Velo-Cardio-Facial Syndrome
ALWAYS UNDER CONSTRUCTION
Links to helpful sites. We are not endorsing any of these sites or persons, merely making as much information as we know about available to anyone who might need it.
NEW Information regarding an upcoming workshop. Estate Planning HHSC sponsered
Here is the latest site we have found. 22Q11.2 The International 22q11.2 Deletion Syndrome Fountaion
Parent oriented conference held in April 2006 Practical Implications for Behavior and Learning. See the link toward the bottom of this page for our summary notes from this conference.
Ability A new area for conferencing. VCFS has a dedicated area. Conference 41. You have to sign up to participate because this site is intended to be a safe haven for children and teens to chat as well.
VCFS Velo-Cardio-Facial Syndrome Educational Foundation
Message Board A second message board dedicated to VCFS
yourhealth.com Some VCFS information but primarily a general health site
VCFS information out of the UK 22Q11
Another VCFS site from the UK More general information
Philadelphia newsletter Last entry was 1999, but there is still some good information
Robert Shprintzen, Ph.D. Contact information
LINKS to more Links
Family Village Family village sites always seem to have good information.
Summary Information.
Easy to read description of the syndrome etc.
Presentation of Atlanta conference material.
Presentation of Atlanta conference material 2006. Sorry, there are a couple of minor formatting errors created when the file was tranferred from PowerPoint to Adobe. The information, nonetheless, is accurate.
Last Modified July 23, 2008
Please e-mail comments or questions to rfiler@cogeco.ca
Please check back soon, we really want to provide you with whatever information we have. We just returned from the 2008 conference in Troy MI. We will post information over the next 3 or 4 weeks.
