DOWN SYNDROME and YOU



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HELPFUL SCHOOL LINKS:

The People:
http://www.ameritech.net/users/cabreenie/index.htm
(Macomb County Parent Advisory Committee
working with the Macomb Intermediate School District))

The State:
http://www.mde.state.mi.us/
(Michigan Department of Education-click on Special Education in the side frame)

Grosse Pointe Parent Advisory Committee & PTO:
http://gpspecialed.home.att.net/rules.htm


Macomb County Michigan, U.S.A.
Support Group for Down Syndrome Parents & Children

Families Exploring Down Syndrome

http://www.familiesexploringdownsyndrome.org/



 
 


NDSC Banner

7000 Peachtree-Dunwoody Road, N.E.
Lake Ridge 400 Office Park  Building #5 - Suite 100
Atlanta, GA 30328-1655
Toll Free: 800.232.NDSC  Local: 770.604.9500
E-Mail:   NDSCcenter@aol.com
JoAnn Simons, President
http://www.ndsccenter.org/old/



OSEP
 Office of Special Education Programs
The Office of Special Education Programs (OSEP) is a component of the Office of Special Education and Rehabilitative Services (OSERS), which is one of the principal components of the U.S. Department of Education (ED). In addition to OSEP, OSERS includes the Rehabilitation Services Administration (RSA) and the National Institute on Disability and Rehabilitation Research (NIDRR). OSEP's mission and organization focus on the free         appropriate public education of children and youth with disabilities from birth through age 21.
Many things are on this site including a Manual for the I.E.P. (Individualized Education Program), the IDEAs Act, State Monitoring, Learning To Read, Early Intervention, Studies, State and Local Implementation of IDEA, Fact sheets and many more interesting areas.

http://www.ed.gov/offices/OSERS/OSEP/


Are you a STUDENT doing research
                        on Down syndrome? Click here.


 


DOWN SYNDROME AND PERIODONTAL
    DISEASE,  2000
A Japanese study released summer 2000 indicates that
                 periodontal bacteria colonizes early in children with Down
                 syndrome, causing increased plaque formation. Factors that
                 may contribute to this are a weakened immune system, early
                 deterioration in the mouth due to premature aging and difficulty
                 brushing and flossing. Adequate oral hygiene can make a
                 significant difference in preventing periodontal disease and
                 protecting teeth. Dental professionals can instruct children and
                 parents on proper brushing and flossing. An electric toothbrush
                 is often easier for children to use.



RESEARCH LINKS IMMUNE DEFECTS AND
     DOWN SYNDROME, 2000

According to a summer 2000 Canadian study, children with
                 Down syndrome have been found to have deficiencies of the
                 humoral immune system, which may explain the clinical
                 impression that they have an increased rate of infections.

                 Predisposition to infections is thought to be due to differences in
                 the immune systems of people with Down syndrome, although
                 their different structural features, such as mid-facial hypoplasia,
                 may also play a role, according to Dr. Kirsten Miller, pediatrics
                 resident at the University of British Columbia and one of the
                 researchers who conducted the study.

                 The findings suggest that children with Down syndrome may
                 need a full immunological workup in order to provide optimal
                 treatment. However, Dr. Miller stressed that it is impossible to
                 determine at this point what to recommend as far as
                 measurements or treatment. Dr. Miller's partner in the study, Dr.
                 Mary Pothos, director of the Down Syndrome Clinic at the
                 Children's Hospital of Eastern Ontario and assistant professor
                 of pediatrics, noted that children with IgG2 subclass deficiencies
                 (one of the deficiencies identified in the study) can be given
                 pneumococcal vaccine.           



           



Did you Know?

President's Committee on Employment
of People with Disabilities
Do you know about the Ticket to Work and Work Incentives Improvement Act of 1999?  Find out what it may mean for you or your child.  Visit the
following:  http://www.pcepd.gov


NEW BOOKS FOR YOUR LIBRARY:

ABC for You and Me by Meg Girnis, Albert Whitman and Co.- Alphabet book with full color photographs of children with Down Syndrome and their friends in activities that correspond to the letters of the alphabet.  Delivers the message of inclusion without ever using the words.

Russ and the Apple Tree Surprise by Janet Elizabeth Rickert, Woodbine House - The first book in a new series for young readers, features a boy who longs for a swing set.
Russ' day turns around when he begins to enjoy what  is literally in his own backyard - an apple tree.  Russ has Down Syndrome, but the book does not focus on what he can't do, instead it highlights the ways in which Russ is like other kids his age.

Russ and the Firehouse by Janet Elizabeth Rickert, Woodbine House - Russ visits his uncle at the firehouse.  Enjoy Russ' day at the station while it emphasizes the child not Down Syndrome.


Buddy Walk

Check out the coolest new section of the NDSS web site at WWW.buddywalk.org
Up-to-date info on the Buddy Walk locations across the country, a debut of the new Buddy Walk look and information for walkers and organizers.  Visit today and help NDSS achieve its goal in every state.  The Buddy Walk promotes acceptance and inclusion of individuals with Down Syndrome.
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Down Syndrome Chat

ParentsPlace.com hosts a weekly chat on Down Syndrome.  It takes place every Saturday from 10:00 p.m. to midnight EST at:  http://www.parentsplace.com/ppchat/weekly
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Pen Pals for people with Down Syndrome

Pen-A-Friend, a quarterly publication for individuals with developmental disabilities, is now available on line at:  http://www.penafriend.com
The Web site has info on the publication, message boards for families and counselors and on-line pals.
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Down Syndrome Health Issues

A great site compiled by physician and father Dr. Len Leshin, www.ds-health.com contains health articles written by Dr. Leshin and other medical professionals, discussions of current Down Syndrome controversies and up-to-date, thorough list of web links.
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Join www.wemedia.com

In 1999, We Media Inc. launched www.wemedia.com, a premiere one-stop, full service integrated online community dedicated to people with disabilities.  Check it out!
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The Down Syndrome Creed
"WONDER" by Natalie Merchant

       My face may be different, but my feelings the same.
                  I laugh, I cry, I take pride in my gains.
          I was sent here among you to teach you to love.
           As God in the heavens looks down from above.
       To Him I'm no different, His love knows no bounds.
            It's those here among you, in cities and towns,
         that judge me by standards that man has imparted.
       But the family He's chosen will help me get started.
          For I'm one of His children, so special and few,
           that came here to learn the same lessons as you.
      That love is acceptance, it must come from the heart.
    We all have the same purpose, though not from the start.
           The Lord gave me my life to live and embrace.
             And I'll do it as you do, just at my own pace.
-------------------
Remember we ALL have the
     same purpose. Just because one has a disability or looks
 different in some way, we are all God's children. Remember
     this next time you see some one who's a little different!


 More information on the NDSS can be obtained by calling 1-800-221-4606 or writing them at 666 Broadway, New York, NY 10012-2317.
Visit NDSS Web site at:
http://www.ndss.org


      National Down Syndrome Congress
      7000 Peachtree-Dunwoody Road, N.E.
               Lake Ridge 400 Office Park  Building #5 -
        Suite 100
            Atlanta, GA 30328-1655
               Toll Free: 800.232.NDSC  Local:
          770.604.9500
               E-Mail:   NDSCcenter@aol.com
               JoAnn Simons, President

http://www.ndsccenter.org/old/


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This site is dedicated to my daughter and all children with Down Syndrome.  This site is also for all the parents and professionals who make a difference in the quality of all Learning Disabled and Physically Disabled children and adults.
 

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