LINKS PAGE
PLEASE NOTE, A New Browser Window Will Open On Each Link
MPS Society of Brazil (Brasil)
Portuguese and English
SBMPS - Sociedade Brasileira de Mucopolissacaridoses.
"Learn from yesterday, live for today, hope for tomorrow." (Albert Einstein)
MPS Society Canada. (Lots of good Links)
Check out "Unsere Kinder" under "Selbsthilfe" for photos.
MPS Forum, Forum members, Family albums, Links and more.
"Bringing Families Together One Step At A Time"
Misc.List (Links) of Syndromes/Diseases
Elizabeth was a beautiful little girl who had Hurler Syndrome.
Elizabeth died on 24th August 2000. She was 4 years and 8 months old.
Mucopolysaccharidosis, Migraine, & Drug Database Links
The New Zealand Lysosomal Storage Diseases Support Group
Information on the Forman family from Lower Hutt City, New Zealand.
Their twins Timothy and Hollie are affected by Alpha Mannosidosis, another rare lysosomal storage disease.
This page is also the site of Lysosomal Diseases NZ, the umbrella support group for all the MPS and related conditions
The International Society for Mannosidosis & Related Diseases, Inc.
A nonprofit organization formed to support families, educate the public and encourage research
for Alpha Mannosidosis and other disorders of Lysosomal Oligosaccharide storage.
Jenna Richbourg is a beautiful little girl who has Hurler syndrome
Please E-mail me if you wish any links to be added.
e-mail address, himate2002nospam@hotmail.nospamcom Remove both instances of nospam.