Our Hirschprungs Baby
Kevin was born in 1993 in Welland, Ontario. 
My pregnancy was perfectly wonderful, but as soon as labour started things went down hill.
Labour went a total of 36 hours ending with an emergency C-section.  The doctor we had was, lets say, not the best.  It was finally the nurse (that was on her second shift with us.  We saw alot of nurses in over 30 hrs.)  that told the doctor that something had to be done because this baby was in distress.  My water had broke about 30 hours before delivery and that was not a good thing either. 
After Kevin was delivered everything was fine for about 24 hours, or so we thought.  I never nursed him in that time so I suspect they knew something was wrong.  I was a little bit out of touch.( Still feeling the effects of the surgery)  Kevin never had his first poop and started spitting up yellow foamy stuff.  The day after he was born they told us that something was wrong and that it might be meningitis.  They called in the air ambulance to take him to a larger hospital 48 hours after he was born.  That was the worst moment of my life to that point.  The picture of him in the incubator is what I saw being wheeled away from me.  The Dr. from McMaster Medical center was fantastic.  He called me with every detail as they tested Kevin.  Dave and his mom went to the next hospital that day.  I was still in no shape to go in the car for a 45 minute drive.  On the second day there they discovered that Kevin had
HIRSCHPRUNGS disease.   This is a bowel disease that can be inherited.  Basically it is the lack of nerve ending in a section of the bowel by the rectum.  Without these nerves, the bowel rectum won't open and close because there is no feeling.  That is the long and short of it.  At 5 days old Kevin had his first surgery.  They cut out the bad section of bowel and pulled a segment of bowl of of his stomach and he had a colostomy bag.  He then had another surgery at 6 months old and his colostomy was moved to his navel.  At nine months he had his final surgery and everything was put back together.  You have never seen two parents sooooo excited to see their child poop properly in all your life.  We called everyone. 
Kevin has continue to struggle with bowl problems.  Some incontinence, but that has much improved and I can actually seen the end of this tunnel. 
About 8 months ago we discovered that Kevin was
Fructose Intolerant.  This is very similar to lactose intolerance but with the natural sugars produced by fruit.  It is much more rare that lactose intolerance as well.  If Kevin has any of these sugars he gets terrible stomache aches.  But he is learning what causes problems and what doesn't. Well that is it in a nut shell. 
If you have any questions feel free to ask me.
Kevin's
Room
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