About CFS/ME

About CFS/ME: An Editorial

~In Loving Memory of CFS/ME Victims~ line

Those of us in who suffer from Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (M.E.) share a deep sense of personal loss with the passing of any of our fellow CFS/ME sufferers. What hits home for us is that they are victims of the never ending complications, pain and debilitation of CFS/M.E.

Unfortunately, this happening more and more. One becomes so immunologically compromised and debilitated by this disease that the body just says "enough" and completely shuts down.

CFS/M.E. is a serious and complex physiological disease characterized by an impaired immune system (sometimes overactive, other times under active) and incapacitating fatigue. CFS/M.E. affects every major system in the body, including neurologic (brain), cardiac (heart), respiratory (lungs), and endocrine (hormones).

Many people, in the early stages, describe CFS/M.E. as the "flu that never went away." They experience profound fatigue, sore throat, swollen lymph nodes, irritable bowel, inability to focus and concentrate, headaches, severe muscle pain, sleep and balance problems, intolerance to light and sensory stimulation, chemical sensitivities, and/or changes in their body temperature, to mention a few of the symptoms. CFS/M.E. causes severe disruption in ones ability to function often even at minimal levels.

CFS/M.E. afflicts children as well as adults, and has no demographic boundries. It often hits without warning, leaving its victim alive, but robbing them of almost everything else. Careers, creativity, education goals, relationships, stamina, energy, income, and passion are all swept away in a gray flood of symptoms. Family relationships and finances are stretched beyond the limit in the struggle to restore health of a loved one. And if that isn't bad enough, CFS/M.E. victims are often misdiagnosed or not taken seriously by the physicians they go to for medical care and treatment. Unfortunately, some doctors still persist in the false belief that CFS/M.E. is a psychological rather than a physiological disease.

The profound tragedy of these deaths are the years of severe pain, isolation and suffering under the physical oppression of CFS/M.E.
CFS/M.E. continues to be a silent epidemic. The average person may not even have heard of it. Yet the current rate of incidence in the U.S. population is growing. Although it affects both men and women, CFS/M.E. is currently more common than MS, HIV, AIDS, Lung Cancer and Breast Cancer among U.S. women.

It's time for the world to wake up! CFS/M.E. is a real disease that has victimized many people right here in your own community, and the numbers continue to grow. You, your child, a friend or a loved one could be next. Unlike HIV, AIDS and Cancer, medical science has yet to unravel any of the complexities of this debilitating disease.

People all over should insist that the medical community, public authorities and government health authorities acknowledge CFS/M.E. as the physiological disease that it is. Until a cure is found, our decision-makers need to get serious about educating themselves about CFS/M.E., and being able to properly diagnose and symptomatically treat patients with it.

Let's stop adding to the list of tragic deaths related to complications caused by this disease.
Bless You All,
~Kristy Henderson, R.N.
and CFS and Fibromyalgia victim~

The background song is "I Will Remember You",
made popular by singer Amy Grant.

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