Pemphigus Vulgaris FAQ

(Frequently Asked Questions)

Farewell to Susan.

Our dear friend Susan had passed away on August 8, 2002. For years, Susan shared her great knowledge and kindness with all of us, both on pemphigus mailing list, and on her Q&A site "Pemphigus and You". Her informal and personal approach to guidance and sharing helped many hundreds of Pemphigus patients worldwide. We miss you Susan.

The following is Susan's obituary. My sincere sympathy for to her husband Barry and her family.

Read more about PEMPHIGUS and YOU

Many thanks to Dan Goodwill for contributing PV patient checklist.

Yesterday I was told I have Pemphigus Vulgaris. What is it?

What causes Pemphigus Vulgaris? I was told to take Prednisone. Isn't it a dangerous drag? Is St. John's Wort (hypericum) effective against prednisone induced depression? I only have one lesion on my back. Does this justify prednisone treatment, and its possible side-effects? I tried to reduce prednisone dosage from 20mg to 15mg, but suffered from (you name it) side effects. Any ideas? I was told that DHEA helps Lupus patients. What about Pemphigus Vulgaris? Somebody sent me a letter where he says that Cat's Claw herb will cure me. Should I believe? Are there any alternative treatments to Pemphigus Vulgaris? Which USENET newsgroups may contain postings about Pemphigus? Which mailing lists may be interesting to Pemphigus Vulgaris patients? Should I refrain from drinking coffee? Where can I chat (irc) with other Pemphigus patients? Where I can get more information about Pemphigus Vulgaris? 1