Cancer Lung
http://www.lungcanceronline.org/
|
LUNG CANCER ONLINE |
Finding the Best Care
physician & hospital locators,
lung
cancer programs
second opinions, your health care team, issues that impact care
Services & Support
support organizations, in-person & Internet support groups, smoking cessation
resources
financial & insurance issues, home care & hospice, caregiver & family issues,
survivors' stories
Lung
Cancer
Information
general information, types of
lung
cancer, NSCLC,
SCLC, BAC, diagnosis & staging
Lung Cancer Information
LUNG
CANCER - FACTS &
GENERAL INFORMATION
PROGNOSIS & STATISTICS
TYPES OF
LUNG
CANCER - OVERVIEW
Pathologic Types,
Tumor Grade/Differentiation
NON-SMALL CELL
LUNG
CANCER (NSCLC)
Adenocarcinoma,
Bronchioloalveolar (BAC),
Squamous, Large Cell
NSCLC Staging & Treatment Overview
SMALL CELL
LUNG
CANCER (SCLC)
Description, SCLC
Staging & Treatment Overview
DIAGNOSIS & STAGING
TUMOR MARKERS
LUNG CANCER - FACTS & GENERAL INFORMATION
Facts About Lung Cancer (American Lung Association/Hudson Valley)
Discusses how lung cancer develops, the types of lung cancer, what
causes lung cancer, and who gets lung cancer. [2000]
Understanding Cancer of the Lung (CancerBACUP)
Provides an introduction to lung cancer. Covers lung cancer causes,
symptoms and types. Addresses diagnosis, testing and treatments
(surgery, radiotherapy, chemotherapy, laser therapy), and symptom
relief, among other topics. [5/02]
What You Need to Know About Lung Cancer (NCI's cancer.gov)
Information booklet describes lung cancer, its symptoms, diagnosis,
and treatment. Covers emotional support, questions for your doctor,
side effects and resources. [1/02]
Understanding Prognosis & Cancer Statistics (NCI Fact Sheet)
Explains the concept of prognosis as it relates to cancer statistics
and to individual patients. [6/97]"The Median Isn't The Message" (Cancerguide)
Wonderful piece on cancer and statistics by Stephen Jay Gould, a
Harvard professor who was diagnosed with an incurable cancer.
TYPES OF LUNG CANCER - OVERVIEW
Pathologic Types
Pathologic Types (Virtual Hospital)
Examines the four major types of primary lung cancers: adenocarcinoma
(including bronchioloalveolar),squamous cell carcinoma, undifferentiated
large cell carcinoma, and small cell carcinoma. Other thoracic tumors and
benign thoracic lesions are also discussed. Aimed at physicians.Unusual Tumors and Tumor-like Conditions of the Lung (Department of
Pulmonary and Mediastinal Pathology, Armed Forces Institute of Pathology)
Course directors: William D. Travis, MD and Michael N. Koss, MD
Presents eight case studies of unusual tumors and tumor-like conditions
of the lung. Aimed at physicians. In-depth pathological reviews are
offered for the following tumors and tumor-like conditions of the lung:
mucoepidermoid carcinoma (case 1); pleomorphic (spindle cell)
carcinoma (case 2); large cell neuroendocrine carcinoma (case 3);
adenocarcinoma diffusely spreading over pleura in a manner
simulating mesothelioma, or pseudomesotheliomatous adenocarcinoma
(case 4); pulmonary blastoma (case 5); pulmonary epithelioid
hemangioendothelioma (case 6); low-grade B-cell lymphoma of
balt (case 7); and inflammatory pseudotumor (case 8). [12/95]Lung Carcinoid Tumor - FAQ (American Cancer Society)
Answers the frequently-asked-questions about lung carcinoid tumors,
including risks, detection, diagnosis, staging, treatment, questions to ask
your doctor, and additional resources. Aimed at patients.
Tumor
Grade/Differentiation
Tumor
Grade (NCI
Cancer Facts)
Briefly introduces the concept of tumor grade and
discusses its significance
in planning treatment. [12/98]
NON-SMALL CELL
LUNG
CANCER (NSCLC)
Adenocarcinoma
Adenocarcinoma (Virtual Hospital)
Brief description of adenocarcinoma aimed at physicians.
Discusses
nature, typical presentation and appearance of
adenocarcinomas.
Bronchioloalveolar Carcinoma (BAC)
Bronchioloalveolar Carcinoma (Lung
Cancer Online)
Links to information on the epidemiology, pathology,
diagnosis and
treatment of BAC.
Squamous Cell Carcinoma
Squamous Cell Carcinoma
Brief description of squamous cell carcinoma aimed at
physicians.
Discusses nature, typical presentation and appearance of
squamous
cell carcinoma.
Large Cell Carcinoma
Large Cell Carcinoma & Giant Cell Carcinoma
Brief description of large cell
carcinoma aimed at physicians. Discusses
nature, typical presentation and appearance of
large cell carcinomas.
Large Cell Carcinoma - Recent MEDLINE Abstracts (PubMed)
NSCLC Staging & Treatment Overview
PDQ Cancer
Information Summaries - Non-small cell
lung
cancer
(NCI's
cancer.gov)
Peer-reviewed summary of non-small cell
lung
cancer. Patient
and
physician versions available. [6/02]
Non-small Cell
Lung
Cancer
(intouchlive.com)
from Myths & Facts About
Lung
Cancer by
John Ruckdeschel, MD
(Bristol-Myers Squibb Oncology, 1999)
Treatment overview by stage.
Treatment of NSCLC (Lung Cancer Online)
Description
Small
Cell Carcinoma (Virtual Hospital)
Intended for physicians, this description of SCLC
addresses its nature,
typical presentation, and appearance.
SCLC Staging & Treatment Overview
PDQ Cancer
Information Summaries - Small cell
lung
cancer
(NCI's
cancer.gov)
Peer-reviewed summary of small cell
lung
cancer. Patient
and
physician versions available. [6/02]
Small Cell
Lung
Cancer
(intouchlive.com)
from Myths & Facts About
Lung
Cancer by
John C. Ruckdeschel, MD
(Bristol-Myers Squibb Oncology, 1999)
Treatment overview for small cell
lung
cancer.
Treatment of SCLC (Lung Cancer Online)
DIAGNOSIS & STAGING
Diagnosis
How Is Lung Cancer Diagnosed? (intouchlive.com)
from Myths & Facts About Lung Cancer by John C. Ruckdeschel, MD
(Bristol-Myers Squibb Oncology, 1999)
Describes the physical examination and diagnostic tests that may be
performed to diagnose lung cancer.Solitary Pulmonary Nodules (Virtual Hospital)
Describes the clinical and radiological considerations in distinguishing
benign from malignant lesions. Aimed at health care providers.Symptoms of Lung Cancer (Onconurse.com)
Describes the symptoms and syndromes associated with lung cancer.
Includes pulmonary symptoms, symptoms in other organs, symptoms
linked to tumor metabolism, blood (hematologic) symptoms, vein and
artery (vascular) syndromes, skin (cutaneous) syndromes, musculoskeletal
syndromes, nervous system (neurologic) syndromes, and hormonal
(endocrine) syndromes.Histology of Synchronous Pulmonary Nodules (ASCO Abstract)
Addresses the clinical dilemma presented by the simultaneous discovery
of two pulmonary nodules occurring in different lobes or lungs. These
lesions could be either benign or malignant; if both are malignant they
could represent a metastatic process or synchronous primary lung cancers.
Study results underscore the importance of addressing each lesion
independently. [2000]Tests & Procedures (Lung Cancer Online)
Links to information on imaging tests and biopsy methods used to
diagnose and stage lung cancer, including CT scan, bronchoscopy,
mediastinoscopy, fine needle aspiration biopsy, among others.Neoplastic & Paraneoplastic Syndromes Associated with Lung Cancer
(Lung Cancer Online)
Pancoast Syndrome, Superior Vena Cava (SVC) Syndrome,
Clubbing and Hypertrophic Osteoarthropathy, Hypercalcemia,
Hyponatremia and Syndrome of Inappropriate Secretion of Antidiurectic
Hormone (SIADH)Medical History and Physical Exam for Lung Cancer (Hoag Hospital)
Provides an overview of what to expect during your medical examination.
Explains what information your doctor is looking for and why.[5/01]
Staging
Lung Cancer Staging - Its Definition and Significance
(intouchlive.com)
from Myths & Facts About Lung Cancer by John Ruckdeschel, MD
(Bristol-Myers Oncology, 1999)
Describes the elements involved in staging lung cancer. Discusses
how staging is used to determine prognosis and therapy.Mediastinal Staging of NSCLC (Moffitt Cancer Center)
by Christian Lloyd, MD, and Gerard A. Silvestri, MD
8(4) Cancer Control: JMCC (2001): 311-317
Discusses the various imaging and less invasive modalities currently
available to improve staging and therapy decision-making. Argues
that CT alone is not sufficiently accurate to stage the mediastinum,
and that PET scan, along with mediastinal biopsy techniques using
transbronchial needle aspiration or endoscopic ultrasound, has the
potential to improve the accuracy of pre-treatment staging. Aimed
at physicians. [08/01]
Regional Lymph Node Classification (chestx-ray.com)
Lymph node involvement is of major importance in determining
treatment and ultimately survival. Describes regional lymph
node classification and provides a lymph node map.
Staging of Small Cell & Non-Small Cell Lung Cancer (Virtual
Hospital)
Discusses the staging system of NSCLC and SCLC based on
the Revisions in the International System for Staging Lung Cancer
(1997). Aimed at health care providers.
"Preoperative Staging of Non-Small Cell Lung Cancer with
Positron-Emission Tomography" (New England Journal of
Medicine)
v. 343, no. 4 NEJM (July 27, 2000)
Abstract of study that concludes whole-body positron-emission
tomography (PET) improves the rate of detection of local and
distant metastases in patients with NSCLC. Implications of
the findings are discussed in an accompanying NEJM editorial,
"Metabolic Staging of Lung Cancer."
"Continuing Controversies in Staging NSCLC: An Analysis of the
the Revised 1997 Staging System" (cancernetwork.com)
by Robert J. Ginsberg, MD
v.12, no.1 ONCOLOGY (January 1998)
Identifies problems in the current T and N definitions, and
inconsistencies in prognosis within the subsets of the various
stages of the Revised 1997 Staging System. Calls for worldwide
collection of data and analysis before the next revision of the
staging system, anticipated in the year 2007. Aimed at physicians.
Registration required for free access to cancernetwork.com. [1/98]
TUMOR MARKERS
Tumor Markers
(NCI Cancer
Facts)
Lists examples of tumor markers in the blood and
describes how they can
used to aid diagnosis and treatment. [4/98]
Tumor Markers and Lung
Cancer - Recent
MEDLINE Abstracts
(PubMed)
Tumor Marker
Tests (Virtual Hospital)
Explains tumor markers and how they may be used in the
diagnosis
and management of
cancer.
Discusses several different tumor markers
used for various
cancers. [1999]
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Treatment Options
surgery, chemotherapy, radiation, treatment by stage, treatment of metastases
anti-angiogenesis, biological therapies, gene therapy, molecular-targeted
therapies
photodynamic therapy, treatment agents, clinical trials resources, alternative
medicine
GENERAL INFORMATION - WHAT TO EXPECT
About
Chemotherapy,
About Radiation Therapy,
About Surgery
NSCLC STANDARD THERAPIES
Treatment Overviews
Chemotherapy,
Radiation,
Surgery,
Combined Modality
Therapy,
Treatment by stage,
Treatment of Bronchioloalveolar Carcinoma (BAC)
Treatment of the Elderly NSCLC Patient
SCLC STANDARD THERAPIES
Chemotherapy &
Radiation
Treatment for Limited Disease,
Treatment for
Extensive Disease,
Prophylactic Cranial Irradiation (PCI)
Treatment of the Elderly SCLC Patient
Treatment of Recurrent Disease
CLINICAL TRIALS RESOURCES
EXPERIMENTAL
THERAPIES
Anti-angiogenesis,
Biological therapies,
Gene therapy,
Molecular-targeted therapies,
Photodynamic therapy,
Cryoablation
therapy,
Radiofrequency ablation,
Promising (Preclinical) Therapies
TREATMENT AGENTS (A-Z)
A
B
C
D
E
F
G
H
I J K
L
M
N
O
P Q
R
S
T U
V W X Y
Z
TREATMENT OF METASTASES
About
metastatic disease,
Adrenal
metastases,
Bone metastases,
Brain metastases,
Liver
metastases
LIVING WITH
LUNG
CANCER
Follow-up/Surveillance,
Cancer
Rehabilitation Services,
Survivorship/Quality-of-Life Issues
COMPLEMENTARY
& ALTERNATIVE MEDICINE (CAM)
CAM
Websites,
CAM
Articles of interest,
CAM Centers
Symptoms, Side
Effects & Complications
anemia, constipation, diarrhea, fatigue, fever, hair loss,
lung collapse,
nausea & vomiting
neoplastic & paraneoplastic syndromes, neutropenia, nutrition, oral
complications
pain, peripheral neuropathy, pleural & pericardial effusions, shortness of
breath, skin problems
Tests & Procedures
biopsy, bronchoscopy, chemosensitivity tests, lab/blood tests, nuclear tests
ports & catheters, pulmonary function tests, radiology tests, thoracentesis,
airway stents
GENERAL TESTING INFORMATION
BIOPSY PROCEDURES
General information,
Bronchoscopy,
Fine Needle
Aspiration,
Mediastinoscopy,
Thoracentesis
DRUG RESISTANCE (CHEMOSENSITIVITY) TESTING
LABORATORY (LAB) TESTS
Blood counts,
tumor markers
NUCLEAR TESTS
Bone scan, PET
scan, PET-CT, SPECT
V/Q (ventilation/perfusion) scan
PORTS & CATHETERS
PULMONARY FUNCTION TESTS
RADIOLOGY TESTS & PROCEDURES
CT scan,
fluoroscopy, MRI scan, X-ray
MISCELLANEOUS TESTS & PROCEDURES
Airway stents,
lumbar puncture (spinal tap)
What to
Ask the Doctor Before a Test (Columbia
University College of
Physicians & Surgeons)
Based on the premise that no one should have any
medical test
without knowing what it entails and why the doctor
is recommending
it, this patient information sheet lists eight
questions a patient should
ask the doctor before undergoing a test.
DRUG RESISTANCE (CHEMOSENSITIVITY) TESTING
Patients' Perspectives on Cell Culture Drug Resistance Assays (yana.org)
Provides a patient perspective on the use of cell drug resistance assays to
select potential chemotherapy treatments. Notes several reasons why cell
drug resistance assays have not been adopted as standard tests. Offers a
first-hand account of the process and includes links to further information
on labs. [1999]Ex-Vivo Apoptotic (EVA) Laboratory Assay (Quackwatch)
Evaluation, by Wallace I. Sampson, MD, of the chemosensitivity testing
performed by Rational Therapeutics, of Long Beach, CA. Questions the
usefulness of the Ex-Vivo Apoptotic Laboratory Assay, which is performed
on a specimen taken from a patient and cultured in the laboratory.
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LABORATORY TESTS
Interpreting Laboratory Test Results (NCI Cancer Facts)
Brief, basic information on laboratory tests and how they are used.
Aimed at patients. [3/97]
Blood Counts
Blood Cells and the CBC (Edward O. Uthman, MD)
Comprehensive introduction to hematopathology. Covers hemoglobin,
erythrocyte count (RBC), hematocrit (PCV) and erythrocyte indices
(MVC, MCH, MCHC); leukocytes and leukocyte differential count
(WBC, neutrophils, monocytes, eosinophils, basophils, lymphocytes);
platelets and other peripheral blood cells. Aimed at physicians.Blood Counts FAQ (Oncolink)
Comprehensive patient guide to understanding how chemotherapy
affects blood counts. Describes the different kinds of blood cells.
Discusses neutropenia (low white cell count); thrombocytopenia (low
level of platelets); and anemia (low red cell count). [11/99]
Tumor Markers
Role of Serum Tumor Markers CA 125 and CEA in NSCLC (PubMed)
Abstract of a study reported in the March/April issue of Anticancer
Research that found CA 125 and CEA can be indicators of
disease extent, a useful clinical therapeutic marker, and may
potentially have important prognostic value in NSCLC patients. [4/01]
Tumor Markers (NCI Cancer Facts)
Discusses tumor markers -- what they are and how they may
used to assess a cancer's response to treatment and to check
for recurrence. Describes the most commonly measured tumor
markers. Does not mention any markers used for lung cancer,
although it notes that pleural inflammation can case elevated
CA 125 levels. [4/98]
What Patients Should Know About Nuclear Medicine Procedures
(Society for Nuclear Medicine)
Overview of nuclear medicine and nuclear medicine tests.
Frequently Asked Questions: Nuclear Medicine (Society for
Nuclear Medicine)
Answers commonly asked questions about nuclear medicine tests.
Bone scan
Bone Scans (Beth Israel Deaconess Medical Center Radiology)
Describes bone scans: their use, test preparation and exam
procedure.
PET scan
PET Facilities (Academy of Molecular Imaging)
Offers a geographic listing of PET facilities who are members of the
Academy of Molecular Imaging.PET: Detection of Tumors by Metabolic Properties (cancer.gov)
Simple description of how PET scans are used to detect tumors.
[3/00]Clinical Impact of FDG PET in Patients with NSCLC: A Prospective
Study (Journal of Clinical Oncology)
by Kalff, Victor et al.
19,no. 1 JCO (January 2001):111-118
Abstract of a prospective study examining the impact of F
fluorodeoxyglucose (FDG) positron-emission tomography (PET) on
clinical management of NSCLC patients. Study concluded that
FDG PET scanning changed or influenced management decisions
in 70 of 105 (67%) study patients. Patients were frequently spared
unnecessary treatment, and management was more appropriately
targeted."Preoperative Staging of Non-Small Cell Lung Cancer with Positron-
Emission Tomography" (New England Journal of Medicine)
by Pieterman, Remge M. et al
343, no. 4 NEJM (July 27, 2000)
Abstract of a study that concludes whole-body positron-emission
tomography (PET) improves the rate of detection of local and distant
metastases in patients with NSCLC.PET Scanning in the Assessment of Lung Lesions (Medscape)
Summarizes the session on PET and lung cancer at the 48th Annual
Meeting of the Society of Nuclear Medicine. Highlighted observations:
accuracy of FDG-PET in evaluation of pulmonary nodules; comparison
of contrast CT and FDG-PET; association of bronchioloalveolar (BAC)
and false negative FDG-PET; role of PET in SCLC. [6/01]Evaluation of Bone Metastases in Lung Cancer (H.Lee Moffitt Cancer Center)
by Poonam Malhotra, MD and Claudia G. Berman, MD
v.9, n.3 Cancer Control Journal (May/June 2002): 254-55
Case study illustrating how FDG-PET scans offer advantages over bone scans
for detecting bone metastases from lung cancer. Suggests that FDG-PET
can be useful in determining the presence of active metastatic disease
following treatment and is useful in monitoring response to therapy. (Be
sure to click on the "Discussion" button at the bottom of the page.) [2002]
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PET-CT (CT-PET)
Impact of Computed Tomography-Positron Emission Tomography
(CT-PET) in Staging Patients with Thoracic Malignancies (Annals
of Thoracic Surgery)
Abstract of a study that found CT-PET fusion images were more
accurate than camera-based PET alone. CT-PET fusion improves
the spatial resolution compared with dedicated PET and may improve
the ability and efficacy of staging patients with thoracic malignancies.[7/02]
SPECT
SPECT: Detection of Tumors by Radiolabeled Antibodies
(cancer.gov)
Simple description of how SPECT scans are used to detect tumors.
[3/00]
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V/Q (Ventilation/Perfusion) Scan
Ventilation-Perfusion Scan (V-Q Scan) (Harvard Family Health Guide)
Explains what a ventilation-perfusion scan is, how to prepare, what to
expect and what to do afterwards.
Pulmonary Ventilation/Perfusion Scan (MEDLINEplus)
Describes a V/Q scan (also called lung ventilation/perfusion), a nuclear
scan test using inhaled and injected radioactive material (radioisotopes)
to measure breathing (ventilation) and circulation (perfusion) in all areas
of the lungs. Discusses how and why the test is performed, how to
prepare for the test, the risks, and the significance of abnormal results.
Aimed at patients. [5/99]
VenousAccess.com
Comprehensive website that offers professional and patient information
on all types of venous access devices. Patient materials include an
explanation of the types of central venous catheters: peripherally
inserted central catheters (PICC), ports, and tunneled and non-
tunneled catheters; and information on what to do before and
after a central line procedure. Extensive additional information is
available, including instructions on catheter care, and journal article
reviews. [2002]Ports (CancerLynx)
Excellent collection of patients' experiences with ports. Offers a
a wealth of helpful advice.Venous Access Port Problems
Describes the types of long-term central venous catheters and discusses
the causes of catheter or port problems. Details the signs and symptoms
of problems, how to avoid problems, and when to call the doctor. [7/01]
Pulmonary Function Tests (Harvard Family Health Guide)
Explains pulmonary function tests: what they are and what
to happens when the tests are performed.Spirometry (National Lung Health Education Program)
Explains spirometry - includes pictures. [1/02]
Spirometry: Questions & Answers (Priory Lodge Education)
Discusses spirometry: what it is, how to interpret spirometry
readings, standards and procedures, and spirometry vs. peak
flow.
CT scan
NY Weill Cornell Researchers Report CT Screening of Patients
at Risk for Lung Cancer Saves Lives (Cornell University/Weill
Medical College/New York Presbyterian Hospital)
Press release announcing results of research (from the Early
Lung Cancer Action Program, or ELCAP) reported in The Lancet
(7/10/99) that showed low-dose CT screening can find lung tumors
long before they appear on traditional chest x-rays.
Computed Tomography (NCI Cancer Facts)
Describes computed tomography (CT or CAT scan). Discusses the
procedure and its advantages over other x-ray techniques in
diagnosing disease. [7/98]
Computed Tomography (CT) - Body (Radiological Society of North
America & the American College of Radiology)
Describes computed tomography (CT): what it is, how it works, how
to prepare, how the procedure is performed, who interprets the results
and how to get them. Discusses the benefits, risks and limitations
of CT scanning of the body.
The Role of CT in Evaluating Lung Cancer/Staging (Virtual
Hospital)
Aimed at the health care provider, this article discusses the role of
CT in evaluating those tumor characteristics which determine stage.
Fluoroscopy
Diagnostic Tests: Fluoroscopy (Columbia University College of
Physicians and Surgeons)
Briefly describes the purpose, preparation, time, procedure and risk
involved in image-intensifier fluoroscopy.
MRI scan
Magnetic Resonance Imagine (MRI) - Body (Radiological Society of
North America & the American College of Radiology)
Describes MRI: what it is, how it works, how to prepare, how the
procedure is performed, who interprets the results and how to get
them. Discusses the benefits, risks and limitations of MRI of the
body. See also MRI - Head.
MRI Scans (Beth Israel Deaconess Medical Center Radiology)
Excellent description of a Magnetic Resonance Imaging (MRI) scan
from the patient's point of view. Includes illustrations of the MRI
scanner. Presents option of non-enclosed MRI scanner to reduce
claustrophobia.
X-ray
Chest X-ray (MedicineNet)
Discusses what a chest x-ray is, how a x-ray is performed, the risks
of a chest x-ray and how to obtain the results of an x-ray.
Your Chest X-ray (chestx-ray.com)
Describes a chest x-ray, including radiation dose and interpretation.
Discusses poor vs. good quality x-rays, and provides information that
helps patients to determine whether they are getting a good exam.
MISCELLANEOUS TESTS & PROCEDURES
Respiratory System Tests (Columbia University College of Physicians
and Surgeons)
Briefly describes various respiratory systems tests, including: arterial
puncture, bronchography, bronchoscopy, laryngoscopy, pulmonary
function test (lung capacity), lung scan, mediastinoscopy, and
thoracentesis.
Airway Stents
Treatment for Advanced Lung Cancer: Laser Treatment and
and Airway Stents (CancerHelp UK)
Briefly describes laser treatment and airway stents, procedures used
for relieving breathlessness caused by a blocked airway secondary
to lung cancer. Aimed at patients.
Lumbar Puncture (Spinal Tap)
Lumbar Puncture (Spinal Tap) (Lupus Around the World)
Describes lumbar puncture (or spinal tap), an invasive diagnostic test
in which cerebrospinal fluid (CSF) is extracted for examination, and
pressure of the spinal column is measured. Details what happens before,
during, and after the procedure. Discusses advantages, possible
complications, and contraindications. Lists evaluations, normal findings,
and what abnormal findings may indicate.Lumbar Puncture (American Thoracic Society)
Describes lumbar puncture and outlines its benefits and risks.
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Websites & Organizations
Internet cancer
guides, cancer
websites & organizations
pharmaceutical companies, Editor's Choice Websites
INTERNET CANCER GUIDES
CANCER/MEDICAL WEBSITES
CANCER & LUNG CANCER ORGANIZATIONS
PHARMACEUTICAL COMPANIES
EDITOR'S CHOICE WEBSITES
INTERNET CANCER GUIDES
Cancerguide (Steve Dunn)
Comprehensive site for learning about cancer - an excellent starting
point. Maintained by cancer survivor Steve Dunn.
Guidelines for Evaluating Cancer Web Sites (Moffitt Cancer Center)
Guidelines on how to critically evaluate cancer websites. Addresses
issues of content, source/authority, design and navigability, and
confidentiality. [2000]How To Evaluate Health Information on the Internet (NCI Cancer Facts)
Guidelines for evaluating the reliability of Internet information. [8/02]Health on the Net Foundation (HON)
Nonprofit aims to build and support the international health and
medical community on the Internet. Advocates an HON Code of Conduct
for all medical websites. Offers the MedHunt search engine, which
provides annotated listings of medical websites by keyword.
Alpha Cancer Information Resource: Lung Cancer (Coalition
of National Cancer Cooperative Groups)
Comprehensive lung cancer information available as webcasts,
audio broadcasts, and articles.
CancerBACUP
Aims to help people live with cancer by providing information,
emotional support and counseling for patients, families and health
professionals. Offers Understanding Cancer of the Lung online
booklet. UK organization.cancereducation.com: Lung Cancer
Offers audio/video educational programs that cover lung cancer
topics: examples include ALCASE's "Lung Cancer: A Revolution
in Care" workshop tours from 1998-1999, and the Wellness
Community's "There is Hope: A Symposium for People with Lung
Cancer" of June 2000. Registration required for free access to
cancereducation.com.
Cancer.gov (National Cancer Institute)
NCI website offering cancer information, including PDQ database
(cancer database containing peer-reviewed summaries on treatment,
screening, prevention, and supportive care), NCI fact sheets, clinical
trials information, free NCI publications, CANCERLIT abstracts and
citations, and directories of healthcare providers and organizations.
Cancer.gov's Lung Cancer page includes information on lung cancer;
its treatment; statistics; causes, risk factors and prevention; testing
for lung cancer; and coping with lung cancer.
Doctor's Guide to the Internet
Commercial website primarily aimed at health care providers with
topical information for patients. Features include : medical alerts
and news, links to Internet medical resources, medical conference
database, medical bookstore.FDA Center For Drug Evaluation and Research: Oncology Tools
(U.S. Food and Drug Administration)
Offers information related to cancer and approved cancer drug therapies.
Sections include: approved oncology drugs, disease summaries,
regulatory tools, oncology reference tools, and the FDA patient liaison
program.Guide to Internet Resources for Cancer: Lung Cancer Page
(cancerindex.org)
Over 50 links to lung cancer information resources and organizations,
including sites on lung cancer causes and prevention.Lungcancer.org
Comprehensive lung cancer site co-sponsored by Cancer Care and
the Oncology Nursing Society. Intended for patients, caregivers,
health professionals and the media. Of particular interest to patients
is an "Ask the Experts" service which provides an opportunity, via e-mail,
to ask questions of certified oncology nurses.
MEDLINEplus: Lung Cancer
National Library of Medicine website designed to link users to NLM,
NIH, federal government and other sources of lung cancer information.
Medscape Oncology
Extensive medical website aimed at healthcare professionals.
Oncology resources include: practice guidelines, conference
summaries, journal room, exam room, library, patient resources,
current articles, among others. Offers a Lung Cancer Resource
Center, featuring the latest lung cancer news and resources.
Registration required for free access to Medscape.
OncoLink (University of Pennsylvania Cancer Center)
Comprehensive cancer website offering information on specific
types of cancer, psychosocial support services, clinical trials,
global resources, cancer causes/prevention/screening, medical
supportive care, conferences, and financial issues for patients.
Excellent lung cancer resources - OncoLink: Lung Cancer.
Virtual Hospital
Offers educational materials for patients and health care providers.
Of particular interest is the provider page on
Lung Tumors: A Multidisciplinary Database.
CANCER AND
LUNG
CANCER
ORGANIZATIONS
Alliance for
Lung
Cancer Advocacy,
Support, and Education (ALCASE)
800-298-2436
Nonprofit organization dedicated to helping people with
lung
cancer
improve their quality of life. ALCASE offers
lung
cancer education,
psychosocial support, and advocacy programs. Its
Phone Buddies
Program matches individuals with other
lung
cancer survivors
based on
a number of criteria and the needs of the person requesting
the service.
Other ALCASE services are a national information hotline, a
list of
community-based support groups, and educational materials
including
a
Lung
Cancer Manual,
Resource Guide, and quarterly newsletter.
American Association
for Cancer
Research (AACR)
Nonprofit dedicated to basic and clinical
cancer research.
American
Cancer Society (ACS)
Nonprofit provides general
cancer
educational and support services,
including a
Lung
Cancer Resource
Center which describes
lung
cancer, its risk factors, prevention, causes, detection, symptoms,
diagnosis, staging and treatment.
American Institute for
Cancer Research (AICR)
Nonprofit focusing on diet, nutrition and
cancer
prevention. Offers a
Cancer Resource Program that provides a
lung
cancer guide.
American
Lung Association
(ALA)
Nonprofit focusing on
lung disease
prevention, advocacy group. ALA
can help to point out community resources. Offers an online
booklet
"Facts About Lung
Cancer."
American Society of Clinical
Oncology
Professional organization providing
cancer
information for both
oncology professionals and
cancer patients.
Of special interest
are
abstracts from
annual meetings and
Lung
Cancer: News.
Angiogenesis Foundation
Nonprofit offers a
Patient
Cancer Center
page with information
on angiogenesis for
cancer patients.
Free information resources
include a section on "Understanding Angiogenesis" and a list
of
anti-angiogenic drugs in clinical trials for
cancer. The
Foundation's
Patient Information Network (PIN) is available for an annual fee and
provides comprehensive information and an educational
program on
the latest anti-angiogenesis research.
Association of
Cancer Online
Resources (ACOR)
Nonprofit association managing over 90 online
support groups providing
information and community to patients, caregivers, and
others. Of
particular interest is
LUNG-ONC, the
Lung
Cancer Online
Support
Group, including its archives which can be searched by
keyword or
browsed by date.
Cancer Care, Inc.
Nonprofit providing extensive assistance to people
with cancer
including
counseling services, information about
cancer and
treatment, referrals
to other support services (home care, child care,
transportation, pain
management, entitlements), educational seminars and
materials, and
financial planning. Offers an online
Lung
Cancer Section
and a wide
variety of support groups for patients, partners, relatives
and caregivers,
including a
Lung
Cancer Support
Program.
Cuneo
Lung
Cancer Study
Group (CuLCaSG)
Nonprofit association of Cuneo physicians and health
care personnel
engaged in clinical research, continuing education and
patient care in
lung
cancer.
International Association
for the Study of Lung
Cancer (IASLC)
Nonprofit association promoting the study of
lung
cancer and
dissemination of information on
lung
cancer. IASLC
organizes world
conferences on
lung
cancer and
numerous yearly workshops on
specific themes. Publishes
Lung
Cancer.
National
Cancer Institute
(NCI)
Government institution sponsoring
cancer research,
training,
clinical trials, a
Cancer
Information Service, and a
CancerNet
database (with
PDQ
treatment information, a
CANCERLIT
database
and a
Lung
Cancer page),
among other information services.
National
Coalition for Cancer
Survivorship (NCCS)
Nonprofit network of organizations and individuals
working in the area of
cancer
support and information. Offers
The
Cancer Survival
Tool Box,
a self-learning audio program covering topics and skills
that can help
people with
cancer meet the
challenge of their illness.
National
Familial Lung
Cancer Registry
(Johns Hopkins Medical
Institutions)
Goals of the registry are to further our understanding of the
causes of
lung
cancer (beyond
smoking) and to serve as an educational resource
for persons at risk for
lung
cancer. If two or
more people in a family
have been diagnosed with
lung
cancer, the
family is eligible to be a part
of the Registry.
People Living With
Cancer
(ASCO)
Patient information website developed by the American Society
of
Clinical Oncology (ASCO). Offers comprehensive
oncologist-reviewed
cancer information.
Roy Castle
Foundation
Nonprofit research center established to fight
lung
cancer.
Facilities
include laboratories, teaching facilities and a
lung
cancer library.
Society of
Thoracic Surgeons - Patient Information
Nonprofit professional organization. Patient
information page offers
information about diseases of the chest - including symptoms
and
prevention, and the procedures used to correct them.
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PHARMACEUTICAL COMPANIES
Abgenix
Aeterna
Agouron
Pharmaceuticals
Allos
Therapeutics
ALZA Pharmaceuticals
Amgen
AnorMED
AstraZeneca
Aventis
BattellePharma
Biomira
Bristol-Myers Squibb
Celgene
Cell
Genesys
Cell Pathways
Entremed
Enzon
Genaera
Genentech
Genta
ILEX
ImClone Systems
ImmunoGen
Immunomedics
Introgen Therapeutics
Isis Pharmaceuticals
Ivax
Ligand Pharmaceuticals
Lilly (Eli Lilly)
Matrix Pharmaceutical
MGI Pharma
Millenium Pharmaceuticals
Novartis
Novelos Therapeutics
Ortho
Biotech
OSI Pharmaceuticals
OXiGENE
Pharmacia & Upjohn
Protarga
Research Triangle Institute
Ribozyme Pharmaceuticals
Schering-Plough
Seattle Genetics
SmithKline Beecham
Sugen
SuperGen
Titan Pharmaceuticals
Tularik
Vertex
Vion Pharmaceuticals
Xenova Group
top of page home last modified: 12/21/02
Researching the Medical
Literature
bibliographic databases, guidelines resources, medical libraries, conference
proceedings
professional journals, medical reference,
lung
cancer
bibliographies
Researching the Medical Literature
BIBLIOGRAPHIC DATABASES
TREATMENT GUIDELINES RESOURCES
MEDICAL LIBRARIES
CONFERENCE PROCEEDINGS/ABSTRACTS
JOURNALS
Medical/cancer
journal lists, Individual
lung
cancer related
journals
MEDICAL REFERENCE
Dictionaries & Glossaries,
Encyclopedias/Reference Guides,
How to research
LUNG
CANCER BOOKS &
BIBLIOGRAPHIES
CANCERLIT
(NCI's cancer.gov)
Comprehensive bibliographic database of more than
1.4 million records
of cancer
literature published since 1963, including books, government
reports, presentations, theses, and scientific journals, usually
with
abstracts.
MEDLINE
(National Library of Medicine)
Description of MEDLINE, comprising over 11 million
citations to and
abstracts from approximately 4,000 medical journals.
>Search
MEDLINE: PubMed
Free MEDLINE search page using PubMed.
>PubMed
Online Training
Web-based tutorial on how to use PubMed.
International
Bibliographic Information on Dietary Supplements (IBIDS)
Database
(NIH/Office of Dietary Supplements)
Searchable database of published, scientific
literature on dietary supplements,
vitamins, minerals, and botanicals. IBIDS contains over 300,000
citations
and abstracts. Developed to assist the public, health care
providers, and
researchers in locating credible, scientific literature on
dietary supplements.
TREATMENT GUIDELINES RESOURCES
Lung
Cancer Clinical
Practice Guidelines (Cancer
Care Ontario
Practice Guidelines Initiative)
The
Cancer Care
Ontario Practice Guidelines Initiative (CCOPGI)
is dedicated to developing evidence-based clinical practice
guidelines on
cancer care.
Intended for physicians.
Guidelines - Lung
Neoplasms (National Guideline Clearinghouse)
The National
Guideline Clearinghouse is a repository for evidence-based
clinical practice guidelines sponsored by the
Agency for Health Care
Policy and Research in
partnership with the American Medical
Association and the
American Association of Health Plans.
Although intended for physicians, NCG has added a patient
resource feature to guidelines when available.
ASCO
Clinical Practice Guidelines (American Society of Clinical
Oncology)
The ASCO Clinical Guidelines are listed by disease and
modality. Although
the guidelines are intended for physicians, some patient guides
are
also available. Of particular interest is
Advanced Lung
Cancer Treatment.
National
Library of Medicine (NLM)
The NLM contains 5.3 million items comprising books, journals,
technical reports, manuscripts, microfilms, photographs and
images.
Access to the collection is available on-site or through
interlibrary
loan; however, the NLM catalog can be searched online via
LOCATORplus. NLM
produces the MEDLINE database
and offers
a MEDLINEplus
website that provides links to sources of consumer
health information.
NLM Fact Sheet
describes NLM holdings and
services.
National Network of Libraries of
Medicine (NN/LM) (800) 338-7657
Directs health professionals, educators and the public to medical
libraries and health care information resources.
Libraries
for Health Consumers (NLM)
Listing of consumer health libraries and participating libraries
in the
NLM Consumer Pilot Project.
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home
CONFERENCE
PROCEEDINGS/ABSTRACTS
Lung
Cancer Progress
Review Group (National
Cancer Institute)
August 2001
Report identifying top priorities for
lung
cancer research.
Resulted from
Lung
Cancer Progress
Review Group (PRG) Roundtable meeting, April, 2001.
2nd International
Lung
Cancer Congress
(Medscape)
July 18-21, 2001, Kauai, Hawaii
Conference summaries aimed at physicians. Registration
required for free
access to Medscape.
9th World Conference on
Lung
Cancer
(Medscape)
September 11-15, 2000, Tokyo, Japan
Conference summaries aimed at physicians. Registration
required for free
access to Medscape.
"There is Hope: A Symposium for People with
Lung
Cancer"
(cancereducation.com)
The Wellness Community, Philadelphia, PA, June 2000
Offers audio/video files of the symposium, including introductory
remarks,
magnitude of the problem, prevention, radiation therapy,
chemotherapy,
six lung
cancer survivors,
and complementary therapies. Registration
required for free access to
cancereducation.com.
ASCO
Annual Meetings
ASCO abstracts database searchable by keyword and
year.
Center for Mind-Body Medicine
Annual Conferences
"Integrating Complementary & Alternative Therapies"
Comprehensive
Cancer Care 2000
(June 7-11, 2000) Proceedings
NCI State of the Science Meetings
(National
Cancer Institute)
"Integration of New Therapeutic Agents into the Multimodality
Treatment
of NSCLC" (June 14-15, 2000)
"Molecular
Targets for Therapy in SCLC" (September 14-15, 1999)
Lung
Cancer
Teleconferences (Cancer
Care)
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home
Journal Lists
Cancer Journals
(Guide to Internet Resources for
Cancer)
Alphabetical list of over 170 oncology and related journals.
Links to
journal home pages and MEDLINE are included along with the ISSN,
Publisher and impact factor for each journal. Excellent
resource.
AMEDEO: The Medical Literature Guide
Offers access to bibliographic lists of medical topics,
including
lung
cancer.
Lists are comprised of abstracts from selected journals and are
updated weekly.
Lung
Cancer Related
Journals
American Journal of Respiratory and
Critical Care Medicine (published
by the American Thoracic Society)
Tables of contents and abstracts available for issues from
July 1997.
Annals of Thoracic Surgery - Featured Articles
Full text articles from the current issues of The Annals
of Thoracic
Surgery that are of general interest to the public.
CA - A
Cancer Journal
for Clinicians (published by the American
Cancer
Society)
Peer-reviewed journal for primary care physicians.
Contains articles on
aspects of
cancer diagnosis,
treatment and prevention; and information
on ACS activities. Full text available for issues since 1996.
CANCER
(published by the American
Cancer Society)
Publishes interdisciplinary oncologic information
including hematologic
oncology, medical oncology, pathology, radiation oncology, and
surgical
oncology, among other areas. Tables of contents and article
abstracts for
current and past issues.
Cancer Control:
Journal of the Moffitt
Cancer Center
Peer-reviewed, bi-monthly journal publishes articles that address
actions
and approaches needed to reduce the impact of human malignancy.
The
topical issues include original articles along with a listing of
relevant
clinical research protocols. The
January/February 2000
issue of Cancer
Control focused on
lung
cancer.
CHEST: The
Cardiopulmonary and Critical Care Journal (published by
the American College of Chest Physicians)
Tables of contents and article abstracts from recent
issues. Abstracts
database searchable by author or keyword.
Journal of
Clinical Oncology News Digest (published by ASCO)
News release summarizing select research appearing in the
Journal of
Clinical Oncology.
Digest summaries highlight particularly newsworthy
research appearing in each issue. JCO News Digests are organized
by month and year.
Journal of the
National Cancer
Institute (published by NCI)
Publishes peer-reviewed reports on major oncology studies;
editorials
and commentary by experts; news from the oncology community; book
reviews; conference announcements. Tables of contents and
abstracts
available for issues published since 1994.
Journal of Thoracic and Cardiovascular Surgery
(published by The
American Association for Thoracic Surgery and the Western
Thoracic
Surgical Association)
Presents original articles on conditions of the chest,
heart, lungs and
great vessels where surgical intervention is indicated.
Abstracts
available for issues published since 1994.
Lung
Cancer
(published by International Association for the Study of
Lung
Cancer)
Publishes original research concerning aspects of
lung
cancer:
prevention, epidemiology and etiology, basic biology, pathology,
clinical
assessment, surgery, chemotherapy, radiotherapy, combined
treatment
modalities, among others. Each issue includes a reference section
derived from the Excerpta Medica Database, with key abstracts
covering
the literature on
lung
cancer. Not
available online.
Lung
Cancer Frontiers
(published by International
Lung
Cancer
Identification,
Inc.)
Acquires and disseminates new knowledge about
lung
cancer and how it
can be most quickly and effectively diagnosed and treated.
Current and
previous issues available in PDF format.
The Oncologist
Peer-reviewed journal aimed at the practicing
oncologist-hematologist.
Full text available for issues published since 1998. Available
issues may
be searched by author, citation or keywords.
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home
Dictionaries & Glossaries
Lung
Cancer & Related
Acronyms (Lung
Cancer Online)
Compiled by Lorraine Johnston and Karen Parles, MLS
Lung
Cancer Glossary
(intouchlive.com)
Extensive glossary of terms related to
lung
cancer from
Myths &
Facts About
Lung
Cancer by
John C. Ruckdeschel, MD (Bristol-Myers
Squibb Oncology, 1999).
MPIP
Glossifier (Melanoma Patients' Information Page)
Excellent tool for helping to understand medical articles and
other
Internet medical information. The URL of the article or webpage
to be "glossified" and it will appear in your browser with all the
glossary words highlighted and linked to their definition.
Cancer
Definitions (NCI)
Comprehensive glossary of
cancer-related
terms.
Online Medical Dictionary (CancerWeb)
Cancer.gov Dictionary
Pharma-Lexicon: A Dictionary of Pharmaceutical Medicine
Extensive database of pharmaceutical acronyms and their definitions.
Encyclopedias/Reference Guides
Medical
Encyclopedia (MEDLINEplus)
Thousands of articles from the adam.com medical encyclopedia
covering diseases, tests, symptoms, injuries, and surgeries.
MEDLINEplus:
Drug Information (National Library of Medicine)
Information on more than 9,000 prescription and
over-the-counter medications
provided by the United States Pharmacopeia (USP).
How to
Research
How to Research the
Medical Literature (Cancerguide)
Sections include: the research cycle, where to get
references, using
medical databases, types of papers in the medical literature, how
to
find and use a medical library.
LUNG
CANCER BOOKS &
BIBLIOGRAPHIES
Books
100 Questions & Answers About
Lung
Cancer
by Karen
Parles, MLS and Joan Schiller, MD
Jones & Bartlett Publishers, 2003
Lung
Cancer: Myths,
Facts, Choices - And Hope
by Claudia I. Henschke, PhD, MD, and
Peggy McCarthy with Sarah Wernick
WW Norton & Company, 2002
Lung
Cancer: Making
Sense of Diagnosis, Treatment & Options
by Lorraine Johnston
O'Reilly & Associates, 2001
Lung
Cancer: A Guide
to Diagnosis and Treatment
by Walter Scott, MD
Addicus Books, 2000
Bibliographies
Non-small Cell Lung
Cancer -
Suggested Reading (cancernetwork.com)
from
Cancer
Management: A Multidisciplinary Approach
Edited by Richard Pazdur, MD, et al.
Registration required for free access to
cancernetwork.com.
[c.2001]
Small
Cell Lung
Cancer -
Suggested Reading (cancernetwork.com)
from
Cancer Management
: A Multidisciplinary Approach
Edited by Richard Pazdur, MD, et al.
Registration required for free access to
cancernetwork.com.
[c.2001]
Surgical Oncology -
Lung
Cancer: An
Annotated Bibliography of
Important
Literature on Common Problems in Surgical Oncology
(Society of Surgical Oncology)
Edited by Peter W.T. Pisters, MD and Stephen B. Edge, MD
[11/00]
"Ten Best Readings
on Lung
Cancer"
Edited by W. Michael Alberts, MD
v. 7, no. 1 (Jan./Feb. 2000)
Cancer Control
Journal
top of page home last modified: 12/21/02
Living with
Lung
Cancer
follow-up care, rehabilitation
services, survivorship issues, long term & late effects
Living with Lung Cancer
FOLLOW-UP
ISSUES
Follow-up Care,
Recurrence, Second
Lung
Cancers
CANCER
REHABILITATION SERVICES
SURVIVORSHIP/QUALITY OF LIFE ISSUES
(LONG TERM & LATE EFFECTS)
Overview,
Cognitive
Dysfunction After Treatment, Depression After
Treatment,
Fatigue After Treatment,
Peripheral Neuropathy After Treatment
Follow-up Care
Follow-Up
Treatment of Lung
Cancer
(intouchlive.com)
from Myths & Facts About
Lung
Cancer by
John C. Ruckdeschel, MD
(Bristol-Myers Squibb Oncology, 1999)
Addresses the three major concerns of
lung
cancer follow-up
period:
1) evaluating the effect of the original treatment; 2)
monitoring for recurrence
of the original
cancer; and 3)
the problem of "second primary
lung
cancers."
What Follow-Up is Needed
After Treatment of Lung
Cancer?
(smokinglungs.com)
Offers the perspective of thoracic surgeon, Fred Grannis, MD
(Head,
Thoracic Surgery, City of Hope National Medical Center, Duarte,
CA),
on clinical follow-up of patients after treatment for
lung
cancer. [undated]
Questions and Answers About
Follow-up Care (NCI/Cancer
Facts)
Discusses follow-up care and why it is important. Suggests
questions
patients should ask their doctors about follow-up care.
Addresses
issues involved in follow-up care, such as dealing with emotions
and
keeping medical records. [7/01]
Relevance
of an Intensive Postoperative Follow-up After Surgery for
NSCLC
(Annals of Thoracic Surgery)
by Virginia Westeel, MD, et al.
70 Ann Thorac Surg (2000)
Abstract of a prospective study that found an intensive
follow-up program
is feasible and may improve survival by detecting recurrences
after surgery
for NSCLC at an asymptomatic stage. [2000]
Surveillance and Follow-Up Care for Patients with Advanced
Lung
Cancer
(ASCO)
from "ASCO Special Article: Clinical Practice Guidelines for the
Treatment
of Unresectable Non-Small Cell
Lung
Cancer," Adopted
May 16, 1997
Aimed at physicians, this section of the guidelines notes that
there are
no studies which indicate the optimum intensity of follow-up in
patients
with advanced
lung
cancer. Offers
clinical guidelines within that stated
context, covering history and physical examination, chest
x-rays, and
other diagnostic studies. [5/97]
Recurrence
What
Steps Are Recommended to Prevent Recurrence of NSCLC?
(cancernetwork.com)
by John C. Ruckdeschel, MD
21(2) Primary Care &
Cancer
(February 2001)
Evaluates several measures in the context of preventing
recurrence of
NSCLC in young nonsmokers. Registration required for free access
to
cancernetwork.com.
[2/01]
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home
Second Lung
Cancers
Second Lung
Cancers in
Patients After Treatment for an Initial
Lung
Cancer
(MEDLINE Abstract)
by BE Johnson, MD
90(18) J Natl
Cancer Inst
(Sept.16, 1998):1335-45
Review article assesses rates of second
lung
cancer
development,
factors associated with the development of these
cancers, and the
success of their treatment. Concludes that in patients
surviving an initial
lung
cancer, the
cumulative risk for the development of a second primary
lung
cancer makes this
cancer a common
cause of death. The high
risk of developing a second
lung
cancer makes
patients with these
cancers
an important population for study of surveillance strategies
and chemoprevention agents. [9/98]
CANCER
REHABILITATION SERVICES
Pulmonary Rehabilitation: A Team Approach to Improving the Quality
of Life (American College of Chest Physicians)
Describes pulmonary rehabilitation as a combination of exercise
training,
and behavioral and education programs designed to help patients
with
chronic obstructive pulmonary disease (COPD) and other disabling
lung
conditions. Details the components of a pulmonary
rehabilitation program.
Provides information for locating programs in your area.
Exercises for People with
Lung
Cancer: A
Suggested Exercise Program
for Improving
Quality of Life After Diagnosis (cancernetwork.com)
by Margaret McCarthy
v.20, no.10 Primary Care &
Cancer
(November/December 2000)
Describes an exercise program developed by
lung
cancer survivor
Mort
Leibling following his pneumonectomy. Registration required for
free access
to cancernetwork.com.
SURVIVORSHIP/QUALITY OF LIFE ISSUES
Overview
Facing Forward: A Guide for
Cancer Survivors
(NCI/CancerNet)
Presents an overview of survivorship issues and offers
practical ideas to
help patients look to the future. Major sections include:
continuing to
care for your health; taking care of your feelings; managing
insurance
issues; and earning a living.
Exploring the Post-Cancer
Life (intouchlive.com)
Interview with Betty Ferrell, PhD, RN an expert on the
issues faced by
cancer
survivors. Topics covered include long term pain and psychological
distress, among others. [7/99]
What Now?
Adjusting to Life After
Cancer (CancerBACUP)
Addresses the issues related to life after
cancer treatment:
your relationship
with other people, negative feelings, helping yourself, what if
my cancer
comes back, complementary therapies, managing your finances, and
returning to work. [10/97]
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Depression After Treatment
Depression After Successful Treatment for NSCLC (PubMed)
Study results presented in the September 2000 issue of
Cancer
conclude
that depression is not rare after successful treatment of NSCLC
and that
social support may play an important role for NSCLC patients
with
depression after successful treatment. [9/00]
Fatigue After Treatment
Resolving the Frustration of Fatigue (American
Cancer Society)
by Wendy S. Harpham, MD
CA: A
Cancer Journal for Clinicians
v.49 (1999): 178-189
Describes how
cancer-related
fatigue can persist following treatment and
affect family dynamics, job responsibilities, social
interactions, finances,
and intimacy. Advises clinicians to search for treatable
medical conditions,
and to take fatigue and its frustrations seriously.
Reassures patients that
the fatigue they feel is real and that by personal energy
conservation, they
should be able to improve their abilities to function, to
socialize, to interact
with others, and ultimately to adjust to a "new normal"
baseline.
top of page home last modified: 12/21/02
Lung Cancer Online: Finding the Best Care
LUNG
CANCER PROGRAMS
PHYSICIAN LOCATORS
HOSPITAL & HMO LOCATORS
SECOND OPINIONS
General Information,
Second Pathology Opinions
YOUR HEALTH CARE TEAM
ISSUES THAT IMPACT CARE
Communication,
Managing Your Medical Records,
Miscellaneous Issues
AIM DocFinder (State Medical Board Executive Directors)
Nonprofit organization providing a health professional licensing database.
AMA Physician Select (American Medical Association)
AMA database of demographic and professional information on
individual physicians in the United States.Find an Oncologist (American Society of Clinical Oncology)
Database of ASCO member oncologists. Searchable by name,
institution, location, and/or specialty.ACS Fellowship Database (American College of Surgeons)
Database of surgeons who are Fellows of the ACS. Searchable by
name, location and/or specialty.Lung Cancer Programs (Lung Cancer Online)
Directory of NCI-Designated Cancer Centers and other hospitals with lung
cancer programs. Links to specific resources, including physicians, are
included where information is available. (n.b., Directory is not a complete
listing, but a work-in-progress.)How to Find a Doctor or Treatment Facility If You Have Cancer (NCI
Cancer Facts)
Comprehensive information on ways to look for and select a cancer doctor
or cancer treatment facility. [3/00]
Best Hospitals Finder (U.S. News & World Report)
The U.S. News hospital rankings are designed to assist patients in
their search for the highest level of medical care. Database is
searchable by specialty (including the top cancer hospitals)
or by geographic region.
HospitalWeb (Dept. of Neurology, Massachusetts General Hospital)
Searchable database of hospital websites.NCI-Designated Cancer Centers (NCI)
Directory of NCI-designated Cancer Centers, 58 research-oriented
U.S. institutions recognized for scientific excellence and extensive
cancer resources. Listings feature phone contact numbers,
website links and a brief summary of website resources.
National Comprehensive Cancer Network (NCCN)
The National Comprehensive Cancer Network (NCCN) is an alliance
of leading cancer centers. NCCN members provide the highest
quality in cancer care and cancer research. NCCN offers a Patient
and Information Referral service that responds to cancer-related
inquiries and provides referrals to member institutions' programs
and services (1-888-909-6226).
Approved Hospital Cancer Program (Commission on Cancer of
the American College of Surgeons)
The Approvals Program of the Commission on Cancer surveys
hospitals, treatment centers, and other facilities according to
standards set by the Committee on Approvals which recommends
approval awards in specific categories based on these surveys.
A hospital that has received approval has voluntarily committed
itself to providing the best in diagnosis and treatment of cancer.
Approved hospitals can be searched by city, state and category.Association of Community Cancer Centers (ACCC):
Cancer Centers & Member Profiles
Geographic listing of ACCC members with contact information, and
description of cancer program and services as provided by the member
institutions.Lung Cancer Programs (Lung Cancer Online)
Directory of NCI-Designated Cancer Centers and other hospitals with
lung cancer programs. Links to specific lung cancer resources are
included where information is available. (n.b., Directory is not a
complete listing, but a work-in-progress.HMOs and Other Managed Care Plans (Cancer Care)
Discusses the advantages and disadvantages of HMO care.Best HMOs Finder (U.S. News & World Report)
U.S. News guide to choosing a managed-care option.
SECOND OPINIONS
General Information
Second Opinions: Why, When, and Who (Cancerguide)
Offers an excellent overview from Steve Dunn, a kidney cancer survivor,
on the reasons why you may want to get a second opinion and the
considerations involved. [12/01]Second Opinions (Cancer Supportive Programs)
from Cancer Supportive Care, 1998
by Ernest H. Rosenbaum, MD & Isadora R. Rosenbaum
Offers three views on second opinions: "Does Everyone Need a Second
Opinion?" by Ernest H. Rosenbaum, MD; "Second Opinions: A Valuable
Part of Supportive Care," by Malin Dollinger, MD; and "Multidisciplinary
Second Opinion Fundamentals," by Richard & Annette Bloch.Multidisciplinary Second Opinion Institutions (R.A. Bloch Cancer
Foundation)
List of institutions that will, by patient request, provide a multidisciplinary
second opinion within 3 weeks of diagnosis or recurrence. Institutions are
listed by state, and include contact information.Second Pathology Opinions
Armed Forces Institute of Pathology Consultation (Armed Forces Institute
of Pathology)
The Armed Forces Institute of Pathology is a world leader in pathology
diagnosis, education, and research. It offers consultation for second
pathology opinions and describes this service on its website.
FindCancerExperts (findcancerexperts.com)
Privately-funded referral service to nationally recognized pathologists for
second opinions. Website offers educational information on the benefits
of second pathology opinions.
Role of the Oncologist (American Society of Clinical Oncology)
Briefly describes the types of clinical oncologists: medical oncologists,
radiation oncologists and surgical oncologists. Discusses the role of
the oncologist in cancer patient care and offers tips on what to look for
when selecting an oncologist and treatment facility. [undated]
Your Health Care Team: Your Doctor is Only the Beginning (NCI
Cancer Facts)
Describes cancer health care professionals and their roles: social
workers, psychiatrists, psychologists, nurses, home health aides,
rehabilitation specialists, dieticians, clergy, hospice care specialists.
[4/00]Preparing for Your First Oncology Consultation (Oncolink)
Describes the different types of oncologists that patients see for evaluation
and treatment. Offers a checklist of things patients can do to prepare for
an oncology consultation that can make the experience easier. [11/01]Medical Social Workers (CancerLynx)
Describes social workers and the varied social services they provide
patients/clients: e.g., supportive counseling, psychosocial assessment,
long and short term care planning, financial and legal counseling, among
others. [10/00]What is a Respiratory Therapist? (American Association for Respiratory
Care)
Briefly addresses the role of a respiratory therapist and offers tips on
respiratory health concerns. [undated]What You Should Know About Your Doctor's Education (JAMA Patient
Page/Medem)
Outlines the education and training involved in becoming a doctor.
Intended to help patients better understand physician qualifications
so that they can take a more active role in managing their health care.
[9/98]
Communication/Self Advocacy
Information for the Asking: Questions to Help You Get the
Information You Need from Your Healthcare Providers (ALCASE)
Excellent ALCASE guide addresses issues related to patient-physician
communication. Topics include: identifying your personal decision-
making style, finding an advocate, and assessing your information
needs. Provides a lists of questions to ask when selecting a new
physician, when evaluating your physician's bedside manner, prior to
and after testing, about treatment options, and about clinical trials.Fighting Cancer: Physician-Patient Communication (R.A. Bloch
Cancer Foundation)
Offers guidelines for improving communications between patients and
physicians.Communication is the Key to an Excellent Doctor-Patient
Relationship (CancerSource.com)
Stresses the importance of communication in the doctor-patient
relationship. Topics include: information that might be helpful to
your doctor, how much information do you want, asking questions,
and understanding and remembering what the doctor says. [1/01]How to Talk with Your Doctor (JAMA Patient Page)
Discusses the importance of open and honest patient-physician
communication and the issue of confidentiality. Suggests ways to
prepare for an office visit and what to expect from your doctor.The Importance of Becoming Your Own Best Advocate
(CancerSource.com)
Discusses why it is important to become your own best advocate and
offers tips on how to learn self-advocacy. Suggests ways that cancer
survivors can use their cancer experience to help others. [1/01]
Managing Your Medical Records
Patients' Perspectives: Managing Your Medical Records (yana.org)
Shares the patient experience of managing medical records. Details the
basic information you will need for your cancer journey: personal, physician,
legal, and medications. Describes the various kinds of medical records you
are likely to accumulate and provides suggestions on how to manage them.
Aimed at breast cancer patients, but this helpful advice applies to all
cancer patients.Patient Resource Center: Your Health Record (American Health Information
Management Association)
Discusses patient health information, also known as medical records.
Describes what medical records are, who owns them, how to access them,
and what they are used for. Provides a list of documents common to most
health records. Offers guidelines for protecting the confidentiality of your
health record and for keeping your own records.Know What's In Your Medical File (Cooper Institute)
Addresses the issue of confidentiality of medical records. Describes
how medical histories are investigated by insurance companies and
others. Explains how the Medical Information Bureau (MIB) allows
insurance companies to share information about patients. Recommends
that you find out what's in your medical records and provides information
on how to request a copy of your MIB information.
Miscellaneous Issues
"Specialists Achieve Better Outcomes Than Generalists for Lung Cancer"
CHEST, September 1998; 114(3):675-680
Abstract of a CHEST article reporting the results of a 1991-1995 study
that concluded mortality is lower for lung cancer resection when the
surgery is performed by a thoracic surgeon.
"Impact of Hospital Volume on Operative Mortality for Major Cancer
Surgery"
JAMA, November 25, 1998; 280(20):1747-1751
Abstract of a JAMA article concluding that when complex surgical
oncological procedures are provided by surgical teams in hospitals
with specialty expertise, mortality rates are lower.top of page home last modified: 12/21/02
Symptoms, Side Effects & Complications
BLOOD CLOTS & PULMONARY EMBOLISM
CONSTIPATION
DIARRHEA
FATIGUE
FEVER
FLUID COMPLICATIONS
Pericardial Effusion,
Pleural Effusion
HAIR LOSS (ALOPECIA)
HEMATOLOGIC (BLOOD)
COMPLICATIONS
Overview,
Anemia,
Neutropenia
NAUSEA & VOMITING
NEOPLASTIC
& PARANEOPLASTIC SYNDROMES
Pancoast Syndrome,
Superior
Vena Cava (SVC) Syndrome,
Clubbing and
Hypertrophic Osteoarthropathy,
Hypercalcemia,
Hyponatremia and
Syndrome of Inappropriate Secretion of Antidiurectic
Hormone (SIADH)
NEUROTOXICITY
Cognitive
Dysfunction (due to chemotherapy, radiation and/or
cancer),
Peripheral Neuropathy
NUTRITIONAL PROBLEMS & WEIGHT LOSS
ORAL COMPLICATIONS
PAIN
RESPIRATORY COMPLICATIONS
Shortness of Breath (Dyspnea),
Lung Collapse (Pneumothorax
& Atelectasis)
SEXUAL & REPRODUCTIVE SIDE EFFECTS
SKIN PROBLEMS
SPINAL CORD COMPRESSION
VOCAL CHORD PARALYSIS
CHEMOTHERAPY
SIDE EFFECTS - INDIVIDUAL DRUG FACTSHEETS
A B
C D
E
F
G H
I J K L M
N
O P Q R S
T U
V W X Y Z
RADIATION
SIDE EFFECTS
SURGICAL
COMPLICATIONS
BLOOD CLOTS & PULMONARY EMBOLISM
What is Pulmonary
Embolism? (Canadian
Lung Association)
Discusses pulmonary embolism, its causes, symptoms,
diagnosis,
and treatment. [5/02]
Coumadin Consumer
Information (coumadin.com)
Offers manufacturer's information on Coumadin, an
anticoagulant.
Addresses possible side effects and complications. Suggests
steps
to take to ensure successful treatment with Coumadin.
V/Q
(Ventilation/Perfusion) Scan Information (Lung
Cancer Online)
top of page
home
"Assessing
and Managing Narcotic-Induced Constipation in Adults
with
Cancer"
by Susan C. McMillan, PhD, RN, FAAN
v.6, no.2
Cancer Control:
Journal of the Moffitt
Cancer Center
(March/April 1999): Special Report
Addresses the problem of narcotic-induced constipation, a
common
condition in patients with
cancer. Aimed at
the health care
professional, this article defines constipation, its
etiologies and
discusses methods for assessing and managing constipation.
[4/99]
Constipation, Impaction and Bowel Obstruction (PDQ) (NCI's cancer.gov)
Describes the differences between constipation, impaction, and bowel
obstruction, and discusses their causes and treatment. Patient and
physician versions available. [6/02]
Managing Symptoms: Diarrhea (OncoLink)
Offers suggestions for managing diarrhea, a common side effect of
chemotherapy and radiation therapy. Describes diarrhea, its causes
and its treatments. Advises on when to contact your doctor or nurse.
[2/02]
FATIGUE
Fatigue (PDQ) (NCI's cancer.gov)
Addresses fatigue, its causes, and factors related to fatigue. Discusses
its assessment and treatment. Post treatment considerations are also
addressed. Patient and physician versions available. [6/02]CancerFatigue.org (Oncology Nursing Society)
Comprehensive website aimed at patients offers quick tips for coping
with fatigue, information about cancer and treatment related fatigue,
frequently asked questions, a fatigue scale and a searchable
database of fatigue awareness events. Of interest is the Lung
Cancer Information Center which specifically addresses fatigue as
it relates to lung cancer.Resolving the Frustration of Fatigue (American Cancer Society)
by Wendy S. Harpham, MD
CA: A Cancer Journal for Clinicians
v.49 (1999): 178-189
Describes how cancer-related fatigue can persist following treatment and
affect family dynamics, job responsibilities, social interactions, finances,
and intimacy. Advises clinicians to search for treatable medical conditions,
and to take fatigue and its frustrations seriously. Reassures patients that
the fatigue they feel is real and that by personal energy conservation, they
should be able to improve their abilities to function, to socialize, to interact
with others, and ultimately to adjust to a "new normal" baseline. [5/99]Sleeping with the Enemy: Treatment of Fatigue in Individuals with
Cancer (The Oncologist)
by Robert H. Wharton, MD
v.7, no2 The Oncologist (April 2002): 96-99
Excellent, comprehensive article by lung cancer patient and physician,
Rob Wharton, addressing the impact and treatment of cancer-related
fatigue. Examines the medical conditions that cause fatigue in cancer
patients, and elucidates the problems it creates in the lives of patients
and their families. Discusses the potential benefits of using psycho-
stimulant medication to treat fatigue. [4/02]Cancer-Fatigue (Association of Cancer Online Resources)
Online discussion group for cancer patients dealing with fatigue.Exercise in Cancer-Related Fatigue Management (Medscape)
Reports research studies presented at the 2001 Oncology Nursing
Society meeting on the use of exercise for managing cancer-related
fatigue. One study found that patients suffering from cancer
treatment-related fatigue can benefit from a prescribed exercise
regimen. The study exercise program helped patients to overcome,
manage, or reduce fatigue after, or even during, chemotherapy and
radiation. [5/01]Cancer Fatigue: Frequently Asked Questions (Virtual Hospital)
Answers to frequently asked questions about fatigue. Aimed at
patients. [5/00]
Fever, Sweats and Hot Flashes (PDQ) (NCI's cancer.gov)
Describes fever, its causes and its treatment. Discusses infection-
associated fever, tumor-associated fever and drug-associated fever,
among other topics. Patient and physician versions available. [6/02]
Pericardial Effusion
How is Palliation Provided in the Case of Pericardial Effusion?
(smokinglungs.com)
Describes pericardial effusion and notes treatment options. Written by
thoracic surgeon, Fred Grannis, MD, Head, Thoracic Surgery, City of
Hope, Duarte, CA.
Pleural Effusion
Pleural Effusion (CancerBACUP)
Answers questions about pleural effusions: what is a pleural effusion,
what causes a pleural effusion, signs and symptoms, drainage of a
pleural effusion, pleurodesis and possible side effects of draining a
pleural effusion. [7/01]
Malignant Pleural Effusion (smokinglungs.com)
Describes malignant pleural effusion and discusses its diagnosis
and treatment. Written by thoracic surgeon, Fred Grannis, MD,
Head, Thoracic Surgery, City of Hope National Medical Center,
Duarte, CA. Aimed at physicians. [undated]
Chemical Pleurodesis for Pleural Effusion (Cancer Supportive Care)
Detailed description, written by Carolyn Clary-Macy, RN, of pleural effusion
and the procedures used to treat pleural effusions secondary to lung cancer.
Aimed at patients. [1/02]Hospitalization Not Needed for Management of Malignant Pleural
Effusion (Doctor's Guide)
Reports on a study presented at the 9th World Conference on Lung
Cancer that examined the use of an in-dwelling catheter to palliate
lung cancer patients with malignant pleural effusions. Study results
found that the in-dwelling catheter eliminates the prolonged hospital
stay associated with chest tube insertion and chemical pleurodesis, and
and offers a less invasive treatment approach than standard methods.
[9/00]Thoracentesis (WebMD)
Describes thoracentesis, the process of extracting fluid from the pleural
space. Discusses the purpose of thoracentesis, how it is performed,
factors affecting the results, interpretation of results and its advantages
disadvantages.Chest Tube Thoracostomy (Critical Care Assembly of the American
Society)
Describes chest tube thoracostomy, a procedure performed to drain
fluid, blood or air from the space around the lungs (pleural space).
Lists common reasons for its use, including pleural effusion and
pneumothorax. Covers risks and benefits of the procedure.Malignant Pleural Effusions (Medscape)
by Steven A. Sahn, MD
22(6) Semin Respir Crit Care Med (2001): 607-615
Comprehensive discussion of malignant pleural effusions, including
causes and treatment options. Aimed at physicians. Registration
required for free access to Medscape. [2001]
Coping with Hair Loss (CancerBACUP)
Comprehensive guide to hair loss from chemotherapy or radiation
therapy. Topics include: can hair loss be prevented, your feelings,
practical tips, choosing a wig or hair piece, tips for wearing a wig,
alternative headwear, and changing the focus. [2/01]
Chemotherapy and Hair Loss (CancerEducation.com)
MedClip presentation by Ann Collins-Hattery that addresses hair loss
(alopecia) from chemotherapy. Topics covered include: why many
chemotherapy drugs cause hair loss, preparing for hair loss, finding a
wig, protecting the scalp after hair loss, and caring for hair as it regrows.
Registration required for free access to CancerEducation.com. [5/00]Look Good...Feel Better (lookgoodfeelbetter.org)
Describes Look Good...Feel Better, a free program designed to teach
women cancer patients beauty techniques to help cope with the
appearance-related side effects of cancer treatment. Discusses the
various services offered and provides contact information.
NAUSEA & VOMITING
Nausea and Vomiting (NCI's cancer.gov)
Describes the nausea and vomiting experienced by cancer patients,
including its causes and treatment. Patient and physician versions
available. [4/02]Nausea and Vomiting Treatment Guidelines (NCCN)
Excellent, comprehensive guide to prevention and treatment of
cancer-related nausea and vomiting. [1/01]Practical Tips for People with Cancer Who Are Experiencing Nausea
or Have Lost Their Appetite (Cancer Care)
Offers suggestions, other than medication, that patients can use in order
to relieve nausea and to increase appetite.Preventing and Treating Nausea and Vomiting Caused by Cancer
Treatment - A Patient's Guide (ASCO)
Provides a basic overview of the prevention and treatment of nausea and
vomiting caused by chemotherapy and radiation therapy. [11/00]
Frequently Used Anti-Nausea Medications for Adults Undergoing
Chemotherapy or Radiation (University of Michigan Comprehensive
Cancer Center)
A listing of medications used to minimize or prevent nausea during
chemotherapy or radiation. Includes a description of the medicines,
how they might be used, and some common side effects.
NUTRITIONAL PROBLEMS & WEIGHT LOSS
Nutrition (PDQ) (NCI's cancer.gov)
Describes the effects of cancer and its therapy on nutrition, as well
methods for maintaining nutrition in cancer patients. Patient and
physician versions available. [1/02]
Nutritional Problems and the Cancer Patient: Psychosocial
Considerations (Medscape)
Discusses nutritional problems common among cancer patients and the
potential for distress related to eating problems among patients and
family members. Recommends an interdisciplinary approach to
nutritional care that includes a psychological assessment as well as
support and education for patient and family. Aimed at health care
professionals. [2002]Eating Hints for Cancer Patients (NIH/NCI)
Sections include: Eating Well During Cancer Treatment, Managing
Eating Problems During Treatment, Special Diets for Special Needs,
Glossary and Recipes for Better Nutrition During Cancer Treatment.Nutrition (Cancer Supportive Care)
from Cancer Supportive Care by Ernest H. Rosenbaum, MD &
Isadora R. Rosenbaum, MA
Addresses issues of nutrition and cancer including loss of appetite,
diarrhea, when foods taste or smell funny, chewing or swallowing
difficulties, and weight gain, among others.Megestrol Acetate (Megace) (CancerBACUP)
Factsheet on megestrol acetate (Megace), a hormonal therapy sometimes
used as an appetite stimulant. Includes discussion of how Megace works
and possible side effects. [9/99]
Influence of Nutritional Status on Complications After Operations
for Lung Cancer (Annals of Thoracic Surgery)
Abstract of a study examining the role of nutritional status in patients
undergoing an operation for lung cancer. Results indicate that impaired
nutrition is an important predictor of death and the need for reventilation
after an operation for lung cancer. Suggests that the selection of patients
for lung resection might be improved by measuring simple nutritional
indices. [3/00]Parenteral Nutrition Techniques Improve Cancer Patients' Status
(cancernetwork.com)
v.9, no.12 Oncology News (December 2000)
Reports on research presented at the 5th International Congress of the
Society for Nutritional Oncology Adjuvant Therapy that addressed the
nutritional needs of cachectic cancer patients. Discusses attitudes
efforts to improve patients' nutritional status via enteral and parenteral
feeding to avoid the "needless near starvation of cancer patients."
Registration required for free access to cancernetwork.com. [12/00]Dietary Antioxidants During Cancer Chemotherapy: Impact on
Chemotherapeutic Effectiveness and Development of Side Effects
(Medscape)
by Kenneth A. Conklin
v.37, no. 1 Nutrition and Cancer (2000): 1-18
Reviews several dietary supplements (vitamin E, Coenzyme Q10, GSH,
vitamin C and others) with regard to their effects on response to
chemotherapy and/or reduction of chemotherapy-induced side effects.
[2000]
ORAL COMPLICATIONS
Oral Complications of Chemotherapy and Head/Neck Radiation (PDQ)
(NCI's cancer.gov)
Describes oral complications caused by chemotherapy and radiation
therapy. Discusses specific oral complications and their treatments.
Addresses pretreatment prevention. Patient and physician versions
available. [1/02]Oral Health, Cancer Care, and You (National Institute of Dental
and Craniofacial Research)
Website promoting awareness of oral health and cancer sponsored
by the National Institute of Dental and Craniofacial Research and
several other nonprofits, along with the National Cancer Institute
(NCI). Includes two patient guides that address possible oral side
effects from cancer treatments: Chemotherapy and Your Mouth,
Radiation Treatment and Your Mouth.
Cancer-pain.org
(Developed by the Association for
Cancer
Online Resources)
Patient-oriented site addresses issues related to
cancer pain:
understanding
cancer pain,
assessing cancer
pain, cancer
pain treatments. Includes a caregiver's
cancer pain guide
and
links to additional pain resources.
Managing Cancer
Pain (American Pain Foundation)
Provides a comprehensive overview of
cancer pain: why
pain
should be treated; what causes
cancer pain; drug
treatments;
treatment side effects; how pain medicine is taken; nondrug
treatments; benefits and risks of treatments; counseling and
peer support; and how to make a pain control plan. Aimed at
patients.
Cancer Pain Treatment Guidelines for Patients (NCCN)
Excellent patient guide to treating cancer pain. Offers comprehensive
information and includes pain assessment tools. [3/00]Medscape Resource Center: Cancer Pain Management (Medscape)
Aimed at physicians, this website offers the latest medical news
and information on cancer-related pain, including conference summaries,
articles, and other resources. Registration required for free access to
Medscape.Implantable Device May Offer Better Pain Management (cancer.gov)
Reports on a study in the October 1, 2002 issue of the Journal of
Clinical Oncology that found patients with advanced cancer who used
an implantable drug-delivery device to control their pain had better
pain relief, fewer toxic side effects, and better survival than patients who
received intensive medical pain management. [10/02]
Electrical Nerve Stimulation May Help Reduce Chronic
Pain in Cancer Patients (Doctor's Guide)
Summarizes the report by University of Texas-Southwestern
Medical Center at Dallas in the December issue of The Clinical
Journal of Pain detailing findings that percutaneous electrical
nerve stimulation (PENS), produced significant acute pain relief
in patients, including those with pain from bony metastases. [6/99]
Get Relief from Cancer Pain (NIH/NCI)
Patient education brochure addresses misconceptions about cancer
pain. To get relief, patients are advised to communicate with their
health care professionals and given tips on how to do so.
It Doesn't Have to Hurt! Tips for Managing Cancer Pain
(Cancer Care)
Discusses cancer-related pain, treatment-related pain, barriers to
treatment for pain, steps to take to get early and effective pain
treatment.
Pain (PDQ) (NCI's cancer.gov)
Addresses pain topics including: pain assessment, pain management
with drugs, physical and psychosocial interventions, anticancer
interventions, invasive interventions and pain in elderly patients.
Patient and physician versions available. [5/02]
Questions and Answers About Pain Control: A Guide for
People With Cancer and Their Families (ACS/NCI)
Online booklet covers: Pain-What is it?, Relief of Pain, How to Relieve
Pain with Medicines, Nonprescription Pain Relievers, Prescription
Pain Relievers; How to Relieve Pain Without Medication, Other
Methods of Pain Relief, Sources of Additional Information and a
Glossary.
Understanding Cancer Pain (NCI)
Addresses patient concerns about cancer pain. Presents four
main assertions: most pain can be controlled; communication is
important; pain can be measured; you can work together with your
health care provider to control pain.Cancer-Pain (Association of Online Cancer Resources)
Online discussion group for cancer patients dealing with pain issues.Side Effects of Pain Medication
(MD Anderson Cancer Center)
Discusses the benefits and side effects of medications used to relieve
cancer-related pain. Includes a link to more in-depth information on
opioid side effects (nausea, constipation, central nervous system effects)
and how to manage them.
[10/01]
Shortness of Breath (Dyspnea)
ACP Home Care Guide for Advanced Cancer: Shortness of Breath
(American College of Physicians)
Explains shortness of breath (dyspnea), when to get professional help,
and what caregivers can do to help patients be as comfortable as
possible. [1997]"Dyspnea is a Common Symptom of Lung, Breast Cancer"
(cancernetwork.com)
v.7, no.9 Oncology News International (September 1998)
Discusses the possible causes, stepwise assessment and treatment
of dyspnea. Registration required for free access.[9/98]"Behavioral Interventions for Lung Cancer-related Breathlessness"
(PubMed)
v.8, no.6 Cancer Pract (November-December 2000): 268-273
Abstract of a report on behavioral interventions to assist in the management
of breathlessness in lung cancer patients. Provides literature citations to
support the value of exercise in assisting patients to breathe more effectively
and manage related anxiety. Includes detailed instructions on breathing
exercises that may help patients better manage their feelings of
breathlessness and thus, also enhance their quality of life. [11/00]
Lung Collapse (Pneumothorax & Atelectasis)
Pneumothorax (InteliHealth)
Describes pneumothorax, its causes and symptoms, how it is
diagnosed, and possible treatments. Registration required for free
access to InteliHealth.[1/00]Lung Collapse (InteliHealth)
Briefly describes the two forms of lung collapse, pneumothorax and
atelectasis. Registration required for free access to InteliHealth. [8/00]
SEXUAL & REPRODUCTIVE SIDE EFFECTS
Sexuality and Reproductive Issues (NCI's cancer.gov)
Addresses the impact cancer and cancer treatment can have on all
aspects of an individual's sexuality, including sexual desire and
physical and psychological sexual dysfunction. Patient and physician
versions available. [11/01]Sexuality and Cancer (CancerBACUP)
Comprehensive guide to issues relating to sexuality and cancer,
including how cancer and its treatment affect you sexually. Offers
some solutions to sexual problems caused by cancer and answers
common questions about sexuality and cancer. [04/01]
How to Deal with Skin Problems of Advanced Cancer (Mediconsult)
Describes how advanced cancer can affect the skin. Notes that for
lung cancer patients, nodules usually appear in the chest area. Offers
treatment suggestions.Radiation Recall (CancerSourceRN.com)
Describes radiation recall, a side effect of radiation therapy that may
occur when chemotherapy is given after the radiation. Radiation recall
usually takes the form of patches of redness and shedding or peeling
of skin that was irradiated. Offers treatment suggestions. [12/99]
OncoLink FAQ: Spinal Cord Compression (OncoLink)
Describes the major causes and incidence of spinal cord compression.
Discusses treatment options.