| March 19, 2005 |
| Leah is 8 and Lucy is almost 5! How did that happen? I am serious, time flies when you catheterize your baby every four hours everday! So much has changed. I have to say the scariest time, when you have a child with disabilities, is the first 2 years. You have no idea what to expect and neither does anyone else. You just wait, work and wonder. Now, that Lucy is almost 5, I know her. I don't even see the disabilities when I look at her. I see an amazing little girl who has so much to share. I see a little girl who has taught me more than I would have ever known without her. She is brilliant! She loves music and her memory is incredible. She knows all 50 states in the U.S. alphabetically. I am not kidding! Not to mention, EVERY single John Mayer song, word for word. |
| Lucy did get a shunt when she was 3. It was such a toss up, but finally we did it. When she woke up from surgery, she was good old Lucy, telling knock-knock jokes. How is it that you can have something inserted in your brain, but you don't lose pertinent info, like knock-knock jokes? Lucy will have surgery this summer to make cathing a little easier and to handle her bowel issues. She is going into Kindergarten next year, so we want to make sure she is comfortable. This year has been incredible for Lucy. She has started taking horse back riding lessons at the National Ability Center in Park City, UT. Her daily outlook improved immediately! Then she took snow skiing lessons! She can ride a bike and she is practicing her skills in a motorized wheelchair. Soon, she will have a bike and a "driving chair" of her own. I guess that means we are going to get a van with a lift. |
| Right before her 4th birthday, she told me, "Mom, I'm gonna sit up all by myself when I am 4!" Well, I though that was great, but honestly, not very likely. If we help her sit up, we have to stay close by because she is bound to topple promptly. Lucy turned 4 in May and within days of her birthday she was a very reliable sitter! I asked her to give us a heads up on walking. Her response was, "I'm going to walk when I am 6, but I am going to use a walker!" At least she's realistic. This time I have no doubt she is right. "Lucy will do what Lucy will do, when Lucy is ready to do it!" SHINE 2004 |
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