Aspergillum Penicillium Ascospores & Clad Osporuim.
The goal would be; see if we have these in our home & if they are here get rid of them.. But the thing is money.. So Gary is trying to think of what to do or how to go about it.. This is new to us so we are working on it. We don't even know who to call or nothing..Next was to remove all carpet from the house.He said that people with lung diseases should really never have carpets in there homes to begin with. Everyone has dirt, dust & mites in there carpets. And everyone has certain types of mold growing in the carpet pads. Not to mention all the chemicals in both the pads & the carpets them selves. So he told me that when any one walks, it stirs up the dust, dirt, mites & mold.. then it's now in the air & I'm breathing it in. So again Gary's trying to figure out how to get the carpets out of here fairly quickly & replace with hard wood or ceramic tiles. My Aunt Lisa has told us whatever we need for wood or tile we can get from her.. But it's a matter of installing it too.. And buying the x-tra materials that go with replacing our carpets now.ome one asked me after "what about the water bed?" well I'm not sure I ever told him I had one to begin with, he's never asked.. So if anyone knows anything about them, let me know please.. I will try to ask him next time I speak with him.. I guess for mites, skin & dust some people thought my bed could be bad too. Which would be a great thing cuz I hate that bed but Gary wont replace it.. Maybe if he had to.. But I'm sure that would be very last thing... Next was air filters.. He asked if we owned any & I told him yes my Aunt gave us 2. One for our bed room & the other is a huge unit in the living room.. But with the windows open I hadn't had them on because it was pointless.But winter is coming.. He suggested a Q Air Filter System?? Whatever that is.. Something for the furnace I know.. So I passed on that info to Gary. Then we discussed a humidity gage & dehumidifiers in the basement. I told him we had one my Dad got us & he had me describe our basement to him. He thinks we need 2 down there.. So Gary thinks we have another one.. Who knows it might be on by now.. Gary's doing all of that. I don't go down stairs.. Stairs are BAD!!! We talked about "the rock room" for those of you who have never been in our basement.. We have one room at the bottom of the stairs that we call the rock room & we do so because it's gravel.. The guy we bought this house from had apparently tried to give the water a place to go when it rained it leaked.. But when Gary bought the house he fixed it correctly & it doesn't leak any more.. A few times we have had a little but nothing worth messing with. (or so I thought) Dr Wong strongly suggested getting all the rock & dirt out of there with wheel barrows & buckets.. He guessed that for sure there would be mold growing like crazy there. Again.. It's all about time & money. Because we would have to replace that with concrete. I'm sure we will get there.. It's just baby steps.. Gary only has so many hours in a day & Gary was kind of fussy when I told him all of this.. Snapped at me that when was Doctor Wong going to trade him check books.. So he didn't mean to but he made me feel bad.. I didn't mean to get sick & I certainly didn't think my icky basement would be messing with me.. & besides with out doing the test we don't even know.. anyway...Last thing I can remember & from going over my notes from Tuesday. was Cleaning supplies.. He said I need to switch to non toxic, non aerosol & all natural products.. He suggested a company called Seventh Generation and another one brought to my attention was Eco Sense/Melaleuca. I knew not to use any aerosols & I haven't.. I am not here when the house is cleaned (which isn't often.. LOL) so I am trying.. It's just very hard to make such life changing alterations..So there is your update.. Please continue to pray.. I have been feeling better but the cough is still hurting me pretty bad.. I get tired very easy, but I guess that would be my blood not my lungs... I will let you know about my upcoming test when I know something myself.. Thanks for reading & caring about us.. Windy
PFT (with 2 ABG's :( Ouchie)
Rehabilitation
6 minuet walk
X-rays
contrast CT scan
Blood work (13 tubes this time)
Then a meeting with my transplant coordinator Massina, Dr Hatchum & Dr Trulock. We talked about the mold issues we had been faced with, how Gary was working his butt off trying to get it all fixed. They read the mold report from Missman & just honestly didn't know if infact the mold had anything to do with my lung issues & definitely nothing to do with the disease they assured me. Dr Trulock agrees with my local doctor here Dr Wong that I need to be out of the house until the rest of the house is completely done, cleaned up & so on... I simply can't do that. I informed them exactly where we are with the house. Except the bath room upstairs, Gary has all of the mold out of the house. As far as we know it's all good, were just out of money for now.. it will get done.. Right now it's just still dusty from my bathroom in the office being gutted down to studs. I told them that a few AWESOME ladies from my church would be at the house cleaning & dusting everything well while I was in St. Louis (and they did an terrific job too I might add; Thank you Linda, Edna & Helen) Dr Trulock asked how much more needed to be done & how long was it going to take.. I answered best I could with an "I have no idea" Dr Trulock told me that he loved the idea that I had an Fresh Air Purifier going in the house & that we had a purification system waiting to be installed onto the furnace. (as far as I know the person who was to install this unit has never been able to get ahold of, so it's sitting in the basement in the catering room) He added that it need to be ran 24/7 & added that humidifiers for the winter would help my breathing & we would need one for my bed room at least but commented a big unit for the living area wouldn't hurt. Reminded me to wear mask for winter for a few reasons.. cold air & germs... Man I hate them things, but I guess I better buy some more.. It's not like wearing O2 I don't have enough people starring at me.. Gotta do what you gotta do, right????