Well a lot has happened in the months since
I have updated my story and scleroderma. I have learned that I have several other problems
that I didn't know I had. I was diagnosed with
osteoarthritis about 4 months ago. I went to a new Rheumatologist and she couldn't tell me anything new except that I had another problem. She changed my medication and gave me celebrex, which has helped with the joint pain. I have battled fatigue for months and try and take naps frequently. I feel so guilty when I take naps and can't take care of the household duties that I used to do. But one thing you soon learn with scleroderma is when you are weak you have to say, no I can't do as much as I would like. Its hard when people say, " If you would get out more you would feel better". It used to hurt me but now I do what I can, go out when I can and don't worry about what those people say. I had shoulder surgery July 9th and was in the hospital 2 weeks. It was day surgery but my diabetes went very high and so they admitted me so they could try and control it. Well needless to say its still not contolled but my Dr. has put me on a sliding scale, which means I check my sugar 3 times a day before I eat and if its high I take a shot. I am now on 4 shots a day plus 12 pills. I am taking one day at a time and trust that God will guide me in all that I do. My life is very different from what it was 11 months ago. I believe God has a purpose for my life even though I can't do much, I want to do His will in my life. My family is very supportive and that is a big help. There are a lot of people out there who are a lot worse than I am and my heart goes out to them. I feel I am so blessed to
be able to get out of the bed each day. |
