Velo-Cardio-Facial Syndrome


Links to helpful sites. We are not endorsing any of these sites or persons, merely making as much information as we know about available to anyone who might need it.

NEW Information regarding an upcoming workshop. Estate Planning HHSC sponsered

Here is the latest site we have found. 22Q11.2 The International 22q11.2 Deletion Syndrome Fountaion

Parent oriented conference held in April 2006 Practical Implications for Behavior and Learning. See the link toward the bottom of this page for our summary notes from this conference.

Ability A new area for conferencing. VCFS has a dedicated area. Conference 41. You have to sign up to participate because this site is intended to be a safe haven for children and teens to chat as well.

VCFS Velo-Cardio-Facial Syndrome Educational Foundation

Message Board A second message board dedicated to VCFS Some VCFS information but primarily a general health site

VCFS information out of the UK 22Q11

Another VCFS site from the UK More general information

Philadelphia newsletter Last entry was 1999, but there is still some good information

Robert Shprintzen, Ph.D. Contact information

LINKS to more Links

Family Village Family village sites always seem to have good information.

Summary Information.

Easy to read description of the syndrome etc.

Presentation of Atlanta conference material.

Presentation of Atlanta conference material 2006. Sorry, there are a couple of minor formatting errors created when the file was tranferred from PowerPoint to Adobe. The information, nonetheless, is accurate.

Please e-mail comments or questions to

Please check back soon, we really want to provide you with whatever information we have. We just returned from the 2008 conference in Troy MI. We will post information over the next 3 or 4 weeks.

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Last Modified July 23, 2008