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Other Places to Visit

Links to Other Sites of Interest

Information about Epilepsy

Epilepsy Associations & Support Services
International

Argentina

Australia

Canada

Chile

Czechoslovakia

Denmark

Finland

France

Germany

Iceland

India

Italy

Korea

New Zealand

Norway

Poland

Portugal

Saudi Arabia

Singapore

Sweden

Switzerland

The Netherlands

United Kingdom

United States of America

 

Major Epilepsy Centres - Treatment & Research

Other Links
Pallister Hall Syndrome

The Brain Tumor Society

Brain Surgery Information Center

International Brain Research Organisation

Michael's Page
Michael suffers from Tuberous Sclerosis, a genetic disorder that forms benign tumors in vital organs

 


Back to
HHUGS Home Page

 On this page we present a series of links to other internet sites of interest:

If you know of any other links that may be of interest to our readers please email us at craigndeb@eisa.net.au

 

INFORMATION ABOUT EPILEPSY
Gelastic Seizures
- description on www.epilepsy.org

Epilepsy Drug Guide - contains information about anti-epileptic medications
Medscape Epilepsy Resource Center (US) - a collection of the latest information on epilepsy, including news of medical and surgical therapies currently in development, conference summaries, articles, MEDLINE abstracts, links to government and professional organizations, practice guidelines, and practical clinical tools.

EPILEPSY ASSOCIATIONS & SUPPORT SERVICES

International
Interntional Bureau for Epilepsy
International League Against Epilepsy (ILAE)

Argentina
Centro de Epilepsia

Australia
National - Epilepsy Association of Australia
Queensland - Epilepsy Queensland
South Australia - Epilepsy Association of South Australia
Victoria - Epilepsy Foundation of Victoria
Western Australia - Epilepsy Foundation of Western Australia

Canada
Epilepsy Canada
Epilepsy Association of Calgary
British Columbia Epilepsy Society

Chile
Liga Chilena contra la Epilepsia

Czechoslovakia
Czech Epilepsy Association

Denmark
Dansk Epilepsiforening
Videnscenter om Epilepsi

Finland
Epilepsialiitto

France
Aispace
Bureau Francais de l'Epilepsie

Germany
Deutsche Epilepsie Vereinigung
Interessenvereinigung fur Anfallskranke in Koln e.V.

Iceland
The Icelandic Epilepsy Association (LAUF)

India
Indian Epilepsy Association

Italy
Associazione Italiana Contro l'Epilepssia (AICE)

Korea
Korean Epilepsy Association

New Zealand
Epilepsy Association of New Zealand

Norway
Norsk Epilepsiforbund

Poland
Polish Epilepsy Association

Portugal
Liga Portuguesa contra a Epilepsia

Saudi Arabia
Epilepsy Support & Information Centre

Singapore
The Epilepsy Care Group

Sweden
Svenska Epilepsiforbunder

Switzerland
Schweizerische Liga gegen Epilepsie
Schweizerische Epilepsie-Stiftung
Swiss Association for Parents with Children with Epilepsy

The Netherlands
National Epilepsie Fonds
Strichting Epilepsie Instellingen Nederland

United Kingdom
Epilepsy Action (formerly British Epilepsy Association)
Epilepsy Scotland
Epilepsy Wales
Brainwave (Irish Epilepsy Association)
For a Better Life with Epilepsy (FABLE) - UK charity group

United States of America
National - American Epilepsy Society - for health professionals
National - Epilepsy Foundation of America (EFA) - provides research, education, advocacy & services to people with epilepsy & their carers. Based in Washington DC, the EFA has over 60 affiliated organisations across the US.
Alabama - The Epilepsy Foundation of North & Central Alabama
Alabama - The Epilepsy Foundation of South Alabama
Arizona - The Epilepsy Foundation of Arizona
California - Epilepsy Foundation of Northern California 
California - Epilepsy Foundation of San Diego County 
Colorado - Epilepsy Foundation of Colorado
Connecticut - Epilepsy Foundation of Connecticut
Delaware - Epilepsy Foundation of Delaware
District of Columbia - Epilepsy Foundation of the Chesapeake Region
Florida - Florida Epilepsy Society
Florida - Epilepsy Foundation of Northeast Florida
Georgia - The Epilepsy Foundation of Georgia
Hawaii - The Hawaii Epilepsy Foundation
Hawaii - Epilepsy Foundation of Hawaii
Idaho - The Epilepsy Foundation of Idaho
Illinois - Epilepsy Foundation of North/Central Illinois
Illinois - Epilepsy Foundation of Greater Chicago
Indiana - Indiana Epilepsy Services
Iowa - The Epilepsy Association of Iowa
Kansas - Epilepsy Foundation of Kansas & Western Missouri
Kentucky - Epilepsy Foundation Kentuckiana
Louisiana - Epilepsy Foundation SE Louisiana
Maryland - Epilepsy Association of the Eastern Shore
Maryland - Epilepsy Foundation of the Chesapeake Region
Massachusetts - Epilepsy Foundation of Massachusetts & Rhode Island
Michigan - The Epilepsy Foundation of Michigan
Minnesota - Epilepsy Foundation of Minnesota
Missouri - Epilepsy Foundation of the St Louis Region
Missouri - Epilepsy Foundation of Kansas & Western Missouri
New Jersey - Epilepsy Foundation of New Jersey
New York - The Epilepsy Foundation of Southern New York (EFSNY)
New York - The Epilepsy Foundation: New York City
New York - Epilepsy Foundation of Long Island (EFLI)
New York - Epilepsy Foundation of Northeastern NY
New York - Epilepsy Foundation of Rochester-Syracuse-Binghamton
New York - The Epilepsy Institute - services for people in New York City & Westchester County
North Carolina - Epilepsy Institute of North Carolina
North Carolina - Epilepsy Foundation of North Carolina
Ohio - Epilepsy Foundation of Central Ohio
Ohio - Epilepsy Foundation of Western Ohio
Ohio - Epilepsy Foundation of Northeast Ohio
Ohio - Epilepsy Foundation of Greater Cincinnati
Oklahoma - Epilepsy Association of Oklahoma
Oregon - Epilepsy Foundation of Oregon
Pennsylvania - Epilepsy Foundation Western/Central Pennsylvania
Pennsylvania - Epilepsy Foundation of Eastern Pennsylvania
Rhode Island - Epilepsy Foundation of Massachusetts & Rhode Island
South Carolina - The Epilepsy Foundation of South Carolina
Tennessee - The Epilepsy Foundation of East Tennessee
Tennessee - Epilepsy Foundation of Southeast Tennessee
Texas - Epilepsy Foundation of Central & South Texas
Texas - Epilepsy Foundation of Greater North Texas
Texas - Epilepsy Foundation of South East Texas
Utah - Epilepsy Association of Utah
Vermont - The Epilepsy Foundation of Vermont
Virginia - Epilepsy Foundation of Virginia
Washington - Epilepsy Foundation Washington
Wisconsin - The Epilepsy Foundation of Southeast Wisconsin
Wisconsin - Epilepsy Foundation of Central and Northeast Wisconsin
Wisconsin - Epilepsy Foundation of Southern Wisconsin
Wisconsin - Epilepsy Foundation of Western Wisconsin
Wisconsin - Epilepsy Foundation South Central Wisconsin

 

MAJOR EPILEPSY CENTRES - TREATMENT & RESEARCH

Australia
Children's Epilepsy Program, Royal Children's Hospital Melbourne
Murdoch Children's Research Institute, Melbourne
Brain Research Institute, Austin Repatriation Medical Centre

Canada
Bloorview Epilepsy Research Program - focuses on drug resistant epilepsy in children
Canadian Epilepsy Consortium - coordinates epilepsy research in Canada
Epilepsy at Montreal Neurological Institute
Hospital for Sick Children, Toronto

Europe
European Concerted Action & Research in Epilepsy (EUCARE) - research & advocacy body

United Kingdom
Epilepsy Research Foundation
Fund For Epilepsy - supporting world's first university-based academic Institute of Epileptology at Kings College, London
National Centre for Young People with Epilepsy - a major provider of specialist services for young epilepsy sufferers in the UK. Works in partnership with Great Ormond Street Hospital, NHS Trust & Institute of Child Health.
National Society for Epilepsy - provides care services, medical services, research, information & support
The David Lewis Centre for Epilepsy - UK charity providing assessment, treatment, residential care, education, training & rehabilitation for people with Epilepsy

United States of America
National - Clinical Trials Listing - a list, by US state, of the clinical trials currently being conducted in epilepsy research centres across the US
National - Citizens United for Research in Epilepsy (CURE) - research organisation devoted to finding a cure for epilepsy
National - National Institutes of Health - Clinical Epilepsy Section
California - Epilepsy and Brain Mapping Program - healthcare centre in Pasadena, California
Cleveland - The Cleveland Clinic
Florida - Florida Comprehensive Epilepsy Program
Florida - Miami Children's Hospital Comprehensive Epilepsy Program
Illinois - Southern Illinois University Epilepsy Center
Kansas - Comprehensive Epilepsy Center, Via Christi Health System, Wichita
Maryland - John Hopkins Epilepsy Center
Massachusetts - Children's Epilepsy Program at Boston Children's Hospital
New York - Strong Epilepsy Center
Ohio - Epilepsy Center of Northwest Ohio
Texas - University of Texas: Division of Neurosurgery


OTHER LINKS

Pallister Hall Syndrome - a rare condition associated with HH

The Brain Tumor Society

Brain Surgery Information Center

International Brain Research Organisation

Michael's Page
Michael suffers from Tuberous Sclerosis, a genetic disorder that forms benign tumors in vital organs, such as the brain, eyes, heart, kidneys and skin. There is no cure. Michael suffers seizures.

 

 

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