"We think she has Down syndrome," your mom had said,
and for a moment then my thoughts went dead.
It was apparent then, something weird lay ahead,
I couldn't figure out why they told me to find a new job instead.
"So, Down syndrome is this," everyone thought they knew,
without even seeing and touching tiny you.
Before you arrived, all were ready, or so we thought,
In awe people watched, for through surgery you fought.
When we first met, I could see for myself,
a fold at your eyes, it said so in the books upon my shelf.
More time in my arms, only a baby I could see,
where was your Down syndrome, what was happening to me ?
Inside your chest, how mean can G-d be,
a heart he gave you, that took you from me.
A funeral for you, something weird indeed,
you left me grieving and so badly in need.
For that time I missed that nothing was taken away,
something in my soul, from you there it would lay.
For your gift there is not a word I can indicate,
it set me out to change anyone I could locate.
And in doing this, what a challenge you set me out for,
sometimes I would wonder if I can handle what's behind the next door.
At first, they watched me, thinking I was too young to take proper care,
and now they were saying I should speak of how your no longer here.
But leaving me, was something you never did,
to see you through me, one doesn't need to dig.