The Glen | Newer Entries | Sign Guestbook | Older Entries
MS Links | Message Board | MS Files | MS Glossary
Site Map | The Glen's Gallery | MS Abstracts
05/14/98 13:02:30
| Name: lydia | Email Me: Email Me | |
| From: e.brunswick, nj |
Age at Onset: still not sure, tested @35 |
Presenting Symptom: Optic Neuritis, Legs.... |
| Worst Symptom: Heavy Legs |
Best Neurologist: Dr. Joseph Herbert |
|
Comments: I find myself taking one day at a time, I try to keep a good sense of humor about things, and I find if I sing or just hum when I get up in the morning no matter how tired and lousy I feel, it puts me in a better frame of mind. Because I am the only one who know's what's going on in my head at that moment, so I know I need to make me feel better about myself at that moment, take care and god bless lydia |
05/14/98 12:34:47
| Name: Linda | ||
| From: ILL | Age at Onset: 37 | Presenting Symptom: Vertigo, Imbalance, Vomitting, Hospitalization |
| Worst Symptom: Vertigo |
Best Treatment: IV Steroids |
Best Neurologist: Wayne Rubenstein |
05/14/98 04:19:18
| Name: Fran | Email Me: Email Me | |
| From: Shreveport, LA |
Age at Onset: 43 | Presenting Symptom: Unable to Walk normally |
| Worst Symptom: Not Walking |
Best Treatment: BVT | Best Neurologist: Dr. Victor Rivera-Baylor-Houston |
|
Comments: Fatigue was extreme - could only stand a few seconds - after BVT - can stand as long as I want to - can walk touching something. dx 12 years after 1st Optic Neuritis. 1st symptom -1974 - dx 1986 - quit walking 1990. In scooter since 1990. |
05/13/98 20:34:57
| Name: Peg | Email Me: Email Me | |
| From: West Palm Beach,Fl |
Age at Onset: 39 | Presenting Symptom: Paralyzed leg & Pain |
| Worst Symptom: Sciatic Pain |
Best Treatment: Neuro Massage & UltraSound |
Best Neurologist: Steven Shaivitz |
|
Comments: If I could tell a newly diagnosed person just one thing, It would be that there is life after an M.S. diagnosis. The sooner one accepts the M.S. the sooner he will be able to rediscover a full life. |
05/02/98 21:04:33
| Name: Rosie | Email Me: Email Me |
|
Comments: I have Fibromyalgia, Rheumatoid Arthritis, and Chronic Fatigue Immune Dysfunction. I am a 46 year old woman. The last few years have brought severe memory impairment and Cognitive problems. Now I have Neuropathy. I am scared I have MS. What should I do? I saw a
neurologist about 2 years ago and he was no help. |
04/29/98 21:42:27
| Name: gabriella | Email Me: Email Me | |
| From: Holland | Age at Onset: 39 | Presenting Symptom: Pain, and Difficult Walking |
| Worst Symptom: My Legs don't want to move |
Best Treatment: Positive, eating healthy |
Best Neurologist: not one |
|
Comments: Hi, nice home page, excuse me for my English , but I was so glad to see that there is a homepage and so much information, in holland we do not have this. ....not at this moment. I use pycnogenol and my legs are warm again !!!! I don't eat meat and I eat a lot of salads, and fruit, and I am very positive. |
04/26/98 01:13:42
| Name: Teddy Hiteman |
Email Me: Email Me | |
| From: Las Vegas, NV | Age at Onset: 40 | Presenting Symptom: Hyper Reflexes |
| Worst Symptom: Fatigue |
Best Treatment: Hit & miss right now |
Best Neurologist: Dr. Steven Glyman |
|
Comments: I am looking forward to reading this web site... Thanks for having such an interesting and informed one... Teddy |
04/18/98 07:16:43
| Name: Bev. Christiansen | Email Me: Email Me | |
| From: State of Washington |
Age at Onset: 46 | Presenting Symptom: Numbness in Legs |
| Worst Symptom:Optic Nueritis | Best Treatment: Avonex |
Best Neurologist: Have none |
|
Comments: Diagnosed in June of 97, so 10 months ago. I still work, and do the things that keep a family going. I have two girls age 21 and 16 and the best husband in the world. We'll be married for 25 years this Aug. I just don't know what to expect... but then no one does... I know most if not all the medical facts.. I'm a nurse in a long term care center and some of my patients have MS... and believe me I don't want to be like them. So, I know the worst... is there a best? |
04/10/98 04:28:17
| Name: Betty Iams |
Visit Me | Email Me: Email Me |
| From: San Diego, California |
Age at Onset: 56 | Presenting Symptom: Weakness in Right Leg, Bladder Control |
| Best Treatment: My own |
Best Neurologist:None to recommend |
|
Comments: I am Primary CPMS, and I believe in a natural approach to treatment - diet revision (no gluten, dairy, eggs, legumes or yeast), nutritional support, meditation for stress reduction and Yoga & QiGong tai chi to help keep my body functioning. This program keeps me relatively asymptomatic. But I have to be very diligent with my program. MS taps me on the shoulder from time to time to remind me it is still around. |
04/06/98 03:53:00
| Name: Barb | From: Ottawa, Canada |
Age at Onset: 29 |
| Presenting Symptom: Optic Neuritis |
Worst Symptom: Spasticity - Back, Arms & Legs, Weakness & Numbness |
|
| Best Treatment: Rest and no repetitive activity |
Best Neurologist: Don't know |
|
Comments: At age 29, the ON was follows by Vertigo, Numbness and Pins/Needles in extremeties. All tests were normal L/P, ER & CT. 2 yrs ago back spasms started, followed by numbness in hands & tingling. Things are progressing to Weakness and increased Spasticity. |
04/06/98 01:00:37
| Name: Shannon Haggard | Email Me: Email Me | |
| From: Edmond, OK | Age at Onset: 17 | Presenting Symptom: Numbness & Tingling |
| Worst Symptom: Vertigo | Best Neurologist: Dr. Dow |
|
Comments: This is a great site.... so much information! Please keep it up. |
04/05/98 03:58:07
| Name: dmackie | Email Me: Email Me | ||
| From: Ontario, Canada |
Age at Onset: 27 | Worst Symptom: Spasms in Legs | |
| Best Treatment: None so far |
Best Neurologist: Haven't found one |
|
Comments: I wish that doctors could be more honest with patients. That they would tell us the whole truth and not tell us what they think we want to hear. Everytime something happens medically with me I get the same diagnosis, ''It's your M.S., I was wondering when that was going to happen to you''. I have changed doctors many times just to get the same results. I hate the runaround I always get. |
03/31/98 22:33:04
| Name: Marlii | Marlii's Maelstrom | Email Me: Email Me |
| Home: USA | Age at Onset: 24 | Presenting Symptom: Optic Neuritis |
| Worst Symptom: Transverse Myelitis |
|
Comments: Great site - really enjoyed it! |
03/20/98 02:54:23
| Name: Rose Maluccio | Email Me: Email Me | |
| Home: (work) | Worst Symptom: Unable to use my Arm!! | Best Treatment: Positive attitude |
|
Comments: I just want to say that I have had MS for the past 7 years, I was diagnosed when I was 20. It has been hard over the years but to this day I am healthy and have no sympton at all. I lead a healthy life and I have a very positive attidude which I think has kept me from depression. |
03/08/98 20:47:49
| Name: John Pageler | John Pageler's HomePage | Email Me: Email Me |
| Home: Oregon | Age at Onset: 33 diag | Presenting Symptom: Speech, Optic Neuritis, Bladder Control |
| Worst Symptom: bladder control | Best Treatment: Swank diet | Best Neurologist: Roy L. Swank, MD, PhD |
|
Comments: Diagnosed 1967. 60%Va disability, 1991 VA disability reduced to 40%, 1996 Va disability 100%. I enjoyed a 20 year remission where I had only minor and trangient symptoms. I think because of Strict adherence to the low fat diet and stress control. I wrote a booklet ''New Hope, Real Help for those who have Multiple Sclerosis''. That booklet is now being quoted without my permission on the internet to sell products. I do not condone nor recommend any product which uses my words to present itself to the public. |
03/03/98 15:58:00
| Name: Trish Bass | Email Me: Email Me | |
| Home: Georgiana AL | Age at Onset: 30 | Presenting Symptom: Fatigue, Legs Numb |
| Worst Symptom: Unable to Walk, Fatigue | Best Treatment: Solu-Medrol | Best Neurologist: William Stuart |
|
Comments: I became ill on my 30th birthday. At first I thought I was just tired and needed to rest more, because I had a full time job and have three kids. I Later began to have trouble with my legs being numb and they would go out from under me when I walked. I went to doctors all over Alabama and they would tell me that I had Chronic Fatigue and there was nothing they could do. Finally I heard about the Shephard MS Center, in Atlanta Georgia. I was told it was not Chronic Fatigue, but MS. I am not glad to have MS, but now at least I know what I have to work with. |
02/19/98 01:02:13
| Name: Carolyn (aka Oishda) | MS Views | Email Me: Email Me |
| Home: Michigan | Age at Onset: 7 (maybe) 15 (for sure) 25 (when the docs got an idea) | Presenting Symptom: Paresthesia, Fatigue, Optic Neuritis |
| Worst Symptom: Optic Neuritis | Best Treatment: time | Best Neurologist: Dr.J.Kamholz |
|
Comments: Great place you have here !!
|
02/15/98 18:45:26
| Name: Linda | Email Me: Email Me | Age at Onset: 42 | Presenting Symptom: Vertigo, Walking |
| Worst Symptom: Vertigo, Confusion |
02/08/98 20:36:49
| Name: Sandy Hiltz | Email Me: Email Me | |
| Home: Port Clydy, Nova Scotia Canada | Age at Onset: recgonised symptoms at about 20 years old | Presenting Symptom: Migraine Headache |
| Worst Symptom:Balance and Numbness | Best Treatment: None available | Best Neurologist: Dr. Bhan |
|
Comments: From infancy I have had Migraine headaches so severe that I passed out from the pain. These have continued to plague me daily for my 49 years of life. I then had periods of blackout and memory loss. The memory loss especially short term is getting worse. This was followed by balance problems and then numbness which again continues to get worse. I also have the bladder and bowel problems we all hear about, no warning just go! Other problems are hearing loss which is on a slippery slope and sight problems which have recovered somewhat. It ain't great but it could be a lot worse. |
02/06/98 02:14:43
| Name: John Pageler | John Pageler's HomePage | Email Me: Email Me |
| Age at Onset: 33 | Presenting Symptom: Optical Neuritis |
Worst Symptom:Slurred Speech |
| Best Treatment: Swank Diet |
Best Neurologist: Roy Swank |
|
Comments: I was diagnosed 31 years ago. Have one leg amputated, but still on my feet with a prosthesis. Wrote: '' New Hope, Real Help for those with Multiple Sclerosis'', in 1986. |
02/02/98 22:17:43
| Name: Kathy | Email Me: Email Me | |
| Home: Laramie, WY | Age at Onset: 28, diagnosed at 39 | Presenting Symptom: Numbness in Legs |
| Worst Symptom: Total Loss of Use of Hands | Best Treatment: Weight Loss and Nutrition | Best Neurologist: Roy Kanter |
|
Comments: As devastating as this illness is, it opened my eyes to how much I was taking my life for granted. Now I cherish each and every day and thank God for each day I can swing my legs out of bed and walk across the room unassisted. I walk constantly for fear of the day that I will need to use a cane or wheelchair, but even then I won't let this get me down. |
