I had gone back to Doctor Petersen because, after the surgery
on the 26th, I was so sore I could hardly move. Every part of
me hurt. I had also twisted myself by trying to get away
from my right breast. When Dr. Ramsey was putting in
probes they were saying: Don’t look, don’t look. (If I had
looked, I would have changed position of the probe but I
took them at their word and still had not looked.)
Dr. Petersen made the pain go away. He also suggested
that he thought I might have an allergy to the mixture of the
anesthesia and to tell the doctor this before the next surgery
set up for April 4. I would also like to say that it was he
who suggested that I go on an alkaline diet. He gave me a
copy of the alkaline foods. This explains why I wake up
dreaming of eating green pizza.
On Wednesday April 4, I was filling out forms again at
short stay surgery. (We have learned to zero the forms,
leaving off the date and just hand in a prefilled-in form.)
At 2:30, I am talking to Dr. Joseph R Brown and James
Laursen. Dr. Brown was confronted with me and my
daughter Cassandra, and my daughter Diana who is an
attorney, and he looked at us and asked: Where is the cop? We
answered: Susan is in N.C. She tracks medicare fraud for the
Department of Insurance.
Now Nurse Cassandra had said: Mama everyone has pain
after anesthesia. But Dr. Brown and James Lausen listened
and changed the mixture. I stayed under longer but there
was no general body pain.
I went in to have a sentine l node biosopy and removal. I
had been told that if the sentinel node showed signs of
cancer that the lymph nodes under my right arm would be
stripped. This would also mean that the left arm should
never again have a blood pressure cuff put on it or any shot
of any kind given. I have seen many women with huge arms
filled with fluid and I confess to you that I was frightened.
I was also told that, if it is just the sentinel node, you will be out for
about 40 minutes. If the chicken fat nodes are stripped, it will be
about three hours. I came to and looked at the clock. It had been
three hours. I figured that I had had it. The nurse came by and
said: The sentinel node is clear.”
It was not, but that is what they thought at the time. Some
pathologist working overtime found one spot of cancer right
in the middle of the node. It was like a ballpoint pen prick.
I learned this from Dr. Thur de Koos on April 9. He had
already called and set up an appointment for April 18th with
Dr. Tabor in Ornocology.
Dr Taber had given our family the very best of care possible
when my husband Richter had pancreatic cancer in 1996, and I knew that
he would never use a treatment just to use a treatment. He
is a moralist, he sings and he is Jewish.
I write all of this because when I went to McLeod Blood
Clinic on the 18th, they put me in Dr. Lamb's room. Now
I know Dr. Lamb and he knows me. I suggested to him that I
was not going to have chemo from an ornocologist who did
not sing. He did not sing. He looked a little sad and said:
Well I wear ties like he wears. I said: It is a lovely tie. I
got moved.
The clinic's attitude was: Oh well it is only nine, first
mistake of the day.
Dr. Taber immediately takes five vials of blood from the right
arm. The arm that it would have been impossible to take
blood from if I had had all the nodes stripped and then
throws me a curve ball by announcing that he, his wife and
his three children were leaving this area for North Alabama
on the first of June.
Of course I could drive to Alabama but I want to be home.
So he assigned me to Dr. Tom Johnson.
I was bounced back to Dr. Thur de Koos on Friday 20. I
would like to write here that from the first day, he has been
encouraging one to do anything one wants to do. To swim,
to stay active. The first time he said that, I came home and
fired up the riding mower to find out if I had enough upper
body strength to mow. I did.
Today is May 31. My grandfather, Eugene Whitfield Dabbs,
died on this day in 1933. Yesterday was the anniversary
date of the death of my father,
James McBride Dabbs. He died in
1970.
Tuesday of this week the 29th was an awful day. I met Dr.
Tom Johnson live and in person for the first time. He
informed me that everything that had been done to date was
incorrect. He plans to change the chemo, do it more often.
He promises that I will lose my hair. He tells me to take no
vitamin C and no antioxidant. To stop taking the Tamoxifen.
He wants me to have additional surgery and have the lymph
nodes of my right arm stripped. He also sets up treatment
during the time that I thought I was in Scotland and Wales.
Dr. Taber had said earlier: Certainly we can work the
treatment around Scotland. I tell Dr. Johnson that I refuse
to have my right armpit knifed. Would he do this to his
mother?
Yes he would. Well I am not your mother. I take 2 grams
of Vitamin C a day. He says: So do I but I do not have breast cancer.
They set me up for some sort of heart scan that I will get
today to see if my heart is strong enough to stand what he
has in mind. Somehow I feel that my heart will let me
down on this one and I will be rewired this coming
Wednesday.
I left the office with Cassandra my daughter who had been
there and went downstairs and got into the car. I shut the
door. I wished I was dead.
I figured that was a little negative and drove off to Don
Garcia’s for coffee. He took one look at my face and
poured in the coffee, the sugar, the chocolate, the cinnimon
and the cream.
I stopped by Sally’s to pick up a rent check. She is 86. She
is a survivor of breast cancer. She had the check ready.
I went to the hairdresser's to get my hair cut just as short as
possible. Richard was in Missisippi. I will go back today.
Three of the women in there are cancer survivors and are
working away.
A long time friend Bob Lilly bought me a root beer float
from the ice cream parlor.
I went to Cassandra’s for supper. We had hotdogs. She is
trying to read and figure out what the new chemo will do.
I go home. I have trouble sleeping. Yesterday I went to
water aerobics and then to the funeral of a friend.
Howard was buried at Mountain Home, the Veterans
Administration cemetery in Johnson City.
There is something nice about a small town. I know where
my primary care doctor lives, out on Hunters Lake. I got to
his house and helped him carry in the groceries. He put on
the coffee, got orange juice and peanuts, and we went out on
the porch and listened to the wind and the birds.
He asked me to call Dr. Lamb, that Lamb would return my call
after hours and I could ask him about procedures. I have not
done that yet.
Oh yes. I called Dr. Thur De Koos' nurse assistant to find
out if the double port I had placed in my left shoulder had
metal in it. She answered: Some do and some don't, did I
have to have an MRI? I said not yet, but try to assess the
records and find out, that I could understand that while
Thur De Koos was in surgery he might not stop to read
the warranty but I needed to know. She said that it would
probably take a couple of days. I said: Thank you, do it.
Dr. Peterson had said that with deep heat therapy he could
improve my breathing but I had to have no metal. I asked
Dr. Johnson if he was familiar with this and did he have
any problems with it. He answered that he had no problems but
he felt that chiropractors should stick to bones and that all one
had to do to breathe was to keep breathing.
You know, at the moment I think how fortunate he is that I
did not kick him in the balls and make an attempt to strangle
him at the same time.
Hostility, anger and fear are not good emotions but
sometimes there is a great deal to be said for a burst of
cortisol.