Date:
Tue, 3 Dec 1996 08:08:47 -0800 (PST)
From: Barrie Abbott <babbott@unixg.ubc.ca>
To: igan listserv <igan@majordomo.srv.ualberta.ca>
Subject: ACE inhibitors-more questions
Hello,
thanks to for your helpful replies regarding your experience
using ACE inhibitors. I passed on the info to my friends,
who are considering, along with their doctor, putting their
5-yr-old daughter on them. Of course, more questions arose.
If I could tax your kindness one more time, by finding out
a few more specifics, I would be most grateful.
-how long have you been using them?
-do you know of long-term effects, especially for children?
-how long do you have to stay on them?
-how are energy levels affected? Would a child be tired
because of them?
-do they lower blood pressure, and if so, how would that affect
a child?
-is fish oil something you would be taking anyway, or just in
combination with ACE inhibitors?
Since my friends found about fish oil for kidney ailments, they
have been giving their daughter three capsules a day. In that time,
she has not had to have an albumen treatment (to reduce fluid retention).
Is this coincidental, or a benefit of the oil?
Thank you very much for your patience and kindness in answering
these questions. My friends are finding their own doctor a little
less than forthcoming. Luckily, they have (indirect) access to others
with direct experience with these treatments.
Thanks again
Date: Tue, 03 Dec 96 11:19:06 -0800
Subject: ACE INHIBITORS-
From: jurgen.hesse@deepcove.bc.ca
To: igan@majordomo.srv.ualberta.ca
Hello:
I have been using AHE inhibitors, paired with a beta blockers, for at least
fifteen years now. I have reacted to different ACE inhibitors with different
degrees of comfort. On the current ACE inhibitor scheme (Adalat XL 30 mg
a day)
I thrive very well with no apparent side effects. And yes, they lower blood
pressure, which is the major reason I take them. How they would affect
children
I cannot say (I am a layman, of course, and I have ESRD with adult-onset
diabetes).
On the subject of your doctor not being forthcoming, that is a common
complaint. Being a Type A personality I tend to bully my allopathic doctors
until they come forth with information. Under the Canadian Freedom of
Information Act (you in the U.S. also have one of those), I have requested
copies of ALL correspondence between my nephrologist and endocrinologist
and my
general practitioner. They MUST give you copies, and these reports will
tell
you all you need to know.
I am at present writing (I am a writer/editor by profession) a booklet
on my
failing kidneys and have used the correspondence to good advantage.
Jurgen Hesse
Vancouver Canada
jurgen.hesse@deepcove.bc.ca
Date: Tue, 3 Dec 1996 22:12:24 -0800 (PST)
From: Greg Skipper <skipperg@ohsu.edu>
To: igan@majordomo.srv.ualberta.ca
Subject: Re: ACE inhibitors-more questions
I must reinterate what a physician, I think, said to you earlier.
It is
important to see a specialist who really understands glomerulonephritis.
The most common edema producing nephritis in children is called minimal
change disease because there is not significant damage to the kidney and
the disease is self limited and not dangerous. I would not be giving
drugs to a 5 year old unneccessarily. See a specialist!!
Greg Skipper, M.D.
On Tue, 3 Dec 1996, Barrie Abbott wrote:
>
> Hello,
> thanks to for your helpful replies regarding your experience
> using ACE inhibitors. I passed on the info to my friends,
> who are considering, along with their doctor, putting their
> 5-yr-old daughter on them. Of course, more questions arose.
> If I could tax your kindness one more time, by finding out
> a few more specifics, I would be most grateful.
>
> -how long have you been using them?
> -do you know of long-term effects, especially for children?
> -how long do you have to stay on them?
> -how are energy levels affected? Would a child be tired
> because of them?
> -do they lower blood pressure, and if so, how would that affect
> a child?
> -is fish oil something you would be taking anyway, or just in
> combination with ACE inhibitors?
>
> Since my friends found about fish oil for kidney ailments, they
> have been giving their daughter three capsules a day. In that time,
> she has not had to have an albumen treatment (to reduce fluid retention).
> Is this coincidental, or a benefit of the oil?
>
> Thank you very much for your patience and kindness in answering
> these questions. My friends are finding their own doctor a little
> less than forthcoming. Luckily, they have (indirect) access to others
> with direct experience with these treatments.
>
> Thanks again
>
>
Date: 04 Dec 96 02:54:30 EST
From: "steven b. tucker" <70554.645@compuserve.com>
To: "INTERNET:jurgen.hesse@deepcove.bc.ca" <jurgen.hesse@deepcove.bc.ca>
Cc: IGAN list <igan@majordomo.srv.ualberta.ca>
Subject: Re: ACE INHIBITORS-
<<<On the current ACE inhibitor scheme (Adalat XL 30 mg a day)>>>
This note is for informational purposes only. Adalat is a trade name
for a
nifedipine preparation. Adalat belongs to the class of antihypertensives
called
calcium channel blockers not ACEI's.
Respectfully,
Steven B.Tucker,MD,FACP
Anchorage,AK
To: igan@majordomo.srv.ualberta.ca
From: Umbrian Association for the fight against cancer <aucc@krenet.it>
Subject: information request
Hi!
Does anybody knows the E-MAIL address and TELEPHONE number
corresponding to the following organization?
IGA NEPHROPATY SUPPORT TETWORK
234 Summit avenue
Lenkington - PA
19046
Thanks a lot to everybody.
Giovanni Scotti, Perugia - Italy
To: igan@majordomo.srv.ualberta.ca
From: aucc@krenet.it (A.U.C.C.)
Subject: information request
Hi!
Does anybody knows the E-MAIL address and TELEPHONE number
corresponding to the following organization?
IGA NEPHROPATY SUPPORT TETWORK
234 Summit avenue
Lenkington - PA
19046
Thanks a lot to everybody.
Giovanni Scotti, Perugia - Italy
From: Smustard@aol.com
To: igan@majordomo.srv.ualberta.ca
Subject: Re: information request
Yes I do!!!
IGA Nephrology Support Network
234 Summit Ave.
Jenkintown, PA 19046
215 - 884 - 9038
Southern Sal
Date: Mon, 9 Dec 96 17:18:48 -0500
From: adj <adj@utkux.utcc.utk.edu>
To: <igan@majordomo.srv.ualberta.ca>
Cc: <aucc@krenet.it>
Dale Helgers (her son has IgAN) is responsible for that. To my knowledge,
she has no email, but this is the info I do have:
IgAN Support Network
234 Summit Avenue
Jenkintown, PA 19046
\
215-884-9038
From: paulh@inil.com (paulh)
To: <igan@majordomo.srv.ualberta.ca>
Subject: Re-occurrence of IgAN after transplant
Date: Mon, 9 Dec 1996 16:38:07 -0600
My daughter had a kidney transplant two years ago due to IgAN. Does
anyone
have any information about IgAN occurring again in the transplanted kidney?
Paul
paulh@inil.com
Date: Mon, 09 Dec 1996 22:15:15 -0700
From: "Paul E. Madden" <paulm@itsnet.com>
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Re-occurrence of IgAN after transplant
Paul and others,
The following information is quoted from Russ George's web page at
http://www.hooked.net/users/rgeorge/iga.html
You may want to look at this site if you haven't already. I assume
you
probably already have. I also read something similar to this else
where
although I don't recall where.
"The success rate of transplants is good in IgA patients. Even though
the IgA deposits reappear in the transplanted kidney in about half the
patients within one year after the operation, the signs and symptoms of
the disease remain mild. Loss of a transplanted kidney to recurrent IgA
Nephropathy is uncommon. The milder form of the disease seen after
transplantation may be due to the use of immunosuppresant anti-rejection
drugs such as cyclosporine."
Best of Luck to your daughter and family.
Paul Madden
paulh wrote:
>
> My daughter had a kidney transplant two years ago due to IgAN.
Does anyone
> have any information about IgAN occurring again in the transplanted
kidney?
>
> Paul
> paulh@inil.com
Date: Tue, 10 Dec 1996 08:51:46 -0500 (EST)
To: igan@majordomo.srv.ualberta.ca
From: Samy Iskandar <iskandar@bgsm.edu>
Subject: CN: Re-occurrence of IgAN after transplant
IgA nephropathy is said to recur in a high percentage of patients receiving
a transplant. Usually, though, this is merely as a mild pathologic
lesion
which does not appear to influence the outcome of the allograft, in most
cases.
>My daughter had a kidney transplant two years ago due to IgAN.
Does anyone
>have any information about IgAN occurring again in the transplanted
kidney?
>
>Paul
>paulh@inil.com
>
>
Samy S. Iskandar, MBBCh, PhD
Associate Professor of Pathology
The Bowman Gray School of Medicine
of Wake Forest University
Winston-Salem, NC 27157-1072
Tel. (910) 716-2629
Beeper (910)721-8846
FAX (910) 716-7595
E-mail iskandar@bgsm.edu
From: "Shore, Terry" <tshore@pfc.forestry.ca>
To: "'igan@majordomo.srv.ualberta.ca'" <igan@majordomo.srv.ualberta.ca>
Subject: RE: Re-occurrence of IgAN after transplant
Date: Tue, 10 Dec 1996 12:53:36 -0500
I had a kidney transplant seven years ago after 20 years of IgAN. My
creatinine has been slowly climbing again hitting the 200 level this
past summer. They did a biopsy and the diagnosis was that I have IgAN
again in the transplanted kidney. An interesting recent development is
that my creatinine climbed a bit faster up to 238 and so my doctor put
me on prednisone 25 mg/day. My last four readings have gone 238, 212,
200, 187 (over the past 2-3 months). This would seem to indicate that
either prednisone at this kind of dosage is beneficial for IgAN, or that
something else is going on that is responding to prednisone. Any ideas
out there?
Terry
>----------
>From: paulh@inil.com[SMTP:paulh@inil.com]
>Sent: Monday, December 09, 1996 2:38 PM
>To: igan@majordomo.srv.ualberta.ca
>Subject: Re-occurrence of IgAN after transplant
>
>My daughter had a kidney transplant two years ago due to IgAN.
Does anyone
>have any information about IgAN occurring again in the transplanted
kidney?
>
>Paul
>paulh@inil.com
>
Subject: RE: Re-occurrence of IgAN after transplant
Date: Tue, 10 Dec 96 17:13:30 -0500
From: adj <adj@utkux.utcc.utk.edu>
To: <igan@majordomo.srv.ualberta.ca>
>I had a kidney transplant seven years ago after 20 years of IgAN. My
>creatinine has been slowly climbing again hitting the 200 level this
>past summer. They did a biopsy and the diagnosis was that I have IgAN
>again in the transplanted kidney. An interesting recent development
is
>that my creatinine climbed a bit faster up to 238 and so my doctor
put
>me on prednisone 25 mg/day. My last four readings have gone 238, 212,
>200, 187 (over the past 2-3 months). This would seem to indicate that
>either prednisone at this kind of dosage is beneficial for IgAN, or
that
>something else is going on that is responding to prednisone. Any ideas
>out there?
>
>Terry
Terry, I think the rough numbers are 20-40 percent of IgAN patinets
exposed to immune suppressents/steroids respond favorably. I'll see if
I
can dig up a specific reference for that figure ... I took similar
dosages for six months, coupled with cytoxin, with a favorable outcome.
However, whether that was a natural or drug response ... the jury is out.
Any comments from the gallery?
P.S. Does anyone have the URL for Medline?
Thanks,
April
Date: Wed, 11 Dec 1996 01:40:19 +0200
From: "V. HADJICONSTANTINOU" <nefro@hol.gr>
Organization: RENAL PHYSICIAN
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Re-occurrence of IgAN after transplant
Here are two url's for MEDLINE SEARCH
http://www.healthgate.com/HealthGate/MEDLINE/search-advanced.shtml
http://muscat.gdb.org/repos/medl/medl.compact.html
The second one is faster, but it will be free of charge only untill the
end of the year
From: RONFILL@aol.com
Date: Wed, 11 Dec 1996 21:25:22 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: prednisone and cytoxin
Terry
I have not had a transplant yet but thought I would pass along how my Dr.
treated me with the above medications. I was just diagnosed with
IgAN at the
end of July this year. While in the intensive care unit of the hospital
they
gave me one mild cytoxin treatment, we have no idea whether it help or
not.
When I left the hospital, they put me on 70 mg/day of prednisone for two
months. I have tapered down since that time and am now on 15 mg/day.
It
seems that for me the side effects of the Prednisone are as bad as the
disease that I have right now. I go back to the Dr. next week but
have no
idea at this time if or how much he will change my medication.
I'm hoping it will be at least 20 years before I have to have a transplant.
I'm 48 and by that time a lot of things can happen. I heard that
duPont is
now developing a plastic artificial kidney.
Thanks,
Ron
Date: Thu, 12 Dec 1996 10:44:49 -0500 (EST)
From: Susan M Murray <Susan.M.Murray@widener.edu>
To: RONFILL@aol.com
cc: igan@majordomo.srv.ualberta.ca
Subject: Re: prednisone and cytoxin
ronfill-I have a 18 year old who has IGAN - has had for 1 1/2 years.
I
am interested in knowing just what the bad side effects of prednisone are
since my son's doctor keeps talking about putting him on it. So far
the
levels of everything don't indicate needing to be put on Prednisone yet.
I am hoping we can go a long time using the medications he is on now -
fish oil and Zestril.
On Wed, 11 Dec 1996 RONFILL@aol.com wrote:
> Terry
>
> I have not had a transplant yet but thought I would pass along how
my Dr.
> treated me with the above medications. I was just diagnosed
with IgAN at the
> end of July this year. While in the intensive care unit of the
hospital they
> gave me one mild cytoxin treatment, we have no idea whether it help
or not.
> When I left the hospital, they put me on 70 mg/day of prednisone
for two
> months. I have tapered down since that time and am now on 15
mg/day. It
> seems that for me the side effects of the Prednisone are as bad as
the
> disease that I have right now. I go back to the Dr. next week
but have no
> idea at this time if or how much he will change my medication.
>
> I'm hoping it will be at least 20 years before I have to have a transplant.
> I'm 48 and by that time a lot of things can happen. I
heard that duPont is
> now developing a plastic artificial kidney.
>
> Thanks,
>
> Ron
>
Date: Thu, 12 Dec 1996 15:48:12 -0500 (EST)
From: Marc Davis <mdavis@infi.net>
To: igan@majordomo.srv.ualberta.ca
Subject: Re: prednisone and cytoxin
On Thu, 12 Dec 1996, Susan M Murray wrote:
> ronfill-I have a 18 year old who has IGAN - has had for 1 1/2 years.
I
> am interested in knowing just what the bad side effects of prednisone
are
> since my son's doctor keeps talking about putting him on it.
So far the
> levels of everything don't indicate needing to be put on Prednisone
yet.
> I am hoping we can go a long time using the medications he is on now
-
> fish oil and Zestril.
Susan, I am not Ron, but I can indeed tell you about prednisone.
I have
been on it since I was 14 years old, I am now 38 years old. I had
a
living related donor transplant when I was 14, my dad gave me a kidney
and the transplant has been wonderful.
I am now on 10mgs of prednisone every other day and have been brought
down from an extremely high dosage from my transplant. I have suffered
severe bone loss due to prednisone, at the age of 29 I had the bones of
a
50 year old woman. I have had hip replacements in both hips and had
those replacements revised after having my two children. I am sure
that
they will have to be replaced at least two more times.
My weight is a constant struggle and after my transplant I gained over
60
pounds. I am not obese, but could stand to lose about 20 to 30 pounds.
I suffered hair loss, and cushinoid cheeks in the beginning also.
As the
dosage is lowered, the side effects do lessen, but the bone loss is the
worst side effect. I am taking fosamax now, and I am hoping that
this
medication lessens the effect of the prednisone.
Hope this helps.
Sharon Davis
From: jurgen.hesse@deepcove.bc.ca
Date: Thu, 12 Dec 96 13:48:22 -0800
Subject: PREDNISONE AND
To: igan@majordomo.srv.ualberta.ca
Ron: Do yourself an immense favour and buy Dr. Andrew Weil's recent book,
Spontaneous Healing, and see what he has to say about Prednisone and other
such
horrendous magic bullets. Dr. Weil has opened my eyes, and I will follow
some
of his suggestions in trying to stabilize my glomerulonephritis into permanent
remission. I believe it can be done, and I see no reason, with all the
time you
have on hand, not to follow his suggestions of nudging your body (kidneys)
to
heal themselves or at least deteriorating any further.
For your info, I am not a medical doctor, but a well-educated journalist
who is
using his research techniques to find an alternative way to heal his kidneys
since allopathic doctors have no idea a) why my kidneys are failing and
b) what
to do about it except to threaten me with dialysis or a transplant operation.
Since I have invoked Dr. Weil's regime of body maintenance my serum creatinine
count has gone down from 304 to 253 IN ONE MONTH.
Jurgen Hesse
Thinkware Publishers
Vancouver BC
PS: I am putting the finishing touches to a booklet entitled "Chronicle
of an
Illness." It is my own case history and will be available for FREE
download in
this newsgroup as a compressed file within a month. Watch this space for
an
announcement. For those who want to save themselves the job of downloading
it,
and printing a hard copy, I will send a bound booklet at self cost.
From: RONFILL@aol.com
Date: Thu, 12 Dec 1996 19:55:29 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: PREDNISONE AND
Jurgen,
Thank you for letting me know about the book. I am going to go out
and buy
it. Whether it helps me or not - I still want to learn all I can
about what
might help me.
Thanks Again and Good Luck
Ron
From: jurgen.hesse@deepcove.bc.ca
Date: Fri, 13 Dec 96 08:50:24 -0800
Subject: RE: PREDNISONE
To: igan@majordomo.srv.ualberta.ca
Ron: That's the spirit! The more you are informed, the less threatening
a
disease will be. I just read with a great shudder the dire prediction in
our
Kidney Foundation of Canada leaflet: "There is no cure for chronic
kidney
failure." How does that help? Dr. Weil addresses that kind of
medical hexing,
as he calls it.
Regards, Jurgen Hesse
Date: Sat, 14 Dec 1996 08:51:42 -0500
From: "aviso.comm@sympatico.ca" <aviso.comm@sympatico.ca>
Organization: Aviso Communications
To: IgA Listserve <igan@majordomo.srv.ualberta.ca>
Subject: Cardura & Diuretic
Is Cardura (Doxazosin) and hydrochlorothiazide a good combination to
control hypertension due to IgAN? I know there are better ones but I
can't seem to tolerate ACE's or Calcium Channel Blockers. I'm sure the
Cardura is OK but wouldn't a diuretic be harmful to the kidneys?
From: ALPRESLAND@aol.com
Date: Sun, 15 Dec 1996 11:32:03 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: fish oil
MaxEPA Fish Oil is available in the UK, from chemists such as Boots, although
I don't know if you can get it without a prescription.
Allan
From: "Russ George" <rgeorge@hooked.net>
To: igan@majordomo.srv.ualberta.ca
Date: Sun, 15 Dec 1996 12:57:59 +0000
Subject: IgAN in children vs. adults
I get many inquiries outside of the IgAN list and often don't have
an answer or opinion. One persistent query is how IgAN affects
children vs. adults. What is the relative prognosis. What differences
in treatment might be expected.
Russ George
From: Frewbee@aol.com
Date: Sun, 15 Dec 1996 16:40:29 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: white blood count
My nephew had an acute attack last week with the following symptoms: acute
abdominal pain from the rib cage to the pelvic bone, fluid in the abdomen,
and an elevated white blood count (17000). I understand that the
first two
symptoms are fairly common with IgAN, but not the white blood count.
Do you
have any information or experience that connects the white blood count
with
IgAN, or any other condition that would aggrevate IgAN? I'd appreciate
any
information and/or contacts you could provide. Thanks.
Don Frewing
Date: Sun, 15 Dec 1996 18:19:41 -0500 (EST)
To: igan@majordomo.srv.ualberta.ca
From: Dutch <mower@PioneerPlanet.infi.net>
Subject: an IgAN chat!
* * * * * * * * GREAT IDEA * * * * * * * * * * * * *
A very nice man by the name of Bill Jennings just responded to my page
with
a wonderful idea for an IgAN chat, an interactive, live way to "talk"
to
each other. What do you think, everyone? Would you use it if it was there?
It could be like a forum, with Qs & As, with some of the docs if they
wanted
to. Or it could be just open, like a support sort of thing. If we really
wanted to keep it IgAN related we could set up a password system and publish
the password on this listserv.
There are places all over the web that will set up chats like this for
nonprofit groups. If someone wants to scout around I'm sure it wouldn't
be
hard to find one. We don't even need it to be up 24-7, it could meet once
a
week perhaps. I'm really excited about this idea.
Hmmmm... this could get icky if everyone sends messages to the group just
saying "Yes, do it" or "Don't do it". So how about
mailing me if you just
want to say you'd like it or not and save the mailing list messages for
if
you have additional ideas. Sound okay?
Well, it's up to you guys.. have fun!
Mower
http://www.oocities.org/SoHo/2784
From: RONFILL@aol.com
Date: Sun, 15 Dec 1996 21:04:39 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
DON
I went to the emergency room the end of July this year with sever pain
in the
pit of my stomach (like a large ball was being inflated just below my rib
cage). My creatinine count was 6.4 and they did biopsy surgery to
discover I
had IgAN. I don't know what my white blood count was because I never
was
told and I didn't really know to ask.
Sorry I couldn't be of more help.
Best of Luck to your nephew.
Ron
Date: Sun, 15 Dec 1996 21:55:54 -0500
From: "aviso.comm@sympatico.ca" <aviso.comm@sympatico.ca>
Organization: Aviso Communications
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
RONFILL@aol.com wrote:
>
>
> I went to the emergency room the end of July this year with sever
pain in the
> pit of my stomach (like a large ball was being inflated just below
my rib
> cage). My creatinine count was 6.4 and they did biopsy surgery
to discover I
> had IgAN.
I have had IgA officially since 1993 (confirmed by biopsy as mesangial
proliferative glomerulonephritis with preponderant IgA and extensive
glomerulosclerosis), but have had blood and protein in my urine since
1978 when I was 25. I am interested in Ron's comment about the stomach
pain feeling like a ball being inflated below the rib cage. I have had
that same sensation repeatedly for the past year, which seems to
coincide with the period when my high b.p. became severe and hard to
control. Neither I nor my doctors have ever associated this with the IgA
nephropathy. I have had extensive digestive tests and all were negative.
I would like to know if there is a connection between the type of
stomach pain Ron described and IgA, or was it just a coincidence that
they discovered he had IgA in addition to the pain?
From: John Hornung <locksmth@dialnet.net>
To: "'igan@majordomo.srv.ualberta.ca'" <igan@majordomo.srv.ualberta.ca>
Subject: RE: white blood count
Date: Sun, 15 Dec 1996 22:40:47 -0600
I don't know if this is common but the wife which was diagnosed last
October had and still has "heartburn" for 2 years preceeding
the diagnosis.
Anyone else have symptoms of Hiatial hernia?? sorry bout the spelling.
Just curious
From: RGeorge@hooked.net
To: igan@majordomo.srv.ualberta.ca
Date: Mon, 16 Dec 1996 13:52:21 +0000
Subject: tonsillectomy
I am looking into the tonsillectomy story further and have found that
frequently childhood tonsillectomies are not very complete. Some
tonsillar tissue is often left behind. Some researchers looking into
tonsillectomy for IgAN recommend a tonsil adnenoidectomy which makes
certain no "tonsillar" tissue remains.
If any members of IgAN list have a chance maybe one day when your at
your doctors you might ask him/her to look at your throat and give an
opinion on how much if any "tonsillar" or adenoid tissue remains.
I'd
like to add this to my data so send me a note.
A new research project is starting up in the US that will look
specifically at tonsillectomy for IgAN. Preliminary reports suggest a
link to success being frequent "sore throats".
Russ George
Russ George
From: RONFILL@aol.com
Date: Mon, 16 Dec 1996 19:53:41 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
aviso
The only reason I went to the emergency room was because of the stomach
pains. I had no other symptoms that would indicate any kind of kidney
problem but I also had sever headaches. I had been to the Dr. for
the third
time on the day before I went to the hospital. The night before I
went to
the emergency room, he had sent me in to have a CAT scan. I think
the dye
they shot in me to do this is what set off my kidney problem. At
first, my
family Dr. thought I had sinus headaches and ulcers. I had nothing
else that
would indicate kkidney problems. I was amazed when they told me what
I had.
I had a physical in December and my creatinine count was good at that time.
I still have stomach aches.
regards
Ron
Date: Mon, 16 Dec 1996 20:43:09 -0500
From: "aviso.comm@sympatico.ca" <aviso.comm@sympatico.ca>
Organization: Aviso Communications
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
RONFILL@aol.com wrote:
> (...)
> I still have stomach aches.
>
>
>
> Hi Ron.
Thanks for your reply. Do they attribute the stomach pains with the IgA
nephropathy?
Pierre (aviso is my company name)
Date: Tue, 17 Dec 1996 19:28:59 GMT
To: igan@majordomo.srv.ualberta.ca
From: "Vogtmann's" <vfam@globalnet.co.uk>
Subject: RE: white blood count
At 10:40 PM 12/15/96 -0600, you wrote:
>I don't know if this is common but the wife which was diagnosed last
>October had and still has "heartburn" for 2 years preceeding
the diagnosis.
> Anyone else have symptoms of Hiatial hernia?? sorry bout the
spelling.
> Just curious
>
I have had IgAN "officially" for about 2 years, the same period
that my
heartburn symptoms were getting bad enough to get them checked out too.
I
have to believe that it is actually a coincidence, I am getting older,
but
then you asked. I had a "barium" x-ray diagnosis(I drank something
and the
misfunction of the esophegeal sphincter muscle was observed on x-ray).
I
have some acid control drugs but almost never take them. I have few symptoms
as long as I avoid laying down right after eating.
Bill
From: Smustard@aol.com
Date: Tue, 17 Dec 1996 16:48:17 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: an IgAN chat!
Dear Mower,
I would really be interested in a chat line. Count me in!!!
Southern Sal
From: Smustard@aol.com
Date: Tue, 17 Dec 1996 20:43:09 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
Dear Locksmth
Ihave terrible stomach problems both upper and lower. I take drugs
for my
heart burn (the max). I do have the symptoms of a Hiatial hernia.
These
stomach problems have been giving me problems since the early 70's which
is
when I was first looked at for kidney disease. They did not do
a biopsy
then. This was also before IGA was discovered as a disease.
I was finally
diagnosed in '82. at this point in my life they think that
I have had this
for about 30 years.
That is about how long I have had stomach troubles. I did not go
to anyone
about the colon until about 10 years ago. I have not gone to anyone
for the
upper problems. I hate to have yet another thing wrong with me.
It is
embarrassing to go to another doctor and have to go through the list.
I
always get the 'look'.
Anyway I get terrable stomach aches, and yes I have IGA. The last
time I
went to my kidney man, he said that my creatnine was 2.0. How much
Kidney
function is that? Sometimes I'm scared to ask.
Southern Sal
From: BillTM@aol.com
Date: Tue, 17 Dec 1996 23:28:11 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: an IgAN chat!
Hi Mower,
The IGA chat sounds like a real interesting idea! So yes
count me in as
well. Thanks for suggesting it.
Bill
Date: Wed, 18 Dec 1996 22:38:14 -0600
From: Don Schulze <dschulze@essex1.com>
To: igan@majordomo.srv.ualberta.ca
Subject: pregnancy
has anyone received a message about pregnancy before, I have sent two emails
in the past two weeks with no response at all. If anything just let me
know
if anyone has received them.
From: Mingder@aol.com
Date: Wed, 18 Dec 1996 23:47:50 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: questions and news
Beside renal biopsy, is there another way to verify IgAN?
Does anyone have more information on Osteogenic proteins-1 (OP-1)?
"Preliminary data from Creative BioMolecules, Inc. (Hopkinton, MA)
show that
OP-1 restores renal function in an animal model. This indicates that the
protein has potential for treating both acute and chronic real failure
in
humans."
"Creative BioMolecules is developing OP-1 to stimulate bone growth
in
orthopedic patients. The protein is involved in the formation of the kidney
duringembryonic development."
How can one determine if he or she is salt sensitive?
For taking fish oil, which brand is better? how to take them?
There are some new information on IgA Naphropathy on http://www.medtext.com/
ccgnga.htlm.
Date: Thu, 19 Dec 1996 06:35:32 -0500 (EST)
From: Marc Davis <mdavis@infi.net>
To: Don Schulze <dschulze@essex1.com>
cc: igan@majordomo.srv.ualberta.ca
Subject: Re: pregnancy
No, never saw it. Sharon Davis
-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-
Marc Davis Legal reporter : Just my opinion,
of course.
The Virginian-Pilot
: mdavis@infi.net
P.O. Box 449, Norfolk, Va. 23501 :
On Wed, 18 Dec 1996, Don Schulze wrote:
> has anyone received a message about pregnancy before, I have sent
two emails
> in the past two weeks with no response at all. If anything just let
me know
> if anyone has received them.
>
Date: Thu, 19 Dec 1996 07:55:26 -0500
From: Martha Grove <martha.grove@arch1.nara.gov>
To: igan@majordomo.srv.ualberta.ca
Subject: pregnancy -Reply
Don-- I
have not received any messages in the past two weeks regarding
pregnancy.
Martha
>>> Don Schulze <dschulze@essex1.com> 12/18/96 11:38pm >>>
has anyone received a message about pregnancy before, I have sent
two emails in the past two weeks with no response at all. If anything
just let me know if anyone has received them.
From: John Hornung <locksmth@dialnet.net>
To: "'igan@majordomo.srv.ualberta.ca'" <igan@majordomo.srv.ualberta.ca>
Subject: salt
Date: Thu, 19 Dec 1996 09:21:55 -0600
my doctor said to lay off all the salt you could for 2 weeks to a month.
watch ALL the foods you eat and cut everything out you can. if you
blood
pressure goes down, you are probably not wanting to add any salt to your
diet. at the end of this period of time, go back to your regular
eating
habits. if your BP goes up on the average afte adding salt, you are
one of
those that can't have it. have fun on your "new diet" then.
John
Date: Thu, 19 Dec 1996 15:25:19 -0600
To: igan@majordomo.srv.ualberta.ca
From: Rachel Browne <dbrowne@eden.com>
Subject: Re: pregnancy
Try again, Don. I asked questions about pregnancy and IgAN when I
first
signed on and I have some good information. (BTW, I am now pregnant
with
triplets!! :-) Waiting to see what my nephrologist has to say
about that!!)
Good luck!
Rachel Browne
At 10:38 PM 12/18/96 -0600, you wrote:
>has anyone received a message about pregnancy before, I have sent two
emails
>in the past two weeks with no response at all. If anything just let
me know
>if anyone has received them.
>
--------------------------------------------------------------------------
Date: 19 Dec 1996 17:29:47 -0400
From: "Sheldon Meth" <Sheldon_Meth@cpqm.mail.saic.com>
Subject: Re: pregnancy
To: igan@majordomo.srv.ualberta.ca
<<BTW, I am now pregnant with triplets!! :-) Waiting
to see what my
nephrologist has to say about that!!) >>
WOW!! Good luck, Rachel Browne.
A very good friend of mine has triplets; they're now 16 years old and doing
fine, together with their 4 other sibs. The parents, OTOH, were a
lot more
restful 16 years ago than they are now. (:-)
- Sheldon
Date: Fri, 20 Dec 1996 21:00:51 -0600
From: Don Schulze <dschulze@essex1.com>
To: igan@majordomo.srv.ualberta.ca
Subject: Re: pregnancy
Rachel Browne wrote:
>
> Try again, Don. I asked questions about pregnancy and IgAN when
I first
> signed on and I have some good information. (BTW, I am now pregnant
with
> triplets!! :-) Waiting to see what my nephrologist has
to say about that!!)
>
> Good luck!
>
> Rachel Browne
>
> At 10:38 PM 12/18/96 -0600, you wrote:
> >has anyone received a message about pregnancy before, I have sent
two emails
> >in the past two weeks with no response at all. If anything just
let me know
> >if anyone has received them.
> >Rachel thanks for the comments. I would like to here all that
you found out
about pregnancy and the effects it has had on you. Have you heard anything
about the possibility of IgaN being passed on to offspring.
We feel pretty confident about having children since my wife has had no
symptoms of IgaN for two and one half years. Still before jumping in, we
are
looking for some sound advise. Good or Bad.
Don
Date: Sat, 21 Dec 1996 10:30:33 -0600
To: igan@majordomo.srv.ualberta.ca
From: Rachel Browne <dbrowne@eden.com>
Subject: Re: pregnancy
Hi Don,
Well, it is kind of hard to tell you everything I know about IgAN and
pregnancy, but I will do my best. If you have any further questions,
ask
and I will see what I can tell you.
First, you should probably be aware that certain bp medications may affect
fertility (have been shown to in rats) and many definitely will affect
the
fetus. My doc recommends Methydopa/Aldomet as having had the most
experience during pregnancy and having the least negative affects.
I
believe Hydrazalyne is next. ACE inhibitors are *not* recommended
during
pregnancy and should be discontinued before the 2nd trimester begins in
order to prevent harm to the fetus. Beta blockers can cause intrauterine
growth retardation and should be avoided if possible. Some calcium
channel
blockers have caused fetal death in mice.
Fertility is not usually affected by IgAN unless creatinine clearance is
abnormal.
There is some risk of further kidney damage during pregnancy if creatinine
clearance is abnormal.
There is an increased risk of developing pre-eclampsia. Having IgAN
makes
your pregnancy a high-risk pregnancy.
So far I have not had any difficulties, but I am only 10 1/2 weeks along.
Good luck!
Rachel Browne
At 09:00 PM 12/20/96 -0600, you wrote:
>Rachel Browne wrote:
>>
>> Try again, Don. I asked questions about pregnancy and IgAN
when I first
>> signed on and I have some good information. (BTW, I am now
pregnant with
>> triplets!! :-) Waiting to see what my nephrologist
has to say about that!!)
>>
>> Good luck!
>>
>> Rachel Browne
>>
>> At 10:38 PM 12/18/96 -0600, you wrote:
>> >has anyone received a message about pregnancy before, I have
sent two emails
>> >in the past two weeks with no response at all. If anything
just let me know
>> >if anyone has received them.
>> >Rachel thanks for the comments. I would like to here all that
you found out
>about pregnancy and the effects it has had on you. Have you heard anything
>about the possibility of IgaN being passed on to offspring.
>We feel pretty confident about having children since my wife has had
no
>symptoms of IgaN for two and one half years. Still before jumping in,
we are
>looking for some sound advise. Good or Bad.
>
>Don
>
Date: Sun, 22 Dec 1996 10:23:48 -0500
From: ALPRESLAND@aol.com
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
These recent comments about severe chest/stomach pain are interesting.
I've
been suffering from something similar for the last few months, although
I've
had IGA for several years. Russ, do you know of any connection, as it seems
there are a few of us suffering with something similar? Incidently, I find
the pains are less severe if I do not take my MaxEPA capsules. What a
dilemma!
Whilst writing, does anyone know how to access previous mails? I've been
offline for a few months and urgently want to catch up.
Allan
Oxford, England
From: "Russ George" <rgeorge@hooked.net>
To: igan@majordomo.srv.ualberta.ca
Date: Sun, 22 Dec 1996 09:14:24 +0000
Subject: Re: white blood count
I have been watching with interest the reports of a common
chest/stomach pain. I don't have anything that suggests this is
common to IgAN, but these reports may suggest that. This is one of
the useful research aspects of this IgAN list. Via this wonderful
global virtual community we can share our experience and create some
collective wisdom.
About the past mailings to this list. I have been swamped with other
work for many months and have not gotten around to learning how to
set up a digest and mail file using the majordomo server software.
I'll try to find time to do this over the holidays. Maybe there is a
majordomo expert listening who can help (hint).
Merry Christmas to all
Russ George
From: RONFILL@aol.com
Date: Sun, 22 Dec 1996 18:33:06 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: white blood count
ALLAN,
I was just diagnosed with IgAN last July. Severe stomach pains was
the
reason I went to the emergency room. I still have some stomach pains,
its
like a bubble that feels about the size of a softball in the pit of my
stomach just below my rib cage.
Also, to everyone else. I have had trouble the past few weeks with
the
E-Mail on my computer and lost some of my mail and was not able to answer
some of the things I wanted to -- SORRY!!
Happy Holidays to Everyone
Regards
RON
Wichita, Ks. USA
Date: Mon, 23 Dec 96 05:24:05 UT
From: "Stephen Moy" <moybier@msn.com>
To: igan@majordomo.srv.ualberta.ca
Subject: RE: an IgAN chat!
i'm interested.
moybier
----------
From: owner-igan@majordomo.srv.ualberta.ca on behalf of Dutch
Sent: Sunday, December 15, 1996 5:19 PM
To: igan@majordomo.srv.ualberta.ca
Subject: an IgAN chat!
* * * * * * * * GREAT IDEA * * * * * * * * * * * * *
A very nice man by the name of Bill Jennings just responded to my page
with
a wonderful idea for an IgAN chat, an interactive, live way to "talk"
to
each other. What do you think, everyone? Would you use it if it was there?
It could be like a forum, with Qs & As, with some of the docs if they
wanted
to. Or it could be just open, like a support sort of thing. If we really
wanted to keep it IgAN related we could set up a password system and publish
the password on this listserv.
There are places all over the web that will set up chats like this for
nonprofit groups. If someone wants to scout around I'm sure it wouldn't
be
hard to find one. We don't even need it to be up 24-7, it could meet once
a
week perhaps. I'm really excited about this idea.
Hmmmm... this could get icky if everyone sends messages to the group just
saying "Yes, do it" or "Don't do it". So how about
mailing me if you just
want to say you'd like it or not and save the mailing list messages for
if
you have additional ideas. Sound okay?
Well, it's up to you guys.. have fun!
Mower
http://www.oocities.org/SoHo/2784
From: Smustard@aol.com
Date: Tue, 24 Dec 1996 06:24:23 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: MerryChristmas!!!
Hello everyone-
It's been wonderful reading all of this discussion about IGA. I feel
as
though I am not alone in this disease. Thank goodness for this form
of
communication. I wish each and every one of you a healthy and Merry
Christmas.
Southern Sal
From: RONFILL@aol.com
Date: Tue, 24 Dec 1996 13:31:33 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Merry Christmas!!!
Thanks Sal,
Merry Christmas to you and everyone!!! Its dreadful having this disease,
but
its great to be able to communicate with such a wonderful group of people.
God Bless Everyone and have a Happy Holiday.
Ron
From: BillTM@aol.com
Date: Tue, 24 Dec 1996 17:18:39 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Merry Christmas!!!
To All A Very Merry Christmas, and a HEALTHY New Year!!! And may we be
blessed with more wonderful efforts like Russs and also with each other's
company through the new year thanks to Russ. Bill
From: EricDLiz@aol.com
Date: Thu, 26 Dec 1996 21:02:32 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: RE: an IgAN chat!
i would be interested. e.d.
Date: Fri, 27 Dec 1996 22:13:57 +0800
To: igan@majordomo.srv.ualberta.ca
From: nctkong@pc.jaring.my (Norella Kong)
Subject: Re: Anti-hypertensive medications
>Do I understand this correctly? ACE Inhibitors cause coughing?
>
>My wife is on an ACE inhibitor (Lisinopril), and also Atenelol, and
>diltizem. Although her bp is under control, she has developed a dry
cough
>that is keeping her up at night. The doctor originally prescribed
some cold
>medicine, but she stopped taking it because it didn't do any good and
also,
>she didn't really feel as though she had a cold.
>
>If the cough is caused by the ACEI, does anyone have any suggestions
of how
>to resolve it, or is the solution to get the doctor to change the meds
to
>something else.
>
>BTW, I echo Becky's comments to you Dr. Tucker. Thank you.
I get a lot out
>of your posts and am thankful there is a professional out there willing
to
>take the time for this forum.
>
>Darril
>
>
>
Hello Darril,
Yes, ACE-inhibitors can cause quite a distressing dry hacking cough in
certain predisposed individuals. In fact, Asians appear to be particularly
susceptible with a reported incidence rate of about 20% which reflects
my
own experience.
Unfotunately, the patient will have to come off the medication especially
if
on high dose. After several months, the doctor may retry starting it at
a
lower dose and leave it at that dose. However, this does not always work.
There are some reports to suggest that certain other medications may be
able
to reduce or eliminate the cough but most doctors do not believe this is
justified.
Cheers,
Norella Kong MD
Date: Sat, 28 Dec 1996 08:21:33 +0900
To: igan@majordomo.srv.ualberta.ca
From: "Darril R. Gibson" <gibsond@kic.or.jp>
Subject: Re: Anti-hypertensive medications
Norella,
Thanks for the info. Under the doctor's direction, my wife (an Asian)
stopped taking lisinopril on 3 December to see if it was causing the cough.
She started taking Cuasar (recommended on this list) in place of it about
two weeks ago.
I thought that if the lisinopril was causing the cough, it would stop within
a week after she stopped taking it. However, after almost a month,
she
still has it, though significantly reduced. She finds it most troubling
at
night when she's almost asleep and she feels a "tickle" in her
throat that
causes he to cough.
She is on other meds (Cardizem, phoslo, and fish oil) and I'm wondering
if
something else could be causing the cough, or if she is just having residual
effects from the lisinopril which will wear off eventually.
Happy Holidays.
Darril
At 10:13 PM 12/27/96 +0800, you wrote:
>Hello Darril,
>
>Yes, ACE-inhibitors can cause quite a distressing dry hacking cough
in
>certain predisposed individuals. In fact, Asians appear to be particularly
>susceptible with a reported incidence rate of about 20% which reflects
my
>own experience.
>
>Unfotunately, the patient will have to come off the medication especially
if
>on high dose. After several months, the doctor may retry starting it
at a
>lower dose and leave it at that dose. However, this does not always
work.
>
>There are some reports to suggest that certain other medications may
be able
>to reduce or eliminate the cough but most doctors do not believe this
is
>justified.
>
>Cheers,
>
>Norella Kong MD
From: RONFILL@aol.com
Date: Fri, 27 Dec 1996 19:23:59 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Anti-hypertensive medications
Darril,
I also have a dry throat type of "tickle" cough. It started
after my Dr.
started me on Vasotec for high blood pressure. I only take 5 mg,
twice a
day. I think this is what started my dry throat coughing. Sometimes
I suck
on a Halls throat drop and it helps some, especially just before going
to
bed. I don't know for sure that the BP medication is causing it,
but I
didn't have it before the medicine. I'm going to continue taking
it for some
time and see if the cough continues. The only other medicine I take
is
Prednisone.
Regards,
Ron
From: Smustard@aol.com
Date: Sat, 28 Dec 1996 10:53:21 -0500
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Anti-hypertensive medications
Hello!
I was also on ACE inhibiters and developed the caugh. I was told
that it was
a side effect and was taken off of them. I have had a terrable time
getting
a BP med that agrees with me. One gave me tremendous headacks and
another
upset my colon. The one I take now does swell my hands and feet somewhat
but
agrees with the rest of me. I dont know what i will do when I have
to take a
stronger dose.
southern Sal
Date: Sun, 29 Dec 1996 19:04:30 -0330 (NST)
From: "Margaret A. Hammond" <mhammond@calvin.stemnet.nf.ca>
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Anti-hypertensive medications
Hi!
Just joined this site recently. I have been diagnosed with "Berger's"
disease since 1984 after a bout with Legionnaire's. Because of a
bad
experience at that time with a lung biopsy I have not consented to a
kidney biopsy but my nephrologist says there has been no change in my
condition since 1984. A slight elevation in bp 150/90 had my doctor
put
me on Atenelol 2 yrs ago and since then I also have experienced a terrible
dry
cough at night. Have gone the limit on allergy tests, an upper GI
showed
slight reflux but I do not have any significant heartburn as is usually
associated with reflux. However the cough is almost nil now that
I have
elevated the head of my bed (box spring, mattress, husband and all) by
about 6 inches. It is interesting that so many experience this dry
cough.
I am unable to sing for any length of time as the "tickle" intefers.
I find this site very informative.
Merry Christmas from Nfld. Canada
Marg Hammond
Date: Mon, 30 Dec 1996 16:48:33 +0800
To: igan@majordomo.srv.ualberta.ca
From: nctkong@pc.jaring.my (Norella Kong)
Subject: Re: Anti-hypertensive medications
>Norella,
>
>Thanks for the info. Under the doctor's direction, my wife (an
Asian)
>stopped taking lisinopril on 3 December to see if it was causing the
cough.
>She started taking Cuasar (recommended on this list) in place of it
about
>two weeks ago.
>
>I thought that if the lisinopril was causing the cough, it would stop
within
>a week after she stopped taking it. However, after almost a month,
she
>still has it, though significantly reduced. She finds it most
troubling at
>night when she's almost asleep and she feels a "tickle" in
her throat that
>causes he to cough.
>
>She is on other meds (Cardizem, phoslo, and fish oil) and I'm wondering
if
>something else could be causing the cough, or if she is just having
residual
>effects from the lisinopril which will wear off eventually.
>
>Happy Holidays.
>
>Darril
>
>
>At 10:13 PM 12/27/96 +0800, you wrote:
>>Hello Darril,
>>
>>Yes, ACE-inhibitors can cause quite a distressing dry hacking cough
in
>>certain predisposed individuals. In fact, Asians appear to be particularly
>>susceptible with a reported incidence rate of about 20% which reflects
my
>>own experience.
>>
>>Unfotunately, the patient will have to come off the medication
especially if
>>on high dose. After several months, the doctor may retry starting
it at a
>>lower dose and leave it at that dose. However, this does not always
work.
>>
>>There are some reports to suggest that certain other medications
may be able
>>to reduce or eliminate the cough but most doctors do not believe
this is
>>justified.
>>
>>Cheers,
>>
>>Norella Kong MD
>
>
>
Dear Darill,
I do not know what Cuasar stands for as it is a brand name and these differ
in different countries.
You should consult your wife's nephrologist to check whether it is an ACE-I.
If not, then he/she may wish to look for another cause.
Happy 1997!
Norella, MD To: "'igan@majordomo.srv.ualberta.ca'"
<igan@majordomo.srv.ualberta.ca>
Subject: RE: Anti-hypertensive medications
Date: Mon, 30 Dec 1996 11:52:28 -0500
I was told by my nephrologist that the ACE inhibitors may cause a dry =
cough. I am on 20mg/day of the ACE inhibitor but have yet to develop
=
the cough. It has helped to reduce the proteinuria. I also
make a =
point to drink at least 8 twelve ounce glasses of water per day.=20
George
----------
From: RONFILL@aol.com[SMTP:RONFILL@aol.com]
Sent: Friday, December 27, 1996 7:23 PM
To: igan@majordomo.srv.ualberta.ca
Subject: Re: Anti-hypertensive medications
Darril,
I also have a dry throat type of "tickle" cough. It started
after my Dr. started me on Vasotec for
high blood pressure. I only take 5 mg, twice a day. I
think this is what started my dry throat
coughing. Sometimes I suck on a Halls throat drop and it helps
some, especially just before
going to bed. I don't know for sure that the BP medication
is causing it, but I didn't have it
before the medicine. I'm going to continue taking it for some time
and see if the cough continues.
The only other medicine I take is Prednisone.
Regards,
Ron
Date: Mon, 30 Dec 1996 23:29:33 -0800 (PST)
To: igan@majordomo.srv.ualberta.ca
From: Nancy Lee <windward@windward1.com>
Subject: Re: Anti-hypertensive medications
I just joined this new group and I am really glad that I did! I am also a
asian (Chinese) female with a dry cough that I believe is from the ACE
inhibitor I've been taking. I brought this up with my previous doctors
at UCSF and they disregarded my concern so I assumed it was probably nothing.
I am glad to know now that I am not imagining things.
I have had a dry cough for about seven years since I started taking the
ACE inhibitor, captopril. At that time, the only other med I took was
lasix. Since then, I've switched to benazapril and my dry cough has been
less frequent. However, I still get it occasionally especially before bed -
it is usually a tickle in my throat.
I noticed in Darril's email that his wife is taking fish oil. How is that
going? I've tried taking fish oil but find that it leaves a strong odor.
Also, has anyone tried alternative medicine? I've used Chinese herbs and
some acupuncture for quite a few years now for overall health conditioning.
Would like to hear about some people's experiences.
happy holidays,
nancy
At 04:48 PM 12/30/96 +0800, you wrote:
>>Norella,
>>
>>Thanks for the info. Under the doctor's direction, my wife (an Asian)
>>stopped taking lisinopril on 3 December to see if it was causing the cough.
>>She started taking Cuasar (recommended on this list) in place of it about
>>two weeks ago.
>>
>>I thought that if the lisinopril was causing the cough, it would stop within
>>a week after she stopped taking it. However, after almost a month, she
>>still has it, though significantly reduced. She finds it most troubling at
>>night when she's almost asleep and she feels a "tickle" in her throat that
>>causes he to cough.
>>
>>She is on other meds (Cardizem, phoslo, and fish oil) and I'm wondering if
>>something else could be causing the cough, or if she is just having residual
>>effects from the lisinopril which will wear off eventually.
>>
>>Happy Holidays.
>>
>>Darril
>>
>>
>>At 10:13 PM 12/27/96 +0800, you wrote:
>>>Hello Darril,
>>>
>>>Yes, ACE-inhibitors can cause quite a distressing dry hacking cough in
>>>certain predisposed individuals. In fact, Asians appear to be particularly
>>>susceptible with a reported incidence rate of about 20% which reflects my
>>>own experience.
>>>
>>>Unfotunately, the patient will have to come off the medication especially if
>>>on high dose. After several months, the doctor may retry starting it at a
>>>lower dose and leave it at that dose. However, this does not always work.
>>>
>>>There are some reports to suggest that certain other medications may be able
>>>to reduce or eliminate the cough but most doctors do not believe this is
>>>justified.
>>>
>>>Cheers,
>>>
>>>Norella Kong MD
>>
>>
>>
>Dear Darill,
>
>I do not know what Cuasar stands for as it is a brand name and these differ
>in different countries.
>
>You should consult your wife's nephrologist to check whether it is an ACE-I.
>If not, then he/she may wish to look for another cause.
>
>Happy 1997!
>
>Norella, MD
From: jurgen.hesse@deepcove.bc.ca
Date: Tue, 31 Dec 96 09:46:29 -0800
Subject: autoimmune
To: igan@majordomo.srv.ualberta.ca
Hello, all:
As the year is about to turn, let me relegate some good news for all you
reading this newsgroup. I presume all, or most, of you are afflicted with IgAN
or another autoimmune disease. I myself have had glomerulonephritis and
diabetes Type II since the mid-1980s. GN is, of course, another autoimmune
variant.
Why I am writing to you today is that I have discovered, by sheer accident, a
medical savant by the name of Dr. Andrew Weil (his latest book is "Spontaneous
Healing"). Dr. Weil is a Harvard-trained MD but expanded into alternative
medicine. His suggestions for cure are staggering in their impact. More to come.
First my background. I am a professional life-long writer with a keen interest
in medicine, especially when it concerns my well-being. I have just finished
writing a booklet, "Chronicle of an Illness," which details my personal case
history. The idea is for others to read this 50-page booklet and garner some
insight into their own affliction(s).
While still researching the medical aspects of this case history I came across
Dr. Weil, who changed my outlook on alternative medicine. Up till then,
mid-November, 1996, I had been rather overly cautious. He removed my last
doubts that, when allopathic medicine fails us (as it does when it comes to
autoimmune diseases), alternative medicine comes to the rescue. How many of you
have heard your GP or nephrologist, et al., say that your case of autoimmune
disease is "progressive and irreversible?" Right.
Do not believe them! There is a good chance that you can either a) cure your
autoimmune disease, or at least b) bring it to permanent-remission status.
The magic word is INTERACTIVE GUIDED IMAGERY therapy. If you want to know more
about it, do some Internet research. U"sing the "altavista" search engine, type
in "guided imagery" and find out about this magnificent tool. In the New Year I
will seek out a guided imagery practitioner, probably in Seattle (I live in
Vancouver, B.C., and strangely enough we do not have a single practitioner
here, alas!).
I will report to you all about the procedure and its efficacy afterwards. I
hope it will be good new for all of you.
Regards,
Jurgen Hesse
Thinkware Publishers
Vancouver, B.C.
Date: 31 Dec 96 23:35:57 EST
From: "steven b. tucker" <70554.645@compuserve.com>
To: "INTERNET:jurgen.hesse@deepcove.bc.ca" <jurgen.hesse@deepcove.bc.ca>
Cc: IGAN list <igan@majordomo.srv.ualberta.ca>
Subject: Re: autoimmune
<<<I presume all, or most, of you are afflicted with IgAN
or another autoimmune disease.>>>
Please be appraised that IgAN is not an autoimmune disease nor for that matter
are most forms of GN.(lupis and Goodpasture's certainly are but make up a
minority of the cases of GN.
<<<<Do not believe them! There is a good chance that you can either a) cure your
autoimmune disease, or at least b) bring it to permanent-remission status.>>>>
Don't we wish these statements were true. However, unfortunately there is no
data supporting the above claims.
Respectfully,
Steven B.Tucker,MD,FACP
Anchorage,AK
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