Welcome to PORPHYRIA PLACE

DEDICATED TO EXPOSING AND CONFRONTING CRUELTY TO AND PREJUDICE OF VICTIMS OF PORPHYRIA

PORPHYRIA is a general term used to describe several different enzyme deficiency disorders. These disorders are caused by an over production of porphyrins, normal body chemicals that do not usually accumulate.
PORPHYRIA can be inherited or acquired. The two types that can be acquired are PORPHYRIA CUTANAE TARDA AND INTOXICATION PORPHYRIA. I have HEREDITARY COPROPORPHYRIA as do several members of my family.
PORPHYRIA is rarely diagnosed because it's symptoms mimmic other, more common diseases and ailments. These symptoms include abdominal and/or back pain (tolerable at first but increasing in intensity within 24-48 hours), nausea, vomiting, constipation, tachycardia, hypertension, pain in limbs, neck, head and chest, muscle weakness, sensory loss, fine tremors, restlessness, excess sweating, anxiety, insomnia, depression, sun sensitivity, disorientation, paranoia, and skin lessions. Some types also present symptoms of flourescent teeth, receding gums, excess hair and fingernail growth.
PORPHYRIA is tested by requesting that your doctor collect a 24-hour urine sample from you. Your doctor sends the sample to the Mayo Clinic and test results are usually back within 2-3 weeks. A 24-hour stool sample and blood work will be required if initial testing reveals elevated porphyrin levels.
PORPHYRIA is historically thought to be the disease that King George III and other members of British royalty had. It is also commonly and cruely reffered to by some (yes, even medical professionals) as THE VAMPIRE DISEASE, THE WEREWOLF DISEASE, THE ROYAL MALADY, or MENTAL ILLNESS.
PORPHYRIA is life threatening and THERE IS NO CURE! Some victims can be relieved by heme-infusion therapy, however, many with this disorder cannot have heme-infusion because of tachycardia or other physical conditions. Carbohydrate therapy is helpful in reducing symptoms for those that cannot receive heme-infusion.
PORPHYRIA is one of three disorders contracted by Vietnam Veterans from exposure to Agent Orange. The VA financially compensates Vietnam Veterans with PORPHYRIA CUTANAE TARDA. This disorder is said by some noted researchers to be directly connected to Gulf War Syndrome, Chronic Fatigue Syndrome, Silicone Poisoning, and Multiple Chemical Sensitivity.
PORPHYRIA is the name of a "discipline" in a popular vampire role-playing game. This game is suggested by several media sources to be the catalyst for numerous injuries, assaults and at least one murder across the United States by it's members. These members are usually teenagers or young adults.
PORPHYRIA PLACE is open to discuss all aspects regarding this disorder. Since the discovery of the Porphyrias in the late 1700's, little has been done to combat the myths and ever-growing popularity of midevil folklore surrounding these disorders. Modern culture seems to thrive from such cruelty and ignorance. The time has come to expose and confront such injustices in order to find a cure for the disease that disables and kills thousands each year.

PORPHYRIA; THE WOMAN WHO HAS THE 'VAMPIRE DISEASE'

- JAPANESE HARDCOVER RIGHTS SOLD
- 20 CITY RADIO TOUR
- NATIONAL TELEVISION TOUR
- INSPIRATIONAL LECTURE TOUR
PORPHYRIA; THE WOMAN WHO HAS THE 'VAMPIRE' DISEASE, by Tammy Evans, ISBN 0882821563, NEW HORIZON PRESS 800-533-7978 (ORDERS ONLY)- MIDWEST BOOK REVIEW: As a child, Tammy Evans lived in a house in darkness with a mother who locked herself away for weeks at a time. Tammy was isolated, lonely, and confused. It was not until her grandmother's funeral, when Tammy fell to the ground unconscious and delirious, her skin sizzling in the sunlight, that she found out her family's dreaded secret. They were afflicted with porphyria, also known as the "vampire disease", and she had inherited the curse. Like her mother, Tammy was condemned to frightening spells, subjecting her to bizarre symptoms at any time and in any place. Porphyria is the astonishing story of a young woman who must endure the days her complexion turns eerily waxy and the suffering caused by visual distortions, abrupt changes of personality, and an inability to tolerate sunlight. Porphyria tells of her courageous struggle to live a normal life and find lasting love as well as her search to find treatment for a disease that is too rare to compete for government research dollars. Exceptionally well written, Porphyria is a testament to Tammy's passionate commitment to end the physical curse, terrible history, and modern stigma of the "vampire disease", and to ensure a hopeful future for its growing list of victims.
"Tammy's strength and courage to raise awareness for this disease is truly remarkable!" - Amazon Books reader review

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THE PORPHYRIA PHENOMENON

MEDICAL MYSTERY?

TOXIC CONSPIRACY!

LECTURE TOUR FEATURING PORPHYRIA; THE WOMAN WHO HAS THE 'VAMPIRE DISEASE' In her inspirational lecture, Tammy Evans takes her audience through the tragedies that lead her to becoming a national crusader for the thousands suffering in secrecy. As she spreads her message across the country, Tammy brings new hope and comfort to those afflicted with both the hereditary and chemically induced forms of this life altering disease. Through years of research, Tammy has been successful in unveiling the folklore and modern fascination behind porphyria and reveals why it is commonly referred to as 'the vampire disease.' She explores the Agent Orange incident, in which hundreds of Vietnam Veterans contracted porphyria, along with overwhelming evidence suggesting that Gulf War Veterans may also be afflicted with porphyria...a disease that the VA, without explanation, now refuses to test for. In conclusion, Tammy explains how decades of mismanaged toxic chemicals and drugs have altered the health of millions in our country. Demanding testing for all Americans, substantial funding for research and nation wide factual awareness, Tammy Evans hope that, one day, she and countless others can break free the chains of agony and suffering known as porphyria.
THE PORPHYRIA PHENOMENON is an interactive, fully moderated lecture including individual information packets, Q&A session and book autographing. For information on how your organization can sponsor and appearance by Tammy Evans send a S.A.S.E. to 106 Thunderbay Center, Suite 213, Alpena, MI. 49707. Please include organization's official title and contact person.

PORPHYRIA LINKS
MORE INFORMATION ON PORPHYRIA
INTOXICATION PORPHYRIA...Gulf War Syndrome?
VARIEGATE PORPHYRIA AFFECTING TENS OF THOUSANDS OF SOUTH AFRICANS
GULF WAR VETERAN RESOURCE PAGES...Loaded with info on GWS, Agent Orange exposure and Porphyria

***WEAR A PURPLE LAPEL RIBBON!*** Show your support for a cure!

© 1997stillpub@northland.lib.mi.us

GUESTS HAVE VISITED PORPHYRIA PLACE SINCE FEBRUARY 23, 1997

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