ALS SOCIETIES, SUPPORT GROUPS & PUBLICATIONS: International Alliance of ALS/MND Associations P.O. Box 246 Northampton NN1-2PR United Kingdom Tel: 44-1604-250505 Fax: 44-1604-638289  or  44-1604-624726 E-mail: alliance@alsmndalliance.org http://www.alsmndalliance.org ALS Association – USA  (37 Chapters Total): USA – National Office http://www.alsa.org ALS Association – General Chapter Information http://alsa.org/serving/chapter.cfm NORTHEAST REGION ALS Association – Connecticut Chapter http://www.alsact.org/ ALS Association – Nation’s Capital Area Chapter (Serving DC, Maryland & Virginia) http://www.alsa-ncac.org/   OR http://www.alsinfo.org/ ALS Association – Northern New England Chapter (Serving Vermont, New Hampshire & Maine) http://www.alsanne.org/ ALS Association – Massachusetts Chapter http://www.als-ma.org/ ALS Association – New Jersey ALS Center http://www2.umdnj.edu/nmalsweb/ ALS Association – Greater New York Chapter (Serving Northern New Jersey & Greater New York City) http://www.als-ny.org/ ALS Association – Upstate New York Chapter http://www.alsaupstateny.org ALS Association – Greater Philadelphia Chapter (Serving Delaware, Southern New Jersey & Philadelphia) http://www.als-phila.org/   OR http://www.alsphiladelphia.org/ ALS Association – Western Pennsylvania Chapter (Serving Western Pennsylvania & West Virginia) http://www.alswp.org/ ALS Association – Rhode Island Chapter http://www.alsari.org/ SOUTHEAST REGION ALS Association – Florida Chapter http://www.als-florida.org/ ALS Association – Georgia Chapter http://www.alsaga.org ALS Association – Kentucky Chapter http://www.alsakentucky.org/ ALS Association – North & South Carolina Chapter (The Jim “Catfish” Hunter Chapter) http://www.catfishchapter.org/ MIDWEST REGION ALS Association – Greater St. Louis Chapter (Serving Eastern Missouri, Central & Southern Illinois) http://alsa.org/serving/stlouis_chapter.cfm   OR http://www.alsa-stl.org/ ALS Association – Indiana Chapter http://www.alsaindiana.org/ ALS Association – Midwest Chapter (“Keith Worthington Chapter”)           (Serving Kansas, Nebraska, and Western & Central Missouri) http://www.alsa-midwest.org/ ALS Association – Michigan Chapters           Western Michigan Chapter – http://www.alsa-westmichigan.org/           Eastern Michigan Chapter (“ALS of Michigan, Inc.”) – http://www.alsofmi.org/ ALS Association – Minnesota Chapter http://www.alsmn.com/ ALS Association – Ohio Chapters           Western Ohio Chapter – http://www.alsohio.org/           Northeast Ohio Chapter – http://www.alsaohio.org/ ALS Association – Southeast Wisconsin Chapter http://www.se-wis-als.org/ SOUTH CENTRAL REGION ALS Association – Arizona Chapter http://www.alsaz.org/ ALS Association – New Mexico Chapter http://www.alsa-nm.org/ ALS Association – The Northeast Oklahoma ALS Support Group http://www.alsokla.com/ ALS Association – Texas Chapters           North Texas Chapter – http://www.alsanorthtexas.org/           South Texas Chapter – http://www.alsa-south-tx.org/           Greater Houston Chapter – http://www.alsa-houston.org/ WEST REGION ALS Association – California Chapters           San Francisco Bay Area Chapter – http://www.alsabayarea.org           Greater Los Angeles Chapter – http://www.alsala.org/           Greater Sacramento Chapter – http://www.alssac.org/           Orange County Chapter – http://www.alsaoc.org/           Greater San Diego Chapter – http://alsasd.org/ ALS Association – Rocky Mountain Chapter (Colorado) www.alsaco.org ALS Association – Nevada Chapter http://www.alsnevada.com/ ALS Association – The Oregon & Southwest Washington Chapter http://www.alsa-or.org/ ALS Association – Evergreen Chapter – (Serving Western Washington State) http://www.alsa-ec.org/ ALS Recovery Foundation Kevin Packman = Director and founder of the Foundation 555 NE 34th Street, Suite 1103 Miami, FL 33137 E-mail: BeatALS@aol.com Phone: 1-305-573-0936 The Lou Gehrig's Disease Association (LGDA) of Southwest Florida, Inc. http://www.lgda-als.org/ NW Wisconsin ALS Support Group – Chippewa Falls, Wisconsin Group leader: Sally Krohn E-mail: skrohn@discover-net.net Phone: 1-715-723-1694 http://cvbc.net/als/ http://www.palshome.net/ Down East ALS Support Group – Greenville, North Carolina http://www.downeastals.org/ ALS of Utica Committed to battling ALS in Utica, New York and the Upstate New York area. http://www.alsutica.org/ Voice For Joanie (VFJ) A group of volunteers in Western Connecticut providing computer technology and assistance so that people with ALS have a “Voice” http://www.voiceforjoanie.org/ Extra Hands for ALS – St. Louis, Missouri http://www.extrahands.org/ The ALS/Patient Profile Research Project Evelyn McDonald P.O. Box 15981 Seattle, WA 98115 USA Tel: 1-206-527-0437 Fax: 1-206-528-1120 The ALS Patient Care Database – ALS C.A.R.E. Project The ALS C.A.R.E. (Clinical Assessment, Research and Education) Project invites health Professionals to participate in creating a national database on ALS to collect clinical information on disease progression, and diagnostic and treatment approaches and their outcomes. The ALS C.A.R.E. Project is sponsored by an unrestricted grant from Aventis Pharma and by a grant from the ALS Association ALS C.A.R.E. is also endorsed by the ALS Interest Group of the World Federation of Neurology. http://www.umassmed.edu/outcomes/als/ OR http://www.alsinfo.com/care_prog.htm The European ALS Health Profile Study – University of Oxford A Similar Study to the “The ALS Patient Care Database” - European version of Study http://www.hsru.ox.ac.uk/rep13.htm ALS-Dreamday in Netherlands, Germany and Belgium http://www.als-info.de/ Stichting ALS Centrum Nederland http://www.als-centrum.nl/ Muscular Dystrophy Association (MDA) – USA National Headquarters E-mail: mda@mdausa.org http://www.mdausa.org European Alliance of Neuromuscular Disorders Associations (EAMDA) http://www.eamda.org/ Muscular Dystrophy Campaign of UK http://www.muscular-dystrophy.org/ Muscular Dystrophy Association of Australia http://www.mdasa.org.au/ Muscular Dystrophy Association of Canada http://www.mdac.ca/ International Rare Disease Support Network (IRDSN) http://www.raredisorders.com/ www.networkchain.org A network Chain using mainly the Internet, between people or group of isolated people directly or indirectly affected by the same rare disease. http://www.lachainette.com/US/ Conditions and Diseases Web Site Links http://www.disease-resources.com/index.html “Taylor & Francis” Journals – ALS Quarterly Journal           Homepage: http://www.tandf.co.uk/journals/           ALS Quarterly Journal: http://www.tandf.co.uk/journals/titles/14660822.html Demos Medical Publishing Dedicated to publishing quality books for both health care professionals and individuals, caregivers and family members affected by a range of Neurologic and related disorders. http://www.demosmedpub.com/           Publishers of the book entitled:           “Amyotrophic Lateral Sclerosis: A Guide For Patients and Families”- 2nd Edition           Additional information about this book can be found at:           http://www.demosmedpub.com/book111.html “ALS, MS and Our Toxic Environment” – By Mary E. Joyce To order her book, contact Mary directly at:  Marye5963@aol.com ALS Related Societies: The Primary Lateral Sclerosis (PLS) Web Site – by Frank Reyerse http://www.oocities.org/freyerse/index.html PLS Awareness Website – by Jennifer Thomson http://www.oocities.org/mdmfoo/pls.html “Synapse” – A Newsletter for Primary Lateral Sclerosis (PLS) Patients & Caregivers “Synapse” is free - Those wishing to subscribe can E-mail Mark Weber at: markw732@yahoo.com Also – Review Mark’s Investigational Research on Dr. Helmut F. Prahl, Ph.D. At: http://www.oocities.org./plsdrug/letter.htm “Primary Lateral Sclerosis” (PLS) by Carmel Armon, M.D. An excellent Article About PLS. http://www.emedicine.com/NEURO/topic324.htm PLS Newsletter – Frank Levy Ph.D. EDITOR – Frank Levy, Ph.D. To Subscribe to the “PLS Newsletter”, Contact Frank Levy At: 101 Pinta Court Los Gatos, CA 95030 Telephone: 1-408-356-8227 E-mail:  73112.611@compuserve.com Kennedy's Disease Association P.O. Box 2050 Simi Valley, CA 93062-2050 Phone:  1-805-577-9591 E-mail:  tswaite@pacbell.net http://www.kennedysdisease.org/index.html Kennedy's Disease Home Page – By Patrick Griffin http://www.oocities.org/HotSprings/Villa/1989/                                                                      Back To Home Page