I have FMS. I thought this web ring would be a great way
to receive and give support with others who share the same problems with coping with this syndrome.
URL: http:/members.tripod.com/~Sydhol/barnettsdirectory/barnetts.htm
E-mail: Sbarnett@netscape.net
ICU: 2824065
mj erwin
I injured myself at work, turning a pt. I felt something
at the moment it happened. It was severe pain. I went to rehab., a Dr.Int. Med., Neurosurgeon and all patted me on the back, like I was just hysterical, and told me I would be fine. I asked another neurosurgeon to see me. He listened to me and found I had a ruptured disc. Before that, going from Dr. to Dr. I was put on varies sorts of medications, I will not list as you all have been through the same thing. Unfortunetaly the pain worsened after the surgery. I had Myofacial Pain Syndrome, the pain was severe, the old meds. did not touch it. I was put on MS Contin for the pain and it at least made life bearable. I developed Fibromyalgia, pain shifted from my left side to all over. The AME Dr.'s do not believe that my pain is excrutiating and the pain meds are for the MPS. I have severe muscle spasms, trigger point injections did no good, now on Valium I can move better. I cannot stand or walk for more than 5 mins. or 20 or so feet. It is bac enough to hurt all of the time but why do I have to convince a Dr.(AME) that I have a severe problem and I did not before I had the injury. I lost my home but it has been almost 3 years and no settlement yet. These AME Dr.'s seem to have forgotten their H. Oath and money seems to talk more than
anything.
URL: none listed
E-mail: Teddie2101@aol.com
cookrice
I was diagnosed with FMS some time ago. I have been dealing with the symptoms for years and I am now trying to learn to cope with and survive them.
I would like to get to know others and how they manage to survive these things.
My name is Gretchen... my mom is the E-mail receipient
E-mail: cookrice@oregontrail.net
Donna Lopez
I have struggled with cfids/fms for 2 years and it had
robbed my family and me of the productive and energectic/healthy human being that I once was. Being a health care practitioner, I am impressed with all the other professionals who have been debilitated by this woefully misunderstood illness. This next decade will see great changes in human understanding of the mysterious neuroimmune system that is so intricately related to the endocrine/gonadal systems. I am always learning and deeply value the knowledge, experience and emotional support of all of those who suffer from this tragic illness.
(suggestions) I think the major crisis for people with cfids/fm is the
lack of money that now has become a crisis for many of us due to the
inability to work. I would like to see more supplements at the lowest
prices possible.
(email_addres) ALopezTCR@aol.com
(url) http://
Donna Lopez
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