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Name : Eileen
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Email Address: : Leenav48@aol.com
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Date: : 1/8/06
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Comment : Dr. Norman Latov is brilliant and it is so comforting to have acquired him as my physician. I urge anyone withPN to seek out a terrific neurologist...very,very important!
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Name : Nona Evans
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Email Address: : neuropathy@stx.rr.com
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Date: : Dec. 18, 2005
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Comment : Ive been a leader as well as a President of the Hill Country Neuropathy Support Group in Kerrville, Tx.
I find what JoNell is doing is very informative to a lot of hurting people. Since I have resigned from my position here, having led meetings in the H
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Name : Paul Renaud, Sr.
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Email Address: : mcgrunt63@yahoo.com
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Date: : 10/26/2005
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Comment : As a new member I am interested in
any and all info concerning pn and
treatments thereof. I have an appointment with the VA neurology
on 11/17/05.
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Name : william R Brady
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Email Address: : wbrady001@comcast.net
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Date: : 10-25-05
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Comment : Have you had any report on the
ReBuilder? I have used one for about 14 months now and short term
results are good.
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Comment 5 :
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Name : Jim Beard
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Email Address: : j.kbeard@SBCGlobal.net
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Date: : 10-24-05
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Comment : Jo,you are doing a great service!! I have notified our Bedford PN Support Group of your website as you permitted me to. Thanks, JIM
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Comment 5 :
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Name : Jo Nell Wilder
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Email Address: : tcjennin@earthlink.net
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Date: : 8/8/05
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Comment : To Guestbook signers. If you want a response, please email me directly. When the email address you use here is not accepted by the server for email, I dont have a way to get in touch with you. That distresses me when you ask questions for help.
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Name : John R. Pierce
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Email Address: : `jrpierce@mpinet.net
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Date: : 07-31-05
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Comment : Dear Dwain and Jo Nell: I just stumbled on to your web-site when I read an e-mail Jo Nell sent to Ray Downen. Im a part of his discussion group.
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Comment 2 : Ive had neurapathy for about 10 years, in both feet. However, the left is worse than the right, bncause a riding lawn-=mower fell on my left foot 15 years ago.
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Comment 3 : I am an Evangelist in full-time service, doing interim ministries, seminars, special speaking engagements, and a few revivals.
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Comment 4 : Ive been checked regularly for signs of diabetes, but none have appeared. Is it possible the signs just arent showing up. My brother and my mother both have diabetes.
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Comment 5 : I will try to contact you via regular e-mail. I do not have extreme pain and am able to sleep at night. I do act like Im drunk at times...lack of balance.
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Name : Dan Yaalon
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Email Address: : yaalon@vms.huji.ac.il;
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Date: : May 14 2005
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Comment : Would like like information to what extent plasmaphoresis and steroid treatment has helped others.
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Comment 2 : would like information about new kind of treatments. Diagnosed fo CIDP two years ago.
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Name : teri
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Email Address: : nanateri@bellsouth.net
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Date: : 3-24-2005
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Comment : I was dio with pn this past oct. im 45 and i dont have diobeties(mp) its in my feet and legs really bad just the other day i noticed it in my hands
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Comment 2 : i dont know much about it ive only been to the dr once in nc i moved back to ga have an appt on monday with one hopin he will tell me something i can do
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Comment 3 : if anybody knows anything i can do or ask the dr please write to me i need info on what i can expect to go on with my body i have 3 grandbabiesto play with
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Comment 4 : im too young to have this problem am i goin to be able to work or takecare of myself i love you all take care ill be prayin 4 u all
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Comment 5 :
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Name : Jo Nell Wilder
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Email Address: : tcjennin@earthlink.net
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Date: : 2/5/05
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Comment : Bobby, I agree you have a lot to deal with. I couldnt reply using the email address shown, so if you would like to talk about possible solutions, use this: tcjennin@earthlink.net
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Name : Bobbie Thomas
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Email Address: : BODI-THOM@webtv.net
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Date: : 02/02/05
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Comment : Have PN feet, legs, hands and arms
also have Diabetes. plus suvere allergies including COPD. a mess right....the foot pain biggest problem. and balance...I need.to walk.
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Comment 5 :
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Name : Jo Nell Wilder
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Email Address: : tcjennin@earfthlink.net
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Date: : 10/30/04
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Comment : Ann, once the medication of Zocor is out of your system, the pain should be leaving. Get back in touch if you need to, OK?
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Name : Ann Goldshaft
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Email Address: : agoldshaft1@aol.com
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Date: : 10/30/04
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Comment : I have developed Peripheral Neurpathy from Zocor for cholestrol lowering. I am in a great deal of pain.
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Name : Linda
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Email Address: : Snowfawn@net.com
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Date: : 10-29-04
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Comment : To Donald Scharoff-sounds as if you and I may have the same problem. I also have a fariled cerival fusion at c5, 6, and C7. Hardware may have to be removed to resolve symstoms. Before suregery had never had body pain, just in my neck---herniated disks. bu
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Name : Nona Evans
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Email Address: : neuropathy@omniglobal.net
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Date: : 10-07-2004
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Comment : Im a leader and there is so many needing help. Thank God for JoNell for her help.
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Name : Wanda Porter
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Email Address: : wporter40@blomand.net
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Date: : 8-26-04
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Comment : Have had PN since 1996.At first the pain was so bad I could hardly walk. Had the stabbing pain, freezing feeling and numbness. I take Neurontin and pain medication to keep going. I dont have much feeling in my feet and nearly up to my knees. Also have it
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Name : Donna
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Email Address: : ddf0608@aol.com
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Date: : 7/14/04
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Comment : Doctor recently put me on Neurotin for the pain in my feet that has gotten more severe since I started Liptor for cholesterol. I really feel a specialist might be in order
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Comment 2 : Do you see the doctor in Dallas? Were in Athens, Tx - about an hour and-a-half away. This all started with lumbar trauma and surgery. I thought my feet would regain feeling after the surgery, but theyve only gotten worse.
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Name : Edgar
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Email Address: : eds@vianet.ca
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Date: : July 4/2004
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Comment : My wife Louise has axonal polyneuropathy.So far she has no pain, but she is always dizzy. Can the neuropathy cause the dizziness? Would appreciate knowing. Regards Edgar
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Name : Mary Clark
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Email Address: : brian.clark54@ntlworld.com
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Date: : 5-6-04
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Comment : I have PN due to amputation of little finger left hand have nerve stimulator implanted
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Comment 2 : would like to meet someone with a nerve stimulator especially if in upper body.
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Name : Bernice Krusch
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Email Address: : HBKRU401@RCN.COM
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Date: : 4-11-04
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Comment : I LIVE IN THE SOMERVILLE, N.J. AREA AND WAS RECENTLY DIAGNOSED
WITH NEUROPATHY.THE NEUROPATHY
AFFECTS MY KNEES AND FEET .ANY GROUPS OR INDIVIDIUALS OUT THERE?
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Name : Judy McGuire
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Email Address: : jmcguirenc@hotmail.com
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Date: : 3/31/04
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Comment : My peripheral neuropathy is stroke related. If your PN is stroke related, please contact me. I have questions. Thank you.
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Name : Roberta Decker
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Email Address: : jalensgrandma@hotmail.com
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Date: : March 15, 2004
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Comment: : Would like contact with others with this problem. Affects my feet,legs and hands. Feel lost! Am I the only one who feels this way?
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Comment 2 : Feel conpletely helpless when it comes to explaining to my husband how I feel. Hes been to the Dr. with me but still cant believe how I feel.
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Comment 5 :
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Name : Georgia Dvorak
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Email Address: : diva_georgia@yahoo.com
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Date: : 1/4/04
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Comment: : Need help. Just moved here. Need doc & meds. Losing sleep but have chronic headaches which means must sleep. Help!
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Comment 2 : I was diagnosed with this horrid problem just before I left WI in July. What do I do? Where do I go?
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Comment 3 :
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Comment 5 :
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Name : Donald Scharoff
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Email Address: : drdonrs@netzero.net
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Date: : Dec. 27, 2003
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Comment: : I was diagnosed with CIDP 3 1/2 years ago. At the time I couldnt walk, stand, or perform many of the normal functional movements and had to use a walker. My good fortune was to have been placed in the care of Norman Latov who has orchestrated my treatment
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Comment 5 :
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Name : june
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Email Address: : snowfawn@net.com
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Date: : 12/17/03
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Comment: : i was told that i have PN and Cervical Ridiculopathy. However, the inflamation is so severe and the severe, they are testing for polyinflamatory myleopathy. I am new to all this, and may not have correct terms, etc. this is my lst e-mail. I need informati
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Name : Ronda Pullen
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Email Address: : Ronda@worldnet.att.net
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Date: : October 27, 2003
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Comment: : Thanks for directing me here, Jo Nell! Like you, Ive dealt with PN from the 70s. I had all but given up trying more doctors, and meds. Im so glad I found the website for the NY Neuropathy Association, too. Youre right -- faith has played an important part
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Comment 5 :
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Name : john aragon
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Email Address: : john.aragon@pobox.com
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Date: : 10/3/03
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Comment: : Thank you for the relevant information regarding PN.
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Name : Nona Evans
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Email Address: : neuropathy@omniglobal.net
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Date: : 10-02-03
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Comment: : I, for one, really appreciate what you are doing, even tho you are hurting just like the rest of us and probably more than most.
I will learn from your newsletters for sure.
God Bless!
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Name : Linda McFarland
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Email Address: :
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Date: :
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Comment: :
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Name : Julia Godeke
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Email Address: : djgodeke@aol.com
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Date: : 7/21/03
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Comment: : I was diagnosed with PN about 5 yrs ago. I was told nothing could be done. I have never taken drugs for pain but found that drinking water relieved the pain and discomfort in my legs. I have now progressed past the intense pain but now worry what is next?
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Name : Annette in AR
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Email Address: :
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Date: : 7/6/03
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Comment: : I gound this site quite informative. I appreciate the web and what it has to offer the general public. I also commend the people dedicated to helping others.
Thank you
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Name : Jo Nell Wilder
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Email Address: : tcjennin@earfthlink.net
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Date: : June 15,2003
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Comment: : Welcome to all PNers or Care Givers. We have started up our Guestbook again. As before, you are welcome to email other Signers to Chat. Staying in contact keeps us from feeling so alone with this disease. I will be adding a link to our Website about copin
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Name : Clark Peterson
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Email Address: : taripeterson@hotmail.com
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Date: : 12-5-02
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Comment: : Is disability a consideration for PN and is there any advise.
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Name : Virginia
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Email Address: : bearsnme2001@yahoo.com
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Date: : 11/20/02
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Comment: : My husband has Peripheral Neuropathy. I need to chat with other spouses. What to expect.
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Name : ellen karlson
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Email Address: : ekarlson@tds.net
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Date: : 11/12/02
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Comment: : have had numb toes X 2 yrs.; recently sl. balance changes. 2 EMG's were inconclusive; am getting frightened; what tests should I ask for?
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Name : Margaret Keefer
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Email Address: : mekvista2@earthlink.net
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Date: : Nov 2 02
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Comment: :
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Name : Arlan B.Starmer
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Email Address: : astarmer@dswebnet.com
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Date: : 09-28-02
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Comment: : Would like to know where the most research is being done on PN.
Presently going to OHSU in Portland
Or. Thanks
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Name : Charles Martin
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Email Address: : cm1011665@onemain.com
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Date: : Sept 25 02
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Comment: : I injoyed reading your web site. It gave me hope.Thank you C.M.
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Name : Tony Cupit
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Email Address: : Tcupit@telus.net
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Date: : Sept 20/02
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Comment: :
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Name : Linda Ditemore
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Email Address: : Sweetpea1947@webtv.net
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Date: : 9/18/02
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Comment: : Researching Peripheral Neuropathy,all information helpful,thank you for the website.
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Name : Linda Ditemore
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Email Address: : Sweetpea1947@webtv.net
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Date: : 9/18/02
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Comment: : Researching Peripheral Neuropathy,all information helpful,thank you for the website.
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Name : LINDA HAMPTON
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Email Address: : LOUHAMP@SWBELL.NET
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Date: : 09-11-02
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Comment: : I HAVE BEEN DIAGNOSED WITH PHERIPHAL NEUROPATHY.PLEASE SEND UPDATE ON NEURONTIN. A MEDICATION I TAKE. ANY NEW UPDATES ON THE DISEASE. I ALSO AM A DIABETIC AND ON INSULIN SHOTS. THANKS LINDA HAMPTON
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Name : Karin
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Email Address: : karehak2@aol.com
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Date: : 9/11 2002
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Comment: : PN is certainly no fun. Have had numb toes for years and now its "crawling"up my legs. Nights are bad. Restless legs and pain.
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Name : Nancy
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Email Address: : nancym@pld.com
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Date: : 9/4/2002
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Comment: : My major pain is in my arm,neck, & shoulders. Have I been diagnosed wrong?
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Name : Nancy
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Email Address: : nancym
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Date: :
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Comment: :
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Name : Jan Shifflett
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Email Address: : fcjls@aol.com
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Date: : 8/15/02
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Comment: : I have just been diagonosed with pn
and would appreciate any ideas others may have to offer. THANKS!
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Name : JanShifflett
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Email Address: :
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Date: :
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Comment: :
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Name : Jo
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Email Address: : tcjennin@earthlink.net
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Date: : 8/6/2002
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Comment: : Hi Jan, I couldn't reply to your Guestbook comment via this email: jandpkiel@tds.net. Is there another one available?
Jo
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Name : Jan Kiel
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Email Address: : jandpkiel@tds.net
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Date: : 8-5-02
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Comment: : I have ideopathic peripheral neuropathy, with fatigue, pain, nausea and dizziness. Anyone?
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Name : JOHN
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Email Address: : den1452@msn.com
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Date: : 7/26/02
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Comment: : good news to find a page that answers all of my questions.most people don't no anything about the illnes...thankyou so much..
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