The Glen | Newer Entries | Sign Guestbook | Older Entries
MS Links | Message Board | MS Files | MS Glossary
Site Map | The Glen's Gallery | MS Abstracts
| Name: Nita Biggins | Email Me | |
| From: Chiniak, Alaska | Age at Onset: 36 | Presenting Symptom: Sight went dark |
| Worst Symptom: Weakness and pain | Best Treatment: None | Best Neurologist: None |
|
Comments: Thank You for this site, I've learned things and don't feel alone so much! I've had ms (I guess) for years and just didn't know it till about 5 years ago. No insurance so not many Drs. Just trying lots of things I find in natural health books and talking to a few others in the same boat!
Thanks Again!! |
| Name: Lori | Visit Me | Email Me |
| From: NYC | Age at Onset: 34 | Presenting Symptom: Tingling |
| Worst Symptom: Numbness/Dizzy | Best Treatment: Avonex and regimen of Vitamins | Best Neurologist: Dr. George Forster |
|
Comments: Had mild symptoms back in December 99 they were more annoying in Feb 2000 and diagnosed on June 28,2000 with MS. |
| Name: Kelley Wells | Email Me | |
| From: Anderson, In | Age at Onset: 34 | Presenting Symptom: Double vision |
| Worst Symptom: Numb head |
|
Comments: Just newly diagnosed this week. Haven't really gone into treatment yet. Trying to go into remission. |
| Name: William R. White | Email Me | |
| From: Phoenix, Arizona | Age at Onset: 36 | Presenting Symptom: Stumbling, lack of coordination |
| Worst Symptom: Paralysis of left side | Best Treatment: ACTH, resistance exercise (Weight Training) | Best Neurologist: Constantine Moschonas |
|
Comments: Keep fighting! Never give up. Don't let others (loved ones, friends, doctors) tell you what your future will be. Your life is in your hands; you will fail or succeed only because you decided which course to take.
Good luck, Peace, and God Bless You. |
07/16/00 00:42:16
| Name: Caryn | Visit Me | Email Me |
| From: originally Albuquerque, NM, now Arlington, VA | Age at Onset: 38 | Presenting Symptom: "Fizzing" in hands |
| Worst Symptom: Fatigue | Best Treatment: I haven't tried much yet. |
|
07/15/00 23:49:09
| Name: Sara Hagan | Email Me | |
| From: West Virginia | Age at Onset: 26 | Presenting Symptom: Bell's Palsey |
| Worst Symptom: Unable to walk at all due to Spasticity | Best Treatment: Solumedrol | Best Neurologist: Dr. J Teodora |
|
Comments: I'm 49y/o first symptoms at 26 after the birth of my son. Have done well until the last 3 years and more specifically until 3 months ago when I had my most severe episiode ever. Had to go to w/c. however, now, I am walking without an aid of any kind and feel pretty darn good. Had 7 weeks of IV solumedrol at home and then tapering dose of oral Prednisone. I am a nurse, have one son, who just graduated from VT and lives in Va. I live alone with my doggie, Ginger. Was very active up to the last 3 years and now I sit at home a lot. |
| Name: Nancy Mosono | Email Me | |
| From: home | Age at Onset: 45 diagnosed | Presenting Symptom: Numbness and Weakness |
| Worst Symptom: Numbness and Anxiety | Best Treatment: Naturopathy, only tx | Best Neurologist: No clue |
|
Comments: Get back to me please |
| Name: Lylea Schonwald | Email Me | |
| From: Langley Canada | Age at Onset: 45 | Presenting Symptom: Pins and Needles in left leg |
| Worst Symptom: Dragging left leg and floppy foot | Best Treatment: Copaxone | Best Neurologist: Dr. Hashimoto |
|
Comments: I worry about the future,and what it holds. I Try to keep busy. I don't want to have too much time to dwell on it. |
| Name: Harold | |
| From: Hope, AR | Age at Onset: 22 |
| Presenting Symptom: Trouble walking | Worst Symptom: Fatigue |
|
Comments: None now |
| Name: Lynette Meloling | Email Me | |
| From: Home | Age at Onset: 38 | Presenting Symptom: Stroke |
| Worst Symptom: Paralysed left side in 91 | Best Treatment: Avonex Feb. 99 | Best Neurologist: Seng-stock |
|
Comments: Did not know that I had MS, had a Stroke Christmas Day 1991 saw a Dr., in January a Neuro and he ran all kinds of tests on me, even a Spinal Tap. 1 of 3 tests for MS came back positive, but he was not convinced that it was MS. Took almost 7 years for a Neuro to DX me with MS. I had an MRI, Spinal Tap, and Eye tests, the MRI was positive for MS and so did the eye test. The brain was a mass of white flashes and my Cerebellum was lite like a cave. At that time, I had no feeling in finger tips and a very needle feeling left arm, hand and up to my shoulders - thought I was having a Heart attack. Then saw an internist and had some more tests done. Saw a Neuro and after talking with my Husband and myself, he said that it was MS and still was and would always be. So he decided that I should go on Avonex, as I have R/R MS. And am doing good since I started on it. Have had a few bad times, but then again I live on the East Coast of North Carolina and the Hurricanes and the heat really get to me. When the pressure drops during the Hurricanes that seems to bother my eyes and walking, but I am doing good. I laugh at myself a lot, as I do not want to cry as I will never stop; and I take my MS one day at a time, as that is how life is. |
| Name: Veronica/mommyv | Visit Me | Email Me |
| From: Pa. | Age at Onset: 26 | Presenting Symptom: Tremors, Poor Balance, Optic Neuritis, Numbness |
| Worst Symptom: Migraines | Best Treatment: Swimming | Best Neurologist: Dr. Clyde Markowitz |
|
Comments: This site looks fantastic. I would be honored if you would visit my site and post the link for your site so that my friends with MS followers may view your site also. The purpose of my MSer's web site is to post photos of people with MS so that others may see that you can still be active and live a fun life. Also I help with fund raisers as much as possible by providing advertisments and posting them in my email service, and I like to post links to other great MS sites on the internet.
SO please stop by and on my index page scroll down
to the add web links on the bottom center of my page.
Thank you and keep up the good work. |
| Name: Eugene Mathiau | Email Me | |
| From: Tolland, CT. | Age at Onset: aprox. 34 | Presenting Symptom: Numbness in feet and legs |
| Worst Symptom: Bladder & Colon |
Best Treatment: Avonex |
| Name: Lynne | Email Me | |
| Age at Onset: 39 | Presenting Symptom: Club, dragging my foot | Worst Symptom: This is it |
| Best Treatment: Have none yet | Best Neurologist: Still looking |
|
Comments: Hope we all stay happy and healthy for a long time. Take whatever god has given us and accept it. |
| Name: Karen | Email Me | |
| From: Gillam, Manitoba, Canada | Age at Onset: 22, diagnosed at 30 | Presenting Symptom: Spasms |
| Worst Symptom: Fatigue | Best Treatment: Zanaflex, Alertec |
|
Comments: Ran across your site by accident but thought I would check it out. |
| Name: Barbara Hakioglu | Email Me | |
| From: Barbara | Age at Onset: 34 | Presenting Symptom: Difficulty Walking |
| Worst Symptom: Difficulty Walking | Best Treatment: I haven't found it yet! | Best Neurologist: Michael Olek |
|
Comments: I guess I'm sorry to complain because there are others out there doing a lot worse than me. I have "good" days and not so good days, but I'm still trying to keep going. |
| Name: Rose M. Galvan | Email Me | |
| From: Home | Age at Onset: 37 | Presenting Symptom: L. Eye - Numbness |
| Worst Symptom: Memory, Pain |
Best Treatment: .........?........ | Best Neurologist: Dr. Trainer |
|
Comments: Hi, it's strange telling my story but who else would understand. I'm a fighter but this thing seems to be winning and it's really hard for me to deal with. The pain sometimes gets so bad I just feel like I'm going to go crazy. My memory is getting so bad it's scary, they say short term - what do they call short term? I'm going to keep fighting and maybe not in my lifetime but in the ones that follow, just maybe with all of our prays, there will be a cure. Thanks for being here it means a lot......... |
| Name: Betty Tolliver | Email Me | |
| From: New York |
Age at Onset: 23 Years Old | Presenting Symptom: Double Ostamate and Wheelchair Bound |
| Worst Symptom: Lose of Sight at times | Best Treatment: Bed rest and Air-conditioned area | Best Neurologist: Dr. Marshall J. Keilson |
|
Comments: I am and old MSer I have had M.S. for 31 years. I am used to rejection as far as treatment is concerned. So be it. As I am, Betty Tolliver |
| Name: HotSprings Community Leaders | Visit Me |
Comments: You've been visited by a HotSprings CL! We love your site. Please come visit our community site! You'll find it has lots to offer to the HotSprings Community! |
05/20/00 18:04:49| Name: Suzanne Blum Grundyson | Email Me | |
| From: Minneapolis/live in Chicago | Age at Onset: 23 | Presenting Symptom: Uthoff's Sign |
| Worst Symptom: black outs in right eye | Best Treatment: Just started |
Best Neurologist: Only have one - Thomas Burnstine |
|
Comments: I was just diagnosed last week, and trying to learn all that I can. |
05/12/00 01:47:29
| Name: Diane | Email Me | |
| From: Northwest Illinois | Age at Onset: 48 | Presenting Symptom: Optic Neuritis |
| Worst Symptom: Tightness in legs; fear | Best Treatment: Getting on with life |
Best Neurologist: ? Have only consulted one |
|
Comments: I'd like to hear from other women who had first symptom of MS at or near Menopause. How the disease progressed and whether they chose meds or the wait-and-see approach. I'm in remission. Feel great, but fear summer, when each relapse has occurred. |
05/06/00 13:30:20
| Name: Judy | Email Me | |
| From: Upstate New York | Age at Onset: 43 | Presenting Symptom: |
| Worst Symptom: Tacchycardia | Best Treatment: Acupuncture | Best Neurologist: Stephen Schwid |
|
Comments: I am so glad to find this site & overwhelmed with the quantity of information (especially abstracts!) I love approaching the future and health care choices with information rather than fear! I'll visit here often. |
