model train setup in his garage and we have the G scale in our garden. He has alot of fun with his dad and the train. I hope you grow out of this soon! I look forward to hearing from you or your parents. Thanks! Alex's mom

Aaron M - 06/05/00 22:38:58
My URL:http://Aaron M/CVS
My Email:turtl61@earthlink.net
Do you or someone you know suffer from CVS?: my self
What's your favoirte NHL Hockey Team?: I don't have one
Are you a swimmer? Do you compete? What events?: Yes/ TaeKwonDo
Do you like trains? What kinds?: Kinda
Do you like model trains?: kinda
What's your favorite website?: I don't have that either.

Comments:
I don't use a computor much. I have CVS but just learned I do in February.

ann harvey - 06/04/00 11:21:49
My Email:jharvey@megalink.net
Do you or someone you know suffer from CVS?: my husband

Comments:
Only want to thank you for your story and wish you well. My husband was sick for a year then put on prozack. It kept him well for 5 months then he decided to stop because of negative feedback on prozack. Went back into vomiting three weeks later. He is in the hospital but we are putting him back on prozack when he can keep liquids down again. Then we will see how it works long term. I am praying for all people with CVS. Stories like yours were very healing for us. Wish you well.

eda - 05/01/00 21:24:42
My Email:eda81700@aol.com
Do you or someone you know suffer from CVS?: maybe
What's your favoirte NHL Hockey Team?: none
Are you a swimmer? Do you compete? What events?: no
Do you like trains? What kinds?: no
Do you like model trains?: no

Comments:


Austin - 04/12/00 02:24:38
My Email:rmmaynard@home.com
Do you or someone you know suffer from CVS?: no
What's your favoirte NHL Hockey Team?: Dallas Stars !!!!!!
Are you a swimmer? Do you compete? What events?: Yes, Yes, butterfly, freestyle And backAll
Do you like trains? What kinds?: There o.k.
Do you like model trains?: There o.k.

Comments:
I swim for a team in north Texas. Last summer i qualified for State and got 9th place In the Texas Games in Waco Tx./in Freestlye. My worst stroke is breast i swim with taff and want to later swim with uss. How about you?

Tadd Laughlin - 04/04/00 23:17:26
My Email:tadd.laughlin.b@bayer.com
What's your favoirte NHL Hockey Team?: Pens
Are you a swimmer? Do you compete? What events?: No
What's your favorite website?: ebay

Comments:


Noah Golding - 03/01/00 00:56:08
My URL:http://Jaacie@aol.com
My Email:Jaacie@aol.com

Comments:


Kim - 02/27/00 23:37:20
My Email:StrongRiver1@aol.com
Do you or someone you know suffer from CVS?: Yes. Myself

Comments:
I am a 27 year old, white, female. I have suffered from CVS since 1993. I do understand what you are going through. Life is really hard living with CVS, but I've learned to take it one day at a time. I commend you for not allowing this disorder to con rol you life. I know how hard that can be. Good Luck and feel free to e-mail me for any questions that I may be able to answer for you.

julie williams - 02/02/00 06:41:07
My Email:jwjw@bga.com
Do you or someone you know suffer from CVS?: my 5 year old son
Are you a swimmer? Do you compete? What events?: We have a pool
Do you like trains? What kinds?: yes, my grandfather was an enginer in the early 1900's iner
Do you like model trains?: yes
What's your favorite website?: I like a lot of them for diffrent reasons

Comments:
I couldn't resist being you 500th visitor. Hope you stay well, have you tried a nutritionist? Herbalist? Doctors still only use educated guesses when they aren't sure of a disease, experiment with you diet and herbs. It is fun as a hobby to learn the effe t of plants and foods on our bodys. They generaly have no side effect if used in moderation and with good judgement. I am trying to maintain our good health this way and it is helping.Best wishes in having you dreams come true!

Stacey Horan - 01/06/00 04:49:27
My Email:Stacmickey@aol.com
Do you or someone you know suffer from CVS?: I suffer from CVS
What's your favoirte NHL Hockey Team?: Used to like the Hartford Whalers. Not really sure who I like now.
Are you a swimmer? Do you compete? What events?: No
Do you like trains? What kinds?: No
Do you like model trains?: No

Comments:
I am 24 years old and have been suffering from CVS since I was 6 years old. As I get older I find that CVS effects my life less and less. Instead of 6 times a year a get it 2 times a year now. I am still trying to find a doctor who knows about CVS. I have been misdiagnosed all my life. I didn't even know anything about CVS until a couple of years ago. Thanks for the info on your page and good luck to you.

Sheena Kelly - 10/29/99 03:08:08
My Email:SheenaBeena210@aol.com
Do you or someone you know suffer from CVS?: i used to suffer from CVS AND SOMETIMES STILL DO
What's your favoirte NHL Hockey Team?: i don't watch hockey sorry
Are you a swimmer? Do you compete? What events?: i swim but only for fun
Do you like trains? What kinds?: not really i am a girls
Do you like model trains?: same as above answer
What's your favorite website?: www.abercrombie.com

Comments:
~Aaron~ hi my name is sheena. About 5 years ago i was diagnosed with CVS. i thought it was the worst thing in the world and it only happens to me! i felt like CVS would nver go away i would have it for the rest of my life. well i prayed everyday that i would and now what it did. i am now 15 and haven't had an episode of cvs in about a year i am so happy. everyone thinks that i grew out of it but i know that wasn't just it, it was all the praying that me and my family and friends did. I maybe sounding like a lit le goody goody right not but trust me i am not (my parents say i get in to way too much trouble) well it would be cool if u could e-mail me back and we could talk online and stuff i was just wondering how ur doing now!? well, please write back! ~Sheena~

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