* T o g e t h e r . . . W e   C a n *

London, June, last, launch at IFMSS and visiting MS Berlin, Onto, USA, NYC, Filming all the way, with a media cartel sponsored videographer / photographer and carer (1 person ) and me! "The next generation Sinatra, with PP-MS." Songs and poems wanted. And a webmistress to join our international team of volunteers.

Technical ideas, too sez, my webmaster. Please see our 2 websites bonded together (bt and top cities) please sign our guestbook of thousands, read by thousands. Promote tour own site, Freinds, Carers, Families, Business. Just support the tour and/or "the millennium collection".
Website: http://www.mult-sclerosis.org/frankie.Dickens/

PS: See "Frankies Gallery" photos, IFMSS, MS Berlin, NMSS, Arnay Rosenblat, pr, (incidenetally, Frank Sinatra was NMSS former host patron), NYC - MS, and other tour shots and, for the movie, and video shorts as backdrops for the new songs and poems.

We also envisage a disc and cassette and a booklet of names. From Tony Blair, MP and UK Prime Minister. Chris De Burgh to ordinary people. MS victims, Carers, families, business, sponsors, etc.

2 World Tour slogans, both meant! "MS no cause and no cure! Yet!" And, " We wish you all a happy MS / disabilities free! Millennium!"

Frankie Dickens, on behalf of: The 1^st MS World Tour 1999 - 2002, and, "the millennium collection", sponsors, supporters and organizers.

I feel so lost sometimes and I always worry, about my financial future. Unfortunately, I cannot work, at this time and the way it looks for a long time to come. I am applying for SS disability soon.

I try so hard to do as much as possible, but then Tremors set in. I am on 30 mg of Baclofen for the Tremors and Ditropan for the bladder. Today is an exceptional bad day with the Tremors. I sometimes blame myself for this, for being a super woman.

I am also diabetic and suffer from major depression. Any MSers who would like to share their experience with me, would be appreciated. I don't mean to be a downer, today is just a bad day.

Thanks.
Sharon

A few months ago I was able to open a bag of cereal and then realized this was progress. This week I was able to stand for more than a few minutes, that was progress.

I am glad there are places like this to visit, but would even be more glad if there was no need for them! Thanks to everyone.

My Dr. didn't think so. My mother had MS. I have 3 lesions around my Optic Nerve, hence the visual disturbances.

I am like Kathy F. who posted on this site in that I sit and wait. The neurologist doesn't want to see me until I have more physical disability. I figure that once I have lost some ability I won't ever regain it again, so why not try to curb it ahead of time.

I am wondering if I should be taking meds, if indeed I have MS, if the diet I am following is the best one for me (Dr. McDougall's vegan diet) or should I follow Dr. Swank, since he has background with MS. Is anyone else following his diet?

Dear Yolande, Please realize, there is NO test NOR combination of tests that proves Multiple Sclerosis.

Unfortunately, diagnosing MS still remains a clinically determined medical decision (based on Signs & Symptoms); but other conditions, also produce the very same symptoms.

So doctors must follow Poser's Criteria, until all other possible causes of the symptoms are investigated and medically ruled out:-(

I know this concept is difficult; but there are worse things than using a wheelchair, which I find is a fantastic energy saving tool that enables me to continue activities and avoid excessive fatigue:-)

OK?
Tom <tjc@thjuland.net>

She goes to this support group at the Y.M.C.A. and there are people in wheelchairs. I get really scared to think that might be her some day and that I might have to wheel her in the mall and at my school.

I'm scared that the day I get married she'll be in a wheelchair. My brother doesn't understand yet and I hope he doesn't soon. My mom said since I'm the oldest I need to learn how to give her the shots, in case my dad is gone one day and can't give her the shot.

That scares me soooooooo much. I don't know if I can handle that, but no matter what I will always love my mom and I've been praying to God and so has the rest of my family.

Please keep my mom in your prayers.
Thank You

Has Avonex really worked on other people or is it something that just might work? I don't suffer from many side effects from it.

I guess that is a good thing, but does that mean I should be taking a higher dose?! I am now looking for alternative ways of dealing with MS.