Just to update on what little I know.. LOL
1.) My Father is on the road to recovery & doing real good.
He went to the heart surgeon today & got a pretty good report from the doctor.. My Mom ended up getting real sick last night so my Brother Rick took him. But he's still on 2 ltrs of O2 @ all time.. not to bad & the doctors do think he will come off it.. We were told it was just a very long surgery (11 1/2 hours) & with the complications added he just needs lots of rest. He's finally eating again, so that's awesome & he's lost about 30 lbs since this all started.. (good thing my Dad is a big guy huh?) He was very tired from all the walking at the Heart Institute, so he slept off & on all afternoon.
He's more worried about my Mom, she's an over achiever & thinks she needs to do it all... But Rick, Ron & I are there every day to help where we can.. With her being sick now she has no choice really but to rest.. So we will see what happens tomorrow with her.. Keep her in your prayers though please. As well as my Dad too, he's not done yet.. he has a long 3-6 months worth of work ahead of him yet.
2.) Gary's niece Amanda is out of the hospital & home.. She still has to see some doctors & stuff, but she is home laying around, hopefully getting much needed rest. I think to be in ICU as a teen must have been scary but she did great.
3.) Wish I had great things to report on me.. But I don't. Not as of yet anyway.. I went to the neurologist today & I just get fed up having so many doctors for some many issues... Grrrrrrrrrrrr.... anyway.. he agrees from the sleep study that I did last month that the night terrors are consuming my sleep so therefore I'm getting about zero rest.. The sleep aids & anti-psychotic meds I am on at this time aren't working out much.. But all lmy doctors are scared to up my meds, change my meds or give me anything stronger then I am already on.. They keep saying that they don't want me to go into repertory failure & die again.. Well I wish they would let ME make that call because living like this isn't much worth it some days..
I go to the rheumatologist tomorrow, then to my MD on Friday with my pulmonary doc on Tuesday :(
I am about the same now as I was in Aug when I had my little hospital stay that turned into a nightmare, so the doctors are all trying to figure out what exactly to do with me... Just gets frustrating.. & I know I'm not indulging much information & I'm kind of doing that for my own reasons.. Doesn't much matter till we know the facts.. & really nothing much has changed.. breathing is more labored, cough is more frequent, pain is way more intense, lupus is flaring so it makes it hard to function 100% But I do what I can (then I come home collapse & sleep!!!!!!!!!!!!!) I couldn't have stopped working at a more perfect time.. I honestly don't think I could do 3-4 hours a day like I was 2 weeks ago... No Way...
So anyway.. I guess that is about all for now.. ohhhhh I do have a prayer request.. My cousin Todd has been just miserable since the new year (or there about) He was in the hospital for a while with pancriatitus (sorry spelling) & then was released.. Now he is having more issues and his wife (Amy) informed me that he is going to have to go to either Iowa City or Mayo or wherever Dr Larson can get him into... So if you would keep his family lifted up that would be Great!!!!
Thanks for all the thoughts, notes & prayers.. It has just been a blessing knowing people care..
xoxo
Windy