The Missing Link is Found!
"Get the Doctor out of the van and back into the jet!" you vaguely remember hearing. You awake next for a few moments long enough to realize that you have been heavily drugged. The rapidly drying blood is still moist over the puncture hole on the top of your right hand. They injected you with Potassium Chloride, KCL, or better known as; truth serum! You can barely see out the jet's small thick window and realize that you are now flying due east over the five great lakes. You know your flying direction by the positioning of the Big Dipper and by locating the North Star in the cloudless night sky. You next hear loud noises that are deafening but you can not open your heavily laden eyes lids. You are physically carried from the plane and into a waiting government vehicle. As you are driven away from the airport you can just make out through slits in your eyes a large sign that reads, "Welcome To Block Island". "Block Island?" you remember thinking and then fall back unconscious again. You are aware of being hastily moved and of the salty taste of ocean water in the back of your parched dry throat. But that is all you remember, for now. You are then driven to a boat and taken for a one hour boat- ride before you are unloaded again and placed eventually on a soft hospital bed in a clinic.
When Kevin found the three government's prepared document in February explaining Adenoviruses, he once again was at a dead end with his research investigation. He lacked a thorough enough understanding of Immunology in order to understand all the information about HCV that he was reading about. He searched and searched for related articles on Immunology. Kevin found college courses that were offered free on the Internet by Ivy league schools and decided to attend Yale and Stanford one rainy Sunday afternoon. He helped himself to all the foundational knowledge he could find on Immunology. He had studied so far: Biology, Microbiology, Chemistry, Bio-Chem, Basic Genetics, Cellular Biology, Molecular Biology, Cellular Genetics, Virology, Hematology, Serology, Immunohematology and Blood Banking, Pathology, Toxicology, Urinalysis, Epidemiology, Histology, Anatomy and Physiology, Entomology, and now Immunology! Whew!
The military had
prepared Kevin well for a better understanding of the HCV virus. They had
really given the
virus to him
in the first place, why not also give him the knowledge to understand it,
and explain it to others?
They offered
him a free education and he took it and ran with it! Kevin was always a
sponge for free
knowledge. He
had learned to live, but now with his sickness Kevin could only live to
learn. When he sat on
the wind swept
ranges of East Germany, as a Private in Germany, he often had a correspondence
course
manual in his
hand. Kevin thought many times, "Imagine that! FIRST, they pay me to live
in Europe, and THEN
they offer me
free college, and on top of all that, they THEN deliver it to me here in
the woods while I look over at that freezing Russian soldier watching ME
freeze!". Imagine that! Free travel and free education! Kevin's parents
were retired school teachers so the benefits of a good education was stressed
early on in Kevin's youth. The U.S. military offers many free things to
its members in uniform. Mark, Kevin and John were all given free HCV! "KEVIN!"
Mark yells into the phone. "What Mark? And why do you always yell into
the phone?" Kevin asks annoyed. "Sorry! My Doctor said it's because of
the HCV!", Mark confesses. "Supposedly it is attacking my inner ear, and
taste buds!" Mark says with increasing disappointment. "I can't even taste
Toni's good home cooking most of the time anymore. I still eat it anyway!
I remember how it use to taste!" he continues. "Mark, if you are losing
your hearing from HCV, then what about the VA? Do you have a claim if you
lose your hearing or taste?" He inquires. "OH! I NEVER told you about my
VA experience!" Mark suddenly realizes. "Man!" he sighed. Instantly, Kevin
could tell that something was wrong with Mark and his recent "scouting
mission" to the VA.
Mark's mission
was to go to his local VA Medical Facility, located somewhere in Michigan,
and get tested for
the Hepatitis
A, B and C viruses that he knew he had, or had been exposed to in the past
(HAV and HBV). The
HCV virus he
had was still under control. But every now and then the restless "Unicorn"
would poke him from
inside as a reminder
to live a clean and healthy lifestyle for the sake of his family. It was
a gentle nudge that
occurred each
evening after dinner and continued well into the night. After twenty one
years of being infected with HCV, Mark's Unicorn had a Big horn!
"HEY KEVIN!",
Mark yells again through the receiver from more than a thousand miles away.
"What Mark? By
the way!" Kevin
interjects quickly. "You know, I don't hear you any better if you yell
louder at me just because
you're so far
away." Kevin tries to explain kindly. "I know! I know! I just get excited
sometimes, Kevin, talking
with you!" Mark
innocently admits. "Toni doesn't always want to talk with me about HCV,
I have no one else
to talk to about
this." Mark says sadly. "HEY MARK!" Kevin now yells through the receiver.
"What?" Mark asks
suspiciously.
"I'LL always talk to you about HCV! If you want to." Kevin offers timidly.
"Man! I just KNEW it
buddy! Twenty
years and NOTHING has changed between us!", he announces with pride. "I'll
ALWAYS talk with
to you too Kevin
about HCV! But, YOU already know that!" Mark excitedly tells Kevin. Mark's
last statement
is said with
the conveyance of a friend of twenty three years. Together they were both
rowdy teenagers in 1976 back in Texas. Now they were middle aged family
men living across the country from each other. They had relied on one another
in the past and would need to do so again in the future.
In 1997 the Centers
for Disease Control (CDC) in Atlanta, Georgia epidemeologically reclassified
the HCV virus from an "Infectious Disease" to an "Emerging Infectious Disease".
HCV was moved up in the standings as a greater risk to the public's Health
and Safety. This would allow additional funding to be released under existing
Public Health Laws. The more of a threat a disease is to the public, the
more money should be spent to understand, control and treat it the law
says. The much needed vault of money for research into HCV is like
a stair case.
The higher you go up it, in importance of risk to the public, the more
money there is on each step along the way.
HCV is still on
the bottom step when it comes to funding for research and a cure. HCV is
not a threat to every
man, women and
child today in America, but it could be tomorrow! The nature and history
of communicable
diseases is one
of an identification of the source, and prompt treatment of the unfortunate
victims. Many times treatment includes educating the patient on their disorder.
The more they understand about their problems the better they will feel
about dealing with them, to include less fear of the unknown.
Knowledge is power
and power is like light. It illuminates and controls (i.e., traffic light).
HCV suffers can
regain control
by educating themselves better about HCV's disease processes and their
side effects. The more knowledge they have the more in control they will
feel they still have in their lives. The more control they feel they have
in their lives, the less affects the symptoms and side-effects will have
on their daily functioning. The more knowledge they have the less others
will be able to "intellectually" push them around (i.e., Doctors, Insurance
Companies, etc..). Most importantly for HCV as a national movement, the
more knowledge individuals gather about HCV the more they will be able
to inform and teach the general public: a sort of spread the word!
Only through this
massive education of the general public will the much needed funds from
the vault be
released. HCV
funding will go to the "top of the stairs" when enough people find out
about it. Kevin knew that when he was diagnosed with HCV he did not even
know what the disease was, and he had spent almost 25
years in the
Health Care Field in one form or another. He decided then that educating
others would be his
second priority
that needed to be addressed. His first was self-education, and a better
understanding of his
own illness was
first!. How could he expect others to be willing to take from one cause
and to give to another
like HCV if even
he did not know much about the disease? Kevin thought, "If people don't
know about it, then
they can not
help me with it!". Nationally, education is what is needed first. It is
the light of knowledge that will show all. First to illuminate Health Care
Providers and Health Care Education Institutions, then to the public itself.
Before this begins, HCV suffers must be educated themselves in the issues
that they wish to have nationally addressed. Without a national audience
then there will be no massive research funding available into find a cure.
In a nation of
270 million people, 5 million HCV suffers represent only 2 percent of the
population. To 98
percent of Americans
there is no HCV problem! If each HCV victim educated 50 people then the
entire country (theoretically) could be informed. Start talking! Start
teaching! 8,000-10,000 human beings in America die each year from HCV.
Can we help these other people? Can we help us? Will others help us? The
answer is of course, yes! The house is as strong as the foundation. We
represent the foundation of the HCV movement in America. Where America
goes with HCV, the world will follow. Time to lead! Time to be responsible!
If you can not lead or follow then get out of the way!
The HCV movement
is at a critical ground-level stage of development today in America, and
around the world.
The International
community has many, many more victims of HCV than America does, but America
has the
resources necessary
in order to deal with the emerging problem. Just as they built the Panama
Canal against
all odds, so
too will the Americans tackle HCV, against all odds. America is a representative
Democracy. The
government's
policies reflect the will of the people. The people must let the government
know what their will
is. Their will
must be our will and our will is more HCV funding for support of victims
and a eventual cure. For
HCV suffers the
virus is no longer "emerging", rather for them it has already "emerged"!
When a virus that has been around for 56 years and publicly confessed about for the last 13 years is not known about by society then there is no excuse. Period! When elected representatives and their appointed cronies look to blame you, you turn to them and tell them to do their job! Their job does not include blaming you for five million HCV cases in America today. The only plausible reason for this much ignorance, or naivete, is ifthis was by an orchestrated design! Who are the conductors of the Orchestra? Not the researchers with the magic wands. In a Democracy, we all are the conductors. The American taxpayer will fund research over the next few years that will lead to a cure - world wide. It will cost valuable time and hard earned money, but once achieved a permanent cure will be well worth it. A cure is possibly five to ten years away if not sooner. Until that time the persons that gain the most knowledge about HCV will be the group that champions it's causes.
Most American
homes have computers (75% and growing) that can gain access to the Internet.
The Internet
allows isolated
individuals to meet other isolated individuals with the same affliction
and to share common
stories and information.
The next level of support comes in the form of a Forum or support group.
These
support groups,
computers and the Internet become a powerful new tool that can be combined
and utilized
by HCV suffers
to educate and advance their cause. They can participate in group "town
meetings" concerning specific areas, or can share related stories and information.
They can also seek advice and understanding from one another. Most importantly
they can begin to organize themselves for a more efficient and coordinated
effort, regardless of the chosen direction of the group. Five million strong
all "hitched" to the same HCV wagon and all going in the same direction
is a formidable force that can not be denied by anyone! The Internet has
E-mail which allows a person to place a letter on someone 's desk computer.
The secret is the e-mail address and the key is what is said in the crafted
letter. The right letter on the proper desk will gain more attention than
years of jumping up and down, unnoticed by all.
In the past suspicious
governments may have banned persons of three or more in number from meeting
together on a
downtown street corner. They would ban them from meeting for fear that
the group might speak seditiously (bad) about them and could plan their
demise (down fall). Nazi Germany did this! During the French Revolution
(1789) it was also done! It has also been done by many other nations throughout
their developing history, this includes the USA. A free and open government
does not fear dissent only revolution. Movements achieve their objectives
by an evolution of their cause rather than a revolt.
For a movement
to begin people must be educated on the subject and meet to discuss it.
Once people meet
they can organize.
Once organized they can decide on a direction for the movement. Once directed
the
movement needs
to be initially propelled and continuously sustained. Once moving in a
coordinated sustained direction a movement can gather momentum. Five million
HCV victims with momentum can be an awesome political tool. Momentum will
advance the set causes of the initial HCV suffers by smashing through the
barriers that other movements (agendas) have placed there. To get a dollar
for the cause is to either have taxes go up, or have another movement lose
some of its critical funding. This becomes a dilemma for HCV victims. Who
will lose in order for HCV to gain? Will 98 percent of America want to
fund research for 2 percent of the population? Yes! If they are made to
realize that they could be next! Education!
"So what did the
VA say?" Kevin suddenly remembers to ask Mark. "That I DON'T have HAV,
HBV, or HCV!"
Mark delivers
this statement innocently like a fresh steak to a hungry lion, on purpose.
"WHAT!" Kevin screams through the phone. "Don't yell over the phone!" Mark
scolds back. "How could they say that you don't have it?" Kevin begins
to ask in earnest. "I know! I know!" Mark cuts in quickly. "I'm going to
make another appointment and personally confront the VA Doctor with the
civilian tests results!" Mark decides. "Good idea buddy!" Kevin agrees.
Mark has also
begun to be watched closely now by his employer at work. His company is
a major military
research and
development corporation that contracts over 75 percent of its business
to the federal
government. It
is a large and unfriendly International conglomerate that thinks nothing
of crushing opposition from the outside or from within! The Mega-Monster
is run and Directed by an unsympathetic lot of Directors that would rather
boil him in oil first, if it helped to improve the appearance of their
quarterly corporate balance sheets, before helping him with his illness.
Their priorities are to the greedy stockholders first, and then to Mark's
illness last. They are, and have been in the past, ruthless to opponents
and competitors alike. They do not rule their industry, globally, without
first knowing what their employees are doing under their own roof. They
knew Mark was getting sick. hey knew this for a while now. They also had
the proof of it! But they decided not to tell him and millions like him!
Or did they?
Up until now there was NO connection between Adenoviruses and HCV in Kevin's mind. The two weren't even related. It would be like saying a cold is related to cancer. Right? Well, a cold is an adeno or rhino virus, right? Adenoviruses are used today in every form of cancer research because of their ability to manipulate genes easily for "gene protocol therapies.". Kevin wanted to be able to explain to his wife, Tina, and to Mark what an Adenovirus was and how DID an old HBV turn into this new HCV? But up until now he could not answer either of these questions. But that was to change soon!
When Kevin began
to research information on Immunology he was stunned by how little he knew
of the
emerging complex
science. Once again Kevin had come upon the old axiom that "the more you
learn, the less
you realize you
really know!". After a few days of studying he was simply overwhelmed by
the vast body of
knowledge pertaining
to the human body's ability to fight diseases and infections. In addition,
he decided to
brush-up on immunizations
in order to better understand the role of Antigens and Antibodies in Immunology.
Much of the material
on the Internet about HCV referred to Antibodies, Antigens and other areas
of
Immunology. All
Kevin wanted to do was understand what HCV was and how he had acquired
it. He also
wanted to answer
Mark's question about how HBV turned to HCV and his wife's question about
what an
Adenovirus was.
Once he knew these answers Kevin was prepared to finish living and begin
to wait for the
inevitable to
come. On some days the "inevitable" was already there. But starting in
late February Kevin began to physically rebound and was beginning to put
on weight once again. He even started to feel better, for a short while
that is.
Kevin did not
have much strength left but what little energy he did have remaining would
be put to good use
he decided. He
would learn all he could about HCV. But the more he looked the more he
realized how little
people knew about
this disease. One credible source of information would say one thing, while
another
credible source
would contradict it, and declared something completely different! It appeared
to Kevin that the body of HCV knowledge was just now beginning to be formulated.
Kevin would be in on the ground floor and try to sort it out for others.
Mark would confront
the VA and Kevin would join mailing lists it was agreed. Together, they
would find out
what had happen
to them. Why their lives had been cut short and why no one seemed to care.
Why there was
no information
to be found easily on their disease. And why the VA now said Mark was cured.
Could they have
an agenda? Are
they connected to the 1942 contaminated serum? Mark and Kevin had supported
each other
in the past and
now realized that the missing link was their friendship that would see
them and their families
through this
terrible situation. The link was communication. Whether it was between
long-lost Army buddies,
or HCV suffers
on the Internet, communication and education were the key steps that would
help solve the
deepening mystery
and complex puzzle of "HCV".
Sir George Everest
(1790-1866) was a cartographer for the British Government who was born
and raised in
Brecknockshire,
Wales. He enjoyed doing Mathematics and loved to learn all about World
Geography. The
British Empire
"ruled the waves" and "the sun never set on the British Empire" were two
phrases that George Everest heard often while growing up as a child in
lovely Brecknockshire. As a young man he apprenticed as a map maker (cartographer)
in London and soon looked to travel and map the Vast and ever growing British
Empire. He was raised and educated on Euclid's "Geometry" and Issac Newton's
"Calculus". In addition to Homer's "Iliad" and Chaucer's "The Canterbury
Tales" he learn to draw little triangles in the sand. But none of these
great writings of knowledge prepared him for the mapping of 19th Century
India and eventually the world like his little triangles did!
In the next chapter we will first map India and Mt. Everest and then travel and climb Everest with Sir Edmound Hillery and Tensing his Sherpa guide. We will then travel briefly down in the great oceans of the world and go to the deepest spot on the planet in order to better understand: The Panama Story!
Also in Chapter 18; Mark gets to deals with the VA once more, John gets served divorce papers, Kevin wrestles with Adenoviruses and his illness, the Doctor is given a tour of a different kind of government lab, the government starts to lean heavily on Kevin, and the virus mutates again in a small village in China. Don't miss Chapter 18. You have come this far so learn a little more.
Besides, it's
almost over!