- Spina Bifida Association of America
- Spina Bifida and Hydrocephalus Association of Canada
- Association for Spina Bifida and Hydrocephalus United Kingdom
- Associazione Piemontese Spina Bifida e Idrocefalo
- International Federation for Hydrocephalus and Spina Bifida
Australia- Queensland Association for People with Spina Bifida
- Spina Bifida and Hydrocephalus Association of South Australia
- The Spina Bifida Association of Western Australia
Canada- Spina Bifida Association of Nova Scotia
- SBA of Nova Scotia - Cape Breton Chapter
- SBA of South Saskatchewan
- The Spina Bifida And Hydrocephalus Association Of Ontario
United States- Spina Bifida Association of Greater San Diego
- Spina Bifida of Washington
- The Spina Bifida Association of Western Pennsylvania
- Spina Bifida Association of Southern Arizona
- Spina Bifida Association of St. Louis
- Spina Bifida Association of the Eastern Shore - Maryland
Clinics & Hospitals On-Line
- The Allegheny General Hospital Spina Bifida Center
- Pediatric Neurosurgery Home Page at Columbia-Presbyterian Medical Center.
- Spina Bifida/Syrinx/Hydrocephalus Homepage at MGH/Harvard
- Loyola University Chicago Spina Bifida Program
- The Myelodysplasia Clinic at the Division of Developmental Disabilities
At the Univeristy of Iowa UAP
