The Quest!
"MARK!", Kevin announces, stressing
the letter "K" in Mark. "Yeah?" he replies back, over the phone. "Ya
know who this is?" , "No!" Mark responds
sarcastically. "Wanna play a thousand guesses? " Kevin asks
playfully. "Not really! It's 12:30
in the morning! Mark explains. "I know. I'm sorry, it's Kevin, Mark, Kevin
from
Germany! Remember?". "Kevin!" Mark
yells through the phone! "WE WERE just TALKING about YOU my
friend!, and our days in Germany, to
our kids last week! Hooooly Cooow!" Mark replies stunned! "How the Hell
are you my friend?" Mark asks sincerely.
"Not good Mark, I'm sick! I'm very sick!". "Oh man I'm sorry to hear
that, really Kevin, I'm truly sorry!
What's the matter with you?" Mark further inquires.
When Kevin was diagnosed in December of 1997, four days before Christmas, he began to search for answers and an understanding of what had happened to him. The night he was diagnosed, he began to search for information about HCV on the internet. He still did not know anyone else from Germany was sick yet. It was still all a dream, "it couldn't be real", he thought to himself, with extreme comfort- at first! Anyone reading this story with HCV will understand this. You do not get "tapped" on the shoulder one day like this, and be told that "you may die soon", and "there is no cure!" without a predictable initial emotional denial, and a psychological response pattern of; Shock, Denial, Anger, Frustration and finally Depression - and Resolution of that expected Depression. Kevin was shocked at first! "LIVER!?! LIVER!?! WHAT ARE YOU TALKING ABOUT?!! Liver?" was all he kept saying at first to the young Doctor. "Anything else BUT the liver!". he demanded! But it was true, how could he argue with valid test results? An old "B" from Germany 20 years earlier, and now HCV?. What the heck was that? H - C - V? Hepatitis C Virus? It didn't sound good! But he had had Hepatitis before, and "got all better! Right?", Kevin smugly thought to himself.
"Because I think we are ALL sick from
Germany", Kevin explained to John. "Something is terribly wrong then!"
John responds emphatically back. "Why do you think that" John asks abruptly.
"I just know in my gut that something is wrong! We shouldn't all be sick!"
Right?" "Whadda mean all?". "I found Mark and Toni in
Michigan, and guess what John? He might
have it too!". "No Kidding!" John says with exasperation. Did he
test positive for it?" "No" Kevin replied.
"not yet, at least" Kevin added. "but how do you know we got this from
Germany?" He asks Kevin. "I thought I got HCV in the Hospital working in
a Burn Center operating room!", John continues. "I know, I thought I got
it myself from working in the operating room at Walter Reed Hospital, back
in the early 1980's" Kevin explains. "Wow man!" John says surprisingly,
"Imagine that! But are you SURE?" he sincerely questions. "Let me explain
John!", Kevin says in slow deliberate and halting manner. Kevin speaks
for almost an hour before John asks any more questions. "But how are we
going to prove it" he finally asks. "We are the proof, John!" Kevin explains.
"How do you explain this?" Kevin asks rhetorically, "without some kind
of common connection to the military and Germany?" he continues.
On the International level a German
man sits at the "Head" of an organization that is dedicated to helping
others, regardless of race, creed,
or religion, benefiting HCV - supposedly. There is a problem though! A
very
serious problem! As the German 19th
Century "Grimm Brothers" , (Jakob and Wilhelm of Grimm Fairy Tale
fame, i.e., "Hanzel and Gretal" and
"The Great German Dictionary") might say, "a WOLF in SHEEPS clothing!"
may be among us! His father, a man
whom the century feared just 65 years earlier, was the number three-man
under "Himmler's" famed, S.S,. Nazi
fighting troops. He wrote the book that "encouraged" violence and
organized "thuggery" against person's
not of their liking, for Hitler - and Nazi Germany. The book was used
in conjunction with "Mein Kampf" (author:
Adolph Hitler) to enrage, yet, another generation of Germans
towards Nationalism!, Time is time,
and all that was long ago.... Or was it?
Walking back to the lecture hall, you
reflect on your early years at John Hopkins University, and how "bright
eyed and bushy tailed" you were back
then! You remember an old Professor from your first research study on,"
liver transmembrane potentials", talking to you one day about a "point
in one's career". You remember him warning that the "Institutions that
men build" are stronger and more powerful than "the men who built them"!
That "Institutions have memories, and pride, and an instinct for survival,
just like the men who create, and Direct, them. He would say. Sort of like
an "ant colony" was the analogy he used - 30 years earlier. "Ready to continue
Doctor?" your assistant snaps! "Give me five minutes Charles", you say,
as you walk slowly away
from him and towards your office. You
have never informally referred to this man as "Charles" before. He looks
strangely at you as you walk into your office and shut the thick carved
oak door. Your assistant runs back to the lecture room and announces, "Hey
folks! Something's up!". Suddenly a hush occurs rapidly throughout the
noisy, chattering audience. All eyes are on the assistant. The phone on
the other end rings three times before it is answered. "Hi honey, it's
me!" you start, before the other person can even say a word.
"What does our man on the Board say
about the direction they are going to take", The NIH, Hep C Director asks
into his cellular phone. He is speeding down the George Washington Parkway,
along side the Potomic River, in his yellow ferrari. The Director is middle
aged, and self-assured - maybe too self-assured? "They are going to encourage
the Pharmaceuticals to "fund" the studies and they will receive generous
tax-breaks that will more than offset their revenue base, retroactive for
three years", he is reassured. "Ok, as long as they agree to it, and sign
to it before election day. We do not need any more funding pulled" the
Director explains. "We have been financially cut enough! Damm it!" He yells
into the phone. "Years of hard work down the drain, for what? Something
we didn't even do?" He begins to realize his dire predicament. "If we lose
our man on the Hill because of this, in November, then you can say good-bye
to our funding! And all that he has been
instrumental in getting for us, over
the years!. That MAN's number one campaign contributor is guess WHO?"
the Director continues to scream into
the phone. It appears to be only a one-way conversation. He continues
"And who do you think recommended ME
for THIS position?" He's rambling now, all he can see are years of
hard work thrown away, and public humiliation
brought upon he and his family's name. He slams the phone
down and steps on the gas! The look
in his eyes is one of "survival"!
"Mark, before I tell you about my illness,
TELL ME first, how ARE You?" Kevin demands gently with a rising
tone. "I'm fine, why?" Mark responds,
uncomfortably. "OH! Ok, I'm glad to hear it buddy!" Kevin says. "Well
my Doctor said that HBV turned to HCV
and if that was the case, then you would be sick too, Right? You had
"B" in Germany too, I think, Correct?"
Kevin asks with some uncertainty. "Yeah, we all had it, the whole post!"
Marks informs Kevin. "I do not remember
the whole post being ill, only One-half of our unit - but then again
I was gone most of the year" Kevin
replied. "What? Are you kidding? Some of the other units were SO SICK
that the Army quarantined the barracks,
don't you remember, Kevin?" As Mark said that, Kevin flashed back
twenty-odd years and, now, did remember
seeing soldiers hanging out their windows, yelling to each other
because they could not leave their
rooms for two weeks. They WERE "quarantined"! "Yes Mark, I do remember
that Now." Kevin talks with Mark for over an hour, and he tells of his
symptoms and his life over the last twenty years, Mark speaks of his family
and his last twenty years. Mark is extremely concerned and finally wishes
him luck! Both agree to contact each other soon, and that this was "a horrible
way to have to meet again". They exchange phone numbers, and hang up. They
will be speaking again in less than six hours. This time Mark has bad news
for Kevin.
Earlier that day, and just two weeks
after being diagnosed, Kevin had received a letter from the U.S. Army's
personnel center, in St. Louis, Missouri.
It informed him that the Army was realigning the Reserves. He had a
choice, the letter read. He could resign
his commission, and if that was the case then "thank you for all your
years of service". Kevin could join
an active Reserve Unit, or Retire! Since the reason he was in the
"computer", in St. Louis, in the first
place, and not some Medical unit in New York, was that three years earlier
the Army had closed up just about all of the medical units in the greater
New York City area. Republican controlled Congress saved the Southern Army
Bases - where the political power had shifted nationally. New York State
is considered a "Democrat" state, because of the many Unions, the Congress
is controlled by "Republicans". There is a price to pay for not being in
step! Remember Doctor? In Kevin's liver the "Hepato- citizens" continued
to riot! Cell after cell was destroyed, each healthy cell reproduced up
to fifty times in order to compensate for the dead ones. But, soon there
is a point of diminishing returns met, and Kevin's liver was reaching that
diminishing point. His weight began to drop precipitously in January. The
medical tests, and Doctor appointments, started to fill the family calendar
- hanging on the kitchen wall. By Februaary Kevin was becoming angry. "No!
This not REAL!" was his reasoning. But, how else could he explain his slowly
deteriorating physical condition over the last ten years?
The "Sonogram", that enabled a radiologist to see a "crude" image of Kevin's abdomen, hurt as the technician rolled a small "paint roller-like" object with vaseline on it across his tender abdomen. "You're fine was the final diagnoses". Yes, there was a "tiny" calcification on the spleen. Yes! The gall bladder looked strange, earlier in the day. (So strange that Kevin was sent home and told to come back in six hours to be re-tested). $500 dollars! "Thank you, you're all fine!". Next were more and more blood tests! "Ouch!" Kevin would think. His body was becoming tender as well as frail. His arm froze at 45 degrees, for a day, after the four tubes of blood were withdrawn from the "anti-cubical" area of the arm. Cubical, meaning the exterior elbow area. Anti-cubical, meaning the inner elbow area. The Ear, Nose and Throat Doctor said, "There's nothing we can do, It's the histological process of the virus". Meaning the virus, or a protein from the virus, is attacking the mucosa membrane or the surface epithelial cells of the inner nose, and sinuses. To be certain that no "Occult", or blood disorder, was the origin of increasing sinus problems - a sinusodial CAT Scan would be done. $1,000 bucks, "All fine! Thank you!".
Kevin lay on his back inside this huge
machine for almost 30 minutes. Halfway through, a tear swelled and
fell off his right cheek. He hurt,
he was uncomfortable, he felt sick, and he could no longer deny he was
very
ill. Within minutes tears fell like
rivers off both sides of his face. "there is no cure! I am too sick for
therapy!
And I don't even know how I got this
stupid thing", he thought, as the tears continued to flow. He wiped his
eyes with his increasingly sore hands.
He had lost everything, now! His career, his body, and now his life was
steadily draining from the lacriminal
gland ducts in his eyes! "Why me?" he thought with anguish. "Why me?".
His nose began to stuffed-up, and his
neck started to spasm, he was just miserable. Just plain miserable!