Retinitis Pigmentosa Links

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The purpose of this site is to define (in one place) all the Retinitis Pigmentosis Resources available on the Internet. This page will be updated frequently as new sites are added. Feel free to suggest a site. Lets work together to advance our understanding of this disease.

New Sites:

Wellspring Clinic for Holistic Medicine: Treating RP using the WVIP (Wellspring Vision Improvement Protocol). The WVIP based on Traditional Chinese Medicine (acupuncture and herbs) has dramatically improved the eyesight in some patients.

 

Links to Retinitis Pigmentosa
British Retinitis Pigmentosa Society Organization is a self help group which seeks to help its members live with and overcome their visual problems and to bring relief by stimulating research into the causes and eventually the treatment of RP. Site contains an excellent guide that would be a good starting point for anyone wanting to learn more about this disease.
Retina International Voluntary charitable umbrella association of 34 national societies each of which is formed by people with retinal degenerative diseases. Site contains an image gallery of what life looks like thru the eyes of those suffering from this disorder.
Retinitis Pigmentosa Page This site is chalk full of resources andl links. Part of the low vision web ring.
Retinal Implant Project A Harvard-MIT collaberation. Purpose is to develop a microelectric prosthesis to restore SOME vision to patients with retinal diseases.
Richard Simpsons Home Page Well done site from a long time sufferer of RP.
RP International Promotes RP research. Their motto: "We are determined to stop RP within this generation."
University of Michigan Eye Conditions A very brief explanation of retinitis pigmentosa. This single page covers symptoms and treatment options
Texas Association of Retinitis Pigmentosa TARP Purpose is to educate the public about eye diseases that cause blindness, and in particular, to assist individuals and their families who have just received a prognosis of Retinitis Pigmentosa and "impending blindness."
RP Links Many links here. No information. Perhaps one of the most formidable web resources out there on the subject of RP.
Retinitis pigmentosa and the retina

Discusses the genetics of RP and the Retina and RP. Covers sex linked recessive, digenic, ausosmal recessive.
Yahoo!Health-Retinitis Pigmentosa Provides general overview (definition, causes, incidence, risk factors, symptoms, prevention, signs and tests) and treatment options.
Retinitis Pigmentosa - Questions and Answers Very informative site discusses RP in a question and answer format. Site also includes news releases, research news and tips for teachers.
RP Fighting Blindness - Retinal Preservation Foundation
of South Africa

Good site. Discusses RP, macular degeneration, gene tracking project, research news, training projects, tips for teachers and more.
RP Mailing List Retinal degeneration discussion list

Last Updated March, 2001
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