In June 1st, 1968 at exactly 1 year old anniversary I used
walking and running as each the kids. I never seemed being a fragile kid. I
first time spoke at 7 months old, and then I said an entire sentence... "Stop,
daddy!" as a reply for my father who did play with me and made me angry...
My family used to live in a small village, Rusanesti, in the
South of Romania. No one from Constantin family did hear of muscular dystrophy
till 1976 when my parents brought my elder sister, Aurora, to the doctor (the
Aurora's master teacher did laugh at her that Aurora run 'as a duck' at the
sport classes... how it was told to us many times of one of our
friend...). The doctor did ask my parents if they have much more kids. My
parents told, yes, we have one more little girl, four years younger than Aurora.
Next week I was tested for muscular dystrophy and the test was positive. I was 9
years old but I had not clinical signs. I used running, climbing the trees,
riding the bicycle... At almost 14 years old the first sign of MD did appear.
For example, I couldn't get up 5 steps of stair without balustrade, using both
of my legs. I remember that, after I got up the 3rd step I used staying (scared
do not be bumped and put down from the other children) next to the wall on the
stair from the entrance in the school building, resting for one or two minutes,
then I used getting up the rest of 2 steps...
Because the Romania's villages has not the high school I went
at the High School in Craiova. Soon after the courses started, the manager of
the High School did see that I have some physical problems and he sent a
telegram to my parents asking them coming quickly to take me back home, telling
that being handicapped I have not the right learning in a normal school and
anyway, I will never work because nobody hires handicapped people. We were under
the communist dictatorship. I was very scared and hurt thinking that I will be
send to the village and I will never study, that I will never have a job. Nor
the communist law would help the handicapped people that time. Mommy was smart,
she said to the manager 'Dear Sir, you had not medical test before of admission
test, so you can't through my daughter out of the school'.
Same kind of events during of the college, but I learnt one
thing - I need adaptive technology for living better, the able-bodied need my
patience and my proves to understand that I have working force and I am a
serious person.
Year after year, more of the typical weakness given by MD,
the pelvic muscle
weakness (difficulty standing from a sitting position without using arms,
difficulty climbing stairs) appeared. |
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Larry
is born in New York City. He is the
third kid of the Evenson family.
At 27 months old Larry started walking. The doctors recommended to Larry's
parents putting him in the Dennison bars for make him stronger. At around 4
years old, Larry was able walking without those adaptive devices and things
looked follow an usual way in his life. Larry used to go to Howes Carvern in the summer with his mother and father, to explore the caves in Cobleskill, New York. Larry showed his interest for history, both world and american history, since he was 7 to 8 years old.
Larry started play sport, he used play basketball. Sometimes Larry does remember
that his muscles tired and he did fall down when he was play sport... Larry was
tested for SMA when he was little kid because his elder sister, Lori, had SMA
which caused her the death... Then nobody thought testing Larry for another
muscular disease...
Larry
finished the primary school, then the high school and college... Larry used
being a member of Contact band... In 1982 the band had an array of concerts in
Europe...
Nobody could suppose what will happen soon with the young man... In a night, in
November 12th, when the fist snow came in 1982... Larry wanted visit a friend in
neighborhood... All the roads were iced. Larry decided walking to his friend
that he thought that on the ice, he wouldn't control his own car and he could
have an car accident...
On back way, almost in the middle of the night, a drunk driver bumped Larry, who
was walking on sidewalk... Larry were dragged tens feet... His spinal cord was
cut sectioned... at L1/L2 and C5/C7... Larry spent a lot of months into
the hospital, then he had PT...
Larry's parents helped him all the time. It wasn't easy for Larry when he lost in
1989 his mother, then in 2000 his father... |