4 CROUCH COURT DONCASTER
VICTORIA 3108.
TEL. 03 98485745
"Beckwith-Wiedemann and Related Disorders Victoria" is a contact and information point set up by a parent whose background is in paediatric nursing. Its aim is to offer parents new to Beckwith-Wiedemann Syndrome, particularly those living in Victoria Australia, with information on this uncommon disorder and with links to local resources. Some parents also welcome the opportunity to meet with another family similarly affected and this can also be arranged.
As the medical issues surrounding Simpson-Golabi-Behmel Syndrome and Isolated Hemihyperplasia are similar to those of BWS, parents of children with these disorders may also benefit from using this contact point.
An information pack for parents new to BWS is now available from the address above. A contribution of $10.00 AUD ($5.00 Concession Card holders) is requested to assist with the costs of reproducing the package for the next family needing one. Cheques are payable to PF & BP FEARON.
Telephone contact from families is always welcome at the number above.
Brenda Lawless Fearon
Updated: 1st October 2004
