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His answer was short and very kind – he saw that the resection is possible and that he can do it and we need to keep these mets under the observation as it very important to let the other ones to became palpable but not to miss the time it I is still respectable. After the next two scans when number climbed to 40 he said that this is a time and we went for the first right lung surgery at the end of the February 2005. Then we went for the second- left - lung surgery at the end of the May. By the time I contacted Dr.Rolle I have already consulted the best thoracic surgeons of the world – Drs.LoCicero III, Bill Putnam and Douglas E. Wood from US, Pf.Goldstraw from UK, Pf.Van Shill from Belgium, Dr.Macchiarini from Spain and our own Canadian advanced surgeon from Toronto Dr. Michael Johnston. Based on the number under the 20 mets (second scan) most of them were agree to operate but non of them offered to save the lung tissue, the resection had to be an extended. So when I knew that there are 40 mets only Dr.LoCicero (who does a laser assisted resection in US but using the old laser) and Dr.Rolle had a chance to do a complete resection. Dr.Rolle had an extensive experience and a new technology by his side so that was my choice. The real number of the resected mets was 106 and 82 so have I chosen any of the other surgeon – the lung would has been open, looked at and sawn back as there was a spread of the small tiny mets on the surface. Dr.Rolle was and is the only person who is able to do the task. He spent 5 hours in the operating chamber carefully searching for the mets and burning them and came out tired but convinced that he had them all resected. Well – if you deal with the hundred mets there are always the ones which are smaller then 0.5 mm which can not be palpated at the time of the resection. The scans following the resection has shown some small dots which can be mets and can be the necrotic tissue after the resection. Our strategy is to let them grow and resect again. I knew before of the surgery that it is the usual situation with such a multiple mets that they need a few rounds of the surgeries to clean it and there are no people with dozen of mets who has done it at once. We hope to use the only advantage our type of sarcoma has – it is a slow growing type and it may allow my son to heal after the first round of surgeries, have a normal life and then have the next resection. There is no other way and I do not care that we need to go to Germany to do it. We would go to the moon if it is needed as the task is very specific and it takes a rare experience and technology to succeed and if there is such a person then we need him. I do not care about the language barrier, money, some cultural difference, long flight etc. It is all very secondary and is not a factor in the decision making for us. Dr.Rolle offers a unique chance and we gratefully take it.
Now it is 1 year and a half after the first surgery and my son feels very strong, he runs, swims, plays volleyball, ski, also he is a full time at the university. His breathing volume is better then before of the surgery as a result of all the activity and an excellent rehabilitation after the surgery they do in Coswig. He had a few very nice trips this year to Mexico and his chest surgical scars became tanned and are not that ugly anymore, besides he wears it with the proud – it is his fight with sarcoma and having Dr.Rolle by his side greatly improves his chances to survive. |
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