• How can we begin to create 'community' for ourselves, as families?

• How can we build 'community' with our sons and daughters and our friends with disabilities?

• How can we retain control in as many aspects of our lives as possible -- including housing, relationships, and the supports that we call 'services'?

• How can we retain flexibility in our housing and support arrangements?

• How can we create contexts of neighborliness, understanding and acceptance in our living arrangements?

Many of the correspondents on the Our-Kids/Adults list have been developing practical responses to this set of inter-related questions for years -- working in such diverse areas as:

• creating circles of support and personal support networks

• individualized funding and direct funding arrangements

• 'self-determination' projects

• life-sharing and communal living projects

• individual home ownership

• co-housing and cooperative housing

This work has been influenced by a recognition of a common set of problems with traditional approaches to residential 'care' and subsidized housing. In these traditional arrangements it seems almost inevitable that:

• the people who are 'supported' are without power. Services, housing and financial arrangements are virtually always controlled by 'others' -- professionals, public decision-makers, bureaucrats, and direct service workers

• there is extremely limited flexibility in housing and service arrangements. Desirable changes are difficult to achieve, and undesirable conditions are difficult to change

• there is an extensive pattern of creating groups of individuals and families who are all struggling with the same problems of disability, economic and social instability, or social instability -- we are all aware of dysfunctional public housing 'communities' which are not communities at all

• there is a tendency to create solutions to poverty in the form of 'services' or 'projects' rather than in the form of financial supports which would create the basis for flexibility and self-determination (e.g. public housing rather than direct financial subsidies for rent or ownership)

Faye and I began work in this area in the early 1980's, experimenting with a variety of housing and support arrangements including cooperative housing, family- and consumer-directed services; micro-boards, and direct funding to individuals with disabilities, families, and support circles. The work wasn't *perfect* (if we were doing it over again, some things would be different), but each of the projects incorporated several important 'design principles' which we would definitely retain:

First, we followed a principle of separating the 'provision of housing' from the 'provision of services' -- making services flexible, portable, and distinctly separate from housing. Following this principle means that:

• people can relocate without losing their service supports

• people can change service providers without losing their homes or their 'place' in the community (think about what happens when someone comes into conflict with the service provider in a traditional 'group home' environment)

• people can make major changes in the amount or type of service support they require without being required to relocate (think about what happens when someone who lives in a traditional residential service requires twice as much, or half as much support, or when they want to explore a different kind of living arrangement)

Secondly, whenever we developed housing, we followed a principle of creating inclusive housing arrangements -- creating housing that would be attractive to, and would include, a majority of individuals and families without disabilities, financial or social challenges. Following this principle means that:

• the community includes people with a wide range of capacities, interests and connections (including connections to individuals, community associations, interest groups, and resources)

• the community is economically balanced -- some members are contributing full costs, and other members may receive financial assistance towards their housing costs -- but the community is not comprised entirely of members who depend on housing or financial subsidies. This makes the community-as-a-whole less dependent on the ebbs and flows of competing political and economic interests

• all members of the community are affected by common experiences, conditions and events -- this means that members who have never been affected by patterns of discrimination will find themselves in common cause with members who are likely to experience such treatment by the dominant society. When the community experiences external or internal stress, the stress is shared by people who are used to exercising power, and who are not easy 'targets' for oppression.

Thirdly, we have always worked in the direction of individual, shared, or cooperative homeownership, creating stability for the community and its members, and conferring positive status on all members.

• home ownership helps to meet the principles of self-governance, flexibility, separation of housing and services, and separation of housing from financial subsidy (even the rental of individual or shared accommodations increases flexibility, compared with living in program-controlled housing)

• cooperative ownership allows the creation of a community of shared interest and responsibility, and supports equal status and self-governance among members

Fourth, we have always worked to establish democratic governance and control, shared equally by all community members, which avoids the typical status differences between social service (or social housing) 'governors' and 'consumers' or 'recipients'.

We would always recommend that plans for multiple housing projects be adapted to include a majority of community members without disabilities.

We would always recommend that in the search for affordable housing, we explore sources of direct financial subsidy, in contrast to 'public housing' solutions.

Some resources:

• explore inclusive cooperative housing development (start with http://www.cooperative.org/housing.cfm )

• explore inclusive co-housing development (start with http://www.cohousing.org )

• explore self-determination projects (start with http://www.ici.coled.umn.edu/ici/rtc/rq98/13-01.html )

• explore individualized funding and direct funding (start with http://www.cls-bc.org/funding.htm )

• explore individual home ownership (e.g. the national Home of Your Own project) (start with http://iod.unh.edu/projects/nh.htm )

• explore micro-boards, service cooperatives and alternative forms of governing services (start with http://www.microboard.org )

Dave Wetherow
Parksville, BC

Tel: (250) 248-2531
Fax: (250) 248-2685
ICQ: 23171891
wetherow@bcsupernet.com
http://www.bcsupernet.com/users/wetherow/cfpath