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parents forum Turn despair into hope, a disbility into an ability, adversity into triumph. You are not alone in this ordeal !. Numerous organisations world wide are providing information on DMD and other neuro-muscular diseases. There are also various voluntary health organisations and parents forums which guide the parents regarding proper rehabilitation of these special children. Apart from the physical needs what is important is your child's emotional needs. Give adequate love to your chlid and boost the confidence. MDA(muscular dystrophy association) is a pioneer world-wide organisation in providing information on muscular dystrophies, its causes, treatment and latest research accomplishments in fighting these diseases. It also provides guidance to the parents. ...go there. Parent Project -Muscular Dystrophy
is a place for parents, families, friends and individuals facing
the challenge of DMD to find support, advice and friendship. It's resources include a
Messageboard, two weekly scheduled chats, a DMD email support list and equipment board. Many parents have provided homepages for their DMD children. You can also visit them.
In India IMDA(Indian Muscular Dystrophy Association) is doing a commendable service for muscular dystrophy patients. It was founded by Dr.R.Janardhan Rao, in memory of his late son who was also a victim of muscular dystrophy. You can also avail their services by contacting them. Please help IMDA fight the disease by sending contributions
to this address: AIIMS(All India Institute of Medical Sciences), Genetics unit, department of Pediatrics also provides information and services to neuro-muscular disease. Other muscular dystrophy sites:
You can also join us by adding your child's
homepage and any other related page to this site.
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