Welcome to my Guestbook!

Joel Papps - 12/24/00 20:54:30
My Email:joelypapps@hotmail.com
State you live in: United Kingdom

Comments:
I've suffered from a serious attack this year from goodpastures. I was taken to hospital mid May 2000 suffering from breathing difficulties, the next thing i know it's four weeks later as i came out of an induced coma. The disease is extremely rare and i'm fed up having so few medical experts able to understand my problems. I'm glad i can direct them to this site and others on the internet. It's also interesting to see other examples of the syndrome from around the world and see how they've coped. All the best JP

janice berry - 12/23/00 16:51:35
My Email:janberry4@yahoo.com
State you live in: Illinois

Comments:
My friend, Lavona, was just diagnosed with GS. I was devastated when I found out last night at the hospital because we both thought her illness was caused by her flu shot which she took while she had a cold. It is 3 days before Christmas and all of us are scared. They think after the biopsy that it is in the early stage which is good. After reading different web sites I have a better idea what this disease actually is. My heart goes out to all those people with rare and unknown diseases. Lavona is very c ose to me and my family and I want to know everything I can to help support my best friend in what she is going to go through. Any information will be greatly appreciated! God bless you all.

lisa emmons - 12/21/00 22:06:54
My Email:lisaj@dmrtc.com
State you live in: In

Comments:

Bruce Howard - 12/15/00 17:51:09
My Email:bhoward@gcnet.com
State you live in: Kansas

Comments:
Thanks for the site!! I work for the Farm Credit System and one of my appraisers, a 25 year old young man with absolutely no vices, has just been diagnosed with Goodpastures at St Francis hospital in Wichita, Kansas. I used your site to make a little mo e sense out of what he told me about it. Apparently his prognosis is good. Thanks again for the information!!

Heather Taylor - 12/15/00 05:05:22

Comments:
btw...hang in there Maggie & Todd. I am still searching for some answers!! I love you both!

Heather Taylor - 12/15/00 05:01:45
My Email:hmtaylormade@yahoo.com
State you live in: Indiana

Comments:
My little sister's husband (24 yr old ) was just diag. with GPS jsut last week 12-11-00 he has been hospitalized almost as long, there is not a lot of info out there on this, I was greatful to fing your site. I felt helpless for my sister and her husband. But now as I sit here at 1 am I have print out almost everything your site can tell me about GPS and what others have gone thru, I hope this will give her and all our family some insight into all of this, Thanks Heather

Thomas Loughlin - 12/14/00 03:34:08
My Email:tloughlin@hess.com
State you live in: Texas

Comments:
Great site!! My sister at 48 developed this disease and is 2 years post kidney transplant. Today, my 84 year old Aunt was diagnosed with this disease. I have not seen much in anything I have read about length of term of the disease or a hereditary facto . Do you have any information on this? Thank You!

Pam Kershner - 12/13/00 16:46:29
My Email:vudoggie@earthlink.net
State you live in: Indiana

Comments:
My son-in-law of 3 months caught what we thought was a cold one month after his wedding to my daughter.... Now 3 months later he has been diagnosed with GPS. We are devastated and very concerned to say the least. Thank- you for your site and all the lett rs posted here. I would appreciate any futher information out there that could be passed along to me. There are thousands of questions running thru my head and really no answers to many of them. Encouragement and prayers are what we need at this point. br>
dr mirjalili - 12/12/00 22:11:30
My Email:mir141@yahoo.com
State you live in: iran

Comments:

Penny - 12/10/00 07:15:13
My Email:PennyL58@home.com
State you live in: Louisiana

Comments:
Thank you for your Web Site. . .I am a RN that believes in the Patient and listens to them. They know more about what is happening and I also believe in Our Father that created us. He knows what we are experiencing here on earth....we all know He is n Control. I had a child whose Mother died of this and I wanted to know more about this disease or syndrom and so I was educating myself from your experiences. Thank you very much. God Bless you!

Ginger Junkins - 12/08/00 03:30:13
My Email:AuntieGinger99@aol.com
State you live in: IN

Comments:
Really, really sorry to hear about the trouble that Todd is having. I'm sure that he and Maggie are devastated. I feel for them greatly. I had never heard of this Syndrome. Learn something new everyday. My prayers are with them.

Maggie and Todd - 12/06/00 22:52:29
My Email:tmemmons@rtccom.net
State you live in: Indiana

Comments:
My husband Todd is going for the lung biopsy and The doctor really thinks it is Goodpastures disease. He started coughing up blood On Oct. 3, 2000 and on the 5th was told he had pneumonia and bronchitis and now on the 6th of dec. 2000 he finally gets some answers. thanks for putting your story on the web, atleast now I understand a little about this disease and know what to look for and expect. Thank you, Maggie and Todd Emmons

Tammy Montayne - 12/05/00 04:21:13
My Email:tmontayn@yahoo.com
State you live in: Kansas

Comments:
Very informative! I am in the process of waiting for ANCA test results for Wegeners or Goodpastures. Had blood in urine for three months, skin ulcers for several months, developed asthma out of nowhere and put on 40 mg of Predisone for the time being. Pl ase e-mail or give advice based on what you experienced. I am a 42 year old single woman,going to school full-tmie for a change in careers - from Property Management to Nursing. My symptoms I have had over the last 10+years have gotten worse and I see a high percentage of similarity in Wegener's at this point. Doc said probably biopsy after blood tests if they show positive. Talk to ya soon!

Tonda Roth - 12/02/00 05:30:45
My Email:rothjr@megabits.net
State you live in: FL

Comments:
My cousin just got diagnosed today with Goodpastures and is in very bad condition. He is only 19 years old and very scared. Your page helped me alot and I am forwarding it to his father.

Tonda Roth - 12/02/00 05:30:42
My Email:rothjr@megabits.net
State you live in: FL

Comments:

DEBORAH MOSS - 11/29/00 18:48:39
My Email:BMOSS3@WORLDNET.ATT.NET
State you live in: NORTH CAROLINA

Comments:
MY MOM HAS CONTRACTED THIS DISEASE. SHE IS CURRENTLY IN THE HOSPITAL IN GREENSBORO, NC. SHE HAD ROTAR CUP SURGERY ON HER SHOULDER 4 WEEKS AGO AND LESS THAN A WEEK AFTER SURGERY, SHE BEGAN HAVING PROBLEMS AND BECOMING WEAKER BY THE DAY. WE HAD HER ADMITTED TO THE HOSPITAL LAST TUESDAY. WE STILL DO NOT KNOW IF THE TREATMENTS ARE GOING TO HELP. WE SHOULD KNOW SOMETHING IN THE NEXT COUPLE OF DAYS. THANKS FOR THIS SIGHT CAUSE WE COULDN'T FIND ANYONE(OTHER THAN HER DOCTORS) THAT EVEN KNEW WHAT WE WERE TALKING AB UT. DEBBIE MOSS 11/29/2000

Beth Cole - 11/28/00 21:07:38
My Email:bethicole@hotmail.com
State you live in: California

Comments:
Thank you for such an informative site. I have privately emailed you and am looking forward to hearing from you soon.

yvette martinez - 11/26/00 04:05:30
My Email:ymarie@tampabay.rr.com
State you live in: florida

Comments:
Info was very helpful. My mother was just diagnosed w/Goodpastures about 6 months ago. She's doing fair- the cytoxin really destroyed her immune system. It has been a long road in such a short time.

Cindy Bailey - 11/26/00 00:20:19
My Email:cleeusa1@cs.com
State you live in: indiana

Comments:
A lot of your information doesn't seem to pertain to me. Can I find more information on symptoms of Good Pasture Syndrome?

Kelli - 11/16/00 02:14:31
My Email:mikelli@bellatlantic.net
State you live in: New Jersey

Comments:
My brother, 25 years old and autistic, was just diagnosed yesterday. He has been in renal failure for approximately 10 days now. He seems to be a strange case, though, in that he has had no pulmonary problems at all. Has anyone heard of Good Pastures with ut lung difficulties?

Scott - 11/16/00 02:09:23
My Email:sharp11z28@aol.com
State you live in: virginia

Comments:

Scott - 11/16/00 02:06:09
My Email:sharp11z28
State you live in: Virginia

Comments:
I found your site to be very informative, and it is obvious to see it is helping others. Someone close to me has this disease (which has been in remission for 1 year). Hovever, she lost all Kidney function as a result. She never experienced any problem with her lungs, which made it difficult to diagnose. Anything anyone can do to bring hightend awareness to this disease is desperately needed. I wish you all the best.

Natasha Larmour - 11/10/00 10:42:43
My URL:http://www.btinternet.com
My Email:1204.friends@talk21.com
State you live in: Northern Ireland

Comments:
My grandfather is presently in Intensive Care in Hospital suffering from Goodpasture's Disease. He is apparently a rare case because he is 89 years old. I found your website to be very helpful and interesting and I would like to wish you all the best for the future.

Mark Oakes - 11/03/00 03:13:43
My Email:oakesmt@eckerd.edu
State you live in: Florida & Oregon sometimes

Comments:
Your page has a lot of great info. My friend was just diagnosed with the disease yesterday and we're all hoping he'll be okay.

grau_dolphin - 10/31/00 04:01:51
My Email:grau_dolphin@hotmail.com
State you live in: Arkansas

Comments:
To those who have gps I want to say never give up and never give in. I am a 12 yr survivor of this and it was a long road but I made it and so can you. If you need someone to talk to or answer any question please feel free to contact me,I will do what I c n. Just know that there is a rainbow ahead and with alot of love and support you can make it.

Cari M. - 10/29/00 14:53:44
My Email:don't have one
State you live in: Missouri

Comments:
My boyfriend, who is 19 yrs old, was just diagnosed a few weeks ago. It's been hard, but I know we're going to get through this. This sight has been very helpful. Thank you.

Jo Ann Berry - 10/29/00 00:49:50
My Email:joannberry@aol.com
State you live in: Michigan

Comments:
I experienced Goodpastures Syndrome in 1984 at the age of 36. At that time, it was considered a "male-oriented" medical syndrome with few females experiencing the syndrome. I was treated at The Medical College of Virginia in Richmond, Virginia and under ent plasmapheresis, blood transfusions, Cytoxan, and predisone treatments. No one knew what to do and told me that it was best that I "get my ducks in a row".... prognosis at that time was poor. However, after months of undergoing various tratments, my ungs and kidneys began to respond positively. I am now free from any symptoms of Goodpastures and the only lingering problem is high blood pressure that needs to be treated for life. It is really a strange medical condition and in 1985, very hard to dia nose. I feel very fortunate that I was treated at a medical school facility and had the best of care. Of course, it helps when you have a "rare" condition that interests so many different specialists who do not want to give up hope for a cure. Let me k ow how you are progressing with therapy, etc. Take care/Jo Ann

Todd Swensson - 10/18/00 21:35:47
My URL:http://sindycarterfoundation.org
My Email:GRSwensson@aol.com
State you live in: California

Comments:
My wifes mother died of goodpastures at 43 years old and also her aunt. My wife Gina-Raye carter has made it her life goal to understand and try to make more people aware of this horriable disease any information you could pass on to her would be very he pful. www.sindycarterfoundation.org

wayman - 10/14/00 11:52:35
My Email:wayman35@earthlink.net
State you live in: california

Comments:
My wife, Sylvia is a 63 years old was hospitalized on May 12, 2000 at UCI Medical Center with GPS. Her stay was 10 days. 6 treatments of plasmapheresis and was also put on cytoxan and prednisone-primary drugs-50% kidney loss.however, she is still weak and has trouble breathing at times. She was a Beautician for 40 years-breathing in the chemicals and also was exposed to exposed to chemical fumes as a factory worker. she also smoked for a few years. she sometimes has breathing problems. is not doing well wi h walking. She drinks lots of water- helps keep her system flushed. Thanks for your story and others who have responded. May God be with all of the families and Health Professionals as we deal with and treat this disease.

mike - 10/13/00 02:33:38
My Email:thunder_foot@yahoo.com
State you live in: al

Comments:
i appriciate the sight..i come down with goodpastures 2 yrs ago,been on dialsis machine ever since..your sight provided somr understanding of the disease,which ive founbd helpful...im hoping ill get new kidney before im 30....would be nice

Lee Campbell - 10/06/00 13:40:56
State you live in: MN

Comments:
My husband has had renal failure. We didn't know why. Now the say it is probably Goodpastures Syndrome. I'm just trying to find out all I can about it.

- 09/23/00 19:53:52
My Email:sumrsmith@aol.com
State you live in: KC, Missouri

Comments:
my best friends mom was just diagnosed with this disease and I was trying to find some info. for her. It's sounds so terrible I almost hate to have her hop on and read, but denial is not good either. The Drs. say she has severe kidney damage and is alrea y on dyalisis. she just got moved from ICU. Thsnk you for your diary, it is very informative. I am a 30 yo female, and feel for you, stay strong.

- 09/19/00 21:08:30
My Email:Wanna52@aol.com
State you live in: Florida

Comments:
What is your name???? And I forgot to tell you I,m from Buffalo. Moved to Florida sixteen years ago

Sherry - 09/19/00 21:02:38
My Email:Wanna52@aol.com
State you live in: Florida

Comments:
09/19/2000 Wondering how you are doing. It will be two years October 8th that I became ill with Goodpastures. I am a female 46 years old at that time. I had kidney failure, but regained some function. I am off dialysis for now. Almost lost my left lung because of bleeding. Lost three pints of blood before I drove myself to the hospital. I have a mass in my left lung which is shrinking. Have to go or a catscan this week. I have good days and bad days. In the last six months Iv,e begun to feel the best I have in two years. Keep praying and have a positive attitude. Drs say if I didn,t have the attitude I have I probably would have died. God Bless
PAULINE ALLAN - 09/18/00 11:14:15
State you live in: SCOTLAND

Comments:
IT IS A GREAT SITE, I'VE HAD GOOD PASTURE'S FOR 2 YEARS AND IT'S INTERESTING TO SEE HOW THE DIEASE AFFECTS DIFFERENT PEOPLE

m butts - 09/18/00 01:52:07
My Email:autumn_rain74@hotmail.com
State you live in: Florida

Comments:
I hope you are doing better now!!! My brother, 21 years old, also my best friend had Good Pastures Syndrome. He had complete renal failure and was on kidney dialysis. He was in remission from the disease when he died September 12, 1998. Please email me s we can share experinces.

theresa ziehm - 09/17/00 17:13:37
My Email:tandt321@hotmail.com
State you live in: michigan

Comments:
my husband tom was diagnosed with good pastures 15 years ago we have been married 11yrs. in 1990 he started dialysis and had to medically retire due to goodpastures. he was a cop for 23yrs. he got a kidney transplant in 93 that failed in 98 he is currentl in remisson of goodpastures but still on dialysis and on the waiting list for a kidney hopefully he will get one soon. god bless all of you dealing with this he was lucky for it not effecting his lungs. you can email me any time it would be great if ther was a chat we could all go to to talk more. thanks for your webstite and time.

lisa c. francis - 09/16/00 21:38:04
My Email:whollattakidz@aol.com
State you live in: calif.

Comments:
thnak you for the info! my neice died of this disease at the age of 13 in 1992. I havent found much information on this disease. So Thank you for putting up your site it helps. sincerely, Lisa Francis

Frank Reed Jr - 09/11/00 16:41:56
My Email:freed@csnet.net
State you live in: New Jersey

Comments:
Hi, Thanks for the information. My dad as 80% of the symptoms, just waiting for the test results. He just turned 65................

Alex V. Baltazar - 09/08/00 02:51:37
My URL:http://www.admu.edu.ph
My Email:vangie@admu.edu.ph
State you live in: Philippines

Comments:
A very informative and a very useful source of informations. Through your web, lots of medical theories which at present, I needed badly for my cousin's medical findings, answed all our queries re. his kidney problem. Keep up the good work and God bless

Michelle James - 09/01/00 00:02:03
My Email:ZieMom@aol.com
State you live in: New Mexico

Comments:
Your site is fantastic! I am a 31 year old married mother of a healthy 4 year old daughter. I was diagnosed with Goodpasture's Syndrome 13 years ago and have had 4 episodes with this disease. I am presently in remission. I have been very blessed and g ateful to have Steve Kanig, M.D. as my neuphrologist. I am sure I would not be alive today without his care. I have no permanent lung or kidney damage and feel great. I just hope someday they can find a cure for this devastating disease.

niina raukola - 08/26/00 18:28:11
My Email:jerry.c.eriksson@swipnet.se
State you live in: sweden

Comments:
Hello,my name is Niina and I`m 22 years old. In 1995 I was diagnosed with Goodpastures syndrom,it was three months after i have had my son Sebastian.I had to stay in hospital for 6 months,I had to take alots of medications and they gave me plasmaforeses.First I didn´t know if they could save my kidn ys or not,but after a while they told me that wasn´t the case.So I started with dialys three times a week for a year and three months.They had to wait at least a year before they could transplant me.They tested my mother and found out that her kidney was the right one for me,so i got her kidney and now I have had her kidney for a while.I hope that I will be healthy for a lots of years and that they found out some better medications with less sideeffects.I would be glad if you wanted to send me a mail on j rry.c.eriksson@swipnet.se ..........have a nice time//////Niina from Sweden

Teresa Bailey - 08/18/00 22:11:55
My Email:bunnyj@televar.com
State you live in: Washington

Comments:

SL Mac - 08/13/00 15:52:16
My Email:kmteach103@hotmail.com
State you live in: Ohio

Comments:
I had a student pass away from this syndrome. He was only 16 yrs. old. I know nothing about it and was interested in all that I could find out about it. I found your site and have learned much about the syndrome. Thank you for your site.

Melissa Mata - 08/10/00 20:54:51
My Email:melissamata@hotmail.com
State you live in: Texas

Comments:
I am doing research on Goodpastures Syndrome because my cousin recently passed away after being diagnosed. I thank you for the valuable information in your web page.

rik - 08/08/00 19:27:45
My Email:rik_uk3@yahoo.com
State you live in: United Kingdom

Comments:
I work as a support worker in a HD unit in south Wales UK and and looking at factors which bring on renal failure. I think your page is very well put together and easy to understand. I hope you well in the future Richard

Mike Mitchell - 08/06/00 15:58:45
My Email:MMitch6190@aol.com
State you live in: TN

Comments:
I was diagnosed with Goodpasture's in 1974. It was a severe case which was cured (evidently) by plasma pheresis done at UAB. I ended up losing my kidneys due to high blood pressure as a result of heavy scarring. I have had a transplant since 1982! Tha k God I am alive!

renee smith - 08/05/00 18:48:21
My Email:silkdolphin@yahoo.com
State you live in: Arkansasa

Comments:
To those who have or dealing with GPS please know that my thoughts and prayers are with you always.I am a 12 yr survivor of gps and want you all to know this is a rollercoaster ride but it can be beaten and go on to live a wonderful life. My doctors told e that I would never have a child well I now have a beautiful 11 yr old. I still suffer the after affects sometimes. but in the whole piture I am doing fine and hope to help others with this or thier families by being here to talk or listen, so please fee free to contact me and i'll help anyway I can.

Susan - 08/02/00 01:42:09
My Email:SuzyQ394@aol.com
State you live in: FL

Comments:
I hope you are doing well. I came across the illness in my local newspaper and was curious as to the symptoms, causes and treatments. I never had heard of such a disease and can't even begin to relate to your pain, other than having had pneumonia myself (which is peanuts compared to what you've been through). I hope this still finds you well and that you're enjoying the time you have with your niece and nephew. May your spirits be lifted knowing that you have so many friends and relatives who love you and care for you. God Speed.

Diane Barbour - 08/01/00 00:39:51
My Email:jbarbou@bellsouth.net
State you live in: NC

Comments:
I have wanted to write you for over a year. My daughter, Lisa was diagnosised last summer and for 8 weeks, we didn't expect her to live. But she has recovered and is beginning a new life. I hope to tell her story through me on one of the pages. I am a nov ce at computers so bear with me.

Jen Cox - 07/31/00 14:27:50
State you live in: NY

Comments:
Interesting website...I had never heard of a disorder called Goodpastures before. I found your site to be informative. Thank you.

LaTonya Dixon - 07/29/00 17:49:25
My Email:llc_21@yahoo.com
State you live in: Alabama

Comments:
I'm a Respiratory Therapy student. I'm looking for a research topic. I just clicked on the topic to read about it.

Kim Golden - 07/28/00 19:27:13
My Email:pkpoling@uswest.net
State you live in: Washington

Comments:
Great web site. Thank you. My 17 year old son Tyler is on his 23rd day at Children's in Seattle. He was diagnosed with idiopathic pulmonary hemosiderosis at age 6, symptoms started at age 3. He has been tested for Goodpasture's many times always with a ne ative result. Now during this hospitalization he has tested positive......have you ever run into this situation before. This hospitalization started with a high temp and the doc feeling he was battling a pnemonia. Normally we have bleed signs and the need for oxygen. He has been on a ventilator for 21 days. He had been working at a gas station for the last 6 months without incident. Now I wonder about that. We have great confidence in our doctors but are always looking for more information. Anything you ma be able to pass along would be appreciated. Best regards - Kim

Becky Forcier - 07/27/00 17:30:00
My Email:timbecky@rea_alp.com
State you live in: minnesota

Comments:
Hi! I just came across your website for Goodpastures Syndrome and I was thrilled to see that this even on computer. Ten years ago, I did not realize this was a disease that was even talk about. When I first discovered that I had this disease, I was scar d to death, especially when I ended up losing both of my kidneys and sphleen. But today, I am feeling Great! For the fact that I have a successful kidney transplant for 10 years and it keeps getting better every Day! Best wishes, Becky

Becky Forcier - 07/27/00 17:18:22

Comments:

Rod Jones - 07/17/00 11:45:58
My Email:rjones@nortelnetworks.com
State you live in: London, England

Comments:
Hi, Not sure if I had Goodpastures syndrome. Doctors called it Microscopic Polyarterisis, but I heard mention of Goodpastures. I'm 32 now and have had a kidney transplant. I was first ill at 16 with a couple of recurrances up until 20. None since then. Great web page. Rod

Judy - 07/15/00 18:18:55
My Email:Fredreigns@aol.com
State you live in: Michigan

Comments:
Dear Tami: Thank you very much for the extremely valuable information you have provided about Goodpasture's Syndrome. As I mentioned to you in my email to you the other day, my father is currently being treated for this disease. The doctors have told us from the beginning that it will be a "rollercoaster".....and it certainly has! Some days my father improves, and other days he regresses. We pray and hope for the best. Thank you again. God bless you. Judy

mworks - 07/14/00 04:44:10
My Email:mjworks@getaway.net
State you live in: Alabama

Comments:
I enjoyed your website very much. I hope you are doing well. Hey, I had to give up my job too.

Tracy - 07/13/00 05:27:57
My Email:djmosier@flash.net

Comments:
Thank you for providing so much information into Goodpastures Syndrome. And thank you for being so candid about your experiences. I sincerely hope that your health improves and I'll keep you in my thoughts and prayers. My very good friend, Linda, got a diagnosis for Goodpastures today and we are trying to gain as much knowledge about the illness as possible. Your website is very interesting and I'll pass the url onto my friend. Thank you so much!!!

Margie Roberts-Johnson - 07/11/00 19:51:21
State you live in: Tennessee

Comments:
May God Bless You. After reading about yu, I am more scared than ever about the prognosis for my five year old. Let us trust in God. That is all I know to do.

Lilia Sanroman - 07/10/00 14:17:01
My Email:lisanroman@yahoo.com
State you live in: Mexico

Comments:
I will read your writings. My husband died three months ago of this illness it was discovered too late.

Emily - 07/09/00 21:34:46
My Email:egevans7@hotmail.com
State you live in: England

Comments:
Thank you so much for this valuable information. I am currently looking after a young man who has spent weeks fighting for his life on Intensive Care. I am sure this information will enable my colleagues and I to give him the best possible care. It's grea to hear your story. Thanks again.

Lindy - 07/07/00 01:10:38
My Email:lksmith@tell.net.au
State you live in: Australia

Comments:
Thank you for a very informative site. My mother in law was diagnosed with GPS 4 years ago at age 65. She lost full use of both kidney's and now survives on dialysis (peratenial) 4 times a day. Originally the disease only affected the kidneys but she has recently spent 10 days in intensive care for acute phnemonia which her doctors suspect was related to GPS. She went from a vibrant fun loving woman to a feeble old lady in a short time. Without dialysis she would not be with us today and we are very grat ful for that but her lifestyle revolves around her illness and fight for survival.

Dee - 07/01/00 18:48:41

Comments:

Grand Opening! You are invited to Friends United! Friends, Women, Mothers Come and join us today! Monthly site competitons, starting in July Owned and operated by Amy and Dee.

Sadaf - 06/27/00 10:18:17
My Email:cool_earthling@yahoo.com
State you live in: Pakistan

Comments:
This is a woderful job you've done here. I am a doctor in Pakistan. I was really impressed to see your website. You are a very brave person. I wish you the best of health.

Cindy - 06/15/00 03:51:07
My Email:Craftyjdt@aol.com
State you live in: MD

Comments:
My sister's son, who will hopefully live to see his 21st birthday in December, has been diagnosed with Goodpastures Syndrome. My sister is a nurse and is staying with him in the hospital 24/7. He was diagnosed early last week and was immediately put in he hospital for treatment. Unfortunately, his kidneys have already begun to fail and he is "already" having to have dialysis treatments. I'm afraid the outlook does not look good for him. I am not sure if he ever did any kind of drugs, but I do know th t he started smoking when he was just barely a teenager. I wish they could have diagnosed him earlier. My sister is so afraid he is dying. She is being tested to see if she can give him a kidney. The drs in Huntsville, AL are doing all they can to hel him get better, but so far, nothing has worked. With each passing day, Jason gets worse. Thanks for having such a wonderful site. I am collecting as much info for my sister as I can. Until Jason was diagnosed with this syndrome, I had never heard of t before. I'm glad you are doing okay!!! Good luck in the future!!!

Elizabeth - 06/13/00 04:26:45
My Email:tallpkb@msn.com
State you live in: CA

Comments:
I friend (50 y/o male) was just diagnosed with it-he's in critical condition in AZ-kidney failure, pulmonary hemmorhage, etc. Praying for healing.....

Lori - 06/11/00 18:30:12
State you live in: Arizona

Comments:
Hi... Thank you for your site. My brother-in-law has this disease & had renal failure last year. He lives with dialysis three times a week. I worry about my husband getting this disease too. I only hope that my B.I.L. will live for a while longer. My son is very close to him. Thank you for all of your information & thanks for sharing. Best of luck to you.

Marie Green - 06/09/00 01:40:18
My Email:greenwie@dreamscape.com
State you live in: NY

Comments:
I also had Goodpasture's Syndrome. I was diagnosed in 1981 and on dialysis for 2 years before I got a transplant. I have done well ever since and have even been blessed with a baby boy. I wish you the faith and courage to find better days ahead. I kno you will have them!

mike siragusa - 06/08/00 14:07:39
My Email:mikegusa@netsync.net
State you live in: n.y.

Comments:

Ard-Jan de Blaeij - 06/07/00 21:45:16
My Email:a.j.de.blaeij@freeler.nl
State you live in: The Netherlands

Comments:
I wanna thank you for this information. My wifes brother died last monday. The doctor is not sure. But he was thinking of Goodpasture or Weber. So now we wanna now everything about this syndromes.

Charles Rudge - 06/02/00 13:40:32
My Email:Charlesr@bexley co.uk
State you live in: London UK

Comments:
May God bless you for the information you have provided us. My nephew has contracted this disease just two weeks ago. The family and his parents, my sister and brother in law are devastated. He just received a place at Chelsea College of Art but has had n opportunity to celebrate. Now his parents visit him three times a day in hospital and are trying to be very brave. They hope for good news but things have not changed. He is on a ventilator and receiving blood plasma exchange. No one can tell us the prog osis. Can he recover and resume a normal life. Go to art college? I pray for him and light candles for him and his parents in church. But I will pray for you too and all those who have shared their experiences at your site. You are wonderfully brave. God less you.

hernandez/olivares family - 05/26/00 03:39:15
My Email:itsyourmm@aol
State you live in: california

Comments:
we may have lost our 16 year old girl to this syndrome in a period of four days. It was the most devastating thing that has ever happened to us. we are still waiting to see if this was the actual illness, but so far some test have come back positive and s me have come back negative. thank you for the information....

francene - 05/24/00 03:08:21
My Email:peppy_luv@yahoo.com
State you live in: Alabama

Comments:
Hello,I read your article on your disease, I am not familiar with your illness,but I want you to know that God hears your prayers and he also listens,you are a very stong person although it may seems like you are weak at times,and remember it is not what you go through but how you go through it, may God bless you and your family,and I will keep you in my heart and my prayers, please email me ,love always,francene

Colin Charley - 05/23/00 13:26:30
My Email:CCharley@compuserve.com
State you live in: London UK

Comments:
My wife contracted goodpastures in 1997 resulting in Kidney failure. She had a transplant in Feb 2000 and (touch wood) all seems to be going well

bob marley - 05/23/00 08:53:13
State you live in: hell

Comments:

pawan gyawali - 05/22/00 16:44:44
My URL:http://www.pawan.webjump.com
My Email:pawanmah@ccsl.com.np
State you live in: athmandu

Comments:
I have a back ache and I fell very weak and I don't what had happen.Even my urine is a bit yellow and I drink a lot of water. Can you give the suggestion about this:

- 05/21/00 20:47:53
My Email:Pegsters@2001@aol.com
State you live in: mn

Comments:

Wendie - 05/18/00 04:14:56
My Email:Carebe8427@aol.com
State you live in: MI

Comments:
Thanks so much for your artical. I think this is what my boyfriends dad died of.

John - 05/18/00 01:22:18
My Email:golf4life101@aol.com
State you live in: Wisconsin

Comments:
Thanks alot, i was looking for an article to write a report on something that had to to with the kidneys, sorry about your disease but thanks for making the web page! John

Lisa Crosby - 05/17/00 18:58:49
My Email:Crosbyvv@aol.com
State you live in: California

Comments:
I thank you for letting others in on this information. My mother died, 6 weeks after diagnosis, she was 58. It happen so fast nobody knew what hit them. I am just trying to piece together what happen and why? To all those fighting this disease, fight ard and god bless you, I will pray for all.

KEVIN PERRY - 05/13/00 14:59:10
My Email:kper@neto.com
State you live in: TX.

Comments:
Thanks

Sonia Durrant - 05/10/00 21:45:20
State you live in: England

Comments:
I visited your site because a close friend of mine has kidney problems and is still having tests and I wanted to find out about as many kidney problems as possible so I could help him as much as possible. Your site has proved really informative. P.S. I lo e your cats xx

Renea Dane - 05/09/00 18:41:28
My Email:RDane72902@aol.com
State you live in: Texas

Comments:
I serve a God who is willing and able to heal you of your disease. I am putting you on my Prayer List. Please send me your first name only. God knows your Last name! God Bless, Renea Dane 956-548-9084

Debi - 05/08/00 18:57:53
My Email:Freibird@msn.com
State you live in: Texas

Comments:
What an informative site! A very close friend of mine was diagnosed with GP in November. He is currently in remission, but with the meds and dialysis his quality of life has diminished drastically. He was diagnosed by a wonderful general practitioner, D . Middleton, of Dallas, Texas and treatment started immediately (after previous physicians told him he had the flu) This doctor literally saved his life. He has been so depressed I was busy looking for a support group when I found this site. THANK YOU! its great to know there is a calm AFTER the storm.

ernest torres - 05/08/00 16:36:41
My Email:pnjmj@aol.com
State you live in: new york

Comments:
Hi My mother was diagnosed with good pasture's syndrome in Feb 2000. After being in the hospital ICU unit for over a month, she was finally released. She is taking medicine to fight the disease. Her kidneys don't function anymore so she has to do dialysis 3-times a week. I live in Buffalo NY but my mom lives in Rio Grande City Texas. I wish that I was closer to her. My other siblings take care of her. Every chance I get I fly down to see her. When she was diagnosed with this --we had never heard of it. I'a so glad that you have this website it is so informative. It makes you realize that there are others out there in the same predicament. I know my mom has a long way to go but I know she will make it. God Bless. May 8 2000

Diana - 05/04/00 06:15:57
My Email:DLBruce51@aol.com
State you live in: California

Comments:
My cousin was diagnosed with Goodpastures last year. Since she is an RN, she was considered a good condidate for abdonimal exchange. She seemed better until quite recently. She is now in critical condition.

Lee Kaikuana - 05/04/00 03:11:07
My Email:Hawaiianblue Boy
State you live in: Hawaii

Comments:
I have been diagnosed with goodpasture syndrome feelings of frustration and scared of what is happening to me...Don't know if there's any place in Hawaii to go for help. They want to send me to Kona to a specialist which I cann't really afford..Trying to keep Hope but some days its hard

- 05/04/00 02:32:01

Comments:

Michelle Amick - 05/03/00 09:43:55
State you live in: Indiana

Comments:
I am a registered nurse, taking a pathophysiology course. While reading my textbook, Goodpasture's Syndrome was mentioned briefly, and I wanted to learn more. Thanks for giving your perspective. Your information is accurate and your site is really well do e!

Dawn Caro - 04/28/00 12:22:20
My Email:ldytaz213@dynasty.net
State you live in: Louisiana

Comments:
I was diagnosed with goodpastures at 19 yrs. old. I have fully recovered with some scar tissue on my kidneys, but so far so good. Five years later my kidneys were filtering too much protein, and was diagosed with minimal change disease. I thought it was over, but I had 2 bouts with that and now it is the year 2000, and so far so good. I hadn't known anyone to have this disease before and I am so g ad that you have this webpage. Now I can learn more about it.

- 04/28/00 12:03:28

Comments:

Kathy Schneider - 04/27/00 18:30:14
My Email:kjschneider_99@yahoo.com
State you live in: California

Comments:
I just found out my husband was diagnosed with this syndrome and am trying to find ways of dealing and treating it. thanks

Janine - 04/27/00 16:55:28
My Email:Janine.E.Meersman.1@nd.edu
State you live in: IN

Comments:
I just wanted to let you know that your site was very helpful. My niece, 18 yrs. young, has just been diagnosed with Goodpastures. She will be kept in a sedated condition in the hospital for another 10 days. It has affected both the lungs and kidneys. Thank you for your helpful information.

pat poston - 04/27/00 12:20:44
My Email:patposton1@juno.com
State you live in: Ohio

Comments:
there is a suspition of goodpastures for me right now......i'm in the waiting game mode.

mary Ann Rousseau - 04/21/00 00:39:20
My Email:MRouss2826aol,com
State you live in: Georgia

Comments:
My Mother died at The Mayo Clinic. She was diagnosed with goodpasture's. She lived for a month but the doctor's were puzzled but so interested. It's too bad they did not know what a remarkable person she was. Thank you for sharing your story..it is kind o you to do so. I am glad you survived.

Amy Conway - 04/14/00 18:54:15
State you live in: Texas

Comments:
Thank you for your information. My family and I just found out my sister-in-law has Goodpastures Syndrome. You are such a great person to share your experence with others. Thank you again for your info. April 14,2000.

Linda Bryan - 04/14/00 02:44:09
My Email:krazykurl@aol.com
State you live in: connecticut

Comments:
My daughter was diagnosed 2 yrs ago Jan 1998 with GPS. Now her creatine is 3.0. She is on 2 blood pressure pills a day to releave any stress on her kidneys. We are now looking into alternate medicine. We are going to see a chiropractor who specializes in rain stem chriropractic.

Mary Lou Cummings - 04/11/00 21:34:10
My Email:chatti@bellsouth.net
State you live in: Florida

Comments:
My sister sent this to me, her son was diagoise with this disease.

Tim - 04/10/00 16:25:46
My Email:tcr@lvcm.com
State you live in: Nevada

Comments:
My brother has goodpasture syndrom. We all throught that he was one of "lucky" ones due to the fact that agressive treatment early on lead to him actually going off dialysis last year with @30% kidney function. However, now his lungs appear to be taking the brunt of the disease.

kathleen - 04/07/00 04:29:01
My Email:katywrite@hotmail.com
State you live in: Co.

Comments:
Checking out my father's dianosis so I knew more about it. Thanks for the info!

mischa - 04/04/00 06:31:27
My Email:mischa@netc.net.au
State you live in: Australia

Comments:
Thanks for your informative site. What a harrowing story. I have a friend recently diagnosed with a rare form of auto immune glomerulonephritis, I have been researching sites for her to gather information. Thanks for yours. All the best. Mischa

rodrigo - 04/02/00 03:07:35
My Email:jimenezc@sol.racsa.co.cr
State you live in: Costa Rica

Comments:
A very close friend is in the hospital right now diagnosed with Goodpasture´s syndrome. I have been so lucky to find such an informative site. Thank you so much for sharing all of this informationa.

Richard E. Brown - 04/02/00 03:02:13
My Email:ricardbb_99@yahoo.com
State you live in: Lakeland,FL,

Comments:
I would just like to say thank you for shairing your story and all of the links,and medical information that you have provided . THANK YOU ! YO

Barbara - 04/01/00 00:59:13
My Email:BBMapper@aol.com
State you live in: Ohio

Comments:
One of my dearest friends just passed away from Goodpasture's syndrome at the age of 41. He was diagnosed in his early 20's and at that time, was considered lucky to live beyond a few years.... or months. He was written up in many medical journals back hen as he fought this disease....and we all lived through it with him. We both lost another good friend a few months ago (who had nursed him through his last bad bought with it) and I think he just finally realized it was time to go.... he had been figh ing it so long. Now I read all these stories with renewed hope that so many of you will win the war with this disease... I just wish I could have showed him this sight ages ago.. God Bless you Dennis Littlefield, of Portland, OR and you all who have con ributed to this page...

lois - 03/30/00 19:47:23
My Email:lsawyers@sun-spot.com
State you live in: kentucky

Comments:
my son died of goodpastures syndrome and i pray that you be the one to bet it. you are in my prayers.

Jill Harvey - 03/29/00 16:43:44
My Email:jillybean@coastnet.com
State you live in: British Columbia Canada

Comments:
I was glad to see your site. My father died of this disease in 1992, and I've been looking for information on it since to understand what happened. I really appreaciate all the information you've provided. My sincere thanks to you.

michelle goodpasture - 03/24/00 19:24:06
State you live in: usa

Comments:
hi i'm reseachering goodpasture's syndrome i this is an excelent site

Carina - 03/24/00 03:32:39
My Email:carisil@ciudad.com.ar
State you live in: Argentina

Comments:
l was looking for information about Goodpasture Syndrome. l'm a doctor and l have a pacient with this disease.

Kim Osterman - 03/23/00 09:47:52
My Email:kao_69@hotmail.com
State you live in: Yuma, AZ

Comments:
I have a friend who was just diagnosed w/this disease. He's still in the hospital and asked me to research more on this disease. I thank you for all the information. I'm going to e-mail you because your journal ended in Oct. of 1999. Know you all are n my heart and in my prayers! Sincerely, Kim O.

Heather Clark - 03/19/00 16:49:02
My Email:dethzangel66@aol.com
State you live in: ohio

Comments:
Hell-o. I recently (two weeks ago) was also diagnosed with Goodpasture's and thought I would try to find other people to talk to about it. The doctors here in Cleveland were amazed..... such a rare disease. It's scary. I had complete renal failure before was able to get help. I had no idea what happened. Glad that you made this website. The links and your own story are very helpful. Thank you so much.

Terry O"Brien - 03/19/00 02:36:37
My Email:tobrien@vtown.com.au
State you live in: Queensland Australia

Comments:
my 40 year old brother has just been diagnosed wiyh the disease thanks for all your info it helped a lot

Star Wood - 03/19/00 01:49:35
My Email:swood27662
State you live in: NC

Comments:
My mother is currently in critical condition. The Doctors think it is either Goodpastures Syndrome or Wegeners granulomatosis. Thanks for the information. Star

Donna - 03/15/00 06:05:08
My Email:thomas.gault@worldnet.att.net
State you live in: Indiana

Comments:
Hope you are feeling well at this time. Just thank you for your website - it is very informative. My brother died of Goodpasture's in 1987. He was not so lucky has to have been diagnozed early enough. I also think there must be milder and extreme case . He was only ill for 2 months before he died. It is reassuring to hear that he did actually receive the correct treatments. Thanks again, & My Prayers are with you.

Dian - 03/15/00 00:41:17
My Email:southwest@netzero.net
State you live in: Texas

Comments:
Good luck

Erin - 03/13/00 22:12:56
My Email:erinbear927@hotmail.com
State you live in: CA

Comments:
Thank you so much for this webpage. It is the most informative that I have found so far.

kathy waterbury - 03/13/00 04:26:51
My Email:waters344@aol.com
State you live in: staten island NY

Comments:

alax a. johnson - 03/12/00 19:43:39
My Email:alaxj@netins.net
State you live in: iowa

Comments:
found your site most interesting.I have a 17 yr. old nephew from Spencer,Iowa who has just come home from Sioux Falls,S.D. hospital after being diagnosed having Goodpastures.Thanks for info & good luck. A.J.

Kim Edwards - 03/11/00 03:38:29
State you live in: England

Comments:
I am a Renal Nurse in England. I think that your site is great, especially for people with the same disease as you

theresa ziehm - 03/09/00 21:20:44
My Email:tlzieh@netscape.net
State you live in: michigan

Comments:
Hello, my name is theresa ziehm. My husband thomas was diagnosed with goodpastures in 1986. He felt like he had the flu. So he went to the doctor. The doctor said to get plenty of rest and come back in one week. He did and he was worse. So they did a urin test and he had blood in his urine. He was rushed down to a bigger hospital in detroit. they put him on cytoxin and prednisone. they said he only had 5% function of his kidneys. The doctor was Dr. sidney Baskin. He was really good. He Knew what he was do ng. They then did a kidney biopsy and discovered it was goodpastures. They then did 27 plasma phleurisis treatments. Don't know if I spelled that right. I met my husband in Jan. of 1988. I was 18 he was 40. we married the following March. Things were goi g good. Tom had 25% function in his kidneys and he was working as a police officer. A job he held for 22 years. He had to medically retire in 1990. His kidneys were only functioning 5%. So he went on dialysis. It was awful.In the last ten years he has end red a brain tumor, falling and rupturing his spleen, a doctor puncturing his lung- I was not impressed, he received a kidney transplant in 1993 It lasted 5 years and in june of 1998 his kidney failed once again. we will be married 11 years march 21st. Som days he wishes he was dead. But he has 2 boys from his previos relationship. and is now a grandpa. But doctors tell him he is a miracle. that he should of died years ago. Well he got the kidney end of goodpastures. His lungs are perfect. not saying goodp stures could come back any time. I'm in the process of getting a computer so I'm at the library. Tom is in remission. He is 52 yrs. and says he feels so helpless. I do everything around the house. Some days he does not want to go on. I don't blame him. He s also a vietnam vet. and one of his buddies from nam was just diagnosed with lupus which is very similar. well good luck to all of you and god bless. theresa and tom

steph - 03/07/00 20:03:50
State you live in: UK

Comments:
I was diagnosed with POF at the age of 16, it is a big thing to take in at my age, i thought your story was touching and i hope you get better soon, the site is good too, i shall be reading this over and over again, best wishes steph

judy noe - 03/07/00 02:31:54
My Email:booboesmom_99@yahoo.com
State you live in: colorado

Comments:
my daughter died of goodpasture's in 1978.she was only sick a couple of weeks,but it was a devastat-ing time and so sad.she was nineteen years old with a little girl nineteen months old.the summer before she had trouble with swollen joints and ageneral ac iness,they told her it was arthritis.but i think it was her kidneys then.i think she may have been saved if they had done some testing.anyway,thanks for "listening" to me.judy noe

Rob Bergsma - 03/05/00 19:20:08
My Email:van.bergsma@12move.nl
State you live in: Amsterdam. Holland

Comments:
Hi Tami, Visited you a few times before and still thinking about you. I hope that the fact that you didn"t write since last october doensn"t mean that your health is bad. I was quite surprised you re still a smoker! that was the first thing i stopped after my firs attack. My health is 100% back again after 2 1/2 years. Will visit you again in a few months. keep up the good spirit! Rob Bergsma

danielle - 03/04/00 21:18:45
My Email:danielle877@hotmail
State you live in: maine

Comments:
i found your site while looking for info on goodpastures. i am a respiratory therapist and the head of critical care gives us a disease a month to learn more about. this month was goodpastures. i found your site very informative. i too am someone with a rare disease listed in nord. pseudotumor cerebri. i very nearly lost my sight to this disease. good luck!!!

James L. Brown - 03/04/00 07:12:29
My Email:JBROWN8916@aol.com
State you live in: Washington

Comments:
Your site is a great help to some friends of mine Who aslo suffer from this Syndrome. Thank you for providing this information it will be a big help to those who have Goodpastures Syndrome. Thanks again. Jam

Art V - 03/04/00 00:02:24
My Email:arthurv@netcom.ca
State you live in: Ontario,Canada

Comments:

- 03/03/00 18:09:34

Comments:

Alison Naylor - 03/01/00 22:35:12
My Email:bc_moose@hotmail.com
State you live in: British Columbia, Canada

Comments:
Hi! i was unable to email you from the site, so i thought i'd say hi this way. i am currently being treated for goodpasture's syndrome in vancouver and i am 18 years old. anyways, i appreciated your story.

- 03/01/00 22:31:11

Comments:

Jed Gillis - 03/01/00 18:37:14

Comments:
I like the info in this site isn't all mumbo jumbo like all the sites i've been to. Thank you. Jed Gillis

Gypsy Owen - 03/01/00 13:23:22
My Email:gypsy@libby.org
State you live in: Montana

Comments:
Thank you for having all these pages and links I hope you are feeling much better by now

Gypsy Owen - 03/01/00 13:22:42
My Email:gypsy@libby.org
State you live in: Montana

Comments:
Thank you for having all these pages and links I hope you are feeling much better by now

R.L,Stevenson - 02/28/00 22:25:09
My Email:watchacallit@msn.com
State you live in: Florida

Comments:
I have a long timre friend and neighbor, my age 77who 1 1/2 years ago came that close as he was not diagnosed early. Ted did survive after long hospitalization and the ususal dialysis. He did well till this December and it came back and he is now on incre sed medication. The medical treatment is perscribed from Mayo Clinic of Jacksonville Florida who finally diagnosed his problem. It has been enlightening to read your links and some ,I print out fot his reading. Thank you for sharing, Dick Stevenson

ginger - 02/24/00 08:11:58
My Email:gin1gin2YAHOO.COM
State you live in: TEXAS

Comments:
my husband is hospitalized with dehydration, pnemonia and high fever which they can not find the infection site. I don't know if your information applies to him but they did say he had high protein levels and a possible serious kidney infections. I am at y wits end not knowing. He has been in the hospital for 3 days and he seems to be doing the same. At one point he drank heavly but not anything else and his drinking is only occasionaly and not in large anounts.I appericate reading your article and if thi is in any way any of your experiences please let me know or if you know of anyone with these symptons. Thank You again Ginger

ginger - 02/24/00 08:06:21
My Email:gin1gin2YAHOO.COM
State you live in: TEXAS

Comments:
m

mildred velazquez - 02/20/00 16:12:10
My Email:bella369@aol.com
State you live in: FL

Comments:
My father in law might have goodpasture's syndrome. he was flown here from Santo domingo and they are still running test but think that he may have the syndrome . I am really worried , and so is the rest of his family. We all love him very much

Mark Anthony Beadles - 02/18/00 23:17:06
My Email:mb@smartpipes.com
State you live in: Ohio

Comments:
I am a 32 year old male who was diagnosed with Goodpasture's in 1989 - 10 1/2 years ago. My lungs and kidneys were both affected. Luckily, my lungs recovered fully and I have had no relapse of GBM. But, my kidneys were destroyed completely and I have h d a transplant for the last 8 1/2 years. But, all the greatest things in my life have happened since I contracted Goodpastures - my marriage to my wonderful wife, and the births of our two sons! It is great to see all these stories on these pages because it helps put the names of real people on the disease. I've gone too long with being told "it's a very rare disease", and I am glad to meet others who share my same diagnosis... :)

Amber Borchert - 02/16/00 18:14:16
My Email:NA
State you live in: Missouri

Comments:
Goodpasture's syndrome took the life of my brother -in-law over four years ago. He had fought the disease in the ICU for two full months and struggled to make it passed mother's Day. He left behind my sister and thier then 4month old baby boy. We were errified when we heard that there was a possibility the predisposition for the disease was passed genetically and my nephew could get the disease in the future. Thank you for having this page.

Barbara Saxer - 02/16/00 03:47:56
My Email:crcle7@msn.com
State you live in: Virginia

Comments:
My best friend was diagnosed in the beginning of January. She had lots of treatments and was in the hospital for over a week. She had just had the plasmapheresis catheter removed a few days ago and her doctors felt she was doing well. She had a couple trokes on Valentines day and is unconcious in the hospital. I'm so worried about her.

Damian - 02/13/00 20:03:59
My Email:warrendamian@hotmail.com
State you live in: London, England

Comments:
My brother died last june from goodpastures (lung haemmorage) aged 29. We never realised how serious it was, he was so fit and strong. These past months have been very difficult, thanks for this website and good luck for the future. Damian

Alice Thomas - 02/12/00 04:20:44
My Email:ronthom@inetone.net
State you live in: W.VA.

Comments:
Looking for info for a friend

Larry W. Smith - 02/11/00 06:13:41
My Email:methos@usit.net
State you live in: tennessee

Comments:

L WEIGL - 02/11/00 01:08:16
My Email:LWEIGL@PRODIGY.NET
State you live in: MICHIGAN

Comments:
MY HUSBAND HAD GOODPASTURES DISEASE, HE PASSED AWAY 4 YEARS AGO.

Angie Parisi - 02/10/00 21:55:32
My Email:aparisi@copycon.com
State you live in: Missouri

Comments:
My cousin has had nose bleeds from time to time. He had one when I saw him the Friday before last. A few days ago he went to the doctor and was given medicine for an ear infection. He has been in the hospital for the past 2 days. He is heavily sedated now He was coughing up blood when they rushed him to the hospital two days ago. He has thalosemia which runs in our family. The doctors think he either has Wagoner's disease or this. He had a lot of seizures as a small child, but did not have epilepsy, and t ey treated that with medication finally after months and never did find the reason for them. His name is Matthew. Everyone calls him Matt. He just turned 14 last 02/03/00. His birthday party was supposed to be Sunday, but it was called off because he was ick. We thought with the flu, but now it is very bad. We are very worried. Please, pray for him.

Debi Steacy - 02/09/00 21:56:48
My Email:debi_steacy@sabre.com
State you live in: Texas

Comments:
My youngest brother had Goodpasture's syndrome (1996-98) and my other brother was able to donate one of his kidneys on Thanksgiving Day enabling him to be home with his three kids in time for Christmas. Unfortunately, in February he contracted a virus a d because of his low immune system he was not able to fight the virus. But he did fight - he fought hard to live for three long weeks. I miss him every day, but my message is that if you have the transplant, please be careful of any virus, protect yours lf, be careful. You are all in my prayers, because I know what you and your family are going through.

Sandra Wilkinson - 02/09/00 16:31:52
My Email:tbcwyomny@wycol.com
State you live in: New York

Comments:
My cousin's husband has been diagnosed with this. I was just checking out information regarding it. Thank you for all your wonderful information.

ian - 02/07/00 23:43:48
My Email:ian@travelpackcan.com
State you live in: toronto

Comments:
ive just found out my nephew 30yrs,has been diagnosed with goodpastures syndrome.his name is darragh and is currently in hospital in dublin, ireland.it was touch or go with him over the last few days.currently he is in a hospital induced sleep...for they say up to 6 weeks?? this i dont understand....they say it is better for him/less stressful as he is not able to breathe on his own. his kidneys and his lungs appear to be infected and we dont know what to expect next.the hospital are treating him and keep us updated on situation......is this going to effect him the rest of his life/ can he possibly die/ what is the quality of life after hopeful cure.....i found this site to be very helpful and hope that he will survive......please god.

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