As Misty's World Turns


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June 1, 1997

Well, here it is, the start of another hurricane season. Oh joy! All you hear on the TV and radio, and read in the newspaper is about hurricanes right now. If I didn't know better, I'd say the powers that be will be VERY distressed if we don't have a devastating hurricane season. It's like these people physically get off on this crap. You drive around and there is still 60% of the homes and businesses, many of them churches, with tarps still covering their roofs. I sure would hate to go into hurricane season with a tarp being the only covering on my roof.

I have every intention of getting the hell outta here, like I did last year, if a hurricane comes this way. My Mom's nerves can't take anymore storms, and neither can mine. In the last two years I've sat through 3 hurricanes, I don't intend to hang around for more.

June 9, 1997

Stress is not a good thing for anyone, especially someone with Fibromyalgia. It seems like the more stress "we" have, the worse we're effected. This has been like the month from hell for my family and I. My sister and her husband had a very good friend who recently died. Then my brother's best friend had a near death experience. The next thing to happen was the hospitalization of my nephew Brian.

Brian's health is always fragile at best. So when he's admitted to the hospital we all worry. I'm happy to say that he's doing well now, and is looking forward to going back to work this next week. Now my only worry is my Mom. Lately she's been sick, and unable to breath without choking. I got her some stuff today and it seemed to help a little bit. She was finally able to eat. She hadn't been able to eat in 2 days.

Now that everything seems to be winding down I can feel a major fibro attack coming. I've already been worse than usual, but I can tell this is just the tip of the iceberg. I get so sick and tired of being sick...and tired!

June 22, 1997

Mind numbing fatigue, incredible agony and pain seems to rule my day today. I can't sit, I can't stand, I can't lie down. There is no such thing as a comfortable position. I'm so tired that just breathing becomes a battle. Then there are the never ending chest pains. I'd pop a nitro pill if the top of my head wouldn't explode. I find that dealing with the chest pains is easier than dealing with the horrid headache induced by nitroglycerin pills.

My Mom's health hasn't been much better. Usually she's the one taking care of me. But lately I've been struggling to take care of her. Her depression has begun to creep into my own feelings of late. When you're feeling so miserable, and just walking across the floor is a struggle, depression seeps in like flood waters. Slowly creeping into the cracks of your life, then gushing through once you open the door. Nothing seems to keep it at bay.

June 23, 1997

I've noticed that the tires on my wheelchair are getting really worn down. My Mom mentioned the other day that one good pointed object would pop them. I can't honestly remember when I got the wheelchair. With Fibromyalgia, life is a constant blur. But I'd guess the chair is a good 15 yrs old. It seems between insurance, taxes and medicine, there's precious little left over for anything else. But I figured if nothing else, it wouldn't hurt to at least price them. Or so I thought!

After lunch I stopped into one of the pharmacies we use that also sells medical equipment. I asked how much tires for wheelchairs ran. Naturally there was this..."well it depends on the make and model" crap. So I said it was for a Quickie Breezy...(hell of name for a wheelchair huh?) The lady said..."Oh, those are very expensive.....over $50 a tire" One hundred dollars for 2 tires? How much do new inner tubes cost? About the same as the tires I was told. So $200 for new tubes and tires. Good lord!

I figured they were gouging me.....like everything else in drugstores. Afterall, we have to go to 4 different drug stores to get our medicine refilled. Each store charges a different price for each drug. When I got home I got online and started searching online. After an hour I'd found a place that sold tires for my make and model for $19.99 a tire....more like it...and a little less for inner tubes. $65 later I had an order for new tires and tubes, plus shipping. I need a new seat too, but I'm not going there!

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