When Hannah was born, June 14, 2000, I knew I had a very special gift from God above. It wasn't until 2 months into my prcious girls life that I realized just how special my daughter was. On September 12, 2000, I got the devastating news that my girl was plaqued with a horrible disease we call Spinal Muscular Atrophy. I prefer to call it " the thief" This disease robbed my daughter not only of movemnt but of a fulfilling life. SMA robbed me , as a parent, of watching my daughter grow. I can go on and on of the things that I would hav experinced had Hannah been healthy, but that is not how I choose to look at my SMA experience. I choos to look at it as a positive experience. I chose this because Hannah taught me to do so. Hannah was only with me physically 5 months and 23 days. In those 5 months and 23 days Hannah showed me what strength, courage, love and life is all about. She taught me many valuable lessons that I will forever apply to my life as long as I live. One of them being never take life for granted. I decided from the moment I learned that Hannah wasn't going to be with me long, that I was going to make her life count. In doing so I made several sacrifices, but they were worth it. Hannah was a beautiful baby despite this disease that had taken over her little body. She greeted me every morning with a huge smile and touched me daily with her cute and lovable personality. It never seemed to bother Hannah that sh couldn't move her legs and head. Th movement in her arms was very little but sustained her and me. Hannah was able to touch my face. I think God allowed that to happen for my needs more than hers. Everyday was a gift and everyday I learned something new from Hannah. Without a doubt she blessed my life and the lives of so many around her. I look back now with a broken, heavy heart and a tear stained face because on December 8th. 2000, Hannah decided it was time to go be with Jesus in heaven. she took her last few breaths. I miss my little angel so much but I have no regrets. Hannah is no longer in my arms but she is forever in my heart. ALL MY LOVE,
JODI.....MOMMY |
