The Jo Family Site
Latest update - May 14, 2001
Alex and his new friend Lucy Myers.
Alex and Grandpa Jo have some cuddletime.
Look at that head control...getting better all the time.
Alex and China posing for the camera.
Getting to be so strong!
Working hard in therapy.
A vision in yellow - Think Spring!
to see the last set of photos.
News For April 1st, 2002
In Loving Memory of
Alexander Youn Jo
July 19, 2000 - October 2, 2001
On October 2nd, 2001 Alexander Youn Jo passed away
in the loving arms of his parents Steve and Amy. He is deeply
missed by grandparents, family, caregivers, and a community that was
so affected by his short life. He was and is a constant
reminder of the fragility of life, the bottomless depths of love, and
the strength of the human spirit.
We, his parents, wish to thank everyone for their
support and prayers. Most specifically we want to acknowledge
the people that enabled us to have Alex at home with us for as long
as we were able...
First, to the staff at the NICU at Thomas
Jefferson University Hospital. Thank you for all the support
and care over the two and a half months we spent there.
To Greta, Alex's PT, who worked so hard and cared
so much about him.
To Donna and Roy, the best nurses, friends, and
caregivers a boy could have.
To Josh, Alex's pediatrician, and his family for
supporting us in some of the darkest moments, and allowing us to make
the decisions we needed to make for our child's well
To Cara, for her fearlessness in opening her heart
to such a special little boy.
To all of Alex's therapists for all their kindness
and hard work.
To the HIE support group, for their wisdom and
understanding of things unimaginable to most people.
And finally to everyone who in any and every way
has helped us and continues to help us along this most difficult
path, we are eternally grateful.
News for March 12, 2001
Alex is now 7 months old. He continues to be cared
for at home with his parents and nurses. He has become quite the
little pork-chop, weighing in at 19 lbs... despite being on a diet
Alex has remained fairly healthy this winter, with
only a minor upper respiratory infection to complain of. The majority
of his issues continue to be neurological...he has seizures which are
partially controlled with medication, he has vision and hearing loss
due to his brain being unable to interpret what his eyes and ears
take in, he is non-verbal/non-communicative, continues to be feeding
tube fed as he canít swallow or suck, and still has no
movement in his legs.
However, he is working very hard in his therapy
session. In physical therapy, he is working on lifting and
controlling his head, rolling over, and propping up on his arms. In
occupational therapy, he is experiencing all sorts of textures and
objects with the goal of eventually actively playing with these
things. In vision therapy he is working on increasing his alertness
and response to light and dark, movement, and shapes. And with a
hearing teacher, we are trying to establish a system of physical cues
(aka signs that he can feel) to represent different things in his
environment with the goal of finding a way for us to
All in all, a very busy life for such a little
Thanks to all for checking in on him...we'll keep
Amy, Steve, and Alex Jo
News for Nov. 8, 2000
Alex Jo is finally home!
The Jo family is so proud to announce the arrival
home of their beautiful son Alexander Youn Jo.
After 2 long months in the intensive care nursery
at Thomas Jefferson University Hospital, Alex has finally joined his
loving family at home. He is resting comfortably in the care of his
parents and a night duty nurse, Harvey.
We are not sure how much you all know about our
hectic and scary summer, so we'll start at the
Alex was born on July 19th at Abington Memorial
Hospital. Unfortunately the umbilical cord was tightly wrapped around
his neck and by the time of his birth he was unable to breath and had
no heart beat. The neonatology staff spent 15 minutes reviving him,
but when his heart started beating again, he was still unable to
breath on his own and had started having seizures (an early sign on
brain damage). Four hours after his birth it was decided that he
would be transferred to Jefferson and enrolled in a Brain Cooling
study designed to reduce brain swelling and prevent further
Alex spent over 2 months in the hospital
recovering from his birth injury and receiving various treatments.
The bad news is that his brain injury is severe. He is unable to suck
or swallow and is therefore fed via a feeding tube, his legs are very
tight (spastic) and he can not move them, and at this point is seems
that he is unable to hear or see. The good news is that Alex is very
comfortable, he breathes well without any support, he has started to
make some noises and try to roll over, he loves to be held, touched
and cuddled and is deeply loved by family, friends, nurses, doctors,
We wanted to take this time to first update
everyone on our super-babe, but also to thank everyone for their
extraordinary kindness. The support, prayers, and thoughts have made
us so aware of what wonderful friends we have. It has been so
comforting to us to know that we have such an amazing network from
which to draw strength.
And finally, we wanted to let you all know that we
welcome calls or visits anytime. We are definitely feeling ready
for some company and we know Alex loves the attention. So please
stop by or call if you get a chance.
Steven, Amy, and Alex Jo
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Since November 8th, 2000
©2002 Peter Anderson