Welcome to my Guestbook!  Please sign my guestbook.  I had hoped to show Coby this guestbook one day.  I will now show the book to his brother and show h m what an impact his little brother made on people's lives in his short 6 1/2 months.

shannon parker - 06/26/00 23:34:28
My Email:
thewinkers@juno.com
State:
CA
How did you find my web site?:
loss of an infant board
Do you have a HLHS child?:
I did

Comments:
I am saddend almost every week by this board because someone new is there with a child that had died of the same "ver rare" defect. I never heard of HLHS before Jan 6th 1998 when my daughter was diagnosed by ultrasound, now I have met so many that have suffered the lossof their beautiful children.  Your son was beautiful and am so sorry for your loss, I know t e pain is deep in your hearts.  E mail me if you would like to talk, my daughter only lived 5 days, but I am thankful for those few hours, she has had a profund effect on the way I live my life today.

Lara and Ryan - 06/26/00 23:25:57
My Email:
lmwood@teacher.com
State:
MD
How did you find my web site?:
heart chat boards
Do you have a HLHS child?:
Yes
If yes, what procedures have you had?:
< ont face="Helvetica" size="-1"> 1st 2 surgeries

Comments:
I am so glad you updated your site and were strong enough to share Coby's story. It is very difficult for us as parents to understand what you are going through except that we always have that feeling that it could happen to us too. God Bless Coby, he is  n a much better place now.

Melissa C. - 06/23/00 17:05:32
My URL:
http://members.tripod.com/benhlhs
My Email:
stimpy02@juno.com
State:
MN
How did you find my web site?:
friend
Do you h ve a HLHS child?:
Yes, now an angel
If yes, what procedures have you had?:
Norwood, Glenn and COA repair

Comments:
I think of you often.  Our stage in the path of grief is so similar.  It's been 8 weeks now since Benjamin died, and I feel the pain and emptiness immensely.  Like you, seeing another child my son's age is so incredibly difficult.  I haven't been to a gro ery store since Ben died, because he's suppose to be sitting in the cart I push.  With this our s cond loss of a child, I do know you and I will come to a point down the road when we can think of our precious boys and smile, rather than cry.  The tears wi l lessen, as will the pain, but the love and joy we had with our boys will never go away.&nb p; Take care.

Shelly - 06/14/00 21:04:43
My URL:
http://members.tripod.com/~Kayang_99/Kayindex.html
How did you find my web site?:
Signed Guestbook

Comments:
you have mand a wonderful memorial in the honor of your son...I think it's neat that his middle name is the same as my son name.. Thinking of you and your family....

Theresa - 06/07/00 00:51:47
My URL:
http://www.oocities.org/graciezac/Gracespage.html
My Email:
graciezac@ zemail.com.au
State:
Tas, australia
How did you find my web site?:
from my guestbook
Do you have a HLHS child?:
no

Comments:
Thank you so much for visiting Grace.  Your site is just beautiful and what a precious little boy Coby is.  I am so sorry for your loss and share your pain.  This grief journey is so very difficult and I wish you peace and understanding as you go through  ours.

Mary Lou Blackmon - 06/02/00 19:11:11
My Email:
mblackmon@mungo.com
State:
SC
How did you find my web site?:
Kay
Do you have a HLHS child?:
No

Comments:
God Bless your family..........

Traci - 05/30/00 04:34:25
State:
Canada b>
How did you find my web site?:
parents place
Do you have a HLHS child?:
no< td>

Comments:
I am so very sorry for your loss.  Colby was a beautiful baby boy, keep the memories alive - he will never fade for h lives in you all.  I don't know what else to say, this site is a wonderful tribute to your sons battle.  God bless you all and you are i  my prayers.

Lena - 05/17/00 22:54:26
My URL:
http://www.homestead.com/orrfamily/main.html
My Email:
lenao@localaccess.com
State:
Wa
How did you find my web site?:
expecting board
Do you have a HLHS child?:
no

Comments:
Thank you for sharing Coby's story. He was a beautiful child. I am so very sorry for your loss.

Anita - 05/17/00 03:51:21
My Email:
meganbailey@ivillage.com
State:
KY
How did you find my web site?:
Oct/99 Playgroup
Do you have a HLHS child?:
no

Comments:
I am so sorry for your loss. God Bless little Angel Coby. Anita&Jacob

Marie G. - 05/17/00 03:22:19
My Email:
Blukobra@aol.com
State:
Utah
How did you find my web site?:
Through a link on oct 99 board
Do you have a HLHS child?:
no

Comments:
I am an Aug 99 mommy and I want to say that Cody was a beautiful child.  I am sorry for your loss.  You and your family will be in my prayers that you may find comfort and peace at this difficult time.

elizabeth - 05/17/00 01:22:13
My Email:
lizntrev@ivillage.com
State:
california
How did you find my web site?:
parentsplace
Do you have a HLHS child?:
no

Comments:
I am so sorry for your loss.  i wish i knew what to say to take your pain away--coby was a sweet little boy & i f el touched to even know him in this tiny little way.  may God give you peace & strength during this time.  big hugs from me to your family.

tdejarnette - 05/17/00 01:03:09
How did you find my web site?: october 1999 playgroup

Comments:
I'm very sorry for your loss

Kim Daniels - 05/16/00 18:32:59
My Email:
cpd13@bellsouth.net
State: GA (from SC)
How did you find my web site?: Parent Soup link to PP
Do you have a HLHS child?: No

Comments:
What can I say that will bring you comfort? I only hope you can find some measure of peace during this terrible time.  Coby surely was a precious gift from God. e is in pain no longer. Your website for Coby is amazingly beautiful. I know that I am a bett r person and better mother just for seeing it.

rickdillon(aug99) - 05/16/00 14:54:14
State: Texas

Comments:
I am so sorry for your loss. I offer you HUGS and all our thoughts & Prayers. May God hold Coby tight till you can hold him again. I also pray that God gives your family extra strength to help Coby's adoring older brother thru this all. I wish Peace for y ur family in knowing that Coby is happy & healthy and watching over you now.

Rachel and ^i^Kayleigh - 05/16/00 05:47:55
My URL:
http://www.mylilkiwi.homestead.com< a>
My Email:
swtpea440@hotmail.com
State: MN
How did you find m web site?: Parent Place
Do you have a HLHS child?: no

Comments:
I am so sorry for your loss.  Though I do not totally understand quite what you are going through ,I somewhat do.  I lost my sweet angel Kayleigh on April 2 , 2000 at the precious age of 21 months.  She was invovled in a car accident.  I just wanted to le  you know that if you ever need a shoulder to cry on who has also lost a sweet angel, I will be here for you.

velda - 05/16/00 02:23:01
State: canada
How did you find my web site?: parentsplace

Comments:
dec99mom...so sorry for your loss...words cannot explain it....may God comfort you and your angel baby smile down on you..>velda

Sharon - 05/16/00 01:43:01
My Email:
smack@landam.com
State: South Carolina
How did you find my web site?: Aug 1999 Playgroup
Do you have a HLHS child?: No

Comments:
So sorry to hear of your loss.  My God hold your family extra tight through this extremely tough time.

Amy - 05/15/00 22:45:25
My Email:
arbarnes@hrtc.net
State: Indiana
How did you find my web site?: Parents Place (Oct. 99 Playgroup)

Comments:
Your son is so precious.  My heart just aches for all of you.  I can tell that Coby was so very loved and what a wonderful family he was given during his ti e here.  Coby is no longer in pain now and God will hold him tight for you.  My prayers and though s will be with all of you! (BIG) Hugs to All of you and Coby's big brother! Amy and Brandon Oct. 99 playgroup (anxiousteacher)

Deanna - 05/15/00 22:18:49
My Email:
daffodils4u@ivillage.com
How did you find my web site?: on the Pg. after Loss board at ParentsPlace
Do you have a HLHS child?: no, sadly no children (member of TTC AM board)

Comments:
I am so very sorry for the loss of your sweet little baby Coby Tyler. I looked through your wonderfully done website and cried while looking at the pictures.  I ust could not bear to read the stories, and I'm sorry for that. He truly was adorable. I hope and pray that God gives you and your family the strength you all need so much.  In Christian Love, Deanna

Mary (pearldrop) - 05/15/00 21:04:44
State: NC
How did you find my web site?: Dec. 99 board, parents place

Comments:
May you find comfort and peace at this time in knowing that you were able to spend time with your personal angel...God Bless. Mary

Carie, AJ, Nathaniel - 05/15/00 20:05:19
My Email:
rubellamylove@yahoo.com< >
State: Indiana
How did you find my web site?: ParentsPlace.com Oct 99 Playgroup
Do you have a HLHS child?: no

Comments:
Our prayers are with you and Baby Coby.   May God help you through this difficult time.   Much love and prayers for healing, Carie, AJ and Nathani l (nanay2lalaki at the oct 99 playgroup).

- 05/15/00 20:02:01

Comments:

Marsha Hartline - 05/15/00 19:16:51
My Email:
marshahartline@hotmail.com b>
State: Alabama
How did you find my web site?: parentsplace
Do you have a HLHS child?: no

Comments:
My sincere sympathies and prayers are with you during your loss.  I'm sorry I can't say more but the words just won't come.  In Christian love, prayers for ou and your family are offered.

Cassie, Kristen & Karrigan - 05/15/00 19:16:10
My URL:
http://pages. village.com/pp/leigh922/index.html
My Email:
leigh922@aol.com
State Ohio
How did you find my web site?: October Mums
Do you have a HLHS child?: no

Comments:
God bless you all. I've been praying for you and sweet Coby. I am so incredibly sorry for your loss. May God be with you, and welcome his sweet angel home with all th love you gave him, and more.

Pam Childress - 05/15/00 18:10:14
My Email:
pamschild@aol.com
State: Georgia
How did you find my web site?: parentsplace - Oct 99 BB, W&P BB
Do you have a HLHS child?: no

Comments:
Words cannot express my sorrow at your loss.  I'm sorry sounds so meaningless.  I read your page what a wonderful tribute to your son's life.  God bles you and keep you, your husband, big brother as you face this tragedy.  Your family is in my thoughts a d prayers.

Ellen - 05/15/00 17:27:54
State: IL
How did you find my web site?: PP Oct 99 Plsygroup
Do you have a HLHS child?: No

Comments:
I am so sorry for your loss.  Your family will be in our prayers.

Jen - 05/15/00 17:18:38
State: ct
How did you find my web site?: parentsplace
Do you have a HLHS child?: no

Comments:
just wanted you to know how very much we feel for your loss.  i'm so sorry.

Danielle Brown - 05/15/00 17:03:04
My URL:
http://home.earthlink.net/~danibel
State: CA
How did you find my web site?: Link from the OCT 99 playgroup
Do you have a HLHS child?: no

Comments:
Coby is a beautiful angel now. I am crying for your family's loss. I am so sorry.   Danielle

Lisa Houghton - 05/15/00 15:58:18
My Email:
autoli@aol.com
State: SD
How did you find my web site?: a friend on Oct 99 board
Do you have a HLHS child?: no
If yes, what procedures have you had?: n/a

Comments:
My deepest simpathy for your family.  What a beautiful baby Coby Tyler was!

Shari - 05/15/00 15:48:41
My Email:
sbush@gdi.net br>State: FL
How did you find my web site?: jan00 playgroup
Do you have a HLHS child?: no

Comments:
I heard about your loss on the jan00 board and I wanted to get to know Coby a little better.  What a beautiful child!  I'm so sorry to hear of his passing.& bsp; At least you can take a little comfort in knowing that he is no longer in pain.  He will always be with you.  On behalf of all mothers, I want to thank you for making his short life such a loving one.  Shari

Kristi - 05/15/00 15:16:21
My Email:
kchanley@hotmail.com
State: Indiana
How did you find my web site?: link from October 99 Playgroup

Comments:
What a beautiful baby! My prayers are with your family.

Jill, Andy, Alisha and Billy - 05/15/00 14:20:47
My Email:
sillyolebear_oct99@yahoo.c m
State: PA
How did you find my web site?: link from PS Oct. 99 to PP playgroup
Do you have a HLHS child?: no

Comments:
Words cannot express the deep sorrow I am feeling for your loss.  May God sustain you and your family in this difficult time.  Know that many people are thi king of you and family, and praying for you.

Rachel - 05/15/00 14:08:52
My Email:
rachelhough@hotmail.com
State: Nebraska
How did you find my web site?: PP October 99 Playgroup
Do you have a HLHS child?: no

Comments:
Rachel, Brandon and Emalee sending prayers of strength and peace to you and your family.

Ilse Schraeyen - 05/15/00 13:59:41
My Email:
patrick_ilse.fabrie@village.uune .be
State: Belgium (Europe)
How did you find my web site?: Oct99 message board

Comments:
Words by no means can express our feelings. So sorry you have to go through all this. Wishing you lots of strength in these terrible times. Angel Coby is now watching over you.

Lin - 05/15/00 13:50:31
My Email:
lgreenaw@cub.kcnet.org
State: PA
How did you find my web site?: Link from Oct99 BB at PP
Do you have a HLHS child?: thankfully no.

Comments:
So sorry for your loss.  Here's a ((((hug))))) although I know it won't help, I wanted you to know we are all crying with you.

Michelle Hunt - 05/15/00 13:33:31
My Email:
mhfreshface@ameritech.net< ont face="Helvetica" size="-1">
State: Oh
How did you find my web site?: Oct 99 msg boards
Do you have a HLHS child?: no

Comments:
I am so sorry for your loss. Coby was a beautiful baby boy. The Heavens will welcome him with open arms and make him the best angel there ever was! Keep your heads up -you have to let his legacy live on and work for this cause!!!  Prayers forever, Michelle and Jason Hunt Katelyn (2/28/95) and Jay (10/27/99)

Angel (devndilsmom - Oct99) - 05/15/00 13:30:43
My URL:
http://www.oocities.org/p ppopstigger
My Email:
devndilsmom@netzero.net
State: NJ
H w did you find my web site?: From our Oct99 board
Do you have a HLHS child?: No

Comments:
I know no words can ease your pain and I am soo sorry for your loss... my heart is aching for you and your family... May God encircle you in his love and ease your su fering... know that Coby will always protect you from above.. {{HUGS}} The board is alwa s here to support you when you need it..

Melissa Ambrose - 05/15/00 12:46:38
My Email:
danandmissy@prodigy.net
State: MA
How did you find my web site?: Parentsplace

Comments:
Your family is in our prayers.

Brittney Naman - 05/15/00 12:19:07
State: Georgia
How did you find my web site?: Jan 2000 Playgroup Board
Do you have a HLHS child?: No

Comments:
My prayers are with your family.

Cindy - 05/15/00 11:15:11
My Email:
cllefever@aol.com
State: NJ
How did you find my web site?: Oct99 Playgroup

Comments:
Coby was a beautiful little boy. How precious your time with him was, and I'm so sorry it was so short. My heart aches for you for your loss.  Cindy Oct99 PG

Angie.mom2harvey - 05/15/00 09:07:44
State: England

Comments:
I am devasted by Coby's passing. All our family are thinking of you.

jo- (anniejo4) - 05/12/00 02:17:43
My Email:
anniejo4@ivillage .com
State: australia
How did you find my web site?: link through pp heart board /your post
Do you have a HLHS child?: no-- ASD
If yes, what procedures have you had?: asd repair next week

Comments:
Hi. Wishing you well for Coby's surgery. Hope they sort out the platelets thing so the surgery can go ahead with one less thing to worry about. By the way Coby's just Gorgeous, what a cutie!!!!!

john riches and catherine logan - 04/25/00 21:14:14
My Email:
jrjrjohn@jrjrjohn.e robell.co.uk
How did you find my web site?: from the parents site
Do you have a HLHS child?: We have had, Kate, 11/25/95 to 5/11/96
If yes, what procedures have you had?: first stage norwood

Comments:
thanks for the picture of Coby, good luck!  JOhn

Cheryl - 04/20/00 18:54:13
My URL:
http://pages.ivillage.com/bh/chitcha 9/index.html
My Email:
Chitchat9@aol.com
State: USA
How did you find my web site?: Reflux Bulletin Board
Do you have a HLHS child?: no

Comments:
You have a beautiful baby and a beautiful website.  It am honored to be your friend and have met you by chance with our babies being ill on the reflux board at P rents Place.  Our babies' destiny for us to meet has become apparent in our lives and as I sa d, I am so honored to know you and your strength has helped guide me through the rough times with "just reflux".  You and your baby are an in piration that words cannot begin to properly express.  As our babies grow older so will our friendship.  I hope our friendship shall endure the strengths as our babies have endured the strengths of healing through their little bodies as they bot get older and continue to grow and become healthy, strong child en!  Jeffrey had a bowel resection at 3mos old .. I know how hard it is to watch them go into the O.R. and out of sight.     > to you and your family.  Chery ~Reflux Community Leader

Christina Snook - 04/20/00 16:02:59
My Email:
elmo@oknet1.net
State: Oklahoma
How did you find my web site?: parents place
Do you have a HLHS child?: yes
If yes, what procedures have you had?: Norwood, Hemi-fontan

Comments:
Your story touches my heart. We also had a very rough time with our son, Riley. He was 2 months 1 week old when we came home for the first time. We went through the N rwood, a closed heart surgery to add another shunt, and ECMO! It was a very scary time f r us and you feel like you just get thrown in to this other world, not knowing what to expect. After being home for about 4 months, we went in for his hemi-fontan, so e people call this the Glenn. We were in a total of 12 days. That was pretty good in my  pinion, compared to 63 days the first time. He's now 13 months old, crawling, pulling up and taking steps. Our main concern is that he won't eat anything other t an his bottle. Our pediatrician says not to worry, but he should be eating at least baby food  All he does is gag on it. I appreciate the fact that you have shared his story with us. It helps to hear about other kids. You have a gorgeous baby boy and we pray that he will do well and have a wonderful life ahead of him.

Diane (Mom2Gia) - 04/19/00 19:04:35
My Email:
sweetdi99@aol.com
State: Florida
How did you find my web site?: Reflux BB
Do you have a HLHS child?: No

Comments:
What a beautiful little boy.  My thoughts and prayers are with you.

Chris (mom2dtc2) - 04/19/00 16:09:32
State: CA
How did you find my web site?: Oct 99 link
Do you have a HLHS child?: No

Comments:
God bless you and your family.  May you find the strength you need to get you through this next surgery.  Your little buddy is lucky to have a mommy like yo !  All my best.

Kelli K. - 04/12/00 18:59:16
My URL:
http://www.oocities.org/snowcat 00/loganspage.html
My Email:
ker8950@indy.net
State: Indiana
How did you find my web site?: link @ Oct.99 board
Do you have a HLHS child?: no
If yes, what procedures have you had?: n/a

Comments:
Bless you and your family-my prayers are for all of you dealing with this,it's so heartbreaking!

Jae Davsi - 03/30/00 21:51:34
My URL:
http://pages.ivillage.com/mo/oohbab /index.html
My Email:
jae_davis@hotmail.com
State: IL
How d d you find my web site?: Oct 99 Playgroup
Do you have a HLHS child?: no

Comments:
You have a great site. Thank you for sharing your story. Coby is lucky to have you for his mommy! BTW, he's a cutie!

Candice - 03/30/00 19:09:35
My URL:
http://www.carpenters.8k.com
My Email:
randcarp@flash.net
State: Texas
How did you find my web site?: ParentsPlace
D you have a HLHS child?: no

Comments:
Congratulations on your new son! He is beautiful. God bless your family.

Kristi Chavarria - 03/30/00 18:59:57
My URL:
http://web.wt.net/~gusc/
My Email:
kchavarria@fsb-pc.com
State: Texas
How did you find my web site?: Oct99 play roup posting
Do you have a HLHS child?: No

Comments:
Coby is a beautiful little boy!  You're whole family is beatiful.  I wish for you the best for continued healing, growth and happiness.  Please keep us posted on the Oct99 playgroup!

Ingrid Zepp - 03/30/00 15:17:44
My Email:
izepp@kennesaw.edu
State: Ga
How did you find my web site?: Oct99 parentsplace board!
Do you have a HLHS child?: no

Comments:
What a wonderful tribute to your son and what your family is doing. I wish you all the best, and I was so moved by your update today. I'll be thinking of you and your family for the upcoming surgery.

Maria Escandon - 03/26/00 01:21:53
My URL:
http://www.members.home.net/emily.e
My Email:
maria.e@home.com
State: Toronto,Canada
How did you find my we site?: www.parentsplace.com
Do you have a HLHS child?: No

Comments:
Your website is wonderful and so informative.   You and your family have certainly been through a lot and have shown great courage throughout all the trying times.  Many will benefit from what you have done here including your son.   Our daughter was born with a CHD called Tetralogy of Fallot (TOF) which consists of several heart defects.  We hope that all goes well with you and your son a d thanks for sharing your story.  Best wishes for the future, Maria, Mark & Emily

Phyllis Robertson - 03/08/00 16:26:14
My Email:
bushie38@aol.com
State: SC
How did you find my web site?: Carol Young
Do you have a HLHS child?: No
If yes, what procedures have you had?: N/A

Comments:
I love your web site!  I will check in each week on Coby and will continue to pray for Coby and your family.  My first child died when she was 13 days old; ongential heart defect, 1967.  Shea Robertson Edwards may well have had the same condition as Coby  I don't know.  Medical technology has advanced so much since that time and I am thankful that Coby has that advantage.

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