Deanna Hulme - 12/07/00 03:33:45 My Email:Hulmedcp@aol.com City: Hillsboro State: OR

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Amanda Smith - 12/05/00 14:14:43 My Email:silk_rose_78@yahoo.com City: Portales State: New Mexico Country: USA

Comments: Carey, I recently asked you a question on another website, and saw your address there. I am sooo glad that I found it. You are a very caring and intelligent woman. I am forever grateful that I found your web page and for the information that you provided e. Thank you soo much. Take Care and God Bless, Amanda

Christina Bailey - 12/02/00 05:20:54 My Email:Sunny_48651@yahoo.com City: Houghton Lake State: Michigan Country: USA

Comments: Your story was very moving for me. I also suffer from endometriosis. I've had it since I was 13 but not diagnosed until I was 18. I still suffer from irregular periods and bad cramps. I've had a laproscopy done and that's all. I had to take birth control o regulate my periods and I've been off of them for about a year and I'm irregular again. I don't know what my odds are for ever having children but I know I'd love to have them. I have huge support from my boyfriend of six years. He's been there through t all. Where I go from here I don't know but all feedback is much aprreciative.

Karen Martin - 12/01/00 03:13:08 My Email:kamartin@jps.net City: Sacramento State: CA Country: USA

Comments: After several years of pain, I have recently been diagnosed with endometriosis. I'm going to be consulting with a specialist on December 13th to discuss my options. I'm a little nervous, but am looking forward to the possibility of having a pain free mo th. Thanks for sharing your story and I wish you all the best

Christine - 11/27/00 12:14:32 My Email:christineakabb1@peoplepc.com City: Louisville State: Kentucky Country: USA

Comments: What an uplifting and promising site. This had made me have hope. I was just diagnosed with ENDO just by the symptoms. I have every single one known to doctors..lucky me huh? Well, we are doing the pill thing starting today and hope that it goes okay. In a few months I will know. I am scared of not being a mother though. I am single and 24 years old. I just pray that we all get through it without losing our hopes and dreams. Thank you Carey. This is a wonderful and inspiring site.

Jerome Yoscovits - 11/27/00 01:58:14 My Email:rm4517m3@aol.com City: wyandotte State: michigan Country: usa

Comments: Wonderful website. My wonderful wife has endo as well and it has been the trip from hell....literally. Never before had I ever imagined that a disease like this could cause such havoc. Your site as well as John's were so very important to me and really gave me an understanding about endo and all it causes. We can only hope for a cure. I will remain right by her through it all, no matter what it brings. Only wish, more than most can imagine, that I could do more for her and bare the pain for her. if nly........

Ivy - 11/21/00 20:01:27 My Email:Ivy161281@excite.com City: Medina State: Ohio Country: US

Comments: Just wanted to say thanks for composing such a wonderful site and big thanks for the link to MENDO.

JUDI HALLETT - 11/21/00 19:14:59 My Email:JP51@PEPLEPC.COM City: NEW WINDSOR State: NY Country: ORANGE

Comments: CARY, THANK YOU SO MUCH FOR YOU WEBSITE. I HAVE THOUGHT FOR MANY YEARS THAT I TO HAD ENDO, AND LAST WEEK I FINALLY FOUND A WONDERFUL DOCTOR WHO CONFIRMED THIS. GOD BLESS YOU I'M GOING TO SEND YOUR COPY TO ALL OF MY FAMILY AND ESPECIALLY MY EX-HUSBAND OF 14 YEARS, WHOM IS IS STILL A DEAR FRIEND, BUT COULD NOT UNDERSTAND THE PAIN I WAS IN AND BECAUSE THE DOCTORS NEVER FOUND IT, HE BELIEVED IT WAS ALL IN MY HEAD. THERE WERE MANY AFFAIRS, THAT I OVERLOOKED BECAUSE I THOUGHT IT WAS MY FAULT. THANK YOU, AGAIN

Shannon Young - 11/10/00 03:26:45 My Email:jay_shan_@msn.com City: Kennesaw State: GA Country: US

Comments: Carey, I have recently joined the endometriosis post that you refered to in your story. I want to thank you so much for sharing your story with the world. I understood, I cried, I worried, but most of all it helped me not to feel alone and wavting to yell from the roof tops until people understand and care. Best Wishes, Shannon Young

Shannon Young - 11/10/00 03:26:43 My Email:jay_shan_@msn.com City: Kennesaw State: GA Country: US

Comments: Carey, I have recently joined the endometriosis post that you refered to in your story. I want to thank you so much for sharing your story with the world. I understood, I cried, I worried, but most of all it helped me not to feel alone and wavting to yell from the roof tops until people understand and care. Best Wishes, Shannon Young

- 11/08/00 01:50:39

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Christy Christian - 10/31/00 00:28:42 My Email:jac345@netzero.net City: Manheim State: PA Country: USA

Comments: Hello, I am a mother of 3 at the age of 24. I found out that I have endo last year. I had surgery and everything was fine. Now about 3-4 months ago the pain came back. I just went to the dr's today and (excuse my language) but he was a total ass. He idn't let me finish me telling him all the pain I am having etc.. I liked the first dr I had that did my surgery but she moved back to another state. She was so nice explained everything to me and was just there for me when I needed her. I feel so alon , so angry, so afraid, depressed. I am so angry against my kids and husband. I want my life back where is my life I keep asking myself. my endo is running my life. I DON'T WANT THAT!!!!!!!!! Well, it was very nice reading your story. I hope to hear from someone that has endo. See I stopped looking on the net after I had my surgery thinking it would be gone and not come back. And it did I know it did I am in so much PAIN. It is the same pa n I had before and the dr thinks I'm just saying stuff. They don't know nothing. Well, gotta go!!!! Christy

Heidi Chwala - 10/18/00 23:35:15 My Email:koala-h@jefnet.com City: Jefferson State: Wi. Country: USA

Comments: I really liked your site. It had lot of information that I didn't know.

Melissa Molt - 10/17/00 05:06:46 My Email:BearsieM@AOL.COM City: Largo State: Florida Country: USA

Comments: Carrie, here I sit very late at night and am reading your story(cannot sleep due to the pain). I also suffer from Endometriosis and have for 10 years now. I had a Hysterectomy at the age of 23 thinking my problems would come to an end boy was I wrong!(hav had 9 surg to date) This horrible disease has invaded every cell in my pelvis and I live in constant pain and take pain meds on a daily basis. I've been so depressed lately and feeling I can no longer fight anymore but, reading your story has reminded me we are not alone in this. Thank You very much : ) P.S. I too am trying to reach Dr. Cook I know he's the only person who can help me. Take Care and God Bless...Melissa Molt

Joanna Spyridoulias - 10/16/00 05:33:28 My Email:spyjo1999@hotmail.com City: Montreal Country: Canada

Comments: Hi Carey, Thank you so much for your web site. It is good to know that I'm not alone in this suffering. After suffering for almost 7 years I just had surgery. My doctor told me he removed the endo but a month later the same pain was back. I feel so de ressed and helpless. His only suggestion was to give me 'depo provera' for 6 months which will make me go through menopause. I might just do that, I'm in so much pain. Thank you again, Joanna....

Audrey - 10/12/00 19:49:53 My Email:Audreyt@mediaone.net City: canton State: mi Country: us

Comments: My wish for you: No pain, NO suffering, Only eternal happiness

Shya-Lea - 10/07/00 23:39:17 My Email:shyalea@home.com City: Yorktown State: VA Country: USA

Comments: Thanks Carey for a great web site. It is nice to know there are others who try to live with this disease. I will be having my third surgery 10/20/00. I am looking forward to it because I really need some relief from the pain. I was officially diagnosed when I was 19, I am now 27. I wasted 5 years of my life with a man that was very uncaring and unsupportive in hopes that I would "get married and have children" one day. Needless to say it ended after my last surgery. The results weren't promising and he only thing good of it made me realize what a jerk this man had been. I am now with a wonderful man who is caring and supportive in every way. I have checked out your husbands MENDO site and I just cried. Thanks again for your story and good luck wit all!

Leeann - 10/07/00 04:55:48 My Email:blmbunn@juno.com City: Lynden State: WA Country: USA

Comments: Do you have any info on Natural health choices? Thank you for you honesty in sharing your life!

John A. Nix - 10/04/00 15:58:56 My Email:johnanix@webtv.net City: Pearland State: Tx. 281-485-4143 Country: USA

Comments: Thank you, For the many contributions you have made and continue to make in helping those who have endo and in bringig this disease to light! John has truly been a Godsend, I have a lot of respect for him as I came to know him through his mendo web site, he is a goo man.. I wish for you both the very best in your fight against this disease tat many don't understand.. Again it is quite an honor for me to have Endo Sisters placed in the Survival Kit for there it may serve as an inspiration to many logging onto the kit for the first time and again to remind us all what we are about! One of the most heart wrenching e-mails I got was from endofl3 who is the director ofoperations for the ERC... In writing Endo Sisters you (group) has taught me something as well, that you a e there as much for me whenever I feel down need to vent, that the communication lines are open...This is our group and it is up to us to make it the best it can be.... Take care cyber hugs and if you need me I am a keystroke away !!!!

Bobbie Jo Pearson - 09/27/00 00:44:38 My Email:Teddiexo@aol.com State: Delaware

Comments: I really found your site to be very informative. I have found that I have some of the same symptoms but not yet been diagnosed. I am going back to my OB/GYN this coming month and will decide on what to do. thanks!!

Jeannah McElroy - 09/24/00 03:29:49 My URL:http://www.angelfire.com/fl/endohystnhrt My Email:jeannahmc@home.com City: Sarasota State: FL Country: USA

Comments: Dear Carey, I found your site from another link to check out Mendo as I referred it to someone in the Egroup I moderate for possible support for her husband. Just wanted to send Blessings to both you and John, and prayers for you and everyone still suffering from the pain and still hanging in the battle. *hugz*blessings&good health! Jeannah Hysterectomy Awareness http://www.angelfire.com/fl/endohystnhrt 39-TAH/BSO-07/17/97 for endo, ovarian cysts & chronic pelvic pain. **I am NOT menopausal**I have NO ovaries!

Marci Port - 09/21/00 04:58:43 My Email:tooperky@internetwis.com City: Columbus State: Wi Country: USA

Comments: Just thought I would sign yer book and say hi! HI!!! :)

Noleen Hendricks - 09/11/00 08:35:20 My Email:ngeorge@ctech.ac.za City: Cape Town Country: South Africa

Comments: This is a great webiste, I was diagnosed with Endo on 26 April 2000. All I have learnt about this disease are from websites and newsgroups. The Doctor never informed me about what I was in for, I had to learn about it all on my own (not a great way to d al with Endo). Thank you for an informative site and all my best to you.

Michelle - 09/09/00 03:01:12 My Email:candbmommy@yahoo.com City: Conneaut State: Ohio Country: USA

Comments: Thank you for sharing your story..I cried when I read it. I am a newly diagnosed endo, my pain started about 8 months ago and I was afraid to go to the doctor. I had a laparascopy with laser removal of adhesions and drainage of my left ovary...it was fl id filled..last week and just 4 days after this procedure my pain is worse than it ever was!! I know that I have not suffered as long as you, but I can't stand this anymore. I think that the worst part of this is that I cannot play with my 3 year old tw ns like I used too. One of them says "You feel better yet, mommy?" That just breaks my heart everytime. My husband is supportive but I think that he is more afraid than I am. My boss(a doctor, I am the nurse in her office) is very supportive and has p omised to hold my position for me, right now I am on bedrest (which hasn't done much). I think he is going to start Lupron injections next week..I am hoping that it works for me, but I don't hold out much hope. Thank you for this site and thank you for etting me share my story. Michelle

Leslie Anne Kennell - 09/08/00 21:38:44 My Email:EyeType@neo.rr.com City: Wadsworth State: Ohio Country: USA

Comments: What a great accomplishment--the remarriage and the website. Thanks for all the information.

Alisha Collins - 09/07/00 06:08:15 My Email:borobunch@aol.com City: Murfreesboro State: Tn Country: u.s.a.

Comments: Thank you for your story...I am a suffer of 15 years.I was blessed to have 1 child during my non pain period. I am scheduled for a hysterectomy on sept 14.. I can no longer stand the pain and constant surgeries. I too am lucky to have a wonderful husban ..Hope your recovery is great. thank you, alisha

Shawnna - 08/11/00 02:49:00 My URL:http://home.talkcity.com/healingway/skyhippie/index.html My Email:skyhippie@talkcity.com State: Texas Country: USA

Comments: I enjoyed your site! I have Endo. too. I am 23 and trying to conceive. I want to help raise public awareness about this awful disease. I have began to make a webpage and want to add pages on it about my Endo. story. I have website links about Endo. on it ow. If you would like to email each other please do so, or anyone else who is reading this! Thank you so much for telling your story, it gives me confidence that I can help too! http://home.talkcity.com/healingway/skyhippie/index.html

Tricia Marie Evans - 08/03/00 22:06:20 My Email:cntevans@earthlink.net City: Woodville State: TX Country: USA

Comments: Absolutely wonderful! Thank you so much for sharing. It is August 3, 2000, and I am 5-1/2 weeks post-op lap. I want to make wonderful comments about your site, because it is SO WONDERFUL, but I am just so upside-down right now inside. I am so thankful for my understanding and loving husband of almost one year. I was diagnosed in June 2000--I can't even begin to imagine how I would have handled all this without him. I cried while reading your site. I can't seem to get enough internet support and info mation. I keep myself busy reading so I don't have to think about what the future might hold. I just keep on trying to focus on the positive--that my surgery and Lupron treatment will allow me to have children (the desire of my and my husband's heart). I don't want to think too much past that because IT SCARES ME TO DEATH! Then I get tensed up and start to hurt. I am desparate to change my lifestyle to help me live life to the fullest! I am trying every moment to not allow endo to rule my life!

lydia burnett - 08/03/00 14:30:28 My Email:lydiacoco1@hotmail.com City: tampa State: fla Country: hillsborough

Comments: I cried when I first read your story. It feels good to know that I am not the only sufferer of this terrible disease. I have had endo for 12 years. I am looking forward to the day when all of this will end.

Theresa - 08/01/00 13:36:57 My Email:tllivesay@yahoo.com City: waterford State: michigan Country: usa

Comments: Hello, my name is Theresa. I lost my left ovary when I was 20 and now with no insurance am having trouble with my right. I was wondering if you have any more info on how to get help with no coverage? My Doc has scared me by saying ovarian cancer, I've ad ultrasounds which where not cheap. If you know of any thing would you please let me know? Thank you for your story, God bless you and your husband. Theresa

Becky Trumbull - 08/01/00 09:28:11 My Email:stylinbb@cs.com State: California

Comments: I enjoyed all of what you wrote and I appreciate everything you have gone thru and that you shared it with everyone to better understand and to cope.. I have had 1 surgery with endo and I am in pain again..surgery was only a month ago..the doctor I have I feel is not as experienced as I would like and I want the best because he seems to be surprised that I am not better after doing all the work he did..I had adhesions on my bladder and bowel tract and he did a dnc and drained my cysts and thought I would be better but said my uterus did not look good and maybe with the pain I am having now that would be the next step to take the uterus out in another month if I am still dealing with this incredible pain...lower back pain..I cant eat much because I am havi g trouble digesting again..I have the mood swings and my job is suffering. They dont understand. I feel like I am going out of my mind..I am divorced and have no significant other and I have 2 wonderful boys but I have no family in town for support..I wa t to know more about your doctor..I would travel for the best...please contact me with info on how to get to see him...thank you for listening...Becky

Rhonda Deal - 07/27/00 19:35:51 My Email:RhoniD@aol.com City: Rosamond State: CA Country: USA

Comments: Fantastic!! Very informative and educational. You've poured your heart out and shared your own personal experiences and it brings hope and freedom to other women who are trapped in the ravishing cycles of pain from endo. Keep up the good work!!!

Angie Spencer - 07/11/00 04:46:24 My Email:ramsspencer@yahoo.com City: Limon State: CO Country: U.S.A.

Comments: I really appreciate your site. My husband appreciated viewing John's site and wrote that to him. I feel for him because he doesn't have anyone really to vent his feelings on. I, on the other hand, have a friend who used to be a nurse, has had chronic p in as well as severe peliv pain to the point of a hysterectomy. I can go to her anytime I am feeling down. Plus I have the support of other women like yourself. But that doesn't mean in any way shape or form that this is the least bit easy for mme eith r. I too have a wonderful man by my side, thank God. I would like to be able to E-mail you in the future and if that's possible please send me your address. I did visit Dr. Cook's website and left him a message. I have no insurance and that is a seriou concern of mine. But I would LOVE to get help from Dr. Cook. And, YES Boy! do I understand your statement about being excited to have surgery!!! Only someone like us would. But I look forward to the day someone helps me even if it means going under the knife it would be sooooo worth it!!!!!!!! Thanks again, your site is great. The music is a nice touch. Angie

Amy - 07/09/00 18:32:02 My URL:http://www.coolnurse.com My Email:coolnurse@coolnurse.com City: Clearwater State: Florida Country: USA

Comments: Nice page. I suffered with endo for years, but I didn't know that I had it (and I am an RN). It was found AFTER the surgeons opened me up to remove a mass (which was huge endo adhesions) from my pelvis. I had a hysterectomy as the endo was everywhere and a large fibroid in my uterus. LUPRON is a very dangerous drug. I took it for 3 months after surgery -- was supposed to be 6 months. IT has been taken off of the market in Europe & I think in Canada. The FDA no says it is NOT safe to use longer than 6 months, but they are considering removing it from use. BUT the Amer. College of OB/GYNs want to use the drug. Whatever! I would have surgery again before I ever take Lupron again! Good luck to all.

D. Roberts - 07/09/00 07:07:42 My Email:dawn.roberts@sk.sympatico.ca City: Regina State: SK Country: Canada

Comments: I just found out a couple days ago that I have endometriosis. I am not sure what to think about it. I am just learning. I am scared that one day I will find myself in a lot of pain like you. I can't handle pain very well. I hope I don't have to go t rough all those surgeries. There are some days when I have a bad pain in my left side and can barely walk. I want to find someone to talk to because around here everyone is learning about this disease from me. Emotionally I don't think they can really co prehend what I am feeling and thinking. If you can please get back to me, or send information on who I can contact for support in my city. Thank You!!!

Dee - 07/01/00 18:26:35

Comments: Grand Opening! You are invited to Friends United! Friends, Women, Mothers Come and join us today! Monthly site competitons, starting in July Owned and operated by Amy and Dee.

Lena Campbell - 06/18/00 16:23:35 My Email:lenabrian@tnaccess.com City: Crossville State: Tennessee Country: usa

Comments: Very informative website. thanks so much for all the information

Lindsay Garcia - 06/15/00 03:14:38 My Email:lindsay_garcia@amsinc.com City: Paramus State: NJ Country: USA

Comments: Hi Carey... Just wanted to check out your site. I got the URL from the signature at your ERC e.mails. I read your experiences with Dr Cook and am looking forward to my own experience mid-July. Thanks for all your encouragement! Blessings to you, John a d yours! -Smiles, Lindsay

cplleen - 06/01/00 01:11:30 My Email:colleenkoster@hotmail.com City: Burlington Country: Canada

Comments: Your a brave girl with a great spirit! Keep it up! Its been nine years since my four surgeries and your story bring back alot of memories! Im great now..touch wood!...Good Luck

Alicia Jessop - 05/25/00 16:27:54 My Email:alj9495@aol.com City: SUNNYVALE State: CA Country: USA

Comments: YOU ARE A VERY SPECIAL WOMEN, THANK YOU FOR ALL YOUR DEDICATION TO ENDO.

Tammy Huffman - 05/23/00 02:50:07 My Email:ilovetwister@hotmail.com City: Elkton State: MD Country: USA

Comments: I loved your website. I can relate to your pain, for I also suffer from stage 4 endo, severe adhesions and scar tissue. I am not 3 mos. into a 6 mos. course of lupron and hate it. My pain is worse since my surger and the Lupron. There are times when I would gladly lay down in front of a speeding vehicle, just to end it all. I wish you continued good health, and pain free days. Tammy

Janell Pinner - 05/13/00 06:51:34 My Email:pinnerj@aol.com City: Port Neches State: TX Country: USA

Comments: Thank you so much for taking the time to share your experience. I truly thought I was losing my mind after a year of constant pain and bleeding (yes, every day!!), but I now know I am not alone in the battle. I feel like I know you and you understand me. have felt like I was alone in this for so long and it's such a relief to know there is so much information and support out there. I want to do something. I'm tired of being a "victim". I want to start fundraisers, walks, whatever I can to increase awareness, provide support and raise money for research. Please let me know if you can offer suggestions to get me started. I know God ha a plan for my life and everything is for a reason. I don't know the reason for this hell I have been going through, but I can't take it anymore. I want to help others. I want people to know how seious this disease can be and how important it is that we d all that we can to help in finding a cure, or at least a treatment which side affects aren't as bad as the disease itself. Again, thank you for your courage. I will be praying for all of us that suffer. Again, please let me know if you have any suggestions as to where I can start in taking an active role in my disease. I really want to help other people who have this as well s their families, friends and co-workers. I am ready to fight back.

Louise Bugg - 05/06/00 15:54:26 My Email:louiseb@mustang5.freeserve.co.uk City: Crayford State: Kent Country: United Kingdom

Comments: Excellent website. Sorry to hear about your symptoms and suffering, but glad to know you understand, and are improving. Good luck and best of health to you, Louise

Bev - 05/04/00 12:28:38 My Email:9906206@middlesbrough.co.uk City: middlesbrough State: Cleveland Country: England

Comments: I am 21 years old and have had severe pelvic and back pain for over 2 years. I have seen 2 consultants and had 2 laps to determine what the problem is but nothing has been detected. I have been on Zoladex for 3 months as they thought that I must have Adn miosis, this medication has not touched my pain. I know from all the research that I have done that I am an endo sufferer, you're site has given me great inspiration to be strong, you are a very brave woman indeed. Johns website was also excellent and he has sent me some brilliant and supportive information. I just hope that they find out what is wrong with me soon as I cannot go on like this, I am losing my strength to fight this evil thing. The problem with England is that they are aprehensive to use t e scans to detect forms of endo, I am sure this would help. I am seeing my consultant on May 8 2000 to review the situation.

Scott McEleney - 05/03/00 12:17:31 My Email:scottmceleney@hotmail.com City: Livingston Country: Scotland

Comments:

Katrina Arellano - 05/02/00 14:22:03 My Email:karellano550@cs.com City: west valley State: utah Country: usa

Comments: Your site is great. I have endometriosis and it is ruining my life. I am having such a hard time finding a doctor to help me. I spent all day in the emergency room yesterday with severe abdominal and back pain and they opted to do nothing about it, but pu p me full of meds. that didn't even help me. Nothing showed up in an ultrasound, that's why they didn't do anything. There is so much inside that they can't see on an ultrasound. The pain is like it was before I had 2 laps to take care of cysts and adhesi ns. I am going to the University hospital on the 23 of May, he is suppose to be the best pelvic pain doctor in the state. I'm sorry for blabbing on,it helps to share my story with other people. I'm afraid I will go to the doctor and he will suggest bcp's, the lupron shot or more pain pills and I do not want any of those. I have tried all of those and nothing has helped.I need more of a permanent solution. On top of being in constant pain, depressed and have a hard time with my relationship with my fiance', I also lost another job due to the fact that I am in bed 4 dats out of the month and miss too much work. Thank you for this site it has helped me. Take care. Do you have any ideas that could help me convince the doctor that I believe something is very wro g and needs to be seen through laproscope? Talk to you soon!!

Michele Guarino - 05/01/00 16:42:44 My Email:cheleg@msn.com City: East Haven State: CT Country: USA

Comments: very informative!!! I was diagnosed with "mild" endo about 7 years ago while trying to get pregnant. Never got pregnant, got divorced instead! Since then my periods have gotten worse. and I suspect so did the endo, soooo I made an appointment with an ob gyn and hopefully she can help! (the last ob/gyn did a laparoscopy and said she would take care of endo if she found it..she found some and left it there!!!)

Toni Weaver - 04/27/00 19:40:34 My Email:tandt@strato.net City: Lake Placid State: Florida Country: USA

Comments: Carey, I never knew you had to go through all that! Toni

Sandra Greco - 04/26/00 00:38:32 My Email:smilesallot34@Hotmail.com City: Coventry State: Rhode Island Country: USA

Comments: Thank you so much for your story. Maybe now I can save my marriage and sanity. I am only 28 and I live in constent agony, I was able to have two children one natural one with clomin but my condition worsened after giving birth. I was not diagnosed until m second child Turned two whic was only 5 months ago. I am misrable, but now I have amunition to bring to my obgyn!

Regina Hedden - 04/24/00 23:25:52 My Email:rthedden@ellijay.com City: Ellijay State: Georgia Country: America

Comments: I enjoyed reading your account of multiple experiences with endo. I was diagnosed 5 years ago, just after my first child was born. I have had several biopsies and D and C's done in order to have my second child. Now she (my baby) is 21 months old and my d cotors have told me that I need to have Lupron injections once a month for 6 months or have a complete hysterectomy in order to be pain-free. I am 25 years old and a hysterectomy just does not seem to be the answer for me. I did not even realize that endo was a disease until my husband watched a TV special on it a few weeks ago, that is something my doctor neglegted to tell me. Please let me know if you have more information. Sincerely Regina Hedden

Susan Lapp - 04/23/00 21:51:45 My Email:nlllapp@netsync.net City: Cassadaga State: New York

Comments: Oh Carey, I just read your page today and it made me cry....partly selfishly because I can truly relate to your distress! Thank you for sharing all this with us and for the ribbon of hope....though for some of us hope is still ilusive. Maybe sometime I will be brave enough share my story too. Susan

Deborah Erdmann - 04/23/00 03:11:04 My Email:SouthernLady45@msn.com City: Camarillo State: CA

Comments: Just thought you might be interest in the info at www.sensiblehealth.com/index

SHELLEY HOILMAN - 04/18/00 03:07:33 My Email:SHELLEYH@M-Y.NET City: BAKERSVILLE State: NORTH CAROLINA Country: USA

Comments: I WAS REALLY DOWN TODAY WHEN MY DOCTOR TOLD ME I MIGHT HAVE ENDO.I AM 23,AND I AM GOING THROUGH THE SAME THING. TRING TO WORK, I CANT STAND LONG BECAUSE OF THE PAIN,I AM MARRIED 2CD TIME AS YOU WERE AND I HAVE A GREAT HUSBAND VERY UNDERSTANDING BUT IT IS STILL HARD WHEN WE CANT HAVE SEX BECAUSE OF THE PAIN WHEN WE DO SOMETHING HE NOTICES IT HURTS AND HAS TO STOP SO ITS VERY HARD TO TURN YOUR SELF OFF.WORKING A JOB OR DOING HOUSE WORK AND TAKING CARE OF MY TWO BOYS 6YEARS AND 19MTHS .WELL ICOULD GO ON BUT IWOULD ONLY BE RE WRIGHTING YOUR STORY ,BUT ONE THING I DO LIKE TO ADD MY INLAWS REALLY MAKE FUN OF ME GOING AND GETTING A JOB AND AS SOON AS I HAVE WORKED A COUPLE OF MONTHS MY PAIN GETS WORSER SO THEY DONT KNOW ANYTHING ABOUT THE PAIN I HAVE AND I REALLY GET DOWN ON MY SELF BUT AFTER READING YOUR LETTER I HAVE A SMILE ON MY FACE AND I COULD CRY FOR ALL THE JOY YOU BROUGHT. I BELEAVE IN GOD AND I TURN IT ALL TO HIM .I BELEAVE THAT HE LEAD ME TO YOUR LETTER AND I PRAISE HIM FOR THAT .THANK YOU AGAIN SHELLEY

Brandy Kelley - 04/15/00 20:07:40 My Email:sugarknookems@hotmail.com City: Newark State: Ohio Country: USA

Comments: I liked that you put a website on the internet about this. I thought I was so alone being diagnosed with endo at age 18. (now 19) I've had the pain and suffering since I was 13. Thank you and I hope for the best for you and other endo sufferers

Connie Betcher - 03/31/00 04:39:06 My Email:bcbetcher@msn.com City: Englewood State: CO Country: USA

Comments: Thank you for your story and information. I too have suffered too long. I have put this off hoping it would get better. (I had not educated myself)I am now into full force investigating, because I suffer from severe pain.I also am starting to experience ew pains and symptoms as well. Thank you on your advise. I WAS going to go see an OBGYN. Key word...WAS. Now it's off to a specialist. I don't have time to waste on guesses. I am going to go into your husbands site and copy it for my husband. He has been so good to me. I don't think I could have coped this long without all of his support and help. It's time to start the healing. He will appreciate another mans view on this as well. I'm sure he feels like he's the only one who has to deal with such crazy, sickly, emotional woman like me. ha

Therese - 03/22/00 09:16:13 My Email:barbertlw@aol.com City: Caledonia State: IL Country: USA

Comments: You have a great site, keep up the good work on spreading info. I have had endo since I was 12. I finally found a doctor 2 years ago that has changed my life. He is known around the world and women come from as far away as China just to see him. His name is Dr. David Redwine and he is in Bend Oregon. He is mentioned in every book I ever read on the subject of endo and on many of the web sites I found. He has an endometriosis clinic that is in St. Charles Medical Center in Bend Oregon. He also has a doct r that he works closly with that is a bowel specialist for endo. I had very severe endo and had to have a hyster and bowel surgery, but now I for the first time in my life since 12 am happy and healthy!!! Hope this can help someone. Good luck.

Raquel - 03/12/00 12:38:43 My Email:patmalone@rmi.net City: Pueblo State: Co. Country: Pueblo

Comments: I have recently been treated for endometriosis and cyst in December of 99. It was my second surgery in a year due to the same issues. I've become very discouraged in my doctors, career, and social life. Luckily I've got a supportive husband that is doing the best he can to encourage me that it's not my fault or that I am still a strong person even when the pain is so bad I can't bare to stand it. I'm fed up with taking pain killers and frightened to take any other means of meds to control this disease. What if I have an reation? What if it doesn't work? What if I never have children? Yes, we've been through the discussions with our doctor that it might not be possible to concieve. That really put a damper on things, bot to mention I happen to live children and my career is working with children at a daycare. I am a director for the time being on a leave of absence with the fear of it becoming a more than a leave of absence. I guess I'm having a hard time adjusting to what it's doing to my life and the people in it. I'm a little hostle about it too. What did I do to get this terrible and unexplainable disease? Anyways maybe I'll quit being so bitter about it once I adjust. Thanks for giving me an oppportunity to vent and also to be aware that there are other women and I'm not crazy, the pain is real and it's

Roxie Smyers - 03/09/00 16:33:31 My Email:akroxie@aol.com City: Waverly Hall State: GA Country: USA

Comments: I had no idea I could find such a great site, I had a hstro in 97 because of severe endo, and I still have problems, I don't know what to do. Now that I have found this site, I can read the information and find some answers. I have an understanding from m doctor that my endo was everywhere. I have high ca125's still, and still have problems with pain and other things. You site is beautiful! I am going to obtain a great deal of knowledge from this site. Thank you. I have some family members who also have e do and they haven't done anything about it. I can't get them to get it taken care of. I guess they aren't finsihed with the suffering. I was wondering can you still have problems once you had an hstro? I feel just like I did before the surgery. I have bee feeling like I still have a cycle because it hurts down there on different times of the month. Plus there some other things going on. I mentioned this to my doctors, but they just let it slide by as if I were not speaking any words at all. I am going to earn from this site and start asking questions. I hope the surgery works for you, and the suffering is over! God bless you and your family. Roxie

Anne Schook DeCarlo - 03/06/00 15:21:56 My Email:schook@sharpecapital.com City: new york State: new york

Comments: Dear Carey, I am glad that I now have someone to talk to that understands what I am and have gone through. I hope everything works out for you. I will keep in touch. May GOD be with you........

Angela - 03/01/00 03:25:15 My Email:ajeltema@yahoo.com

Comments: Hi, I know how you feel, I'm only 20, and I've had endo for the past 7 years. Hopefully some day there will be a cure for all of us. Angela

Lynn A. Reppert - 02/22/00 20:48:18 My Email:realtorlynn@snip.net City: Trainer State: PA Country: USA

Comments: Dear Carey, I'm in tears after reading your story. It brought back so many memories that I have tried so deparately to forget. I haven't suffered like you have. I spent over a year and a half going from docter to docter until I finally broke down in tears in one of the doctor's offices. That doctor told me that I was either a nut case or I that I really did have a problem. He performaed a laproscopy 3 weeks later, and found the worst case of endromeriosis that he had ever seen. One month later he performed a ooph rectomy. I have been fine since. He saved my life. I haven't had any reaccurrance. I have a wonderful supportive husband like yours. What a rare find, to find a man who will stay by your side during the worst of times. Hold on yours, with endo you n ed a saint of husband in order to survive, for they are really the only ones that know what what you're really going through. I wish the best of luck.

Jeanne - 02/19/00 23:30:41 My URL:http://www.oocities.org/Heartland/Pointe/9228/infertility.html" Country: USA

Comments: Your web-site is exceptional! Thank you for sharing your endometriosis journey, and for working so hard to get the word out about this disease. I have endo and PCOS, and try to get the word out about infertility issues. Take care.

leslie Diamond - 02/14/00 19:38:28 My Email:iwo@peoplepc.com City: Utica State: New York Country: U.S.A.

Comments: I have endo, and the pain sometimes can be unbearable,people just don't seem to understand. Everything hurts sex,urinating, moving the bowels, I'm tired all the time, my doctor is working with me and considering putting me on medication. Good Luck to you!

Suzi Bye - 01/30/00 16:56:57 My Email:JSDoolittle@aol.com City: Flint State: MI Country: USA

Comments: This is a wonderful website. I have endometriosis also. I was diagnosed with it 6 years ago and have had one unsuccessful surgical treatment. I can't recall what it was called, but they blew puffs of gas onto the tissue and then set off a spark to burn it. They could not separate my rectum from my uterus. I am now trying to get referral to go to a specialist here in Flint and see if he can do something for me. It is very comforting to feel "not alone" in the struggle with this disease. I applaud you strength and everyone elses who is dealing with this burden.

Christina Reid - 01/28/00 03:51:02 My Email:bacardigrrl@aol.com City: Abilene State: Texas

Comments: First of all, I apologize for the blank entry. I hit the wrong button. :-) Thank you for the wonderful website. I was almost in tears as I was reading it. After doing my own research on the web, and reading the symptoms, I believe that I may have Endo. My doctor has done a Pap and if it comes back okay, she is going to send m to a GYN. I almost hope that I am diagnosed with it, because then it would be an answer to all the pain I have been experiencing. Thank you for your wonderful site. If anyone could offer me any advise on questions to ask or anything that may help me ge answers, please feel free to email me. This is all new to me, and I am confused sometimes. I feel, very often, like I am losing my mind. Or that this is all in my mind. Thank you again for your wonderful site, and good luck to you. You are a very lu ky woman to have a husband like you do. :-)

Christina Reid - 01/28/00 03:40:37 My Email:bacardigrrl@aol.com City: Abilene State: Texas Country: USA

Comments: I actually saw your husband's website first. I then linked to your page from there. What a survivor you are!! I have not yet been diagnosed with this disease. In a way, I hope I have it,and in a way, I don't. I want the diagnosis, because then it wou d give me some answers as to why I am having so much pain. My pain has gotten consistantly worse in the past few months, and I am currently going through some tests to see if I do indeed have Endo. Just reading the symptoms that I have found online, I t ink it is a distinct possibility. I just recently had a Pap done, and if it comes back okay, I will be referred to a gynecologist. Any help you can offer would be wonderful!! Thank you again for a wonderful website!

Christina Reid - 01/28/00 03:35:14 My Email:bacardigrrl@aol.com City: Abilene

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Linda Doyle Kerr - 01/24/00 19:40:08 My Email:trophab@ameritech.net City: Royal Oak State: Michigan Country: USA

Comments: Dear Carey, I am in tears after reading your web site. My two daughters have endo, Gwen will be 21 next month and Colleen is 17, both have suffered since their periods began at about age 12. Both have been through numerous surgeries, tests... Our story is just about the same as yours, doctor to doctor looking for help when they were younger, being told it was "all in their heads" or " they have a low pain tolerence!" Personally I have never seen two young women with such a high pain tolerence!!! We found a doctor locally about 4 years ago who diagnosed Gwen first and then Colleen. He is a kind and caring man but unfortunately his back gound with Endo is very limited. Gwen was becoming worse and worse this past year or so, her life was basically non existant, I know you understand! In October of 1999 I took Gwen out to Oregon for surgery with Dr. Redwine, what a wonderful experience!!! Your description of your treatme t with Dr Cook could have been my words describing Dr. Redwine and his staff!! I was also amazed at the way they treated me, as was your husband!! I simply couldn't say enough great things about everyone we had contact with out there. We also suffer fina cially because of the Enod, fortunately I have the most wonderful family! My parents helped us with the trip to Oregon and now I am saving to take Colleen out. Gwen is doing much better than she was, but also is not totally pain free, our doctor feels that there may be involvment with Gwens nerves also. I am hoping that she will someday soon be "pain free!!" My youngest daughter,Colleen is taking the same path with her Endo that Gwen did except she seems to be progressing even faster than Gwen did. She is trying very hard to hang in there and graduate from high school this May, hopefully by then I will have the money to take her for surgery also! The three of us have begun doing fund raising for the ERC and are active with the Endo Assoc. The teen newsletter did a story on us in last months news letter! That was exciting! You are so right about awareness and I just wanted to let you know that there are others out there trying, we just need to keep on gaining more and more of us to speak out!! Actually I have found the fund raising and public awareness has been theraputic f r all three of us. There is nothing worse than watching my sweet daughters suffer and being able to do so little, but focusing my energy to try and help others does help. (We are also involved in bringing info on Endo to the middle and high schools in our area) Thank you for sharing your story! We will keep you in our prayers. Wishing you the best always! Sincerely, Linda Kerr trophab@ameritech.net

Amy L. Murphy - 01/23/00 03:56:49 My Email:lildolphin21@hotmail.com City: Las Vegas State: Nevada Country: US

Comments: Your story has really shed some light on my own situation. I have been trying to convince doctors that I am suffering from Endometriosis. I have gone through one Lapro. and nothing was found, according to my first doctor. I was not convinced, due to the pain I was experiencing, so I sought out another doctor wh 's patients where sufferers of endo and other repoductive problems. Her practice is just too large!! I have been waiting to see or hear from her in over a month after she said she would follow through with a surgery. I am now looking for another doctor who will not only pay attention to my severe pain, but take the time to actually find out what is wrong with me in DETAIL!! I have lost my first husband of 2 1/2 yrs over the dramatic changes in my life. He thinks it is all in my head, can not understand my constant mood swings, or my complaints of pain on a daily basis. I am only 21yrs old and have been suffering from this ince I was 14yrs old. I want it to end. And I can only cry and continue to pray that someone will hear me. Thank you for your story. I pray that you continue to live the life that you have always dreamed of. Hang on to that wonderful Husband. God has surely blessed you. God Bless, Amy L. Murphy :)

Kerry Landry - 01/20/00 14:56:30 My Email:kerbear37@prodigy.net City: Corinth State: TX Country: US

Comments: This was very informative, I plan on emailing Dr. Cook for more info.

M. Cabrera - 01/20/00 05:18:28 My Email:ccandpc@juno.com City: Bronx State: NY Country: USA

Comments: Wonderful website, I can relate to you too. Please update your website ASAP. I would like to know how your doing and if you had a hysterectomy. God Bless and Please continue to pray for all endo sufferers and any and all sick people worldwide.

- 01/14/00 07:41:01 State: ca Country: us

Comments: thank you for taking the time to make this site. i have decided after too many years that its time to have my surgery and it was agreat help to chose where to go by reading articles like yours.

Jill - 01/03/00 11:18:06 My Email:Tadham7@aol.com City: Newbury State: Berkshire Country: UK

Comments: Thank you, I will recommend your site. Hugs Jill

Mary - 12/29/99 06:47:53 My Email:maryc@dotinow.com City: Phoenix State: AZ Country: USA

Comments: Carey, I got your url from you in alt.support.endometriosis. Thank you so much for your sharing. You have quite the story. My only suggestion is to break up the text in your site into paragraphs. It would be easier to read instead of 1 big paragraph. Thank you again.

claudia - 12/23/99 17:18:39 My Email:cqcash1@hotmail.com City: rochester State: ny Country: u.s.a.

Comments: i am so grateful for this page i have just discovered! thank you so much....it is inspiring in so many ways. i have had a hysterectomy for endo and it is back again and i am angry and sad and considering dr. cook, who i also just discovered. itIS a dis ase....i have recently left a new job because of pain, too...with a whole ARMY of other women looking at me and thinking (i KNOW they were!) "you don't LOOK sick, you look FINE"...i am so sick of people not believing me or thinking it's all in my head for some dysfunctional reason. sigh. BIG SIGH. onward! thank you.

melissa - 12/11/99 03:22:26

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Donna - 12/02/99 17:53:08 State: Florida

Comments: The pain I feel is overwhelming. I am having a hysterectomy soon because it is what is best for my situation. I am tired of not being the woman I know I can be. This web page has been a great help. Good luck to you all and God bl

kim lee - 11/16/99 03:45:42 My Email:heresy7@bellsouth.net City: atlanta State: ga Country: usa

Comments: Thank you so much for giving others hope. I am to speak w/ Dr. Cook 11/26 and I am so excited! Suffering can get to you and just knowing there are others helps soooo much! Bless you for being there to share! kim

Erin Calle - 11/09/99 19:27:33 My Email:ecalle@mindspring.com City: Charlotte State: NC Country: USA

Comments: Dear Carey, Because of your site and others like it, I have found the courage to stand up for myself and not let the so-called Doctors make me feel crazy. Thank you Erin

Cindi - 09/09/99 00:12:52 My Email:Jerseth@netzero.net City: Baltimore State: MD 21211

Comments: I was amazed to hear your story. Mine is still in the stages of getting a doctor to help me. Thanks

Amy Beth Cannon - 08/19/99 14:45:26 My Email:dansan@dmv.com City: Centreville State: Maryland Country: USA

Comments: Thank you for such a wonderful web site. We who suffer from this disease need to know that there is support out there and other women who are hurting just as much as we are. Sounds like you have an amazing husband-mine, thank god has been a blessing thr ugh out this ordeal. My life would not be complete without him and my only daughter Allie. I've been suffering with this since I was about 16 years old I am now 27 and just last year did I have a doctor finally(after 12 years) tell me it wasn't just in y head or just it was just bad periods it was Endo. My left side is so bad now they can not remove it without damaging my reproductive organs. We want to have another child. My daughter is 6 and I've had 3 miscarriages since her birth. I am blessed to ave my daughter and if god intends I will have another. Well thank you for letting me talk. I am having a very emotional day today.

Amie Fisher - 08/18/99 13:42:11 My Email:amiescott@snip.net City: Exton State: PA Country: USA

Comments: Reading your page, I felt like I was reading my own words. The misdiagnosis, the "all in your head" crap, the fact that if you don't LOOK sick, then you must not BE sick mentality exists is just the tip of the iceberg. I'm 30 years old, and have been si k for a number of years. I was only diagnosed back in 1996 after suffering from debilitating pain for at least 6 years. I got married in 1994, tried for a year to get pregnant, got pregnant in August 95 and had a miscarriage at 11 weeks. After that I h d numerous tests and surgeries and was on Lupron for 7 months, and I am still suffering, and still have no children. I did have surgery back in January 98, performed by a Dr. Lyons from Atlanta and had significant improvement for a while, but it seems to be slowly coming back. Anyway, I don't want to bore you to death - after all, this is only supposed to be a "comments" box. I just wanted to tell you you're not alone, and if you want to share your experiences, etc., I would love to hear from you. Amie

ROXANA SUAREZ - 07/24/99 01:05:36 My Email:rsuarez@essalud.sld.pe City: Lima Country: Peru

Comments: Hi,Carey: It has been a pleasure to read your Endo place, it's amazing to know about your life, I also suffer this terrible disease but not as you have suffered, I hope God blessed and give you support as your husband, I would like to write you more and tell you ab ut my treatment and personal experience if you want, write me back to my e-mail and let's change experiences, we all know that this disease is something women does not expected but this is life Go ahead and hope you happiness in future

Lavelle Davis - 07/20/99 20:18:43 My Email:ldavis@bacardi.com City: Jacksonville State: Florida Country: US

Comments: My wife suffers from this and I'm attempting to learn more so that I might help in any way I can. Thanks for your story, new insight.

Brad Livermore - 06/13/99 16:33:42 My Email:RoseHolly@webtv.net City: Princeton State: IN Country: US

Comments: My wife has endo and she recommended your site to me. I will also visit your husband's site. What you described about your endo, could be exactly what my Mary is going through. I love her very much and would take her pain if I could, but since I can't,I w ll be there for her. Thanks for writing about your experiences, my wife has felt so alone, like she was the only one in this area that had this dreaded disease. Thank you for sharing. Brad

Stephanie - 06/05/99 01:41:12 My Email:CLGKD31742@aol.com State: Arkansas

Comments: Carey, You are so lucky to have such a wonderful and understanding husband. I am 18 and have had endo for at least 3 years. I have had 2 surgeries and the doctors are putting me through menopause right now. I have a boyfriend of 3 years. We love each ot er a lot, but he seems so insensitive when I have pain. I know it's because he's not "in control", but I wish he would do more to comfort me. I plan to tell him about this site and MENDO. You and your husband have done a great job with this website and I am so relieved that I now know that I'm not the only one with this terrible disease. Best of luck with your treatment. Sincerely, Stephanie

Lynn Bevan - 05/24/99 19:09:39 My Email:area51@post1.tele.dk City: Denmark

Comments: Have just read your excellent page. am sat here recovering from surgery 3 weeks ago. didnīt know about endo before. you have been a great help. thank you lynn

Dorian Valles - 05/13/99 15:28:53 My Email:kvalles196@aol.com City: Carlsbad State: CA Country: USA

Comments: Wow! I had no idea thee were this many women and men who suffer from this dreaded disease. Now I know I am not crazy and I can totally relate to all of the symptoms everyone has suffered. Thanks for the great site and all of the wonderful information! Your a blessing! Dorian

Brenda Viera - 05/10/99 14:33:43 My Email:Brenda_miguel@hotmail.com City: Spfld State: MA

Comments: Hi I would just like to say your site is wonderful and very helpful to know that other women have gone throught what I am currently going through At first I thought I was insane but ready your story and others I know I'm not thank you and may god bless yo .

Brenda Viera - 05/10/99 14:31:52 My Email:Brenda_miguel@hotmail.com City: Spfld State: MA

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Brenda - 05/07/99 11:39:07 My Email:brenda@apex.net.au City: canberra State: act Country: australia

Comments: I liked your site and fount it very interesting.

vicki - 04/26/99 12:28:07 My Email:scorpio2011@hotmail.com City: melbourne State: victoria Country: Australia

Comments: Great page, great to put a face to the name i see so often on the newsgroup.

Lynn Britt - 04/16/99 13:01:48 My Email:terrybrittsmom@email.women.com City: Doraville State: Georgia Country: USA

Comments: Wonderful site! Describes alot of what I've been through wish more people like you out there!

Joyce - 04/13/99 02:39:51 My URL:http://www.cambridgeoh.com/users/deere My Email:deere@cambridgeoh.com City: Cambridge State: Ohio Country: US

Comments: Hi Carey...just read your story about endometriosis. How I feel for you! I am glad that you are now doing better. I too was diagnosed with endometriosos when I was 26 years old. I know the pain you had. however...once I had surgery I recuperated well. My octor told me I would probably have another flare up but other than having severe cramps I made it into menopause...and guess what....no more problems. but now I am dealing with the hot flashes that come with menopause! LOL! It sure is tough being a woman I sure do wish you the best with your health and I hope your suffering is coming to an end. God Bless. Joyce

angela d rose - 03/29/99 20:59:26 My Email:adrose@hotmail.com City: bristol State: tn Country: us

Comments: i realy like your web page. i had surgery for endo on 2/17/99. 4 weeks after my surgery my husband left me. we had been married for 15 years.

Lori Anne - 03/26/99 01:35:29 My Email:laks1624@aol.com City: Phila State: PA Country: USA

Comments: Thanks so much for your story & website. My story is a long & bloody one...I'm 32 years old and have suffered since I was 16 yrs. old. Numerous doctors, wasn't diagnosed with endo till I was 27. Also multiple fibroids, adhesions, twisted tubes, etc. 2 open abdominal myomectomies (for fibroids, etc.) 3 laparoscopies, on my 3rd round of Lupron (can't take BCP's, they feed the fibroids) Lost time from work, lost relationships, bad body image from what the surgeries have done. Last surgery was only six m nths ago, and the endo is back, full-blown. It helps to read other's stories, so I know I'm not alone. Thanks again!

Liz Klocek - 03/15/99 16:58:28 My Email:elka01@excite.com City: Marlborough State: MA Country: USA

Comments: I was diagnosed back in 1979. Your story brought tears to my eyes. Our stories are almost identical. I've been there, and unfortunately am still there (I'm 44). It is good to vent, but more helpful if you feel you're not alone. I've got 2 wonderful ado ted children now and go on somehow. I am going to have my husband get on your husband's site (what a great idea!) After 20 years, I still think he could benefit from knowing that there are other guys out there going through what he's had to with me. MAY HERE BE A CURE! E-mail me for a chat if you'd like.

Kimberly Davidson - 03/15/99 15:53:22 My Email:nurse_tigger@hotmail.com City: south paris State: maine Country: usa

Comments: today is 2 days before my laporscopy to find out if i have endo. I found your site very intersting and calming. I am also 18yrs old live with my fiance. I am a nurses assistant also and i know what it is like to be on your feet all day not to mention l aning over side rails and pressing into that "very tender spot." The thing that worries me is that "we" want to have children. By reading your stories as well as others it shows me there is still a possibibility of having children. I do beleive in ange s and i know one is watching over me and all of us who suffer from this disease. Thank you for a wonderful and calming page. Sincerly Kimberly

Lisa Fletcher - 03/15/99 10:19:38 My URL:http://paradise.net.nz/~liseloo/liseloo.htm My Email:liseloo@paradise.net.nz City: Wellington Country: New Zealand

Comments: I was told a year ago that I have endo and I have had alot of problems since then. I am in pain alot and things don't seem to be getting better. I have two children, a son and a daughter. I have terrible pregnacies with both of my children and I am asumin that I have had endo for a long time. I am looking for other people with endo to write to. Nobody I have has endo so alot of the time I feel like my friends and family really understand. Even though they are very supportive. Please email me if you also w nt someone to talk to!

Tracy - 02/25/99 19:53:46 My URL:http://www.angelfire.com/oh2/tracysendosite My Email:f.tracy@mailexcite.com City: Cincinnati State: Ohio Country: USA

Comments: Carey, This is a wonderful site. It has a lot of useful information. Hope your surgery went well on the 22nd. I wish everyone many pain-free days. Tracy

adrienne - 02/25/99 15:06:45 City: paloshills State: il

Comments: Carey I'm so very sorry for your pain. I have endp and had surgery 3yrs ago. Since the surgery I have learn to depend more on God and prayer. And for me that seems to have helped a lot. I have only one working tube and bad cramps some month. But when pray it all seems to go away. I've been told God heals and I believe he does. So I'll send up a pray for you and all endo victims to be completely healed as I will be also. May God bless and keep you

kim foster - 02/14/99 04:00:07 My Email:madison1@worldpath.net City: silverlake State: nh Country: usa

Comments: it's comforting to hear what others go through with this disease. I feel fortunate compared to you, though I suffer from pain I have had the experience of giving birth to 3 beautiful boys(and went throught 3 miscarriages while enduring surgeries). So I eel a little bit better after reading your article. I feel for my boys and my husband who share the brink of my pain.

Kristy - 02/06/99 07:46:25 My Email:sokokl@yahoo.com City: Jacksonville State: FL Country: USA

Comments: Thank you so much for putting your story on the web. Hopefully it will help others see that endo is a disease that should not be taken very lightly. By us telling our stories that goal will one day be reached. Thank you again.

Zoyee - 02/05/99 07:09:06 My Email:Zoyee00@aol.com State: Ca Country: USA

Comments: I like to thank all of those that share their endo stories. I am 19 and have had 6 surgeries for my endometriosis already. I think that I am heading for #7. Wish the best to you!

angel - 01/30/99 22:21:48 My Email:angelk@mindspring.com City: sadieville State: ky Country: usa

Comments: i have had endometriosis for 3 years now. i do have one child that was born handicap. but i would not trade her for nothing. i have had 6 surgeries in 3yrs ...

Barbara - 01/28/99 20:14:26 My Email:l.comm@on.aibn.com City: Pickering Country: Canada

Comments: I was glad that I found your web page and in fact that it existed. I am suffering from endometriosis, and have been since my last c-section in December 1998. Reading your web page enlightened me with information I did not know in the past. Thank you

Maria Monninger - 01/16/99 00:29:57 City: Greencastle State: PA

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Maria Monninger - 01/16/99 00:28:54

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- 01/02/99 22:13:41 My Email:mmcgee@intrstar.net State: nc

Comments: I have enjoyed reading your story.

Melinda Thompson - 12/17/98 08:58:12 My Email:Meli25@gateway.net City: Fort Wayne State: Indiana

Comments: I was just diagnosed, browsing the web. Looks like I have a lot to look forward too. you know the thing that makes me angry. I think I had symptoms of endo for 13 years and I am only 25. Why did it take so long? My periods started at the age of 9 and at the age of 11 I was taken to the hospital for severe pain, they thought it was an appendisitis but that turned out not to be the case. Thanks for your time and efforts.

Denise Weyne - 11/26/98 01:29:49 My Email:weyne@mtecnetsp.com.br City: Sao Paulo State: SP Country: Brazil

Comments: Congratulations for your site, here in Brazil we don't have much information about endo, I just did a videolaparoscopy on last monday, and I don't know yet how it was, but I hope to be in the right way. Good lucky to you, Denise

Lisa Scholar - 11/22/98 02:58:20 My Email:cool.touch@worldnet.att.net City: Menomonee Falls State: WI Country: USA

Comments: I have written to you before and also my husband and I wrote to John. It has been a while since I wrote, or done anything. I have been going thru hell. The pain has been gradually intensifying and my personal life has been rough as my grandfather passe away in October. I have become so discouraged and I feel as if I am sick of fighting. I feel as if I would just rather give up and die! I weighed out the options given to me (pain, Lupron, Hysterectomy) some choices hu?!?!?! I decided to go with the Lupron. My doc gave me the encouraging news, "Don't be suprised if you have to have the hysterectomy in 6 months regardless." Some encouragement right?!?! I will let you know how the Lupron works out! I hope and pray you have better luck!!!! I think you and John are truly angels for all your work and the Web Sites are wonderful!!!! Keep up the good work. May all go well for you both! Love to all wishes for only best and relief to you soon!! Lisa

Lisa Scholar - 11/22/98 02:58:02 My Email:cool.touch@worldnet.att.net City: Menomonee Falls State: WI Country: USA

Comments: I have written to you before and also my husband and I wrote to John. It has been a while since I wrote, or done anything. I have been going thru hell. The pain has been gradually intensifying and my personal life has been rough as my grandfather passe away in October. I have become so discouraged and I feel as if I am sick of fighting. I feel as if I would just rather give up and die! I weighed out the options given to me (pain, Lupron, Hysterectomy) some choices hu?!?!?! I decided to go with the Lupron. My doc gave me the encouraging news, "Don't be suprised if you have to have the hysterectomy in 6 months regardless." Some encouragement right?!?! I will let you know how the Lupron works out! I hope and pray you have better luck!!!! I think you and John are truly angels for all your work and the Web Sites are wonderful!!!! Keep up the good work. May all go well for you both! Love to all wishes for only best and relief to you soon!! Lisa

Tracy Kaleta - 11/21/98 21:19:25 My Email:kaleta@direct.ca City: Calgary State: Alberta Country: Canada

Comments: Hello, I just wanted to say thank you for your wonderful web page, it looks great. I am very sorry to hear of all of the pain that you have had to go through. I am very glad, however, that you have found such a wonderful and supportive husband. I too, am bles ed with a wondreful supportive husband. I have had endo for ten years now and I also have Fibromyalgia. Thank you for your web page. Keep up the fight. In Friendship, Tracy

Sarah Klesel - 11/18/98 16:00:49 My Email:jklesel@wt.net City: Houston State: Texas Country: US

Comments: I found your site off of the newsgroup. This is great. I am going to show my husband your husband's page.

Darlene - 11/18/98 00:24:33 My Email:sdgifts4everyone@worldnet.att.net City: Fleischmanns State: N.Y. Country: USA

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Aiune Sampaio - 11/15/98 23:44:19 My Email:aiune@infolink.com.br City: Rio de Janeiro State: Rio de Janeiro Country: Brazil

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kathy - 11/15/98 18:16:11 My URL:http://www.oocities.org/heartland/prairie/4863 My Email:joel@nantucket.net City: nantucket State: ma Country: usa

Comments: what a great resurce list you have. I would love to add a link to your page to my web site. I also have endo and run a support group in my arear. Please feel free to add a link from yours to mine.

Stacy - 11/12/98 19:15:36 My Email:snobaby29@aol.com City: Chicago State: Illinois Country: USA

Comments: I too have had endo pain from day one of my first period at age 12. I am now 29(soon to be 30!) and live in constant pain. It is great to know you are not alone and not nuts! Thanks for the great site here! My husband is also a great one. We happen to be ome of the lucky few on that regard, huh? Painfree wishes! Stacy

susan - 11/03/98 22:28:49 My Email:susanlisa@aol.com City: FT LAUDERDALE State: FLORIDA Country: USA

Comments: Hello Carey, I too have endo. I have had 2 laporotomies. I have just a piece of an ovary left, all of the rest is GONE! I am currently on lupron(5th injection) and gaining lots of weight. I now have endo in my colon and bowel which is why I am on the injections. he Dr. wants to put me on birth control pills to supress the endo when finished with Lupron. Pretty much the only pain I have is the stomach pains which is pure hell at times. I hope everything with you works out and all we can do is PRAY!! God Bless!!

Liz Johnson - 10/23/98 21:07:10 My Email:dejohn01@toto.csustan.edu City: Sonora State: CA. Country: U.S.

Comments: I am a 23 year old married college student. I was diagnosed with endo 3 years ago and have been in "denial." It has progressively gotten worse and I am about to undergo my second laporoscopy. I find it helpful to read stories like yours. Thanx for sharing it with us.

Liz Johnson - 10/23/98 20:56:10 My Email:dejohn01@toto.csustan.edu City: Sonora State: CA. Country: U.S.

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Angela - 10/13/98 19:01:33 My URL:http://home.talkcity.com/MinivanAve/stormluvr/index.html My Email:Stormluvr@webtv.net City: KC State: Missouri Country: USA

Comments: What a wonderful page. Just finished adding it to my site, "Angela's Endometriosis Page". Thanks to you and your hubby.

Therese Schreurs - 10/10/98 06:43:51 My Email:celery@netspace.net.au City: Clyde State: Victoria Country: Australia

Comments: After reading your battle with endometriosis it made my heart ache. I was diagnosed with this disease some 22 years ago, and must say I had a very enlightened gynaecologist who along with other hormone specialists were able to help me. I experienced sim lar pain and sickness as you, especially when I had my period, with me crawling to the toilet on my hands and knees as I could not straighten up, and being sick with the pain. I had five operations and a course of hormone tablets( not allowing me to have a period) to try and rectify the problem. After the second last operation at the tender age of 21 I became pregnant before the next period. This was the best health wise I felt and was able to enjoy myself and my sex life while pregnant. Christopher was born and my problem started again. They say pregnancy will improve you but with me I became worse. Twelve months later I was on the operating table and had to have a radical hysterectomy as the cysts had attached to organs up towards my rib cage, it took two specialists 4 hours + to scrape the cysts of organs that could not be disposed off. Since then (20 years I have never been better, although I am on replacement hormone therapy. I consider myself lucky as I was able to have a child who is now nearly 2 years old. I wish you luck with your treatment and hope that you to can find a cure. Regards. Therese Schreurs.

Tammie-Lee - 10/08/98 02:43:01 My URL:http://www.autobahn.mb.ca/~dtacorns/ My Email:tammielee@hotmail.com Country: Canada

Comments: Hi! I have read your post on alt.support.endo. I enjoyed your page, and the MENDO page. God Bless you and your dh. Your a very good looking couple, you look like you were made for each other :) Thanks for all you have contributed to endo's cause, of making it known that we really do suffer, and it's not all "in our heads" see you in the news group!

Tammy Wilshire - 10/03/98 20:42:23 My Email:CAREPRVIDR@AOL.COM City: Altoona State: PA Country: USA

Comments: I visited both you and your husband's web pages and I was impressed with both of them. My husband has agreed to view your husband's page soon. He is having a hard time coping and understanding. WE have been married only 2 years. We're both 27. I have had his disease for at least 15 years. He also had some knowledge of the disease from what I have told him, but was and is not prepared for the impact on our lives. It has gotten progressively worse over the past few years. I have been through alot of surgeri s and drug treatments, dealt with many doctors, and negative attitudes from others who do not understand. I full heartedly agree with you that there needs to be more awareness. A friend of mine and myself tried to start a support group with the help of t e Endo Assoc. but it did not fly. There seemed to be a general attitude of ignorance of the disease. Some women we talked to seemed to be under the impression that this is no big deal. They have the disease and yet are not educated of the consequences and potential problems that come along with this! It's unbelievable! They remain alone in their struggle. I will continue in my efforts here, although I have not had much time or energy lately. Please let me know of anything that I can do to help with your ef orts or that may help with mine. Someday we will conquer this, but we need awareness! Thanks for the ear and the time. Please e-mail me sometime.

Danielle Kimberly Ford - 10/02/98 02:25:12 My Email:daniellekimberly@hotmail.com City: Detroit State: MI Country: USA

Comments: I too am an endo sufferer. I've had endo since I was 16. I was diagnosed at 19. I am working on an endo site myself.

Nancy - 09/28/98 20:20:37 City: Youngstown State: OH Country: USA

Comments: You are performing a terrific service by sharing your story and fighting for greater awareness of this stupid disease. I was diagnosed 16 years ago! I've had three laparoscopies and been on Danazol and Lupron and countless pain medications. Luckily we adopted a baby boy 12 years ago when I came to the realization that conception wasn't going to happen. I usually miss one or two days of work a month, unless my "bad" days fall on a weekend, so I'm lucky that I've been able to continue working. I hate his disease and appreciate very much sharing and listening to others who are afflicted, because those without it cannot understand. My dear husband understands because he has Crohn's Dieases and had very similar "double over in pain" type of cramps at tim s. Good luck to you and thanks for your work in behalf of all of us.

Joni Altman - 09/19/98 02:27:12 My Email:altman@siscom.net City: Dayton State: Ohio Country: USA

Comments: Great website! Thanks!

Sandi Johnson - 09/13/98 17:52:47 My Email:foxie@lcc.net City: Trinity State: Tx Country: USA

Comments: I too suffer from this disease... and have felt that your site is very helpful in understanding this disease. Thank You Sandi

Mary Boyd - 08/22/98 20:20:22 My Email:mboyd@atwg.com City: Valdosta State: GA Country: USA

Comments: Thanks for making your story available. You share my frustration with this "disease" and its recurrances.

Anne Spalasso - 08/20/98 01:06:15 My Email:splaz@ix.netcom.com City: Livermore State: CA Country: USA

Comments: Carey, Thank you so much for your website. I agree with you that we need to spread awarness. After reading your story I feel very fortunate that I suffered from disabling pain for only 4 years. I understand I probably had endo for many years prior but as on bcp for so many years before it was bad that it stopped it from advancement. When I went off to try & get pregnant my period was horrible. I just thought wow what a difference bcp make. I was lucky God Blessed me with 2 beautiful children and in etween the pregnancies and after the last all hell broke loose. M Godsend a doctor it took me some time to find. Dr. Arnold Kresch in Palo Alto , CA. He did surgery twice within a week, the first to remove endo and do a procedure called OPERA to minimi e bleeding (7+ days super, super heavy) I had also become anemic. The second to recheck and remove any more endo and knock back already growing adhesions. My surgery was March 25th. I have almost no period or pain. He has made a huge difference in my ife. I wish you the best. I hope Dr. Cook can convince the hospital for you. Anne

rachel stefano - 08/13/98 16:49:33 My URL:http://aol.com My Email:rmswb City: uniontown State: ohio Country: u.s.a

Comments: its so nice you have done this for your fellow endo suffers! i was going completly crazy until i found your and others like yours sites.i'm truly sorry for all you and others have gone through. i'm 28 and extremly lucky to have had 2 children before this ook over.

Amy Rose - 08/13/98 01:14:46 My URL:http://www.oocities.org/Wellesley/Garden/2650/ My Email:amythestrose@yahoo.com City: Blountville State: Tennessee Country: USA

Comments: Carey, wonderful page! I'm a fellow sufferer of endo and was touched by your page. Take care, I know it's a constant struggle. Best of luck!

tracie whitton - 08/10/98 18:47:59 My Email:k.whitton@bellsouth.net City: hiram State: ga Country: usa

Comments: Thanks for your wes site its very informative!

Jean - 08/05/98 01:55:29 My Email:hawkinsj@mindspring.com City: Birmingham State: AL Country: USA

Comments: Thank you for sharing your story. You show remarkable courage and are a true inspiration to keep on fighting.

Diane - 08/04/98 00:54:20 My Email:dnvy@aol.com City: Columbia State: MD Country: USA

Comments: Dear Carey, Hi, my name is Diane and I'm 39 years old counting the days till the big 40, ugh). I was finally given a diagnosis for the pain I have been suffering. (They have not performed the surgical procedure on me as yet primarilty because of the location which s between my rectal and vaginal walls). It was a relief to finally know what was causing such pain, but a nightmare to discover what this disease is and what it does to you. I too have known women in the past who were diagnosed with it, but I dismissed their pain because I couldn't believe they suffered any worse a pain than I did. Little did I know that I had it! The fact that so little is known as to what the cause is and or the lack of treatment, leads me to agree with many others. If this was something men experienced, they would have pulled out all the stops a long time ago and a cure would have been found. t the very least, they would know the cause instead of only theories. They started me with hormonal treatment, but I know I have a long road to haul. I want to thank you for sharing your story and helping give me the courage to get through what lies ahead. My thoughts and prayers are with you and all endo suffers and families. Hopefully they will find a cure for this horrible disease.

Tammy Hart - 07/28/98 20:53:11 My Email:honeybee@cecomet.net State: New York Country: America

Comments: I was diagnosed 3yrs. ago and I've found your site very helpful. I honestly didn't realize how many of us have endo. I 've always thought and felt alone in this and thanks to your site and many like it I know I'm not. God bless and keep all of us sisters in your prayers please!

Lisa Collis - 07/28/98 04:11:35 My Email:Collisl@hotmail.com City: Baumholder State: AE Country: Germany

Comments: This is a very good website, I thankyou for the support that you provide.

Karen Vaughn-Jamison - 07/22/98 00:24:29 My Email:karenvaughn-jamison@merrick.com City: Denver State: Colorado Country: USA

Comments: Thanks for letting me visit.

Stephanie - 07/21/98 07:46:16 My Email:SLFX2@aol.com City: Spanaway State: WA

Comments: Thank you for sharing your story. I am so glad that there are people like you willing to take a stand to increase awareness for this disease.

Kris - 06/29/98 17:53:33 My Email:ksignorelli@parker.com City: Mentor State: Ohio Country: USA

Comments: I should have had my hankie when reading Kristina's article. Almost every story is like mine. It amazes me that so many women have this and I am just realizing how many. The pain is unbelievable and unbearable and no one understands how bad it can be. feel so much better that I have found the Endo Quilt and every thing realated to it. I am here to help or listen if anyone needs me. Thanks for your story and everyone else's. Keep the Faith. Kris Signorelli

Lisa - 06/21/98 11:53:07 My Email:aries4460 City: Hammond State: IN Country: USa

Comments: I have found your page informational...I have been posting for awhile in Endometriosis folder for awhile..I know how it is to suffer from Edno...On June 23 I will undergo a total abdominal hysterectomy with the removal of tuebd and ovaries..I was very luc y to have sons though...They are 20 yrs old and 17..I am 38 yrs old...I am hoping this surgery rids me of alot of problems. Love Lisa

Marcy - 06/13/98 23:35:47 My Email:MarleeWin@aol.com City: Boston State: Massachusetts Country: USA

Comments: Hi Carey- After trying to connect to your web-site forever-I finally made it. What a wonderful place!!! I am so similar to you in many ways. I am so sorry that you were unable to have children due to your endo. I (luckilly with a lot of surgery) have 2 girls who ar the light of my life!! I pray for all those who cannot due to this horrid disease. If the men in the country had this, the government would be looking under rocks every minute for a cure!!!! We are lucky to have alt.endo to keep us together. You are a st ong person-as I am-we will overcome this destrucuive disease. I will say a prayer for all of us in pain. Much love-Marcy in Boston

Rita Kloos - 06/13/98 01:06:13 My URL:http://wssoft.net/endo/ My Email:rita.kloos@wssoft.net City: Woodbury State: TN Country: USA

Comments: Hi, Nice site. Lots of information. Rita

Vivia Boe - 06/11/98 17:43:01 My URL:http://www.pbs.org/affluenza My Email:ViviaB@aol.com, boevi@kcts.org City: Seattle State: wa Country: USA

Comments: Great job on how the site looks! I'm about to delve into it. Thanks in advance. Vivia Boe, Seattle

Holly Tripp - 06/06/98 22:08:11 My Email:trippd29@idt.net City: Wyandotte State: MI Country: USA

Comments: Hi Carey - I've been over to the newsgroup and to John's site. You two are really doing a lot to support people dealing with this disease. Learned I have it just 5 days ago - "stage 4". Shocked, angry, sad, hopeful. I pray that you will find relief fr m your pain. God bless you and John both. Sincerely, Holly

Denise Hunn - 06/04/98 22:35:38 My Email:LTLKITEN14@aol.com State: Illinois

Comments: I am so happy that I found your website! It has been a great help to me. I have found so many answers and so much support, it is unbelieveable! Thanks so much for caring! In friendship, Denise

Katherine S. Ketchem - 06/04/98 01:43:43 My Email:ketchkat@netassoc.net City: Parkersburg State: West Virginia Country: USA

Comments: Keep up the great work and words of comfort and wisdom! I'm 38 and was just diagnosed this year. My symptoms aren't as horrible as yours and some of the other ladies but it's a disease that wreaks havoc regardless of the severity of the symptoms. I ofte just related my symptoms to weight, stress, etc. I know better now! Thanks!

Mary Beth Lair - 06/02/98 19:29:26 My Email:melizalair@aol.com City: Virginia Beach State: VA Country: USA

Comments: Thanks for telling your story, Carey. Hang in there. I will pray for you to have better days, feel good, and hopefully have that baby someday.

Kelly Crowe - 05/29/98 15:25:32 My URL:http://clt-online.com My Email:kcrowe@clt-online.com City: Charlotte State: NC

Comments: Thank you for your page! I to suffer and I wish that someone understood. My family seems to support me but I feel so alone. With the continuous pain i have felt that I'm not myself for several years.I wish you all the best!!!!!!

Melissa Douglas - 05/22/98 00:54:50 My Email:mdou371795@aol.com City: Lakeside State: Oregon Country: usa

Comments: I'm only 25 and I do have 1 child to be thankful for but I just don"t know how to say Thankyou to all of the weomen out there who have started web pages regarding this tough issue noone around me seems to understand and I just think that this is great to be able to talk to other people who do understand. I am going to my 4th surgery here soon and I am scared to death and hoping that I found the right doctor.

Erin Amiri - 05/18/98 05:15:25 My Email:Amirio@yahoo.com City: Palo Alto State: CA Country: USA

Comments: I'm really glad that you told your story. I have been suffering for seven years. I'm only 18. Thank you for letting people know how an endo sufferer really feels!

Janet - 05/10/98 20:07:28 My Email:jaz@bright.net City: Lima State: Ohio

Comments: I really appreciate your web site. It's an inspiration to everyone. I understand the pain and suffering over this cruel disease. I have come across many doctors that believe " it's not that bad". I have finally found a doctor that will hopefully help his pain (as short lived as it may be). Please keep updating us!!!!

Angela Lamb - 05/01/98 14:40:07 My Email:alamb@hotmail.com City: Alabaster State: Alabama Country: USA

Comments: I am 27 years old and have had 3 laps, 1 6 month round lupron, 1 6 month round zoladex, and now having treatment with herbs and natural progesterone cream. Kudo's on your web page!! Angie

melissa - 04/24/98 23:43:41 My Email:Mel J18904@aol.com City: tampa State: floridia Country: usa

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Linda Slager - 04/24/98 17:31:57 My Email:slager@globalcomputers.ml.org City: london State: Ontario Country: Canada

Comments: I completly understand your situation my story is virtually the same as yours. For me three weeks ago I had a vaginal hysterectomy and that has stopped my continuous bleeding but the pain is still a constant in my life. I would like to talk to other women about this terrible disease. My husband too is a godsend but there are some things that he just doesn't understand. I would like to here back from you! Best Wishes Linda Slager

Penny Stirling - 04/22/98 05:27:43 My Email:stirling@wvadventures.net City: Williamstown State: WV Country: USA

Comments: I am 25 and have had endo for 7+ years. I have had 3 laps w/laser, 1 hysteroscopy, and am currently on my second round of Lupron shots.

Amy Abbuhl-Swindler - 04/21/98 01:33:23 My Email:acas6247@aol.com City: Lawrence, State: KS

Comments: Thanks for sharing your story and for all the support you have given me through alt.support.endometriosis. Thanks to John as well for the MENDO site.

Joy Speicher - 04/19/98 23:26:05 My Email:Jer_Z_Girl@yahoo.com City: Sterling State: VA Country: USA

Comments: I'm 34 and just had my second lap - so far, so good. Interesting website. Hang in there! Joy

Lisa - 04/16/98 22:44:40 My Email:GRANGE01@aol.com City: Forsyth State: GA Country: USA

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Gabrielle/"Opal" - 04/16/98 20:50:47 My Email:Opalette@aol.com City: Taylor State: Michigan Country: United States

Comments: Thank You Carey (and John) for doing these web sites,they truly do help those of us "loners" not feel so alone. Kudos to you BOTH!!!! GOD BLESS! Opal

Betty Goodland - 04/08/98 11:05:31 <